Tuesday, 31 March 2009
The Respite Directorate of the NSW Dept of Ageing, Disability and Home Care has released:New Directions for Disability Respite Services in NSW: A discussion paper inviting feedback.
From the Introduction:
The New Directions for Disability Respite Services in NSW discussion paper has been developed to assist in the reform and expansion of disability respite services1. It will guide the way future disability respite services are delivered, how people access those services, the types of services provided, the settings in which they are delivered and the development of new respite services across the sector.
Stronger Together: A new direction for disability services in NSW: 2006-2016 commits the NSW Government to expanding existing respite services and building a more flexible and responsive disability respite service system. Also driving the expansion of respite services for people with a disability and their carers/families is the NSW Carers Action Plan 2007 – 2012.
In order to consider different approaches and better ways to deliver respite services, the NSW Department of Ageing, Disability and Home Care (DADHC) has been consulting with a wide range of stakeholders and reviewing national and international research along with key research conducted locally by Interchange NSW and Carers NSW.
This paper broadly outlines the direction we intend to take to reform and expand respite services in NSW. We are now seeking your input to ensure we get the mix and balance of disability respite services right for the people who use them. With your assistance we are hoping to build a respite service system that is more responsive to the individual needs of people with a disability and their carers and families. The strategy will guide future respite service system reform, commencing in 2009/10.
DADHC invites comment and feedback from people with a disability, their carers and families, advocates and service providers. We have included sets of questions as a guide when considering your comments and feedback. The questions are a guide only and all input is very welcome.
Comments are invited to be submitted by Friday 26th June 2009.
Down Syndrome NSW will be making a response, and individuals are encouraged to as well.
Sunday, 29 March 2009
Monday 6th April 2009
9.00 am – 1.00 pm
Ozanam Industries, a subsidiary of the St Vincent de Paul Society, employs more than 100 people with intellectual disabilities. Its business development manager, Rod Silber, said business had fallen 25 per cent in the past year. He urged governments in Australia to follow the lead of the United States, which employs more than 40,000 disabled workers to carry out contracts worth $2.3 billion under the Ability One scheme.
It should be compulsory for government departments to seek a quote from an agency with disabled employees, he said. "How can I expect the Commonwealth Bank to give me work if the damn government doesn't do it?"
Mr (Ian) Terry from the Phoenix Society (in SA) said if people with disabilities lost their jobs it would have a "multiplier effect" on parents and other carers.
Click here for the full report, by Caroline Marcus, and Alan Hollingworth's photo.
National awards were presented to figure skater Ben Southern, author Rosemary Mountfort and swimmer Fiona Strong at Caccia Birch.
Ms Mountfort, from Napier, wrote a book about her life, My Life as I Remember It.
Mr Southern, from Christchurch, was selected to represent New Zealand for the 2009 Special Olympics World Winter Games.
Ms Strong, from South Auckland, won three gold medals at a Special Olympics regional competition in October.
Associate Minister of Disability Issues Tariana Turia said people with Down Syndrome needed to be seen as who they were - authors, swimming champions and neighbours.
Click here for the report and photo.
Saturday, 28 March 2009
While many people with Down syndrome would not live with the severe physical disabilities that are a focus of the article (although some do), their need for long term term support and security is just as real, as is their families' and carers' need for respite, reassurance of their safety, and everyone's right to a life of their own.
Recommended reading, very sobering, but it does offer a lot more than a litany of complaint. The story does not "(grind) to a mournful hope," as Sue Corrigan acknowledges it once would have, as she introduces the campaign for the National Disability Insurance Scheme.
The article does not appear to be available online (yet), but it is well worth reading and will be in newsagents today and tomorrow.
Edit 31/03/2009: The article has now been posted to The Australian's website, here
This is a practical yet thought provoking workshop which aims to challenge perceptions of Down syndrome. It brings the benefit of understanding and experience from both a family and professional perspective. Ways to support families of children who have Down syndrome will be discussed.
Presenters will also outline the impact of Down syndrome on children’s learning. Strategies for home and early childhood settings which assist these children to reach their potential in all developmental areas will be explored.
Presenters: Siobhan Beavis is an Early Childhood Teacher who has worked in a variety of children’s settings. Currently, the director of an inclusive community-based preschool, she is also completing post-graduated studies in Down syndrome. Siobhan’s interest in Down syndrome was prompted 4 years ago by the birth of her son Joel, who has Down syndrome.
Frances Schembri has over twenty years experience working with families who have children with movement difficulties including children with Down syndrome. Frances works with families to help them identify goals for their children. She implements programs in both home and childcare settings.
Date: Thursday April 2, 2009
Time: 6.00pm to 8.30pm
Venue: Learning Links, 12-14 Pindari Road, Peakhurst
Cost: $60 for Learning Links’ members; $65 for non-members of Learning Links
Enquiries and bookings: Phone Dana on 8525 8222. Payment can be made on the phone by Mastercard, Visa and Bankcard.
Genevieve recently directed the short film Be My Brother which took first place at this years Tropfest & featured Gerard O’Dwyer who won Best Actor for his role in the film.
One of the other notable successes of Be My Brother was that it involved people of all abilities behind the scenes who had been involved in Accessible Arts Western Sydney’s creative programs.
Francis & Annie has been funded through MetroScreen's Raw Nerve initiative, and explores what is perceived to be tragic. It stars Tracie Sammut who is a member of Powerhouse Youth Theatre’s Mixed Abilities Ensemble and who has also appeared in the feature film, Clubland and TV series’ All Saints, GP and House Gang.
Mentors on Francis & Annie will include director/writer/actor Craig Anderson (Double the Fist, Life in a Datsun, Review with Myles Barlow), producer Eleanor Winkler (Be My Brother, Motherfish) & cinematographer Jules O’Loughlin (Kokoda & September).
To be considered being involved in the film shoot you need to be available on Saturday May 23rd & Sunday May 24th and be able to get to North Sydney.
To express your interest please contact Alison Richardson on 9251 6499 (ext 5) or firstname.lastname@example.org
Friday, 27 March 2009
NIDA offers weekly drama classes for young people with intellectual disabilities.
Term 2 will advance physical theatre skills as students devise scenes. Discover how to convey meaning to an audience using movement as the key technique for telling a story. Each group will be allocated a bag of props, images, words and music to use as the stimulus to inspire their work.
When: Term 2 starts from 17 May to 28 June and runs on Sundays from 12.00pm to 1.30pm.
Where: National Institute of Dramatic Art, 215 Anzac Parade, Kensington, NSW 2033
Who: For young people 13-20 years.
Cost: $195 per term ($180 for payment before 13 April 2009)
Weekend event - July 2009
Music Theatre for Young People with Intellectual Disabilities- a weekend of music theatre for young people with intellectual disabilities.
Build and develop confidence and stage presence and pratice telling a story through song.
When: Saturday to Sunday 10.00am – 4.00pm, 25 to 26 July 2009
Where: National Institute of Dramatic Art, 215 Anzac Parade, Kensington, NSW 2033
Who: For young people 13-20 years.
Cost: enquiries to NIDA
For both programs:
Contact: phone NIDA Open Program on 02 9697 7626
Access: Accessible venue & toilets
More information: www.nida.edu.au (we found entering "disabilities" in the search box the easiest way to locate the relevant information)
Source: Accessible Arts Newsletter, March 2009 where you will also find a news item about Genevieve Clay and Gerard O'Dwyer and their Tropfest awards, and a short profile of Gerard, with photos.
Towards the end of June 2009, interested stakeholders will be invited to a creative forum that they hope will lead toward the development of a new statewide Accessible Music Program. If you would like to contribute to this initiative, the areas they are looking into are:
1. Finding out what pathways currently exist for people with a disability to pursue their creativity through music in NSW - including both formal and informal training or professional development
2. Talking to NSW musicians with a disability to identify their current practice and how they got there
3. Identifying potential resources (and resource limitations) - human, physical, technological, virtual etc - available to facilitate music development for people with a disability in NSW
For more information please contact Becky Chapman, Arts Development Officer, Accessible Arts on Ph: 02 9251 6499 ext 4 MON, WED only. Visit the website at www.aarts.net.au
Source: National Disability Services Info-e, 26th March 2009
Thursday, 26 March 2009
Wednesday, 25 March 2009
The Preamble reads:
The Essential Questions
In 2008, what are the essential questions that the National Disability Strategy must address?
Do people with intellectual disability have a place in the Australian
Do we value people with intellectual disability as contributing members of
their community, or do we see them as ‘burdens on society’?
Do people with intellectual disability have rights as citizens of Australia, or
are they objects of pity – the recipients of charity and hence to be grateful
for what they get?
In short, what is our perception or expectation of people with disability?
It is acknowledged that perception and expectation are driven by many factors, eg, historical understanding and attitudes of those in authority, and because of this, it is vitally important that those in political power demonstrate leadership.
It is also important that the answers to the above questions are not fine words, but are descriptions of what must happen.
These are not theoretical or ideological questions, they are practical questions that havepractical consequences for people with intellectual disability.
This is not an issue about people with disability. It is an issue about relationships; the relationships that the broader Australian community (represented by its parliamentarians) wants to have with Australians with disability.
And the Executive Summary reads:
The need to develop the National Disability Strategy is evidence that Objects of the Disability Services Act 1986 have not been met: the Act has failed.
This submission considers the needs of People with Intellectual Disability, and makes recommendations for Government to act on them, at all stages of life – through pre-birth, early childhood, school and further education and employment – and in all aspects of life.
Central to the submission are the Articles of the UN Convention on the Rights of Persons with Disabilities, which oblige all States that are Parties to the Convention to actively promote the underlying principles to the Convention.
Those principles include the rights of all persons to make free choices, to be included within mainstream society, and to have their place in society valued.
The 48 page submission examines its priorities under the headings:
Tuesday, 24 March 2009
Sunday, 22 March 2009
A lovely short article by British mother, Heidi Reid, was published on World Down Syndrome Day (yesterday) in the Family Life section of The Guardian. Heidi talks about her expectations of the births of her children, and how different her experience actually was when her second daughter was born with Down syndrome, and some health problems. She unexpectedly drew strength from a song that was popular at the time, concluding:
..... During a rare moment of respite, I found myself sitting alone in my car in the hospital car park, when this song came on the radio. I had heard it before and thought little of it, but suddenly the words bore enough significance to knock me out of my dazed cocoon of grief and send me racing to my daughter's side, desperate to hold, love, feed and fight for her.
Six years on, when I hear that song, I am always reminded of a moment when I stopped thinking about what her disability meant for me, and started to think about what I wouldn't allow it to mean for her.
Click on The Guardian's website here to read the whole piece, and to see which song it was. Scroll down to the second article, Playlist Out of my cocoon of grief.
Almost all of the 200,000 children who will be born with Down syndrome in high income countries during the next decade will survive to adulthood. They will receive knowledgeable medical care, additional educational support and live in societies that have become, and continue to become, more welcoming and inclusive. These children can now look forward to richer and more fulfilling lives lasting in excess of 60 years.
However, without action now, half of the 2 million babies who will be born in low and middle income countries during the next decade will not live for even a few years. For the luckier ones who survive, abuse, neglect and exclusion are too common. Many health and educations systems are ill-prepared to provide knowledgeable care and support for young people with Down syndrome.
Commenting on the new initiative, Frank Buckley, Chief Executive of Down Syndrome Education International said, "This is unjust. Rich countries know how to help people with Down syndrome live increasingly fulfilled lives.
Down Syndrome Education International has already begun to work with families, support groups and NGOs around the world to identify practical ways in which we can help to improve the care given to young people who have Down syndrome and to deliver outreach services. The new fund will support work to reach out to families, support groups, associations, NGOs and governmental organisations on the ground, providing hands-on advice, training and translated resources in low and middle income countries.
If every person who reads this message today gives £50 ($75 or €60), then we would quickly reach this goal and be able to begin transforming the lives of thousands of children with Down syndrome around the world within weeks.
World Down Syndrome Day only comes around once every year. By giving the equivalent of less than £1.00 ($1.50 or €1.20) per week you can help make a difference for people with Down syndrome wherever they live.
You can donate to the Global Education Fund through Down Syndrome Education International, a UK registered charity, by pledging your donation securely online:
Visit http://lnktrack.co.uk/1679991/540592333/53780933/839204/64397/0/t2.aspx and select "Global Education Fund" as the specified purpose of your donation.
Visit http://lnktrack.co.uk/1679992/540592333/53780933/839204/64397/0/t2.aspx and select "Global Education Fund" as the specified purpose of your donation.
It's been on TV news and in newspapers all around the world, so you probably know that US President Obama made a flippant "aside" about Special Olympics on a national TV show a couple of days ago. It wasn't funny (although the TV audience laughed), and there has been a great deal of response. The President has apologised to Special Olympics International President, Tim Shriver - and SO has sensibly taken the opportunity as "teachable" moment for the community at large.
If you are interested in following the debate that has ensued, here is a selection of starting points:Special Olympics
Disability News (Patricia E Bauer)
Blog commentaries:Bad Cripple
Saturday, 21 March 2009
Events around NSW are listed here.
Here is a great story from the Maitland Mercury, about the welcome response of a large bureaucracy to a family and community's persistent advocacy for real child's very real needs to be met. This post is the story of the difficult process of getting to this point for Sarah's family and supporters in her local community and school. As her mother Sue says, Sarah's face says it all, in Cathy Bowen's glorious photo:
Mal Kearney, Maitland Mercury, 19/03/2009
Sarah Coutts will stay at her beloved Martins Creek School – at least until the end of 2010.Her mother, Sue Coutts, has fought a dogged battle for at least two years with the Department of Education, which wanted to move the 12-year-old with Down syndrome to a high school in Maitland or Dungog.
But the department has relented and this week sent a letter to Ms Coutts confirming her place at the school.
A frail Sarah did a victory dance when she received the news. Hunter-based MLC Robyn Parker, who has advised and represented Ms Coutts and Sarah for several years, said credit for the decision to allow Sarah to stay went to the Maitland Mercury and to people who had written letters to the editor and to authorities to support Sarah’s cause.
“Thanks must go to the Mercury and the community for the letters and support,” Ms Parker said. “This is a commonsense decision at last.”
Pleas to allow Sarah to stay at the school until she was 16 went to the education minister Verity Firth and Premier Nathan Rees, but they had gone unheeded until this week.
Sarah’s circumstance for 2011 and beyond will be reviewed next year but, for now, she will continue to go to school with 8-year-old sister Connie at the small school a few minutes away from her home.
Sarah has heart and lung conditions and a fragile immune system that makes her vulnerable to illness and infection.
There was medical opinion that travel to a high school would have put Sarah’s health at risk.
“Connie is very good with her and can help her here at school,” Ms Coutts said outside the school yesterday.
“I live five minutes away and can come and get her if she is tired or ill.
“This wouldn’t be possible if she was in a high school.”
Asked if she was happy with the decision to let her stay, Sarah said: “Yes. (I can) stay with friends.”
Friday, 20 March 2009
A low cost PC is now within reach of Centrelink customers through a partnership between Centrelink and WorkVentures. Centrelink customers can now purchase their own professionally refurbished, internet ready, Pentium 4 PC pack which includes Windows XP Pro, Office XP and free phone technical support from just $250 plus delivery. The low cost PC offer is available to all Centrelink concession card holders.
The low cost PC offer should be suggested to current Centrelink customers, particularly those families with school-age children, older Australians and newly arrived migrants. Having access to a PC with internet access makes it easier for current Centrelink customers to do their business online with Centrelink and this should be encouraged.
People interested in purchasing a low cost PC can contact their local Centrelink office or phone WorkVentures on 1800 112 205 or visit WorkVentures
Thursday, 19 March 2009
Fri 20th March, Wollongong Annual Black Tie Ball
Click here for details and flier
Last day for tickets - book today! Book online (click here)
Saturday 21st March, Northern Beaches
"Get Down and Get With It" Walkathon
4.8km from Dee Why RSL to Narrabeen Tramshed. 11:30am
Click here for flier and Registration Form
Contact Gabrielle, Special Olympics, (Sydney Northern) 9970 7370 or email@example.com
Saturday 21st March - morning tea at The Cafe, Narrabri (NSW) - just come and join us!
Sat 21st March, Inner West Sydney
"T4321" Morning Tea - Fernwood Women's Health, Haberfield
Contact 9798 8788
Tupperware for T4321
Date: Friday 27th March, 2009
Venue: 3 Goodlet Street, ASHBURY NSW 2193
Please RSVP by Wednesday 25th March
There is a secure play area for children, so children are welcome
For enquiries or to RSVP please contact Nerida on 02 9716 0787 or 0488 990 326
Afternoon Tea 4 321
Date: Saturday 28th March, 2009
Venue: Concord Baptist Church,1-3 Carrington Street, North Strathfield
For further information please contact Heather Craven on 02 9743 3773
27th - 29th March, Mid North Coast (Milbrodale)"Tuff Trucks" Fundraising Challenge Click here for details
Sun 29th March, Inner West Sydney (Five Dock)
"T4321" Morning Tea - special guest Gerard O'Dwyer, Best Actor Winner, Tropfest.
All Hallows Catholic Church, 2 Halley Street, Five Dock (Hall next to the church). 11.00 am
Sun 29th March, South West Sydney (Wattle Grove)
Market Day, 9am - 4pm, Stalls, sausage sizzle, face painting, Easter show-bags, raffle, chocolate wheel and auction - lots of prizes to be won.
Wattle Grove Community Centre at Village Way, Wattle Grove
- More about T4321 & World Down Syndrome Day, 21st March 2009 - register your event, request materials or find out more - email firstname.lastname@example.org
Wednesday, 18 March 2009
We've added Freddie's blog to our Blogroll (in the right hand column) to make it easier to keep up with it.
And if you have teens or nearly teens, and haven't checked in to Living with Max (also in our Blogroll) lately, Sandy Lewis's latest musings will suggest that it can be distressingly like living with any teenager ..... And of course she's right - Max is a great actor - did you see him Trial and Retribution on ABC 1 a couple of weeks ago?
Tuesday, 17 March 2009
If you are in Queensland, you might be interested in this opportunity to hear Diana Kerr
Disabilities and dementia: a workshop for people with disabilities or dementia, carers and healthcare professionals working in dementia care
Alzheimer’s Australia NSW will hold a full-day seminar on disabilities and dementia with renowned specialist, Diana Kerr - a leading figure in the UK in the area of dementia and learning disability, and a Research Fellow at the University of Edinburgh.
A number of local experts will join Diana Kerr and make the seminar an essential day for families and professionals interested in the field.
Dr Seeta Durvasula from the Centre for Developmental Disability Studies, University of Sydney, will speak on distinguishing a deterioration in intellectual ability from dementia
Christine Regan from NCOSS will describe a personal journey through the acute health system
Marti Travers and Tammy Gaylard work at the Sylvanvale Foundation and provide an update of a clinical trial involving one of their clients
Pam Rogers will share her palliative care experiences at Sunshine Homes
Date: Monday 6 April 2009
Venue: Parramatta Leagues Club
Address: 13 -15 O'Connell St Parramatta, NSW
Time: 8.30 for a 9:00am start
Cost: $85 for health professionals, or $55 for people with disability or dementia, carers or support organisations. Registration includes lunch.
Places are limited so please book early
For further information or to register, contact us now:
email email@example.com or phone Education Services at Alzheimer's Australia NSW on (02) 8875 4686
Monday, 16 March 2009
A (paid) carer kicked a severely disabled woman out of bed and left her to walk around a group home unattended in the middle of the night while the carer changed into her own pyjamas, climbed into the woman's bed and went to sleep.
The residential carer was discovered in the morning, tucked up under a doona, by another support worker who was to replace her on the morning shift. The government-run home, in Sydney's north, houses between four and six disabled people at a time.
The NSW Department of Disability, Ageing and Home Care conducted an external investigation into the incident, which happened late last year, after the case worker who arrived for the morning shift found the disabled woman in the kitchen of the house.
Many readers will echo Andrew Constance's judgement:
The Opposition spokesman on disability, Andrew Constance, said it was probably an isolated incident, but the worker should not be allowed to return to overnight shifts.
Click here to read the full report, by the SMH's Alexandra Smith.
There may be a link between children’s behaviour, their ability to process sensory information and understand their world and communicate - resulting in them displaying a range of behaviors such as big responses (tantrums) to little things; becoming overly frustrated, stressed, upset or angry; physical responses in interactions with peers and carers and / or avoidance of certain situations and activities.
Karobran Playtherapy is offering a series of 3 workshops addressing these concerns:
1. Sensory Processing
Tues 24th March (RSVP by 19th March)
2. Sensory Seeking or seeking Attention?
Tues 31st March 2009 (RSVP by 24th March)
3. Total Communication
Wed 29th April 2009 (RSVP by 22nd April)
Facilitators: Karobran Playtherapy – Eurella Community Services
Location: 2 Eurella St, Burwood
Time for each event: 6pm – 9pm
R.S.V.P and further information: 9747 4810 (Tricia or Monica) Mob: 0419 448 322 (Tricia) Email: firstname.lastname@example.org
Funded by the 2007 DADHC Enhancing Capacity Grants
Almost simultaneously (but just a little later), a similar study was published by Patricia Jacobs and her Scottish colleagues.
It was regarded as a turning point in cytogenetics – the first human condition definitely attributable to aneuploidy (an unusual number of chromosomes).
...... almost a century elapsed between the clinical description of DS and its association with trisomy 21. When Jerome Lejeune associated DS with trisomy 21 in 1959, human cytogenetics was still maturing as a science; thus, Lejeune's discovery represents a landmark in the field.
Trisomy 21 was the first human condition proven to be caused be aneuploidy (an unusual number of chromosomes), and discoveries about other aneuploidies follows quickly.
This key discovery is important for people with Down syndrome, but has had great benefits for others as well:
Recognition of Trisomy 21 has allowed scientists to look for causes of individual problems – what is genetic in DS, what is not, how intervention might bring benefits to either genetic or non-genetic traits.
Elucidation of other conditions for which genes occur on 21st chromosome has helped develop understanding of Alzheimers disease and leukaemia, for example.
People with DS are known to be at much lower risk of solid tumours than most of us – working out what is protective about chromosome 21 is helping to develop an understanding and therapies for solid tumour cancers.
Prof Jerome Lejeune continued to work in the field of cytogenetics, to great acclaim, until his death in 1994. He expressed great disappointment that his discovery had been used to identify Down syndrome prenatally for the purpose of terminating pregnancies. The search for the cause of Trisomy 21 continues, as does work to ameliorate harmful effects.
World Down Syndrome Day, celebrated internationally on 21st March, will this year focus on the anniversary of Lejuene's discovery.
Saturday, 14 March 2009
When: Friday 20 March 2009, 9am—1pm
Please RSVP by Wednesday 18 March by contacting Stephanie on 9846 1517 or email@example.com
Bring your colleagues and clients and come for a tour of the Cumberland Retreat and enjoy some light refreshments.
Click here for the flyer.
Friday, 13 March 2009
- a professional development seminar for adult disability services workers
Health and communication are two of the major issues impacting on the quality of life that people with Down syndrome can enjoy.
This seminar will be relevant to professionals working to support people with Down syndrome in residential, respite, recreation, and employment services, and to anyone who works closely with people with Down syndrome, wishing to update their knowledge.
10.00 am - 3.00 pm
Wednesday 8th April, 2009
Dubbo RSL Club
Cost per person: $132 - non-members; $99 – DS NSW members
• What is it?
A half day inservice with a basic introduction to oral diseases, oral care (Special Needs Dentist) & diet (Dietitian), including a hands-on workshop.
• Where is it?
Westmead Hospital, Education Block.
• When is it?
Every 4th Thursday, 0900 -1230 hrs.
(23RD April; 28th May; 25th June)
• How much is it?
Free! (morning tea included)
• Would you like to book?
Myrna Barcelon (02) 9845 5524 or Siva Premkumar (02) 9845 7019
Fax: (02) 9845 5740
*Certificates of Attendance will be provided.
Click here to download the official brochure.
Thursday, 12 March 2009
As the reporter said, Danny has been carving up the water for some years now. Here he is as a 12 year old, starting to make his mark on swimming:
And here is his medal haul from the 4th International Down Syndrome Swimming Championships in Portugal in December (where he captained Team Australia):
Daniel currently holds 13 World Records. He lives in the NSW Southern Highlands, and trains at Picton.
Previous posts on the 4th International Down Syndrome Swimming Championships - click here.
In our library and on the web there are a few good resources for obtaining visuals or making your own.
Teaching by Design uses the computer and home made craft items to create visuals and make school work more visual. A CD-ROM template is included. Visual Strategies for Improving Communication: practical solutions for schools and home is a good source of practical ideas. Making Visual Supports Work at Home and in the Community (a simple book created for people with autism, but it works well for people with Down syndrome as well.)
Wednesday, 11 March 2009
Waverley Council presents a round-table discussion and presentation on sleep disorders and their impact on behaviour and learning in children with special needs.
Tuesday, 21 April 2009
Free (spaces are limited)
Waverley Childcare Centre, Clementson Park,
Newland Street, Bondi Junction
Childcare and light refreshments will be provided
The session will be facilitated by Dr Dimitrios (Jim) Papadopoulas, whose qualifications and experience include
- FRACP in General Paediatrics
- Completed sub-specialty training in Paediatric Sleep Medicine
- In 2003 established Australia’s first multi-disciplinary Sleep Clinic specifically for developmentally delayed children (Children’s Sleep Medicine Service)
- In 2004 established the only private hospital Paediatric Sleep Unit in NSW
Currently directs the Paediatric Sleep Disorders Unit at St George Private Hospital
- Sleep problems are common in children of all ages.
- Disordered sleep affects mood, behaviour and cognition and can adversely impact on the whole family.
- Childhood sleep disorders are relatively easy to diagnose and treat, leading to measurable social,
behavioural and neuro-cognitive benefits for children and their families.
- Brief case presentations and digital sleep study data will be used to illustrate sleep disorders and help explain polysomnography (sleep studies).
RSVP by 17 April 2009: Ph. Seak on 9386 7938
Click here for a flier
See the new interactive In Control Australia website now at www.in-control.org.au.
- Disability News and In Control News;
- Details of coming events and speakers on self-directed funding and person-centred tools;
- Forums for discussion;
- Links to other websites with research, information, and tools on self-directed funding.
- A document library;
- Publications and submissions by In Control Australia;
- Presentations you can download about In Control Australia and self-directed funding.
Contact Name: Samantha Jenkinson
Contact Phone: 0412 887 674
Contact Email: firstname.lastname@example.org
Tuesday, 10 March 2009
Diana Heggie, SCOPE's CEO, was interviewed for ABC radio’s Conversation Hour with Beverley O’Connor on Tuesday, January 20.
Click here (takes a little while to download) to listen to the wide ranging interview, covering the International Convention on People with Disabilities; self-directed funding; impact of the economic crisis; accessibility of community facilities; some aspects of inclusive practices.
Click here to read Annabel's blog about her 10 year old son Freddie, who has Down syndrome. It's very new - just one entry so far, but there will be more to look forward to.
Monday, 9 March 2009
For the Good Times, Topeka Capital Journal, 8th March 2009, by Rick Dean
Click here for other posts related to resources on Down syndrome and dementia, and a seminar with Diana Kerr in Sydney next month (6th April, 2009)
NSW Dept Ageing, Disability and Home Care (DADHC) has funded 44 placements in two new day programs for the Metro North Region in 2008/09. These are part of NSW Government’s ten year ‘Stronger Together’ plan. The new programs are Life Choices, offering 30 places and Active Ageing offering 14 places.
Of these 44 funded places, 8 of the Life Choices and 4 of the Active Ageing placements will be Disability Assistance Packages (DAP). DAP funding targets individuals living in the community with parents/carers over the age of 60 (or 45 for Aboriginal carers).
These two programs have a greater emphasis on user choice, age appropriate service and planning for changing needs as people age. Funding will be provided for a minimum 18 hours a week. The level of funding for each participant will depend on the level of support they require eg. moderate to very high (exceptional).
Life Choices is aimed at 25 to 54 year olds. The Program aims to:
- maintain participants’ capacity to participate in community life;
- enhance participants’ independence;
- facilitate and promote opportunities and pathways to ensure participants benefit from ongoing learning and personal development;
- support participants to develop and sustain social interactions and participate in the community; and
- provide a respite effect for their families and carers (DAP).
Active Ageing for people aged 55 to 64 or those with early onset ageing.The Program aims to:
- promote active and healthy older life;
- maintain participants’ capacity to participate in community life and remain independent;
- promote opportunities for participation in meaningful activities and ongoing personal development;
- support participants to develop and sustain social networks and interactions;
- facilitate pathways and future planning for older life; and
- provide a respite effect for families and carers (DAP).
DADHC, Northern Metro Office, PO Box 1746, Hornsby Westfield NSW 1635
by 13th March 2009.