Sunday, 31 January 2010
Images from our archives
Saturday, 30 January 2010
More on TV campaign featuring Gerard and Maria
The campaign goes to air on Sunday 31st January. It will be aired on Channel 7, 9, 10 in metro areas, SBS across the State, and Southern Cross Ten network in regional areas. It will be shown during many top rating programs, including new series.
On Sunday 31st you might spot it during these programs -
Channel 7: Weekend Sunrise (7-10 am) and Australian Open (Finals) between 7 and 11 pm
Channel 9: Weekend Today between 7 and 10 am; 1 hr special series between 11 am and 3 pm; One day cricket between 2 and 7 pm
Channel 10: House (New Series, Season 6) between 9 and 10 pm
And on Channel ONE and SBS between 11 am and 6.30 pm
What does it mean to have an intellectual disability?
A one day workshop presented by John Armstrong of Foundations Forum
Date: Monday, 8th March, 2010, 8.30 am – 4.30 pm
Venue: North Ryde RSL Club, North Ryde
Cost: $125 per person (includes workshop package, morning/afternoon tea and lunch). Some discounts are available.
Registrations close on 26th February, 2010. Note: It is essential to register
Contact: foundationsforum@yahoo.com.au
Friday, 29 January 2010
Podcasts - good listening to go
The Parentwise series is "written and presented by people who have had many years working with children with a disability, these audiocasts cover such diverse topics as building networks of support, managing your child's behaviour, building their resilience, assistive technology options, respite, mealtime issues, your child's growing awareness, siblings, and looking after yourself and your partner."
A great innovation!
DS NSW 2010 Calendar - a few remain
You can order online at www.dsansw.org.au
or download an order form from the website to return by fax or post,
or call Angela, on 9841 4409
Thursday, 28 January 2010
Rozelle Neighbourhood Centre: Creative Leisure Classes
for people with a disability in 2010
Rozelle Neighbourhood Centre runs a variety of creative leisure classes for people with intellectual disabilities. The programme is open to people with all levels of ability. All classes are tutored by arts professionals and assisted by a trained support worker.
2010 Classes (Term 1 from 1st February) include:
- Creative Arts
- Music
- Drama - Ever After Theatre Company
General information
When: Classes are run in 4 eight week terms per year.
Where: Rozelle Neighbourhood Centre, 665A Darling St, Rozelle.
Contact: Sue Johnston on (02) 9555 8988
leisure@rnc.ngo.org.au
www.rozellecentre.org.au
Relationships and Private Stuff - workshops
Chatswood 10.30 AM – 1.30 PM
Friendship and Dating Skills (25+ years)
Saturdays 13th and 20th February 2010
Chatswood. 3 PM – 6PM
For all enquiries call 0416 122 634
email lizdore@bigpond.com
www.relationshipsandprivatestuff.com
Library Thursdays: Back to School
Wednesday, 27 January 2010
World Down Syndrome Day 2010
World Down Syndrome Day 2010 is being celebrated on Sunday 21 March. The date signifies the fact Down syndrome is caused by nothing more than an extra chromosome - 3 copies of the 21st chromosome (or ‘3-21’).
Look out for these familiar faces .....
DS NSW information events - 2010
Healthy Adulthood
A workshop for parents and family carers of adolescents and adults with Down syndrome
10:00am - 3:00pm
Saturday 20th February 2010
Kiama Leagues Club
139 Terralong Street, Kiama
Speaker: Jill O’Connor - Down Syndrome NSW
Registration closes 12th February 2010
Click here for a detailed flyer and registration form
All enquiries and registration: contact Siena O’Brien on carereducation@dsansw.org.au or phone 9841 4411
____________________________________
An information seminar for families is scheduled for
10:00am to 3:30pm
Saturday 13th March 2010
Orange Ex-Services Club,
231-243 Anson Street, Orange
Topics to be covered are currently being decided in consultation with families from the region.
Seminars will be presented by DS NSW information and support staff
____________________________________
Events are also planned for Sydney and Tamworth in the first half of 2010 - dates and venues to be confirmed
____________________________________
For details about DS NSW information events for teachers and for other disability services professionals scheduled for 2010, please contact Siena O’Brien, phone: 9841 4411 or email:
carereducation@dsansw.org.au
and/or consult our website: www.dsansw.org.au under the “What’s On?” menu
Thursday, 21 January 2010
Library Thursdays: Down Syndrome: When to Worry About Mental Health and What To Do About It!
Tuesday, 19 January 2010
Special Olympics - National Games, Adelaide 2010
Christopher Bunton, gymnast, from the Mt Druitt Standard, and from the Penrith Star
Monday, 18 January 2010
Gabrielle Clarke: Australia Day Ambassador
Gabrielle talked about her busy year in 2010 with the Cowra Community News, and there are more detials about her achievements here, on her official Australia Day Ambassador page.
Friday, 15 January 2010
Debating "cure" and "mitigation": Michael Bérubé weighs in
A recent research report from Stanford has reignited an ongoing debate about the potential for curing Down syndrome the implications of such a possibility (it's never very far beneath the surface). Michael Bérubé has weighed in with a response to a New York Times article, and particularly to the comment it has generated. It a lengthy post, and has itself generated a good deal of comment - well worth the time to read if you up for a thoughtful discussion that is raised regularly. Here's a sample:
....... When I’m in one of my black-humor moods, the kind into which I was plunged last night upon reading that comment thread, I tend to say, “the reason all the T-shirts say ‘RACE FOR THE CURE’ is that ‘RACE FOR THE REASONABLE ACCOMMODATION’ doesn’t fit neatly on one side of the shirt.” By which I mean, of course, that the discourse of the cure is everywhere, and the discourse of reasonable accommodation, so far as I can see, is understood only by those people who already know something about disability, US disability law, ramps, kneeling buses, in-class paraprofessionals, and job coaches. It’s almost like a kind of sign language, spoken only by those who are already disability-literate.
Click here to read it in full.
Just back from an expedition ..... a short summer read
Thursday, 14 January 2010
Library Thursdays: Onward Crispy Shoulders:
Wednesday, 13 January 2010
Few carers abandon paid work, says study
.... The study, by Andrew Leigh, professor of economics at the Australian National University, found that care-giving has little effect on life satisfaction and only a small negative impact on employment. Other reports have found huge effects.
Read the news article online here, and the full text of the research report here.
Interview with The Specials director
Tuesday, 12 January 2010
Web seminars from DownsEd
After the end of February (they are aware of our summer holiday habits!), new times will be introduced to be more convenient and accessible for Australia and New Zealand.
Visit the website and online store for information about the format, content, cost, times and booking process.
Monday, 11 January 2010
New, from Ozzie's Dad: The Phenomenal, Fabulous, Fantastic Ds BlogBlog!,
....... originally appeared on other blogs – they were written by parents of children who have Ds. These particular posts have been selected for inclusion in the Compendium of Wisdom because they are exceptional – the best of the best. They contain hard-won knowledge about pain and love, pearls of truth as valuable as any equation contained in any parchment that ever graced the shelves of the Library of Alexandria.
Sunday, 10 January 2010
Child with Down syndrome receives liver transplant
Thursday, 7 January 2010
Library Thursdays: New Zealand Down Syndrome Journal & UK Down's Syndrome Association Journal
Included are the following articles:
- Down Syndrome and Dementia by Diana Kerr (reprinted from Voice Winter 09)
- Managing Sleep Problems in Children with Down Syndrome by Christel van Baalen. (Looks at behavioural as well as physical sleep problems)
- Sensory Processing and Disorder in Down Syndrome compiled by the editors. (Lists all the common sensory problem areas and describes the signs of each one, how to imagine what it is like and briefly discusses what to do about it.)
And Down Write Brilliant! A magazine for and by people with Down syndrome Vol 2. There are also reviews of resources, the Proloquo2go used with the iPod touch and Swimwear.
It is quite a nice newsletter with much that would be of interest to New South Wales families.
The articles included in the UK DSA's Journal are:
- Tell it right, start it right (about telling parents the diagnosis of Down syndrome)
- Down's syndrome and autistic spectrum disorder/dual diagnosis
- Ask IPSEA: Transfer from Primary to Secondary school
- Charlie moves to a home of his own (an article about a 25 year old man with Down syndrome and OCD who successfully moves out of his parents' home.)
- Puberty and adolescence
- Through the eyes of Chris Sampson by Charlotte Nutting who worked with a young man with Down syndrome as part of her nursing and social work degree.
- Whatever happened to Elizabeth Joy? by Caroline Philps (an update to the life story depicted in the books: Elizabeth Joy: a mother's story and 'Mummy why have I got Down's syndrome?' (available from our library))
- Otto wants to go to Amsterdam by Lucy Baxter
- Melody by Rosie Cross
As well there are personal stories and local news.
There are many other newsletters from other countries in our library. Many are older but we have the latest newsletters from the US NDSC, Canadian DSRF, Ireland, Argentina (in Spanish) and Germany(Leben mit Down-Syndrom in German).
If you'd like to read any of the articles listed above or borrow anything else, email us or call.