tag:blogger.com,1999:blog-5794391632872351899.post4226640432044490056..comments2024-03-26T11:37:32.269+11:00Comments on Keeping Up with Down Syndrome NSW: Down and out in public health care limbo: letter to the editorDown Syndrome NSWhttp://www.blogger.com/profile/01412576907897527170noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-5794391632872351899.post-86464055107006553012010-06-23T15:46:50.982+10:002010-06-23T15:46:50.982+10:00She certainly does deserve better - it is not acce...She certainly does deserve better - it is not acceptable that supported accommodation operates in crisis mode - that there is never any long term planning and careful transitioning from one 'home' to the next.Fiona Placehttps://www.blogger.com/profile/09204083758498735797noreply@blogger.comtag:blogger.com,1999:blog-5794391632872351899.post-90212318392533783322010-06-23T09:21:51.729+10:002010-06-23T09:21:51.729+10:00I hope you will find that this feisty and wonderfu...I hope you will find that this feisty and wonderful woman who has blessed others all her life will find friends in her new hostel, and bless them as well. After all your struggle to find help, I hope you can accept what cannot be changed, stay on top of things with the staff, and become part of the Team caring for her. We had a son with Down syndrome, and were challenged for years with finding the best for him. (See Jeff's story in "Journey With Jeff; Inspiration for Caregivers of People with Special Needs" by Sybil Y. Reisch, available at Amazon.com) I wish the best for your sister, and everyone who cares for her!Sybil Reischhttps://www.blogger.com/profile/08611718391239013067noreply@blogger.com