tag:blogger.com,1999:blog-57943916328723518992024-03-14T15:38:15.181+11:00Keeping Up with Down Syndrome NSWDown Syndrome NSWhttp://www.blogger.com/profile/01412576907897527170noreply@blogger.comBlogger4422125tag:blogger.com,1999:blog-5794391632872351899.post-43544406503010162702019-07-11T15:57:00.000+10:002019-07-11T15:57:37.765+10:00Weekend Reading<br />
If you haven't already got a copy of Fiona Place's fantastic book <b>Portrait of the Artist's Mother </b>you can now read the first chapter online via the link below.<br />
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<span style="font-size: large;"><a href="https://www.book2look.com/book/RCZBka3eTZ" target="_blank">Read the first chapter link</a></span><br />
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<a href="https://1.bp.blogspot.com/-WQ4bYKHlgj8/XKF1xmMEViI/AAAAAAAAI1g/k4vucw2g1wYcX9xqitLZSbwHcqpkbGZjACPcBGAYYCw/s1600/318.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" data-original-height="205" data-original-width="134" height="200" src="https://1.bp.blogspot.com/-WQ4bYKHlgj8/XKF1xmMEViI/AAAAAAAAI1g/k4vucw2g1wYcX9xqitLZSbwHcqpkbGZjACPcBGAYYCw/s200/318.jpg" width="130" /></a></div>
<span style="font-family: inherit;">The book has also been reviewed by <b>Selena Ewing </b>in <i><b>Mercatornet</b></i></span><br />
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<span style="font-family: Georgia, Times New Roman, serif;">"<span style="color: #222222;">This joyful and deeply moving book interlaces the many aspects of Fiona's and Fraser's lives to craft a compelling story. It leaves many varied imprints on the heart of the reader. It is not difficult to move through the short chapters, and wonderful lessons are learned through Fiona's skilful storytelling."</span></span><br />
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<span style="color: #222222; font-size: 16px;"><a href="https://www.mercatornet.com/features/view/portrait-of-the-artists-mother/22620" target="_blank"><span style="font-family: inherit;">Read Selena's review here</span></a></span>Down Syndrome NSWhttp://www.blogger.com/profile/01412576907897527170noreply@blogger.com0tag:blogger.com,1999:blog-5794391632872351899.post-40935234268780635082019-07-04T15:10:00.001+10:002019-07-04T15:10:32.435+10:00Estate Planning SeminarDown Sydrome NSW will be hosting an Estate Planning Seminar in August.<br />
The presentation will cover a number of important topics such as:<br />
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<li>Wills</li>
<li>Estate Plans</li>
<li>Guardianship</li>
<li>Powers of Attorney</li>
<li>Testamentary Trusts and Special Disability Trusts</li>
<li>Centrelink issues</li>
<li>Managing the interests and financial arrangements of family members</li>
<li>Using a 'memorandum of wishes to achieve intended outcomes</li>
<li>Costs associated with these types of arrangements</li>
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<b>Presenter:</b> Jonathan Harris, Director at Harrison Friedman Lawyers. He has over 30 years experience Estate Planning, Business Law and Commercial Property transactions.<br />
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<a href="https://1.bp.blogspot.com/-z3cur4uOMwM/XR1zIY3pbjI/AAAAAAAAI3k/y__QE2idcOYqEnbtjqpx7T-5bGABfNdIQCLcBGAs/s1600/JonathanHarris_col-2.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" data-original-height="121" data-original-width="361" height="107" src="https://1.bp.blogspot.com/-z3cur4uOMwM/XR1zIY3pbjI/AAAAAAAAI3k/y__QE2idcOYqEnbtjqpx7T-5bGABfNdIQCLcBGAs/s320/JonathanHarris_col-2.jpg" width="320" /></a><br />
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<b>Date:</b> Wednesday 14 August<br />
<b>Time: </b>6pm - 8pm<br />
<b>Venue:</b> KPMG Offices, 300 Barangaroo Ave, Sydney<br />
<b>Bookings: </b><a href="https://53785.thankyou4caring.org/participation/up-club/event-calendar" target="_blank">Online registration here</a><br />
<b>RSVP:</b> Monday 5 August 2019<br />
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For more information call DS NSW 9841 4444Down Syndrome NSWhttp://www.blogger.com/profile/01412576907897527170noreply@blogger.com0tag:blogger.com,1999:blog-5794391632872351899.post-28728475953612766062019-07-04T12:50:00.000+10:002019-07-04T12:50:15.125+10:00AAT NDIS Decision Digest<div class="separator" style="clear: both; text-align: center;">
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<span style="font-family: Georgia, Times New Roman, serif;">The <b>Winter 2019</b> edition is now available. This digest provides summaries of Administrative Appeals Tribunal decisions abour the NDIS. It is prepared by the Living with Disability Research Centre at La Trobe University. Always good reading.</span><br />
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<span style="font-family: Georgia, Times New Roman, serif;">The issue highlights the following</span><br />
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<li><span style="font-family: Georgia, Times New Roman, serif;">The need for a proper and balanced use of operational guidelines</span></li>
<li><span style="font-family: Georgia, Times New Roman, serif;">Downsides of flexible use of funding</span></li>
<li><span style="font-family: Georgia, Times New Roman, serif;">The health system and the NDIS interface</span></li>
<li><span style="font-family: Georgia, Times New Roman, serif;">The importance of impairment</span></li>
<li><span style="font-family: Georgia, Times New Roman, serif;">Availability and access do not affect ‘availability’ of treatment</span></li>
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<a href="https://www.latrobe.edu.au/lids/resources/aat-ndis-decision-digest" target="_blank">PDF free to download</a><br />
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<span style="color: #666666; font-family: Georgia, Times New Roman, serif; font-size: large;">LiDS Seminar series</span><br />
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<span style="font-family: Georgia, Times New Roman, serif;">Staying at La Trobe University, next week, <b>Wednesday 10 July</b>.</span><br />
<span style="font-family: Georgia, Times New Roman, serif;">Two seminars that you can join live via video link </span><br />
<a href="https://www.latrobe.edu.au/events/all/living-with-disability-research-centre-july-2019-seminar" target="_blank">More information here</a><br />
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<span style="font-family: inherit;"><b>3pm </b>- Dr Ilan Wiesel: <b><i>Finding the mainstream city: the ambiguities of 'mainstream participation' by people with intellectual disability</i></b></span><br />
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<span style="font-family: inherit;"><b>4pm </b>- A/Prof Karen Soldatic & Dr Michelle Fitts: <b><i>Sorting myself out of the system: Social sorting and the disability income support system for Indigenous Australians living with disability</i></b></span><br />
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Down Syndrome NSWhttp://www.blogger.com/profile/01412576907897527170noreply@blogger.com0tag:blogger.com,1999:blog-5794391632872351899.post-92058762175959969222019-07-02T14:53:00.000+10:002019-07-02T14:53:03.792+10:00NDIS Price Guide Revised<span style="font-family: "georgia" , "times new roman" , serif;">The pricing in the <b><span style="color: #999999;">Support Catalogue</span> </b>has now been amended so that the group rates do indeed increase. The most accurate version of the<b> Support Catalogue </b>is now <b>1.1.</b></span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;"><a href="https://www.disabilityservicesconsulting.com.au/resources/201920-pg-2?utm_source=DSC+Contacts&utm_campaign=4da6156f01-EMAIL_CAMPAIGN_2017_09_05_COPY_02&utm_medium=email&utm_term=0_153f43591e-4da6156f01-66328147&mc_cid=4da6156f01&mc_eid=afe0edc4ef" target="_blank">Major Changes to the New Price Guide</a> published on <i>Disability Services Consulting </i>website.</span><br />
<span style="font-family: "georgia" , "times new roman" , serif;">This article provides some clarification regarding adjustment to individual participants available funds which will not include the TTP (Temporary Transformation Payment) and more. </span><br />
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<span style="color: #999999;"><b><span style="font-family: "georgia" , "times new roman" , serif; font-size: large;">TTP Defined</span></b></span><br />
<span style="font-family: "georgia" , "times new roman" , serif;"><span style="color: #999999;"></span></span><span style="font-family: Georgia, "Times New Roman", serif;"><span style="font-family: Georgia, Times New Roman, serif;">Regarding the <b>Temporary Transformation Payment</b> - only registered providers can claim the TTP. To be eligible for the TTP providers are required to do the following</span></span><br />
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<li><span style="font-family: Georgia, "Times New Roman", serif;">publish their service prices;</span></li>
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<li><span style="font-family: Georgia, "Times New Roman", serif;">list their business contact details in the Provider Finder and ensure those details are
kept up-to-date; and</span></li>
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<li><span style="font-family: Georgia, "Times New Roman", serif;">participate annually in an Agency-approved market benchmarking survey.</span></li>
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<span style="font-family: Georgia, "Times New Roman", serif;">To continue reading about the TTP go to pages 12-13 in the <a href="https://www.ndis.gov.au/providers/price-guides-and-information" target="_blank">Price Guide 2019-2020</a> Download PDF or Word document.</span><br />
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<b><span style="color: #999999;"><span style="font-size: large;"><span style="font-family: Georgia, "Times New Roman", serif;">Health Supports & the NDIS</span></span></span></b><br />
<span style="font-family: Georgia, "Times New Roman", serif;">The Disability Reform Council has published a communique from its most recent meeting and a <a href="https://www.dss.gov.au/sites/default/files/documents/06_2019/attachment-drc-communique-fact-sheet-health-related-supports.pdf" target="_blank">Health Related Supports Factsheet</a>. The factsheet provides some good news for people who use CPAP and BiPAP machines and other "</span><span style="font-family: Georgia, "Times New Roman", serif;"><span style="font-size: small;"><span style="left: 120.04px; top: 422.533px; transform: scaleX(1.00036);">disability</span><span style="left: 440.083px; top: 422.533px;">-</span><span style="left: 446.683px; top: 422.533px; transform: scaleX(1.00295);">related</span><span style="left: 513.683px; top: 422.533px; transform: scaleX(1.00003);"> health supports where the supports are a </span><span style="left: 120.04px; top: 448.928px; transform: scaleX(1.0019);">regular part of the participant’s daily life, </span><span style="left: 479.283px; top: 448.928px; transform: scaleX(1.00141);">and result from the participant’s disability."</span></span></span><br />
<span style="font-family: Georgia, "Times New Roman", serif;"><span style="font-size: small;"><span style="left: 479.283px; top: 448.928px; transform: scaleX(1.00141);">Communique from the Reform Council available from the <a href="https://www.dss.gov.au/disability-and-carers-programs-services-government-international-disability-reform-council/communique-28-june-2019" target="_blank">DSS website</a> </span><span style="left: 479.283px; top: 448.928px; transform: scaleX(1.00141);"></span></span> </span><br />
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<a href="https://1.bp.blogspot.com/-b_3P11ggdtI/XRrZy3vpjsI/AAAAAAAAI3A/CUH-IadOxPoeq4okjckr5Ehc3MsoXeWbgCLcBGAs/s1600/cpap-mask-types-Recovered-e1459818015853.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" data-original-height="520" data-original-width="1429" height="72" src="https://1.bp.blogspot.com/-b_3P11ggdtI/XRrZy3vpjsI/AAAAAAAAI3A/CUH-IadOxPoeq4okjckr5Ehc3MsoXeWbgCLcBGAs/s200/cpap-mask-types-Recovered-e1459818015853.jpg" width="200" /></a></div>
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<span style="color: #999999;"><span style="font-size: large;"><b><span style="font-family: Georgia, "Times New Roman", serif;">Nominees</span></b></span></span><br />
<span style="font-family: Georgia, "Times New Roman", serif;">For all people who are nominees - please check that you have been appointed correctly and have your appointment letter from the NDIA. We are still hearing of people who still have not had the appointment formally made ie they are not in receipt of </span><span style="font-family: Georgia, "Times New Roman", serif;">a "copy of the instrument of nominee appointment".</span><br />
<span style="font-family: Georgia, "Times New Roman", serif;">For details regarding the issue see <a href="https://www.ndis.gov.au/about-us/operational-guidelines/nominees-operational-guideline/nominees-operational-guideline-appointment-nominees" target="_blank">Nominees Operational Guideline - Appointment of Nominees</a>. </span><br />
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<span style="font-family: Georgia, "Times New Roman", serif;"><br /></span>Down Syndrome NSWhttp://www.blogger.com/profile/01412576907897527170noreply@blogger.com0tag:blogger.com,1999:blog-5794391632872351899.post-4407673546051697242019-07-01T15:25:00.000+10:002019-07-01T15:25:06.591+10:00Focus on Ability Short Film Festival The Focus on Ability Film Festival has received entries from 26 countries in 2019.<br />
Plenty of great films to watch for the cineastes among you. Official voting for films will close on 3 July.<br />
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Two films to get you started<br />
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<span style="font-family: Georgia, Times New Roman, serif;"><a href="https://www.focusonability.com.au/FOA/films/1765.html" target="_blank"><b>Our Trojan Robot</b> </a>by the Caringbah Craft Centre</span><br />
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<span style="font-family: Georgia, Times New Roman, serif;"><a href="https://www.focusonability.com.au/FOA/films/1780.html" target="_blank"><b>Step Up for Down Syndrome: Confidential</b></a> by Live Lab Griffith Film School </span><br />
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<br />Down Syndrome NSWhttp://www.blogger.com/profile/01412576907897527170noreply@blogger.com0tag:blogger.com,1999:blog-5794391632872351899.post-22281073719651480762019-07-01T14:05:00.000+10:002019-07-01T14:05:47.844+10:00New Financial Year - New Price Guide<br />
<span style="font-family: "georgia" , "times new roman" , serif;">New pricing for supports as of today 1 July 2019.</span><br />
<span style="font-family: "georgia" , "times new roman" , serif;">There are a couple of changes to the format, the information has been split into two documents.</span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;">The <b><a href="https://www.ndis.gov.au/providers/price-guides-and-information" target="_blank">NDIS Catalogue of Supports</a></b> (52 pages) - table format, containing line items, brief descriptions and pricing. Many more listed than we are used too and very small typeface.</span><br />
<span style="font-family: "georgia" , "times new roman" , serif;">The <b><a href="https://www.ndis.gov.au/providers/price-guides-and-information" target="_blank">NDIS Price Guide</a> </b>(45 pages) is now the explanatory companion to the Catalogue of Supports</span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;">Not every category of support will be increasing. Group supports are decreasing by varying amounts. This is well summarised in <a href="https://www.disabilityservicesconsulting.com.au/resources/201920-pg-fineprint?utm_term=0_153f43591e-d88e6d9869-66454185&mc_cid=d88e6d9869&mc_eid=dccd64d29d" target="_blank">The Fine Print & Corrections in the New Price Guide</a> by Evie Naufal on The Disability Services Consulting website</span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span>Down Syndrome NSWhttp://www.blogger.com/profile/01412576907897527170noreply@blogger.com0tag:blogger.com,1999:blog-5794391632872351899.post-642310300648653092019-06-20T14:01:00.000+10:002019-07-01T14:07:48.815+10:00Say Less Show More<br />
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<span style="font-family: "georgia" , "times new roman" , serif;">These resources are available from NSW Health Agency for
Clinical Innovation. <b>Say Less Show More</b> is a series of visual supports for
routine medical procedures and hospital visits. There are three paediatric
booklets and eight designed for adults. PDF format free to download <o:p></o:p></span></div>
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<a href="https://www.aci.health.nsw.gov.au/resources/intellectual-disability/childrens-services/say-less-show-more"><span style="font-family: "georgia" , "times new roman" , serif;">https://www.aci.health.nsw.gov.au/resources/intellectual-disability/childrens-services/say-less-show-more</span></a><o:p></o:p></div>
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Down Syndrome NSWhttp://www.blogger.com/profile/01412576907897527170noreply@blogger.com0tag:blogger.com,1999:blog-5794391632872351899.post-32700804839395016242019-04-01T14:10:00.001+11:002019-04-01T14:10:53.857+11:00Portait of the Artist's Mother<div class="separator" style="clear: both; text-align: left;">
<span style="font-family: Georgia, Times New Roman, serif;"><span style="background-color: white;"><span style="color: #666666; font-size: large;"><b>Portrait of the Artist's Mother | Dignity, Creativity and Disability</b></span> </span>by Fiona Place will be published by Spinifex Press in May 2019. This will be such an important book for everyone in our community. Put simply, Fiona writes glorious prose. That she has turned her attention to a long form reflection on parenting, creativity and disability is a cause to celebrate. It is for us, as readers, to recognise the experiences Fiona articulates because we share them. Here in the DSNSW Library we are almost beside ourselves with excitement!</span></div>
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<span style="font-family: Georgia, Times New Roman, serif;">Long standing members of our community will remember that Fiona edited Voice magazine for a number of years as well as having been a member of staff here at Down Syndrome NSW. </span></div>
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<span style="font-family: Georgia, Times New Roman, serif;">The book will be officially launched on Friday 3 May 2019 in Glebe. </span></div>
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<span style="font-family: Georgia, Times New Roman, serif;"><a href="https://drive.google.com/file/d/1QVf8-vevwvqMH1Cj8eQ8cRmjuoLQyymt/view?usp=sharing" target="_blank">A PDF with more details about the launch available here</a></span></div>
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<strong style="background-color: white; font-family: Verdana, Tahoma, Helvetica, Arial, sans-serif; font-size: 10px;">I am seen by many as a danger. As having failed to understand the new rules, the new paradigm of successful motherhood. </strong><span style="background-color: white; font-family: Verdana, Tahoma, Helvetica, Arial, sans-serif; font-size: 10px;"></span><br style="background-color: white; clear: left; font-family: Verdana, Tahoma, Helvetica, Arial, sans-serif; font-size: 10px;" /><span style="background-color: white; font-family: Verdana, Tahoma, Helvetica, Arial, sans-serif; font-size: 10px;">A memoir and an examination of the politics of disability. Fiona Place describes the pressure from medical institutions to undergo screening during pregnancy and the traumatic nature and assumptions that a child with Trisomy 21 should not live, even though people with Down syndrome do live rich and productive lives. Fiona's son, Fraser, has become an artist and his prize-winning paintings have been exhibited in galleries in Sydney and Canberra. How does a mother get from the grieving silence of the birthing room through the horrified comments of other mothers to the applause at gallery openings? </span><br style="background-color: white; clear: left; font-family: Verdana, Tahoma, Helvetica, Arial, sans-serif; font-size: 10px;" /><br style="background-color: white; clear: left; font-family: Verdana, Tahoma, Helvetica, Arial, sans-serif; font-size: 10px;" /><span style="background-color: white; font-family: Verdana, Tahoma, Helvetica, Arial, sans-serif; font-size: 10px;">This is a story of courage, love and commitment to the idea that all people, including those who are 'less than perfect', have a right to be welcomed into this increasingly imperfect world.<i> Publisher Note</i></span>Down Syndrome NSWhttp://www.blogger.com/profile/01412576907897527170noreply@blogger.com0tag:blogger.com,1999:blog-5794391632872351899.post-80783906957833920952019-03-28T15:58:00.005+11:002019-03-28T15:58:49.123+11:00Photography <span style="color: #666666; font-family: Georgia, Times New Roman, serif; font-size: large;"><b>Diversity of Disability Image Competition</b></span><br />
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<span style="font-family: inherit;">This one is for all the photographic creatives out there. The Melbourne Disability Institute, Melbourne University, is looking for photographic images to be used on their electronic media and print collateral.</span><br />
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<span style="font-family: inherit;"><b>Prize Money:</b> Total prize pool of $5,000. Winning submission/s for leading images will receive $1,000. Winning images for supporting images will receive $500.</span><br />
<span style="font-family: inherit;"><b>Applications close Friday 3 May.</b> The winning entries will be chosen by a panel who will be looking for images that depict the diversity of disability, reflect originality and visual appeal.</span><br />
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<a href="https://disability.unimelb.edu.au/diversity-of-disability-image-competition" target="_blank">If you are interested go to the competition webpage for details on how to apply.</a></div>
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<span style="color: #666666; font-family: Georgia, Times New Roman, serif; font-size: large;"><span style="letter-spacing: normal;"><b>Call Out for Photo Shoot</b></span></span><br />
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<span style="font-family: inherit;">This one is for anyone out there who would like a little modelling experience!<br style="letter-spacing: normal;" /><span style="letter-spacing: normal;">Family Planning NSW is holding a photo shoot for their new brochures.</span></span><br />
<span style="letter-spacing: normal;">They are looking for people with disability age of <b>18 - 30 years</b>.</span><span style="font-family: inherit;"><span style="letter-spacing: normal;"> </span></span><br />
<span style="font-family: inherit;"><span style="letter-spacing: normal;">The photos will sh</span><span class="text_exposed_show" style="display: inline; letter-spacing: normal;">ow people visiting a doctor's clinic and reading booklets. </span></span><br />
<span style="font-family: inherit;"><span class="text_exposed_show" style="display: inline; letter-spacing: normal;">The brochures will help people with disability decide if they want to visit a Family Planning NSW clinic.<br />Photo shoot will take place at Family Planning NSW in Ashfield.<br />If you are interested, contact Erin on 8752 4312 or E: <a href="mailto:erind@fpnsw.org.au">erind@fpnsw.org.au</a></span></span><br />
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Down Syndrome NSWhttp://www.blogger.com/profile/01412576907897527170noreply@blogger.com0tag:blogger.com,1999:blog-5794391632872351899.post-17402284784769047882019-03-21T16:51:00.000+11:002019-03-21T16:51:20.682+11:00World Down Syndrome Day<br />
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<b><b><span style="color: #444444; font-family: inherit; font-size: x-large;">Leave no one behind </span></b></b></div>
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<b><a href="https://2.bp.blogspot.com/-yIz6j5ML9pw/URVr1mkgmjI/AAAAAAAAHhA/SHEA1-y6uSkchgniKK-Dv2LxSTexRnOMgCPcBGAYYCw/s1600/wdsd_logo_large_2_1abf3f87f3dd.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="322" data-original-width="730" height="88" src="https://2.bp.blogspot.com/-yIz6j5ML9pw/URVr1mkgmjI/AAAAAAAAHhA/SHEA1-y6uSkchgniKK-Dv2LxSTexRnOMgCPcBGAYYCw/s200/wdsd_logo_large_2_1abf3f87f3dd.jpg" width="200" /></a></b></div>
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<b>Leave no one behind</b> is the international theme for World Down Syndrome Day this year.</div>
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<span style="box-sizing: border-box;"><span style="font-family: Georgia, Times New Roman, serif;">'All people with Down syndrome must have opportunities to live fulfilling lives, included on a full and equal basis with others, in all aspects of society. </span></span></div>
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<span style="font-family: Georgia, "Times New Roman", serif;">The 2030 UN Agenda for Sustainable Development, a global plan of action for people, planet and prosperity, pledges that “</span><span style="box-sizing: border-box; font-family: Georgia, "Times New Roman", serif; font-weight: 700;">no one will be left behind</span><span style="font-family: Georgia, "Times New Roman", serif;">”.'</span></div>
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<tr><td style="text-align: center;"><a href="https://3.bp.blogspot.com/-wjTLpD33K2M/XJLiHsH4HOI/AAAAAAAAI1E/IBJSzpUA19U55w8kSSma2pZdSkSrWf4igCEwYBhgL/s1600/54255030_2401687733177736_435562056645607424_o.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="609" data-original-width="1600" height="121" src="https://3.bp.blogspot.com/-wjTLpD33K2M/XJLiHsH4HOI/AAAAAAAAI1E/IBJSzpUA19U55w8kSSma2pZdSkSrWf4igCEwYBhgL/s320/54255030_2401687733177736_435562056645607424_o.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><a href="https://www.worlddownsyndromeday2.org/event/call-to-action-2019" target="_blank">Watch the video </a></td></tr>
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<a href="https://www.downsyndrome.org.au/news//wdsdstories2019.html" target="_blank"><span style="font-size: large;">What Makes Me Proud?</span></a><br />
Down Syndrome Australia has published 21 stories over the last three weeks, reflecting on the proposition <a href="https://www.downsyndrome.org.au/news//wdsdstories2019.html" target="_blank"><b>"What makes me proud?"</b></a>. All 21 stories available on DS Australia website for those of you who are wanting to binge view to celebrate the day!<br />
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<b>Down Syndrome Australia</b> patron the Governor-General Sir Peter Cosgrove will be hosting an event in Canberra to celebrate<br />
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<a href="https://1.bp.blogspot.com/-BsJiPw6aCNI/UVDwTlVcyZI/AAAAAAAAH84/GKyz3O66eqQRYYmVndcdiscq1SaslIQDwCPcBGAYYCw/s1600/dsa_logo.png" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" data-original-height="73" data-original-width="252" height="57" src="https://1.bp.blogspot.com/-BsJiPw6aCNI/UVDwTlVcyZI/AAAAAAAAH84/GKyz3O66eqQRYYmVndcdiscq1SaslIQDwCPcBGAYYCw/s200/dsa_logo.png" width="200" /></a></div>
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<b>Down Syndrome NSW </b>will be celebrating on Sunday with our Afternoon Tea with guest speaker Dr Ellen Skladzien from Down Syndrome Australia.<br />
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Plenty of schools across NSW have engaged with "Lots of Socks" this year too<br />
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<a href="https://2.bp.blogspot.com/-4_36B3EgwVM/UYx-QIayM5I/AAAAAAAAIOg/cNjGHjKB-pcQsBeMNfQnP5dkgdiW5YugQCPcBGAYYCw/s1600/DSNSW_logo_final.1.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" data-original-height="172" data-original-width="599" height="56" src="https://2.bp.blogspot.com/-4_36B3EgwVM/UYx-QIayM5I/AAAAAAAAIOg/cNjGHjKB-pcQsBeMNfQnP5dkgdiW5YugQCPcBGAYYCw/s200/DSNSW_logo_final.1.jpg" width="200" /></a></div>
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Read an employment success story from Canberra<br />
<b><a href="http://kathryn%20rodwell%20and%20peter%20bartholomew%20have%20been%20working%20for%20the%20last%2018%20months%20on%20the%20ginninderry%20project%2C%20job-sharing%20at%20the%20head%20office%2C%20helping%20in%20all%20kinds%20of%20ways%20to%20support%20the%20creation%20of%20a%20massive%20housing%20development%20in%20the%20north-west%20of%20canberra./" target="_blank">Kathryn and Peter are kicking goals on World Down Syndrome Day</a></b><br />
<i>by Megan Doherty</i><br />
in The Canberra Times<br />
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<span style="background-color: white; color: #0a1633;"><span style="font-family: Georgia, Times New Roman, serif;">"Kathryn Rodwell and Peter Bartholomew have been working for the last 18 months on the Ginninderry project, job-sharing at the head office, helping in all kinds of ways to support the creation of a massive housing development in the north-west of Canberra."</span></span>Down Syndrome NSWhttp://www.blogger.com/profile/01412576907897527170noreply@blogger.com0tag:blogger.com,1999:blog-5794391632872351899.post-46044817614765383732019-03-20T14:13:00.000+11:002019-03-20T14:13:27.583+11:00Library Shelf<b><span style="font-family: "georgia" , "times new roman" , serif; font-size: large;">The Essential Guide to Safe travel-training for Children with Autism and Intellectual Disabilities</span></b><br />
<i><span style="font-family: "georgia" , "times new roman" , serif;">by Desiree Gallimore</span></i><br />
<span style="font-family: "georgia" , "times new roman" , serif;">Published by Jessica Kingsley Publishers</span><br />
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Travel-training, as a topic, can often bring on a weary sigh amongst parents and is not usually high on everyone's reading list. This one, though, is a travel-training book with a difference. Whether you are looking into travel-training for the first time or need to reignite some enthusiasm for the project, this is the book for you. It provides a clear outline of what a good travel training program (as distinct from assisted travel) should, and can, be like.<br />
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<a href="https://3.bp.blogspot.com/-_kXyvfWVum4/XJGllw1O0oI/AAAAAAAAI0s/5E5iMrBSp40U6y2kLWwiAcFMvKXssXKawCLcBGAs/s1600/Gallimore.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" data-original-height="275" data-original-width="183" src="https://3.bp.blogspot.com/-_kXyvfWVum4/XJGllw1O0oI/AAAAAAAAI0s/5E5iMrBSp40U6y2kLWwiAcFMvKXssXKawCLcBGAs/s1600/Gallimore.jpg" /></a></div>
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"For those growing up with an intellectual disability or autism, comfortable, safe and independent travel will prove an invaluable life skill. The key to pursuing fulfilling work and leisure activities and developing as an individual, it also brings a liberating level of self-sufficiency and reassurance of equality within society."<br />
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Dr Desiree Gallimore is a well-credentialed Sydney-based psychologist and mobility specialist. <a href="https://traveltrainingsolutions.org/" target="_blank">Dr Gallimore's website traveltrainingsolutions here</a><br />
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<b><span style="font-family: "georgia" , "times new roman" , serif; font-size: large;">Life as Jamie Knows It: An Exceptional Child Grows Up</span></b><br />
<span style="font-family: "georgia" , "times new roman" , serif;"><i>By Michael Berube</i></span><br />
<span style="font-family: "georgia" , "times new roman" , serif;">Published by Beacon Press</span><br />
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<a href="https://1.bp.blogspot.com/-aVMpXErSN5o/XJGrLfwS2QI/AAAAAAAAI04/PVSEEwbK9wMsDECGd3YP7dOK1c4h4DYnQCLcBGAs/s1600/9780807062302.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" data-original-height="450" data-original-width="297" height="320" src="https://1.bp.blogspot.com/-aVMpXErSN5o/XJGrLfwS2QI/AAAAAAAAI04/PVSEEwbK9wMsDECGd3YP7dOK1c4h4DYnQCLcBGAs/s320/9780807062302.jpg" width="211" /></a><span style="font-family: inherit;">Those of you with children 20 and over will probably remember reading <i>Life as we Know It </i>back in 1996, a book chronicling the early years of Jamie's life. Jamie is now in his mid twenties and this book, as did the first, blends personal narrative with observations about social inclusion, health, advocacy and public policy.</span><br />
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<span style="font-family: inherit;"><b>Jamie's Investigations: The Art of a Young Man with Down Syndrome</b> <i>by William Benzon</i> can be read on <a href="https://www.academia.edu/29195347/Jamie_s_Investigations_The_Art_of_a_Young_Man_with_Down_Syndrome" target="_blank">Academia</a></span><br />
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Contact: <a href="mailto:library@dsansw.org.au">library@dsansw.org.au</a> or phone the office 9841 4444Down Syndrome NSWhttp://www.blogger.com/profile/01412576907897527170noreply@blogger.com0tag:blogger.com,1999:blog-5794391632872351899.post-89024427829789278092019-03-11T16:30:00.002+11:002019-03-11T16:31:38.399+11:00Accommodation<br />
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<a href="https://www.thehousinghub.org.au/" target="_blank"><img border="0" data-original-height="770" data-original-width="855" height="180" src="https://1.bp.blogspot.com/-rhmAwqbngy8/XIXxF7A4c2I/AAAAAAAAI0g/43KyfnmJt3Ex8ZyAKn2mQnywTfoIbVGnwCLcBGAs/s200/Housing-Hub.jpg" width="200" /></a></div>
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<b><a href="https://www.thehousinghub.org.au/" target="_blank">The Housing Hub</a></b> is a website that allows people with disability to look for SDA (Specialist Disability Accommodation), SSA (Supported Shared Accommodation or Group Home) and private rental vacancies, in four different states. The database is searchable by region.Down Syndrome NSWhttp://www.blogger.com/profile/01412576907897527170noreply@blogger.com0tag:blogger.com,1999:blog-5794391632872351899.post-28795790437511359192019-03-05T13:22:00.000+11:002019-03-05T13:22:34.851+11:00Library ShelfWe have decided to revive and refresh Keeping Up with Down Syndrome NSW as our Library + Information blog. Here we will post information about our library resources as well as other information that will be of interest to our members and readers.<br />
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Our library is alive and well, with the exception of general online access to the catalogue, for which we offer apologies and still hold hope for restoration to the outside world! The catalogue works at full capacity but only within our office itself. In the meantime please call the office or email the library and we will assist with your information needs. If you would like to recommend any books or resources for purchase please let us know by email <a href="mailto:library@dsansw.org.au">library@dsansw.org.au</a><br />
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<b><span style="color: #666666; font-family: Georgia, Times New Roman, serif; font-size: large;">New Title on the Shelf</span></b><br />
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<b>Supporting Positive behaviour in children and teens with
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<b>The respond but don’t react method</b><o:p></o:p></div>
<i><span style="font-family: "Calibri","sans-serif"; font-size: 11.0pt; line-height: 107%; mso-ansi-language: EN-AU; mso-ascii-theme-font: minor-latin; mso-bidi-font-family: "Times New Roman"; mso-bidi-language: AR-SA; mso-bidi-theme-font: minor-bidi; mso-fareast-font-family: Calibri; mso-fareast-language: EN-US; mso-fareast-theme-font: minor-latin; mso-hansi-theme-font: minor-latin;">by David
Stein</span></i><br />
<i><span style="font-family: "Calibri","sans-serif"; font-size: 11.0pt; line-height: 107%; mso-ansi-language: EN-AU; mso-ascii-theme-font: minor-latin; mso-bidi-font-family: "Times New Roman"; mso-bidi-language: AR-SA; mso-bidi-theme-font: minor-bidi; mso-fareast-font-family: Calibri; mso-fareast-language: EN-US; mso-fareast-theme-font: minor-latin; mso-hansi-theme-font: minor-latin;">Published by Woodbine House</span></i><br />
<i><span style="font-family: "Calibri","sans-serif"; font-size: 11.0pt; line-height: 107%; mso-ansi-language: EN-AU; mso-ascii-theme-font: minor-latin; mso-bidi-font-family: "Times New Roman"; mso-bidi-language: AR-SA; mso-bidi-theme-font: minor-bidi; mso-fareast-font-family: Calibri; mso-fareast-language: EN-US; mso-fareast-theme-font: minor-latin; mso-hansi-theme-font: minor-latin;"><br /></span></i>
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<span style="font-family: Calibri, sans-serif; font-size: 11pt; line-height: 107%;">David Stein is a paediatric psychologist and co-director of the Down Syndrome program at Boston Children's Hospital. </span><br />
<span style="font-family: Calibri, sans-serif; font-size: 11pt; line-height: 107%;">The book draws on his wealth of clinical experience with young people who have Trisomy 21. </span><span style="font-family: Calibri, sans-serif; font-size: 11pt;">Very much the compact handbook, it is a good title to share with teachers and support workers.</span><br />
<span style="font-family: Calibri, sans-serif; font-size: 11pt; line-height: 107%;">The behaviour management principles covered in the book:</span><br />
<span style="font-family: Calibri, sans-serif; font-size: 11pt; line-height: 107%;"><i>Be proactive not reactive</i></span><br />
<span style="font-family: Calibri, sans-serif; font-size: 11pt; line-height: 107%;"><i>Be consistent</i></span><br />
<span style="font-family: Calibri, sans-serif; font-size: 11pt; line-height: 107%;"><i>Use visual shedules and social stories to redirect behaviour</i></span><br />
<span style="font-family: Calibri, sans-serif; font-size: 11pt; line-height: 107%;"><i>Develop a reward system</i></span><br />
<span style="font-family: Calibri, sans-serif; font-size: 11pt; line-height: 107%;"><i>Keep emotional reactions in check</i></span><br />
<span style="font-family: Calibri, sans-serif; font-size: 11pt; line-height: 107%;"><i>Teach siblings to ignore certain behaviours</i></span><br />
<span style="font-family: Calibri, sans-serif; font-size: 11pt; line-height: 107%;"><i>Know when to seek professional help</i></span><br />
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<span style="font-family: Calibri, sans-serif; font-size: 11pt;">Very much the compact handbook, it is a good title to share with teachers and support workers. </span><span style="font-family: Calibri, sans-serif; font-size: 11pt;">This is a great read and highly recommended.</span><br />
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<span style="line-height: 15.6933px;"><b><span style="color: #666666; font-family: Georgia, Times New Roman, serif; font-size: large;">More of David Stein's work, available online, below</span></b></span><br />
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<b>Dr David Stein</b> discusses his ideas on The Lucky few Podcast from 9 November 2018<br />
<a href="https://www.theluckyfewpodcast.com/episodes/s2ep6-drdavidstein" target="_blank">The Lucky Few</a><br />
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<b>Behavioral Issues in Down Syndrome</b>, Parts 1 & 2 (duration 24 mins each)<br />
Dr Stein in discussion with Dr Vellody,<br />
<a href="http://www.chp.edu/our-services/down-syndrome/podcasts/behavioral-issues-stein" target="_blank">on the Children's Hospital of Pittsburgh website</a><br />
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<b>Behaviour and Down syndrome: A practical guide for parents</b><br />
<i>by David Stein</i><br />
<i>Published by Children's Hospital Boston</i><br />
<a href="https://dsagsl.org/wp-content/uploads/2014/04/Behavior-Guide-for-Down-Syndrome.pdf" target="_blank">12 page PDF free to download</a>Down Syndrome NSWhttp://www.blogger.com/profile/01412576907897527170noreply@blogger.com0tag:blogger.com,1999:blog-5794391632872351899.post-75247502163513537062019-02-27T15:21:00.000+11:002019-02-27T15:21:44.720+11:00Nicola Grove in Melbourne (Video link available)<a href="https://www.latrobe.edu.au/lids/images-lids/Workshop-nicolagrove.jpg/medium.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img alt="" border="0" height="200" src="https://www.latrobe.edu.au/lids/images-lids/Workshop-nicolagrove.jpg/medium.jpg" width="200" /></a><b><i>STORY WEBS: anecdotal narrative and the fabric of being</i></b><br />
<i>Human
beings seem to spend a lot of their time together exchanging stories
about their lives. These so-called “small stories” are now regarded as
critical in building a sense of personal identity, relationships and
communities, but are under-represented in research in intellectual
disability. This talk draws on Jayne Clapton’s metaphor of the fabric
of integrality, and will illustrate some of the mechanisms whereby the
exchange of stories helps to break down barriers and stigma in the lives
of people with severe and profound intellectual disabilities.</i><br />
<br />
<i>Nicola
Grove has been a teacher, speech and language therapist and university
lecturer. She left her job at City London University in 2004 to set up
the UK’s first company of storytellers with intellectual disabilities (<a href="https://protect-au.mimecast.com/s/325KC3Q872F7Opz9tgRrff?domain=openstorytellers.org.uk">www.openstorytellers.org.uk</a>).
Since then she has been researching and developing ways of authentic
storytelling for people with severe communication disabilities. She has
worked internationally, in Japan, South Africa, Canada and Europe.</i><br />
<br />
<b>Dr Grove will be delivering the (Living with Disability Research Centre) LiDS March seminar at La Trobe University at 3pm on Wednesday 6 March.</b><br />
If you would like to attend or join remotely via zoom, email Sophia Tipping - <a href="mailto:s.tipping@latrobe.edu.au">s.tipping@latrobe.edu.au</a>.<br />
<br />
If you are interested in Nicola Grove's work we have a couple of her books in our library.Down Syndrome NSWhttp://www.blogger.com/profile/01412576907897527170noreply@blogger.com0tag:blogger.com,1999:blog-5794391632872351899.post-23973660673997139052019-02-27T10:55:00.000+11:002019-02-27T12:52:06.709+11:00Voting NSW State ElectionSaturday 23 March 2019 is voting day in NSW. In NSW we have 4 year fixed term governments. <br />
How do you cast your vote in the NSW election?<br />
<span style="color: #741b47;"><b>Step 1: </b></span><br />
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Verify that you are eligible to vote on the <a href="https://roll.elections.nsw.gov.au/NSWLookUp/?_ga=2.138781942.416034668.1551158243-1774125041.1531806437" target="_blank">NSW Electoral Commission website</a></div>
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<span style="color: #741b47;"><b>Step 2: </b></span><br />
If you are not on the electoral roll then you will need to enrol to vote.<br />
This can be done online on the <a href="https://aec.gov.au/enrol/" target="_blank">Australian Electoral Commission</a><a href="https://aec.gov.au/enrol/" target="_blank"> enrol to vote webpage</a>.<br />
If you would like to use a paper form these can be obtained at a Australia Post office, an AEC office, or one can be mailed to you.<br />
Best option is to read the AEC <a href="https://aec.gov.au/About_AEC/Publications/easy-english/files/how-to-enrol-easy-eng.pdf" target="_blank">How to Enrol to Vote</a> Easy English guide for details.<br />
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<a href="https://1.bp.blogspot.com/-VI9qCYY0vrI/XHXPefu2HjI/AAAAAAAAIzk/d1HoA0CzJ140U0y9MzrmmyMX52ITcVVAQCLcBGAs/s1600/AEC%2Blogo.png" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" data-original-height="129" data-original-width="389" height="106" src="https://1.bp.blogspot.com/-VI9qCYY0vrI/XHXPefu2HjI/AAAAAAAAIzk/d1HoA0CzJ140U0y9MzrmmyMX52ITcVVAQCLcBGAs/s320/AEC%2Blogo.png" width="320" /></a></div>
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<span style="color: #741b47;"><b>Step 3:</b></span><br />
<b>In the NSW election some people are allowed to cast their vote online (iVote) or over the telephone.</b><br />
Eligibility criteria for iVote:<br />
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<li>My residence is not within 20 kilometres, by the nearest practicable route, of a voting centre.</li>
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<li>I cannot read or write, so I am unable to vote without assistance<br /> </li>
<li><b><i>I have a disability (within the meaning of the Anti-Discrimination Act 1977) and because of that disability, I have difficulty voting at a voting centre or I am unable to vote without assistance</i></b><br /> </li>
<li>I am a silent elector.<br /> </li>
<li>I will be interstate throughout the hours of voting on election day.<br /> </li>
<li>I will be overseas throughout the hours of voting on election day.<br /> </li>
<li>I am a person who is blind or has low vision so I am unable to vote without assistance</li>
</ul>
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<b>More details about applying for iVote, and how to cast your vote this way, visit the <a href="https://www.ivote.nsw.gov.au/" target="_blank">NSW iVote website</a></b><br />
Go forward and express yourselves democratically!<br />
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<b><span style="color: #741b47;">PS</span></b><br />
<b><span style="font-size: small;">The <i>NSW Council for Intellectual Disability </i>have made a great video about how to vote</span></b><br />
<b><span style="font-size: small;"><a href="https://www.facebook.com/watch/?v=603943316700448" target="_blank">Watch it here https://www.facebook.com/watch/?v=603943316700448 </a></span></b>Down Syndrome NSWhttp://www.blogger.com/profile/01412576907897527170noreply@blogger.com0tag:blogger.com,1999:blog-5794391632872351899.post-37426224156205117762019-02-26T16:18:00.001+11:002019-02-26T16:18:56.064+11:00NSW Education Disability Strategy<span style="font-size: large;"><a href="https://education.nsw.gov.au/teaching-and-learning/disability-learning-and-support/our-disability-strategy" target="_blank"><i>Disability Strategy
A living document </i></a></span><br />
<span style="font-size: large;"><a href="https://education.nsw.gov.au/teaching-and-learning/disability-learning-and-support/our-disability-strategy" target="_blank"><i>Improving outcomes for children and young people, and their families </i></a></span><br />
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Published last week by the NSW Department of Education. Definitely worth a read if you have a child in school or are an educator yourself.<br />
The document outlines areas for immediate focus:<br />
1. Strengthen support<br />
2. Increase resource and flexibility<br />
3. Improve the family experience<br />
4. Track outcomes<br />
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<a href="https://education.nsw.gov.au/teaching-and-learning/disability-learning-and-support/our-disability-strategy/disability-strategy#Alternative1" target="_blank">Alternative formats available on the departmental website</a><br />
The easy read version has been really well designed.Down Syndrome NSWhttp://www.blogger.com/profile/01412576907897527170noreply@blogger.com0tag:blogger.com,1999:blog-5794391632872351899.post-1706781046084848032019-02-23T15:34:00.002+11:002019-02-23T15:34:55.912+11:00Stand By Me Campaign<div class="separator" style="clear: both; text-align: left;">
<b><span style="font-size: large;">Don't Ditch Disability Advocacy</span></b></div>
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<b><i>The Disability Advocacy Alliance</i></b> has organised a rally in Sydney tomorrow.</div>
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<b>Where: </b>Martin Place (between Castlereagh and Pitt Sts)</div>
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<b>Date: </b>Sunday 24 February 2019</div>
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<b>Time: </b>11am</div>
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The Alliance seeks to get the NSW government to commit to secure, long term funding for disability advocacy, information and representation organisations in NSW.</div>
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Other things you can do to support the campaign include writing to the Premier, meeting your local MP as we approach the NSW state election, undertake some social media sharing or sign the petition that is running... <span style="color: #b45f06;"><a href="https://standbyme.org.au/" target="_blank">Stand By Me</a> </span></div>
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<a href="https://standbyme.org.au/" target="_blank">The Stand By Me website</a> contains plenty of information and resources to support the campaign.</div>
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The easy read version of the <a href="https://standbyme.org.au/wp-content/uploads/2018/10/StandByMe-Phase-2-Position-Paper-easy-read-version.pdf" target="_blank">Stand By Me Position Statement</a> is highly recommended</div>
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<br />Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5794391632872351899.post-65177268080408532492018-06-07T12:39:00.002+10:002019-02-22T16:06:01.244+11:00<h2>
<span style="font-family: Georgia, Times New Roman, serif; font-size: large;">Ellen's 6 Months Review</span></h2>
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<a href="https://3.bp.blogspot.com/-4K_rZ23cI0I/WxiWvHyxaaI/AAAAAAAAAA0/iz7CZV6Oz-Mw_JvPxUkLlqNeMjMIUEwWwCLcBGAs/s1600/Ellen%2BVOICE%2Barticle.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" data-original-height="480" data-original-width="640" height="240" src="https://3.bp.blogspot.com/-4K_rZ23cI0I/WxiWvHyxaaI/AAAAAAAAAA0/iz7CZV6Oz-Mw_JvPxUkLlqNeMjMIUEwWwCLcBGAs/s320/Ellen%2BVOICE%2Barticle.jpg" width="320" /></a></div>
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<span style="font-family: Georgia, Times New Roman, serif;">It has been six months now since I have been at work at DSNSW. I have learnt some new skills.</span><br />
<span style="font-family: Georgia, Times New Roman, serif;"><br /></span>
<ul>
<li><span style="font-family: Georgia, Times New Roman, serif;">I am learning how to do some database entry </span></li>
<li><span style="font-family: Georgia, Times New Roman, serif;">I do things like: Update their membership, Renew their membership.</span></li>
<li><span style="font-family: Georgia, Times New Roman, serif;">I make phone calls to the up club members to renew their membership. </span></li>
<li><span style="font-family: Georgia, Times New Roman, serif;">Putting people into events they have been to </span></li>
<li><span style="font-family: Georgia, Times New Roman, serif;">I got a new article about me in the VOICE magazine. I feel excited I was so happy to show it to my family and friends. </span></li>
<li><span style="font-family: Georgia, Times New Roman, serif;">I attend weekly staff meetings and give them a verbal report.</span></li>
<li><span style="font-family: Georgia, Times New Roman, serif;">I give feedback to the staff on their projects. </span></li>
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<span style="font-family: Georgia, Times New Roman, serif;">Over the next six months I like to keep learning new skills so that I am busy all the time I really like my job here </span></div>
Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5794391632872351899.post-49769657414487312332018-05-16T12:09:00.000+10:002019-02-22T16:05:12.868+11:00<div class="separator" style="clear: both; text-align: center;">
<a href="https://2.bp.blogspot.com/-0c5jxRi-a_4/WvuRvFHH1BI/AAAAAAAAAAk/XXqq9ooF1m8WsxAo8sJY3qVsMbkS2K1FQCLcBGAs/s1600/Ellen%2B2.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="480" data-original-width="640" height="240" src="https://2.bp.blogspot.com/-0c5jxRi-a_4/WvuRvFHH1BI/AAAAAAAAAAk/XXqq9ooF1m8WsxAo8sJY3qVsMbkS2K1FQCLcBGAs/s320/Ellen%2B2.jpg" width="320" /></a></div>
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<b style="mso-bidi-font-weight: normal;"><u><span style="font-family: Georgia, Times New Roman, serif; line-height: 107%;">Ellen’s tips for a
preparing for a job interview <o:p></o:p></span></u></b></div>
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<div class="MsoListParagraphCxSpFirst" style="mso-list: l0 level1 lfo1; text-indent: -18.0pt;">
<!--[if !supportLists]--><span style="font-family: Georgia, Times New Roman, serif;"><span style="line-height: 107%;"><span style="mso-list: Ignore;">·<span style="font-stretch: normal; font-style: normal; font-variant: normal; font-weight: normal; line-height: normal;"> </span></span></span><!--[endif]--><span style="line-height: 107%;">Listen to your favourite music to
keep you calm<o:p></o:p></span></span></div>
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<!--[if !supportLists]--><span style="font-family: Georgia, Times New Roman, serif;"><span style="line-height: 107%;"><span style="mso-list: Ignore;">·<span style="font-stretch: normal; font-style: normal; font-variant: normal; font-weight: normal; line-height: normal;"> </span></span></span><!--[endif]--><span style="line-height: 107%;">I feel good and confident in a new
outfit<o:p></o:p></span></span></div>
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<!--[if !supportLists]--><span style="font-family: Georgia, Times New Roman, serif;"><span style="line-height: 107%;"><span style="mso-list: Ignore;">·<span style="font-stretch: normal; font-style: normal; font-variant: normal; font-weight: normal; line-height: normal;"> </span></span></span><!--[endif]--><span style="line-height: 107%;">Make sure you double check your
resume and bring it up to date <o:p></o:p></span></span></div>
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<!--[if !supportLists]--><span style="font-family: Georgia, Times New Roman, serif;"><span style="line-height: 107%;"><span style="mso-list: Ignore;">·<span style="font-stretch: normal; font-style: normal; font-variant: normal; font-weight: normal; line-height: normal;"> </span></span></span><!--[endif]--><span style="line-height: 107%;">Research the company for example, check
out their website <o:p></o:p></span></span></div>
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<!--[if !supportLists]--><span style="font-family: Georgia, Times New Roman, serif;"><span style="line-height: 107%;"><span style="mso-list: Ignore;">·<span style="font-stretch: normal; font-style: normal; font-variant: normal; font-weight: normal; line-height: normal;"> </span></span></span><!--[endif]--><span style="line-height: 107%;">Find out how long you have to travel
to make sure you be there on time <o:p></o:p></span></span></div>
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<!--[if !supportLists]--><span style="font-family: Georgia, Times New Roman, serif;"><span style="line-height: 107%;"><span style="mso-list: Ignore;">·<span style="font-stretch: normal; font-style: normal; font-variant: normal; font-weight: normal; line-height: normal;"> </span></span></span><!--[endif]--><span style="line-height: 107%;">If you feel nervous it’s ok to ask if
you could bring a support worker with you <o:p></o:p></span></span></div>
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<!--[if !supportLists]--><span style="font-family: Georgia, Times New Roman, serif;"><span style="line-height: 107%;"><span style="mso-list: Ignore;">·<span style="font-stretch: normal; font-style: normal; font-variant: normal; font-weight: normal; line-height: normal;"> </span></span></span><!--[endif]--><span style="line-height: 107%;">Prepare the night before for example,
lay out your clothes and any documents you might need to take<o:p></o:p></span></span></div>
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<!--[if !supportLists]--><span style="font-family: Georgia, Times New Roman, serif;"><span style="line-height: 107%;"><span style="mso-list: Ignore;">·<span style="font-stretch: normal; font-style: normal; font-variant: normal; font-weight: normal; line-height: normal;"> </span></span></span><!--[endif]--></span><span style="line-height: 107%;"><span style="font-family: Georgia, Times New Roman, serif;">Have an early night </span><span style="font-size: 20pt;"><o:p></o:p></span></span></div>
<br />Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5794391632872351899.post-24366015737133874482018-03-29T12:04:00.000+11:002019-02-22T16:04:43.499+11:00<br />
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<span style="font-family: "georgia" , "times new roman" , serif; line-height: 107%;">Our new admin assistant Ellen Hester did a fantastic job presenting at our Education Conference last week. Here's what Ellen had to say about her experience.</span></div>
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Blog’s <span style="mso-tab-count: 7;"> </span>29/3/18<o:p></o:p></span></div>
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<span style="font-family: "georgia" , "times new roman" , serif; line-height: 107%;">I felt
excited when I got to do a speech at the Conference. I also gave some advice to
the teachers at the Conference about what I have done at school. I did my
presentation on power point slide and talked about what I have done at school.
Also I am the new office admin at DS NSW.<span style="mso-spacerun: yes;">
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<span style="font-family: "georgia" , "times new roman" , serif; line-height: 107%;">I feel
really comfortable when I am giving a speech up on stage. For the good points
Marissa gave me a couple of questions I have to answer which it is really good.
But for the bad points some teachers didn’t ask me any questions when I gave a
speech to them which was fine though. <o:p></o:p></span></div>
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<span style="font-family: "georgia" , "times new roman" , serif; line-height: 107%;">My friend
Rae came to the conference she was a bit nervous but Rae spoke really well.
When she gets the hang of it she was fine when she gave the speech to the
teachers. Also towards the end of the speech I gave her a box of Favourite
chocolates to share with her family. She was really happy I gave it to her. <o:p></o:p></span></div>
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<span style="font-family: "georgia" , "times new roman" , serif; line-height: 107%;">For Thursday
and Friday the people there were really nice. I get to hand out the chocolates
to the guest speakers. They did really well and also on the morning and
afternoon breaks we get in there and mingle with other people. It continues
towards at the end of the day but I left around 1pm. But the food was amazing
there were sandwiches and filled pastries and jam drop donuts were my favourite.
When I spoke on Friday, when I finished my speech Chris gave me Lint Chocolates
which was great. </span></div>
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<br />Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5794391632872351899.post-55323649113258924412018-01-08T10:44:00.001+11:002018-01-08T10:44:25.650+11:00World Down Syndrome Day 2018<div class="separator" style="clear: both; text-align: center;">
<a href="https://3.bp.blogspot.com/-8_8ovwXphpc/WlKwwRvm3PI/AAAAAAAAAAM/puOMPRScSz8LFOTyWEcgwDZU6uN33MAQACLcBGAs/s1600/WDSD%2B2018.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="227" data-original-width="557" height="130" src="https://3.bp.blogspot.com/-8_8ovwXphpc/WlKwwRvm3PI/AAAAAAAAAAM/puOMPRScSz8LFOTyWEcgwDZU6uN33MAQACLcBGAs/s320/WDSD%2B2018.jpg" width="320" /></a></div>
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<span data-mce-style="color: #000000;" style="color: black;"><strong>How you can be part of Down Syndrome Australia's Social Media Campaign in March 2018.</strong></span></div>
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<span data-mce-style="color: #000000;" style="color: black;"><span style="background-color: white; color: #1d2129;"><span style="font-family: Arial, Helvetica, sans-serif;">Happy New Year to all our friends and community! We hope 2018 is full of promise and potential for everyone. To get things started, we are already preparing for World Down Syndrome Day 2018 in March. DSA invites you to be part of their Social Media Campaign by contributing your story under the "What I Bring to the Community" theme. </span></span></span><span style="font-family: Arial, Helvetica, sans-serif;">DSA wants to hear from people of all ages, telling us about how you are involved in the community. This could be in your job, your school, your sporting club....anywhere that you feel welcomed, appreciated and belong. Also, you can tell us about your problems and how you have overcome them, who has helped you, and what advice you have to other people facing similar problems.</span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">All the stories and photos and videos will be compiled into an exciting Social Media Campaign to recognise and celebrate World Down Syndrome Day in March 2018.</span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;"><a data-mce-href="https://www.downsyndrome.org.au/news/WDSD_2018.html" href="https://www.downsyndrome.org.au/news/WDSD_2018.html" style="color: #1b57b1; text-decoration-line: none;">Visit the website</a> for more information. <a class="wf_file" data-mce-href="images/WDSD_2018_social_media_campaign.docx" href="http://www.downsyndromensw.org.au/images/WDSD_2018_social_media_campaign.docx" style="color: #1b57b1; text-decoration-line: none;">Download the information sheet template</a>.</span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">Submit your stories to: <a data-mce-href="mailto:info@downsyndrome.org.au" href="mailto:info@downsyndrome.org.au" style="color: #1b57b1; text-decoration-line: none;">info@downsyndrome.org.au</a> asap - before 12th January if you can.</span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">And don't stop there! This blog is the ideal platform to share your stories and hopefully help each other out with how you have overcome challenges in your community.</span></div>
Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5794391632872351899.post-17498161300737732772017-11-02T11:26:00.000+11:002017-11-02T11:29:17.408+11:00We're back!Hello everyone,<br />
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I'm the new blog editor for Down Syndrome NSW. It's nice to meet you all! I'd like to begin by thanking former editor Jill O'Connor for her ten+ years at the desk - that's over 4000 posts - and acknowledge her passion and commitment to furthering the cause of our community. Thank you Jill.<br />
<br />
I recently came across this video posted on our facebook. I considered it very powerful and moving so I'd like to share it now. <a href="https://www.c-span.org/video/?c4687834/frank-stephens-opening-statement-syndrome" target="_blank"> Frank Stephens' Opening Statement on Down Syndrome</a>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5794391632872351899.post-68277861725507357032017-06-09T13:30:00.000+10:002017-06-09T13:30:25.304+10:00Thank you for reading ...<blockquote class="tr_bq">
After 10 years as blog editor, and 28 years of working in various information roles with Down Syndrome NSW, this is the last of 4,400 posts from me. </blockquote>
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Thank you for reading, for your interest and contributions over the years. </blockquote>
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Contact details for Down Syndrome NSW are in the list of page links at the top of this page, just under the banner.</blockquote>
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<i>Jill O'Connor</i><br />
9 June 2017</div>
Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5794391632872351899.post-62097796651457873912017-06-09T12:30:00.000+10:002017-06-09T12:30:10.699+10:00Weekend reading and viewing: 10 - 11 June 2017<div class="separator" style="clear: both; text-align: center;">
<a href="https://1.bp.blogspot.com/-SssmWXpcFF0/WTj283l11NI/AAAAAAAAThs/GT9YWAdQrxAuIDydcFN4NchY-KwY7LkfQCLcB/s1600/WEEKEND%2BREADING%2BBANNER%2B2017.png" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="131" data-original-width="545" height="95" src="https://1.bp.blogspot.com/-SssmWXpcFF0/WTj283l11NI/AAAAAAAAThs/GT9YWAdQrxAuIDydcFN4NchY-KwY7LkfQCLcB/s400/WEEKEND%2BREADING%2BBANNER%2B2017.png" width="400" /></a></div>
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<i>There is so much in this video that I want to dissect about the Down syndrome diagnosis narrative, but honestly, I don’t feel like making this a resource post… let’s just talk about it as friends do. Is that cool with you?</i> </blockquote>
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<i>But first – watch it if you haven’t ...</i></blockquote>
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<div style="text-align: right;">
<b><i><a href="http://www.meriahnichols.com/down-syndrome-diagnosis-narrative/">Let’s Talk: The Conversation On The Down Syndrome Diagnosis Narrative …</a></i></b></div>
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<b>Meriah Nicholls</b>, 5 June 2017</div>
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<i>Cara discusses common Down Syndrome myths and explain how a community of “rockin moms” (moms of kids who “rock” an extra copy of the 21st chromosome) are working to socially construct society’s “next” conversations about DS through critically examining the impact of our language choices ...</i></blockquote>
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<b><i><a href="https://www.youtube.com/watch?v=Vk5RcCqnX9w">Socially Constructing Down Syndrome: Confessions of a Rockin Mom </a></i></b></div>
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Cara Jacocks, <b>TEDxACU</b>, published 26 May 2017 (video 17m 31s)</div>
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<i>... I wrote a column published with the heading “Welcome 8 point 1 point 5 (his birth weight) We love you”, which went on to win an award, while Nick went on to be one of the best things that happened in our lives ...</i></blockquote>
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<b><i><a href="http://www.couriermail.com.au/news/queensland/david-margan-on-his-down-syndrome-son-nick-turning-21/news-story/59d830f82cb2ed11873093ca8e5431e2">David Margan on his Down syndrome son Nick turning 21</a></i></b></div>
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David Margan, <b>The Courier-Mail</b>, 7 June 2017</div>
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<i>At a young age, I learned to be a responsible person. The instinct to be a protective sister came naturally. How could I not? The love of a baby, in my case a younger brother, came so natural. I couldn't imagine anyone not loving or adoring this small person. At this time, I didn't know he had Down syndrome, but it didn't matter. I think I was too young to understand what this even meant, and society wasn't open to those with disabilities during this time ...</i></blockquote>
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<b><i><a href="http://rhodagpenny.blogspot.com.au/2017/05/young-life-with-brother-with-down.html">Young Life with a Brother with Down Syndrome</a></i></b></div>
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Rhoda Penny, <b>Rhoda G's Online Cafe,</b> 29 May 2017</div>
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<i>... In expanding your friendship and reading circles to adults from the disability community, you will likely see things from an altogether different perspective, and one that is often highly enlightening!</i></blockquote>
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<i>Blogs are an excellent avenue by which you can forge forth and figure out who sounds most like someone you want to get to know ...</i></blockquote>
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<div style="text-align: right;">
<b><i><a href="http://www.friendshipcircle.org/blog/2017/03/30/blogs-by-adults-with-disabilities/">Mix Some Blogs by Adults with Disabilities into Your Parent Blog Reading Routine</a></i></b></div>
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<b>Friendship Circle</b>, 30 March 2017</div>
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<i>... there are some things my kids intuitively grasp without my help. To my surprise, nearly everyone I meet below the age of 4 just rolls with it when it comes to disability. Ableism hasn’t taken hold yet. Here are five things I’ve seen young children totally understand about disability that unfortunately, most adults struggle with ...</i></blockquote>
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<div style="text-align: right;">
<b><i><a href="https://www.thinkinclusive.us/5-things-about-disability-adults/">5 things children totally understand about disa</a></i></b><a href="https://www.thinkinclusive.us/5-things-about-disability-adults/"><i><b>bility that most adults do not</b></i></a></div>
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Emily Beitiks, <b>Think Inclusive,</b> 26 January 2017</div>
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<a href="https://4.bp.blogspot.com/-NRJ9TIAMEK4/V6Km4N2FzjI/AAAAAAAAREo/DL2PDe9Mpbc9yFb_zuOnCXEoGEpxaJkFACPcB/s1600/NDIS%2Bword%2Bcloud.png" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" data-original-height="200" data-original-width="199" src="https://4.bp.blogspot.com/-NRJ9TIAMEK4/V6Km4N2FzjI/AAAAAAAAREo/DL2PDe9Mpbc9yFb_zuOnCXEoGEpxaJkFACPcB/s200/NDIS%2Bword%2Bcloud.png" width="150" /></a></div>
<b><i><a href="http://www.smh.com.au/video/video-news/video-national-news/qa-disability-advocates-ndis-crash-course-20170605-4ush9.html">Q and A: Disability advocate's NDIS 'crash course' (video 2m 44s)</a></i></b><br />
<i>Actor and dancer Kiruna Stamell explained why the National Disability Insurance Scheme was important on ABC's Q and A program. on 5 June 2017</i><br />
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<b><i><a href="https://clickability.com.au/blog/sam-connor-support-worker-isdisabled/">Your Support Worker Is … Disabled?</a></i></b></div>
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Sam Connor, <b>Clickability</b>, 16 May 2017</div>
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<i>We were speeding through the NDIS conference and I had a coffee in my hand, despite being a manual wheelchair user. My friend was towing me with her electric wheelchair and on this occasion I’d gone to the trouble of bringing a short length of rope – it can get wearing hanging onto someone else’s wheelchair for a full three days. And able bodied people were watching and smiling and making cute comments, because, after all, it’s not a usual thing to see two disabled people supporting each other, is it?<br />
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It’s not usual for them, but it’s usual for us ...</i></div>
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<b><i><a href="https://www.disabilityloop.org.au/news/ndis_changes.html">The NDIS is making some changes</a></i></b><br />
<b>Disability Loop</b>, 8 June 2017<br />
<i>NDIS Participants got a letter from David Bowen, the CEO of the NDIA on Tuesday. It was sent to Participants through the online portal, and it was also put up on the NDIS website.<br />
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The letter was very long, and used a lot of terms that might be hard for people to understand. We've summarised what we think it means in plain language ...</i></div>
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<i><br />
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The document from the NDIA CEO:<br />
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<b><i><a href="https://www.ndis.gov.au/news/ceo-message-6june.html">Participants and providers work with the NDIS to improve processes</a></i></b>David Bowen, CEO <b>National Disability Insurance Agency</b> (NDIA), 6 June 2017<br />
<i>The Board and Executive Management team of the National Disability Insurance Agency (NDIA) wish to provide information to the Scheme’s existing and potential participants, their families, carers and providers regarding major work that is underway to deliver a significantly upgraded quality of participant and provider experience in a way that remains consistent with maintaining the Scheme’s financial sustainability ...</i></blockquote>
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<b><i><a href="http://christianporter.dss.gov.au/media-releases/new-legislation-to-ensure-quality-of-ndis-services">New legislation to ensure quality of NDIS services</a></i></b></div>
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Christian Porter, <b>Minister for Social Services,</b> 31 May 2017</div>
<i>The Turnbull Government will today introduced legislation to establish the new National Disability Insurance Scheme (NDIS) Quality and Safeguards Commission.<br />
<br />
Minister for Social Services, Christian Porter, said the proposed changes to the NDIS Act 2013 would create the Commission and give it powers to regulate NDIS providers, oversee quality and safety of their services and supports, investigate and determine complaints and uphold the rights of people with disability.<br />
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“This legislation delivers on the Turnbull Government’s commitment in the 2017 Budget to establish the NDIS Quality and Safeguards Commission, which will oversee protections for NDIS participants as the scheme is progressively rolled out across Australia,” Mr Porter said ...</i><br />
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<b><i><a href="https://probonoaustralia.com.au/news/2017/06/ndis-plans-work-first-approach/">NDIS Plans Should have a ‘Work-First Approach’</a></i></b><br />
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Rachel McFadden,<b> ProBono News</b>, 6 June 2017</div>
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<i>The latest figures from the Australian Bureau of Statistics, released Monday, show in 2015 there was a 3 per cent decrease in the number of people with a disability participating in the workforce compared to 2003.<br /><br />... “We know from other data that the Disability Support Pension population is falling (it peaked in June 2012 and has since fallen by 55,000 people), but the employment rate appears not be rising, suggesting that people with disability are being diverted from one form of income support to another, rather than into work. This is not a good result for anyone,” (National Disability Services CEO Ken Baker) said ...</i></div>
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<b><i><a href="http://t.ymlp198.com/bbbsqaoaebehsakawwbaiaumww/click.php">The Indigenous Uptake of the NDIS is Low And This Must Change</a></i></b><br />
Fran Connelley, <b>Probono News</b>, 29 May 2017<br />
<i>Indigenous Australians are 1.7 times more likely to have a disability than those in the non-Indigenous population (Source: Australian Bureau of Statistics) ...</i><br />
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<b><i><a href="http://www.smh.com.au/national/meanminded-ndis-disability-scheme-a-disappointment-advocate-20170524-gwc8ww.html">'Mean-minded' NDIS disability scheme a disappointment: advocate</a></i></b><br />
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Miki Perkins, <b>Sydney Morning Herald,</b> 28 May 2017<br />
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<i>... Exhausted parents tell him about adult children who have lost funding for their day program, transport or cookery classes. Or inexpert planners who draw up disability plans over the phone, and never meet the person whose life they shape.<br />
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So for the first time Mr Stone, head of the Victorian Advocacy League for Individuals with Disability (VALID), has publicly slammed the "mean-minded" National Disability Insurance Scheme ...</i><br />
<i><br />
</i> <b><i><a href="https://probonoaustralia.com.au/news/2017/05/ndis-teething-problems-must-addressed/">The NDIS Has Teething Problems That Must Be Addressed</a></i></b><br />
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Rachel Siewert, <b>Pro Bono Australia News</b>, 24 May 2017</div>
<i>Given the National Disability Insurance Scheme has support across the political spectrum there is a reluctance to heavily criticise it despite a parliamentary inquiry which is revealing that the system is beset by major problems, writes WA Greens Senator Rachel Siewert ...</i><br />
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</i> <b><i><a href="http://acd.org.au/acd-ndis-support-2/ndis-planning-workbook/">NDIS Planning Workbook</a></i></b><br />
<b>Association for Children with a Disability</b><br />
<i>ACD’s new NDIS Planning Workbook has been designed by parents of children with a disability, for parents of children with a disability – and is the first planning workbook to be developed with a specific focus on what families need and are asking for.<br />
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It’s been designed to help you prepare for your child’s planning meeting with the NDIS ...</i><br />
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<b><a href="http://mailchi.mp/afdo/disability-loop-enews-issue-35"><i>Disability Loop eNews </i>Issue #35, 08/06/2017</a></b><h3 class="null" style="margin: 0px; padding: 0px; position: relative;">
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<i><b><span style="color: #6fa8dc;">____________________________________________</span></b></i></blockquote>
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<ul>
<li><b><a href="http://keepingupwithds.blogspot.com.au/search/label/National%20Disability%20Insurance%20Scheme">Previous posts about the NDIS</a></b></li>
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<li><b><a href="http://keepingupwithds.blogspot.com.au/p/sources-of-information-about-national.html">Page of links to online sources of information about the NDIS</a></b></li>
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Unknownnoreply@blogger.com0