<?xml version='1.0' encoding='UTF-8'?><?xml-stylesheet href="http://www.blogger.com/styles/atom.css" type="text/css"?><feed xmlns='http://www.w3.org/2005/Atom' xmlns:openSearch='http://a9.com/-/spec/opensearchrss/1.0/' xmlns:georss='http://www.georss.org/georss'><id>tag:blogger.com,1999:blog-5794391632872351899</id><updated>2009-11-07T22:46:08.484+11:00</updated><title type='text'>Keeping Up with Down Syndrome NSW</title><subtitle type='html'>www.dsansw.org.au</subtitle><link rel='http://schemas.google.com/g/2005#feed' type='application/atom+xml' href='http://keepingupwithds.blogspot.com/feeds/posts/default'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default'/><link rel='alternate' type='text/html' href='http://keepingupwithds.blogspot.com/'/><link rel='hub' href='http://pubsubhubbub.appspot.com/'/><link rel='next' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default?start-index=26&amp;max-results=25'/><author><name>Blog editor</name><email>noreply@blogger.com</email></author><generator version='7.00' uri='http://www.blogger.com'>Blogger</generator><openSearch:totalResults>595</openSearch:totalResults><openSearch:startIndex>1</openSearch:startIndex><openSearch:itemsPerPage>25</openSearch:itemsPerPage><entry><id>tag:blogger.com,1999:blog-5794391632872351899.post-8086996987616995912</id><published>2009-11-07T17:31:00.002+11:00</published><updated>2009-11-07T22:46:08.492+11:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='National Disability Insurance Scheme'/><category scheme='http://www.blogger.com/atom/ns#' term='Policy'/><category scheme='http://www.blogger.com/atom/ns#' term='Government'/><category scheme='http://www.blogger.com/atom/ns#' term='Funding'/><category scheme='http://www.blogger.com/atom/ns#' term='Media'/><title type='text'>more responses on Kingsdene and long-term support published today</title><content type='html'>&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;em&gt;&lt;a href="http://www.smh.com.au/national/letters/provocative-pilger-draws-a-new-exclusion-zone-20091106-i22s.html"&gt;Letters to the Editor&lt;/a&gt;,&lt;strong&gt; Sydney Morning Herald,&lt;/strong&gt; today:&lt;/em&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;strong&gt;&lt;em&gt;&lt;/em&gt;&lt;/strong&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;strong&gt;&lt;em&gt;Greatest disability is in the funding&lt;br /&gt;&lt;/em&gt;&lt;/strong&gt;How is it that the Anglican diocese with all those churches, all their affluent congregations, all their aged-care facilities and all those rich private schools with their swimming pools, science blocks, ovals and cricket pavilions cannot fund part-time residential care for a handful of children at &lt;span class="blsp-spelling-error" id="SPELLING_ERROR_0"&gt;Kingsdene&lt;/span&gt; (Letters, November 6)?&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;br /&gt;Some community.&lt;br /&gt;&lt;strong&gt;&lt;em&gt;Jane Salmon&lt;/em&gt;&lt;/strong&gt;&lt;br /&gt;&lt;span class="blsp-spelling-error" id="SPELLING_ERROR_1"&gt;Lindfield&lt;/span&gt;&lt;br /&gt;&lt;br /&gt;Parents of children with disabilities lose access to &lt;span class="blsp-spelling-error" id="SPELLING_ERROR_2"&gt;Kingsdene&lt;/span&gt;, the state's only specialised boarding school, because governments are prepared to resource only options that keep children at home. Around the corner at the King's School, government funds and parents' fees keep children at boarding school and no one says they should be at home.&lt;br /&gt;&lt;br /&gt;It is hard to avoid the conclusion that governments prefer to save money and collect votes than provide genuine support for people with disabilities. Perhaps the King's School could consider putting government to shame by throwing the school a lifeline.&lt;br /&gt;&lt;strong&gt;&lt;em&gt;&lt;span class="blsp-spelling-error" id="SPELLING_ERROR_3"&gt;Bronwen&lt;/span&gt; Elliott&lt;/em&gt;&lt;/strong&gt;&lt;br /&gt;&lt;span class="blsp-spelling-error" id="SPELLING_ERROR_4"&gt;Ashfield&lt;/span&gt;&lt;br /&gt;&lt;br /&gt;Some bloke pays $23 million for a family house and &lt;span class="blsp-spelling-error" id="SPELLING_ERROR_5"&gt;Kingsdene&lt;/span&gt; cannot find enough funds to stay open (''Murdoch forks out $23m to head for the hills'', November 6). Something is warped in our society.&lt;br /&gt;&lt;strong&gt;&lt;em&gt;Trevor Smith&lt;/em&gt;&lt;/strong&gt;&lt;br /&gt;&lt;span class="blsp-spelling-error" id="SPELLING_ERROR_6"&gt;Culburra&lt;/span&gt; Beach&lt;br /&gt;&lt;br /&gt;Andrew &lt;span class="blsp-spelling-error" id="SPELLING_ERROR_7"&gt;Pesce&lt;/span&gt; (Letters, November 6) supports a national disability insurance scheme. Unfortunately, the Federal Government has different priorities. What we really need, it says, are 12 new submarines by 2025.&lt;br /&gt;&lt;br /&gt;Estimates of the cost of the Future Submarine Program range from $20 billion to $36 billion, even without likely blow-outs. Defence of the realm being what it is, the Government has no intention of telling us why this particular procurement is so essential. Might it be the solution to the boat people problem?&lt;br /&gt;&lt;br /&gt;Perhaps the Collins class clunkers that will be replaced can be used as demountable classrooms as part of the education revolution.&lt;br /&gt;&lt;em&gt;&lt;strong&gt;Greg Thomas &lt;/strong&gt;&lt;/em&gt;&lt;/span&gt;&lt;br /&gt;&lt;/span&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;em&gt;&lt;span class="blsp-spelling-error" id="SPELLING_ERROR_8"&gt;Annandale&lt;/span&gt;&lt;/em&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;br /&gt;A proposal is before &lt;span class="blsp-spelling-error" id="SPELLING_ERROR_9"&gt;Leichhardt&lt;/span&gt; Council to renovate three unoccupied houses in &lt;span class="blsp-spelling-error" id="SPELLING_ERROR_10"&gt;Lilyfield&lt;/span&gt; for people with an intellectual disability. At a committee meeting this week, one councillor said ''this seems a lot of money for such a small benefit''. It seemed lost on her that families such as ours have saved the public purse millions of dollars by caring for our children at home (in our case for 32 years). &lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;br /&gt;Luckily, others on the council have more enlightened positions.&lt;br /&gt;&lt;br /&gt;But if a young, intelligent, well-informed local government representative can still hold such views, families such as ours who have been hoping the ethical compass is finally turning slightly in our direction might have a lot longer to wait.&lt;br /&gt;&lt;br /&gt;The problem is, we can't; our daughter will outlive us by many years.&lt;br /&gt;&lt;strong&gt;&lt;em&gt;Peter &lt;span class="blsp-spelling-error" id="SPELLING_ERROR_11"&gt;Rix&lt;/span&gt;&lt;/em&gt;&lt;/strong&gt;&lt;br /&gt;&lt;span class="blsp-spelling-error" id="SPELLING_ERROR_12"&gt;Annandale&lt;/span&gt;&lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;/span&gt;&lt;br /&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/5794391632872351899-8086996987616995912?l=keepingupwithds.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://keepingupwithds.blogspot.com/feeds/8086996987616995912/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=5794391632872351899&amp;postID=8086996987616995912' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/8086996987616995912'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/8086996987616995912'/><link rel='alternate' type='text/html' href='http://keepingupwithds.blogspot.com/2009/11/more-responses-on-kingsdene-and-long.html' title='more responses on Kingsdene and long-term support published today'/><author><name>Blog editor</name><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='14401421058688395171'/></author><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5794391632872351899.post-9172246633374833273</id><published>2009-11-06T22:25:00.005+11:00</published><updated>2009-11-06T22:45:00.660+11:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Government'/><category scheme='http://www.blogger.com/atom/ns#' term='Funding'/><category scheme='http://www.blogger.com/atom/ns#' term='Community'/><category scheme='http://www.blogger.com/atom/ns#' term='Media'/><category scheme='http://www.blogger.com/atom/ns#' term='Education'/><category scheme='http://www.blogger.com/atom/ns#' term='Supported accommodation'/><category scheme='http://www.blogger.com/atom/ns#' term='Support'/><title type='text'>Response to Kinsdene closure</title><content type='html'>&lt;a href="http://www.smh.com.au/opinion/editorial/caring-for-the-disabled-20091104-hxu3.html"&gt;&lt;span style="font-family:verdana;"&gt;Yesterday's editorial&lt;/span&gt;&lt;/a&gt;&lt;span style="font-family:verdana;"&gt; &lt;span style="color:#000099;"&gt;in the &lt;strong&gt;&lt;em&gt;Sydney Morning Herald&lt;/em&gt;&lt;/strong&gt; says, in response to Anglicare's decision to &lt;/span&gt;&lt;/span&gt;&lt;a href="http://www.smh.com.au/national/parents-devastated-by-decision-to-close-school-for-disabled-20091104-hy0f.html"&gt;&lt;span style="font-family:verdana;"&gt;close Kingsdene School&lt;/span&gt;&lt;/a&gt;&lt;span style="font-family:verdana;"&gt; (&lt;/span&gt;&lt;a href="http://keepingupwithds.blogspot.com/2009/11/threatened-closure-of-school-highlights.html"&gt;&lt;span style="font-family:verdana;"&gt;this post&lt;/span&gt;&lt;/a&gt;&lt;span style="font-family:verdana;"&gt; &lt;/span&gt;&lt;span style="font-family:verdana;"&gt;&lt;span style="color:#000099;"&gt;links to the first story to appear on Monday this week), that "fundamental reform of the entire disability support system is needed.&lt;br /&gt;&lt;br /&gt;The news and editorials throughout the week have provoked several letters, that you can read&lt;/span&gt; &lt;/span&gt;&lt;a href="http://www.smh.com.au/national/letters/mothers-plight-unthinkable-in-civilised-society-20091103-hv3s.html"&gt;&lt;span style="font-family:verdana;"&gt;here&lt;/span&gt;&lt;/a&gt;&lt;span style="font-family:verdana;"&gt; &lt;span style="color:#000099;"&gt;(Wednesday) and&lt;/span&gt; &lt;/span&gt;&lt;a href="http://www.smh.com.au/national/letters/disabled-need-innovative-help-not-rigid-formula-20091105-i069.html"&gt;&lt;span style="font-family:verdana;"&gt;here&lt;/span&gt;&lt;/a&gt;&lt;span style="font-family:verdana;"&gt; &lt;/span&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;(today), all of them arguing for increased funding for Kingsdene in particular, for services in general, and for implementation of a National Disability Insurance Scheme. Dr Andrew Pesce's letter reiterates the full support of the Australian Medical Association, of which he is federal President. &lt;/span&gt;&lt;a href="http://www.smh.com.au/opinion/editorial/caring-for-the-disabled-20091104-hxu3.html"&gt;&lt;/a&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/5794391632872351899-9172246633374833273?l=keepingupwithds.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://keepingupwithds.blogspot.com/feeds/9172246633374833273/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=5794391632872351899&amp;postID=9172246633374833273' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/9172246633374833273'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/9172246633374833273'/><link rel='alternate' type='text/html' href='http://keepingupwithds.blogspot.com/2009/11/response-to-kinsdene-closure.html' title='Response to Kinsdene closure'/><author><name>Blog editor</name><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='14401421058688395171'/></author><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5794391632872351899.post-3073988571060653801</id><published>2009-11-05T16:41:00.008+11:00</published><updated>2009-11-06T07:35:10.407+11:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Fund-raising'/><category scheme='http://www.blogger.com/atom/ns#' term='Community'/><title type='text'></title><content type='html'>&lt;div align="center"&gt;&lt;span style="font-family:lucida grande;font-size:180%;color:#ff6666;"&gt;&lt;em&gt;&lt;strong&gt;&lt;/strong&gt;&lt;/em&gt;&lt;/span&gt; &lt;/div&gt;&lt;div align="center"&gt;&lt;span style="font-family:lucida grande;font-size:180%;color:#ff6666;"&gt;&lt;em&gt;&lt;strong&gt;Vintage by the Sea&lt;br /&gt;&lt;/div&gt;&lt;/strong&gt;&lt;/em&gt;&lt;/span&gt;&lt;div align="center"&gt;&lt;span style="font-family:lucida grande;font-size:180%;color:#006600;"&gt;&lt;em&gt;&lt;/em&gt;&lt;/span&gt;&lt;/div&gt;&lt;div align="center"&gt;&lt;span style="font-family:lucida grande;font-size:180%;color:#006600;"&gt;&lt;em&gt;Shabby Chic Market&lt;br /&gt;&lt;br /&gt;&lt;/em&gt;&lt;/span&gt;&lt;/div&gt;&lt;div align="center"&gt;&lt;em&gt;&lt;span style="font-family:lucida grande;font-size:180%;color:#000099;"&gt;&lt;/span&gt;&lt;/em&gt;&lt;/div&gt;&lt;span style="font-family:lucida grande;"&gt;&lt;img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 397px; DISPLAY: block; HEIGHT: 43px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5400494308275869650" border="0" alt="" src="http://3.bp.blogspot.com/_wECfy8ampaw/SvJo9dhNV9I/AAAAAAAABU0/R4CNZd4gP3g/s400/292637288_tp.jpg" /&gt;&lt;/span&gt; &lt;div align="center"&gt;&lt;/div&gt;&lt;div align="center"&gt;&lt;span style="font-family:lucida grande;font-size:180%;color:#ff6666;"&gt;&lt;/span&gt;&lt;/div&gt;&lt;div align="center"&gt;&lt;span style="font-family:lucida grande;font-size:180%;color:#ff6666;"&gt;9 am - 4 pm, Sunday&lt;/span&gt;&lt;/div&gt;&lt;br /&gt;&lt;div align="center"&gt;&lt;span style="font-family:lucida grande;font-size:180%;color:#ff6666;"&gt;&lt;em&gt;&lt;strong&gt;15th November 2009&lt;/strong&gt;&lt;/em&gt;&lt;/span&gt;&lt;/div&gt;&lt;br /&gt;&lt;div align="center"&gt;&lt;span style="font-family:lucida grande;color:#000099;"&gt;&lt;/span&gt;&lt;/div&gt;&lt;div align="center"&gt;&lt;span style="font-family:lucida grande;color:#006600;"&gt;Cronulla Masonic Hall,&lt;/span&gt;&lt;/div&gt;&lt;br /&gt;&lt;div align="center"&gt;&lt;span style="font-family:lucida grande;color:#006600;"&gt;43 The Kingsway&lt;/span&gt;&lt;/div&gt;&lt;br /&gt;&lt;div align="center"&gt;&lt;span style="font-family:lucida grande;color:#ff6666;"&gt;&lt;strong&gt;CRONULLA&lt;/strong&gt;&lt;/span&gt;&lt;/div&gt;&lt;div align="center"&gt;&lt;strong&gt;&lt;span style="font-family:Verdana;color:#ff6666;"&gt;&lt;/span&gt;&lt;/strong&gt;&lt;/div&gt;&lt;br /&gt;&lt;div align="center"&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;/span&gt;&lt;/div&gt;&lt;div align="center"&gt;&lt;span style="font-family:lucida grande;color:#006600;"&gt;&lt;strong&gt;Entry by donation&lt;/strong&gt;&lt;/span&gt;&lt;/div&gt;&lt;br /&gt;&lt;div align="center"&gt;&lt;span style="font-family:verdana;font-size:85%;color:#006600;"&gt;&lt;em&gt;(Proceeds to Down Syndrome NSW)&lt;/em&gt;&lt;/span&gt;&lt;/div&gt;&lt;br /&gt;&lt;div align="center"&gt;&lt;span style="font-family:verdana;color:#006600;"&gt;&lt;/span&gt;&lt;/div&gt;&lt;div align="center"&gt;&lt;span style="font-family:lucida grande;"&gt;&lt;span style="color:#006600;"&gt;Browse and buy from our stalls ..... &lt;strong&gt;furniture, vintage fashion, collectibles, garden and homewares&lt;/strong&gt;&lt;/span&gt;&lt;/span&gt;&lt;/div&gt;&lt;div align="center"&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;/span&gt;&lt;/div&gt;&lt;br /&gt;&lt;div align="center"&gt;&lt;span style="color:#ff6666;"&gt;&lt;em&gt;&lt;span style="font-family:lucida grande;"&gt;Enquiries: Robyn &lt;strong&gt;0425 243 520&lt;/strong&gt;&lt;/span&gt;&lt;/em&gt;&lt;/span&gt;&lt;/div&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/5794391632872351899-3073988571060653801?l=keepingupwithds.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://keepingupwithds.blogspot.com/feeds/3073988571060653801/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=5794391632872351899&amp;postID=3073988571060653801' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/3073988571060653801'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/3073988571060653801'/><link rel='alternate' type='text/html' href='http://keepingupwithds.blogspot.com/2009/11/vintage-by-sea.html' title=''/><author><name>Blog editor</name><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='14401421058688395171'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://3.bp.blogspot.com/_wECfy8ampaw/SvJo9dhNV9I/AAAAAAAABU0/R4CNZd4gP3g/s72-c/292637288_tp.jpg' height='72' width='72'/><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5794391632872351899.post-7938997778876990540</id><published>2009-11-04T20:18:00.008+11:00</published><updated>2009-11-05T11:06:33.729+11:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Library'/><category scheme='http://www.blogger.com/atom/ns#' term='Publication'/><category scheme='http://www.blogger.com/atom/ns#' term='Information'/><title type='text'>Library Thursdays: Other Australian Websites and Newsletters</title><content type='html'>&lt;div&gt;&lt;span class="Apple-style-span"   style="font-family:verdana;color:#000099;"&gt;In addition to the books, videos and kits available in the library, we also have newsletters from many organisations including Down syndrome associations throughout Australia and the world. Articles from these are referred to from time to time in our newsletter but many of these are available from the associations' websites as well as other interesting things.&lt;/span&gt;&lt;br /&gt;&lt;div&gt;&lt;span class="Apple-style-span"   style="font-family:verdana;color:#000099;"&gt;&lt;/span&gt;&lt;/div&gt;&lt;br /&gt;&lt;div&gt;&lt;span class="Apple-style-span"   style="font-family:verdana;color:#000099;"&gt;&lt;a href="http://www.downsyndromevictoria.org.au/"&gt;Dow&lt;/a&gt;&lt;a href="http://1.bp.blogspot.com/_cqIaRrwI_Go/SvIWukwCaqI/AAAAAAAAAOw/Ux57P6oclGY/s1600-h/VoiceSpring09.jpg"&gt;&lt;img style="MARGIN: 0px 10px 10px 0px; WIDTH: 75px; FLOAT: left; HEIGHT: 106px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5400403892565600930" border="0" alt="" src="http://1.bp.blogspot.com/_cqIaRrwI_Go/SvIWukwCaqI/AAAAAAAAAOw/Ux57P6oclGY/s200/VoiceSpring09.jpg" /&gt;&lt;/a&gt;&lt;a href="http://www.downsyndromevictoria.org.au/"&gt;n Syndrome Victoria&lt;/a&gt;'s journal, &lt;strong&gt;Voice&lt;/strong&gt; . The current issue, Spring 2009, includes articles on: &lt;em&gt;Teaching new skills and building competence&lt;/em&gt;, &lt;em&gt;Healthy lives and informed choices. You can have both!&lt;/em&gt; by Joan Guthrie Medlen, &lt;em&gt;"Says who?: Life stories and people with Down syndrome &lt;/em&gt;by Amie O'Shea, &lt;em&gt;Story books&lt;/em&gt; by Kirsten Deane (about creating books for your child), &lt;em&gt;Tim's story&lt;/em&gt; by Kate Calwell.&lt;/span&gt;&lt;/div&gt;&lt;br /&gt;&lt;div&gt;&lt;span class="Apple-style-span"   style="font-family:verdana;color:#000099;"&gt;Some of the past issue's articles are available on &lt;a href="http://www.downsyndromevictoria.org.au/"&gt;their website &lt;/a&gt;from the Journal &lt;/span&gt;&lt;span style="COLOR: rgb(0,0,153);font-family:verdana, serif;" class="Apple-style-span" &gt;menu item (this will show up in the menu on the left after clicking Down Syndrome Victoria from that menu and then Publications even though nothing will appear on the Publications page. (I think the site is still developing).)&lt;/span&gt;&lt;/div&gt;&lt;br /&gt;&lt;div&gt;&lt;span style="font-family:Verdana;color:#000099;"&gt;&lt;a href="http://www.dsawa.asn.au/"&gt;Down Syndrome Western Australia&lt;/a&gt; has recently launched their new website. Their newsletter, &lt;a href="http://www.dsawa.asn.au/about-dswa/membership/newsletter.html"&gt;The Diary &lt;/a&gt;is available online. The site has other interesting informtion and there is also a link to the developmental disability library in WA--&lt;a href="http://parentportal.activ.asn.au/"&gt;ACTIV&lt;/a&gt;.&lt;/span&gt;&lt;/div&gt;&lt;br /&gt;&lt;div&gt;&lt;span style="font-family:Verdana;color:#000099;"&gt;&lt;/span&gt;&lt;/div&gt;&lt;div&gt;&lt;span class="Apple-style-span"   style="font-family:verdana, serif;color:#000099;"&gt;&lt;a href="http://www.dsaq.org.au/"&gt;Down Syndrome Association Queensland&lt;/a&gt;'s newsletter, &lt;strong&gt;DSAQ Digest&lt;/strong&gt; is not available on their website but the latest issue in our library has articles on; &lt;em&gt;Health checks&lt;/em&gt;, &lt;em&gt;World Down Syndrome Day 2009&lt;/em&gt;, &lt;em&gt;Queensland Companion Card&lt;/em&gt;, &lt;em&gt;Siblings&lt;/em&gt;, and &lt;em&gt;Vision &amp;amp; Glasses&lt;/em&gt;.&lt;/span&gt;&lt;/div&gt;&lt;div&gt;&lt;span style="font-family:Verdana;color:#000099;"&gt;&lt;/span&gt;&lt;/div&gt;&lt;br /&gt;&lt;div&gt;&lt;span class="Apple-style-span"   style="font-family:verdana, serif;color:#000099;"&gt;&lt;a href="http://www.actdsa.asn.au/site/"&gt;ACT Down Syndrome Association&lt;/a&gt;'s newsletter is also not online, but their website is up to date.&lt;/span&gt;&lt;/div&gt;&lt;div&gt;&lt;span style="font-family:Verdana;color:#000099;"&gt;&lt;/span&gt;&lt;/div&gt;&lt;br /&gt;&lt;div&gt;&lt;span class="Apple-style-span"   style="font-family:verdana, serif;color:#000099;"&gt;&lt;a href="http://www.downsyndrometasmania.org.au/"&gt;Down Syndrome Tasmania&lt;/a&gt;'s newsletter of Winter 2009 had articles about its &lt;em&gt;25th birthday&lt;/em&gt;, &lt;em&gt;Tim's Story&lt;/em&gt;, and &lt;em&gt;Two choices: I hope I made the right one&lt;/em&gt;- an article about putting inclusion above winning in a baseball game.&lt;/span&gt;&lt;/div&gt;&lt;br /&gt;&lt;div&gt;&lt;span class="Apple-style-span"   style="font-family:verdana, serif;color:#000099;"&gt;&lt;a href="http://www.downssa.asn.au/dsssa/index.php"&gt;Down Syndrome Society of South Australia&lt;/a&gt; produce their own informational books and these can be purchased from their site.&lt;/span&gt;&lt;/div&gt;&lt;br /&gt;&lt;div&gt;&lt;span class="Apple-style-span"   style="font-family:verdana, serif;color:#000099;"&gt;&lt;a href="http://www.f21.org.au/"&gt;Foundation 21 (South Australia)&lt;/a&gt; also has a few pictures and news items from their events.&lt;/span&gt;&lt;/div&gt;&lt;br /&gt;&lt;div&gt;&lt;span style="font-family:Verdana;color:#000099;"&gt;Down Syndrome Association of the Northern Territory do not have a website, but they do have a newsletter. In their September 2009 edition, articles include a &lt;em&gt;Report from the World Down Syndrome Congress&lt;/em&gt;, a &lt;em&gt;History of Down Syndrome&lt;/em&gt; and tips on &lt;em&gt;Introducing the computer to a child or student&lt;/em&gt;.&lt;/span&gt;&lt;/div&gt;&lt;div&gt;&lt;span class="Apple-style-span"   style="font-family:verdana;color:#000099;"&gt;&lt;/span&gt; &lt;/div&gt;&lt;div&gt;&lt;span class="Apple-style-span"   style="font-family:verdana;color:#000099;"&gt;We have &lt;a href="http://www.dsansw.org.au/index.php?pg=200"&gt;links to all the Australian associations&lt;/a&gt; (their location, website and contact details) on our website.&lt;/span&gt; &lt;/div&gt;&lt;/div&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/5794391632872351899-7938997778876990540?l=keepingupwithds.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://keepingupwithds.blogspot.com/feeds/7938997778876990540/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=5794391632872351899&amp;postID=7938997778876990540' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/7938997778876990540'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/7938997778876990540'/><link rel='alternate' type='text/html' href='http://keepingupwithds.blogspot.com/2009/11/library-thursdays-other-australian.html' title='Library Thursdays: Other Australian Websites and Newsletters'/><author><name>Library</name><uri>http://www.blogger.com/profile/13459297793735742220</uri><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='17885542880445698436'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://1.bp.blogspot.com/_cqIaRrwI_Go/SvIWukwCaqI/AAAAAAAAAOw/Ux57P6oclGY/s72-c/VoiceSpring09.jpg' height='72' width='72'/><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5794391632872351899.post-3806315999685018575</id><published>2009-11-03T10:55:00.003+11:00</published><updated>2009-11-03T11:57:12.693+11:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='News'/><category scheme='http://www.blogger.com/atom/ns#' term='Government'/><category scheme='http://www.blogger.com/atom/ns#' term='Funding'/><category scheme='http://www.blogger.com/atom/ns#' term='Other people&apos;s blogs'/><category scheme='http://www.blogger.com/atom/ns#' term='Education'/><title type='text'>Threatened closure of school highlights system gaps ... again</title><content type='html'>&lt;span style="font-family:verdana;"&gt;&lt;span style="color:#000099;"&gt;There have been numerous stories, and an official inquiry into the provision of adequate care and support for people with severe disabilities and their families, and another threat is&lt;/span&gt; &lt;/span&gt;&lt;a href="http://www.smh.com.au/national/harrowing-choice-put-a-loving-mother-to-the-test-20091102-htfl.html"&gt;&lt;span style="font-family:verdana;"&gt;reported in the &lt;em&gt;&lt;strong&gt;Sydney Morning Herald&lt;/strong&gt;&lt;/em&gt; this morning&lt;/span&gt;&lt;/a&gt;&lt;span style="font-family:verdana;"&gt;:&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:Verdana;"&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;strong&gt;&lt;em&gt;Harrowing choice put a loving mother to the test&lt;/em&gt;&lt;/strong&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;Louise Hall,  Sydney Morning Herald,  November 3, 2009&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;"&gt;&lt;/span&gt;&lt;br /&gt;&lt;em&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;Exhausted and depressed after devoting her life to caring for her severely disabled son Niall, Anita Cain took him to a respite centre - and left him there.&lt;br /&gt;Abandoning him to the state's welfare system 3½ years ago was the only way the single mother could get the support she needed.&lt;/span&gt;&lt;/em&gt;&lt;br /&gt;&lt;em&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;A rare genetic condition means Niall is deaf, blind in one eye and developmentally delayed, but Ms Cain's pleas for a permanent placement in supported accommodation were rejected until she relinquished day-to-day responsibility for him to the Department of Community Services.&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;br /&gt;''I only got one weekend every two months respite … all I wanted was more regular, longer breaks, but they wouldn't find anywhere for Niall to go unless I officially abandoned him,'' she said.&lt;/span&gt;&lt;/em&gt;&lt;br /&gt;&lt;/em&gt;&lt;em&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;In NSW 32 children were given up to the Department of Community Services in the two years to June and this could worsen, with the state's only boarding school for severely disabled children facing closure.&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:Verdana;color:#000099;"&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:Verdana;color:#000099;"&gt;&lt;a href="http://www.smh.com.au/national/harrowing-choice-put-a-loving-mother-to-the-test-20091102-htfl.html"&gt;Click here to read the full report&lt;/a&gt;.&lt;/span&gt;&lt;/em&gt;&lt;br /&gt;&lt;/em&gt;&lt;span style="font-family:verdana;"&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;While we are aware of at least one other school in NSW that does offer boarding facilities for children with disabilities, and that it is highly valued by the families of its students, the threatened closure of Kingsdene might well put pressure on the capacity of any other similar school, as well as on the families of Kingsdene students.&lt;/span&gt;&lt;br /&gt;&lt;a href="http://www.smh.com.au/national/harrowing-choice-put-a-loving-mother-to-the-test-20091102-htfl.html"&gt;&lt;span style="font-family:verdana;"&gt;&lt;/span&gt;&lt;/a&gt;&lt;br /&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/5794391632872351899-3806315999685018575?l=keepingupwithds.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://keepingupwithds.blogspot.com/feeds/3806315999685018575/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=5794391632872351899&amp;postID=3806315999685018575' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/3806315999685018575'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/3806315999685018575'/><link rel='alternate' type='text/html' href='http://keepingupwithds.blogspot.com/2009/11/threatened-closure-of-school-highlights.html' title='Threatened closure of school highlights system gaps ... again'/><author><name>Blog editor</name><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='14401421058688395171'/></author><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5794391632872351899.post-5442289506517018648</id><published>2009-11-03T07:00:00.001+11:00</published><updated>2009-11-03T07:00:00.875+11:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Fund-raising'/><category scheme='http://www.blogger.com/atom/ns#' term='DS NSW event'/><title type='text'>Scrapheap Adventure 2010 registrations now open</title><content type='html'>&lt;span style="font-family:verdana;"&gt;&lt;span style="color:#000099;"&gt;You can register now for the &lt;strong&gt;&lt;em&gt;2010 Scrapheap Adventure&lt;/em&gt;&lt;/strong&gt; via the link&lt;/span&gt; &lt;/span&gt;&lt;a href="http://www.dsansw.org.au/index.php?pg=576"&gt;&lt;span style="font-family:verdana;"&gt;&lt;strong&gt;here&lt;/strong&gt;&lt;/span&gt;&lt;/a&gt;&lt;span style="font-family:verdana;"&gt;.&lt;br /&gt;&lt;/span&gt;&lt;br /&gt;&lt;img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 384px; DISPLAY: block; HEIGHT: 288px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5399416862101786930" border="0" alt="" src="http://4.bp.blogspot.com/_wECfy8ampaw/Su6VB1vU0TI/AAAAAAAABUs/ULfuDLOeoGk/s400/Bike%25202%2520web.jpg" /&gt;&lt;br /&gt;&lt;span style="font-family:verdana;"&gt;&lt;span style="color:#000099;"&gt;And if the Scrapheap Adventure concept has captured your interest, you can follow&lt;/span&gt; &lt;/span&gt;&lt;a href="http://advrider.com/forums/showthread.php?t=497905"&gt;&lt;span style="font-family:verdana;"&gt;&lt;strong&gt;this discussion thread&lt;/strong&gt;&lt;/span&gt;&lt;/a&gt;&lt;span style="font-family:verdana;"&gt; &lt;span style="color:#000099;"&gt;for some inside information.&lt;/span&gt;&lt;/span&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/5794391632872351899-5442289506517018648?l=keepingupwithds.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://keepingupwithds.blogspot.com/feeds/5442289506517018648/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=5794391632872351899&amp;postID=5442289506517018648' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/5442289506517018648'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/5442289506517018648'/><link rel='alternate' type='text/html' href='http://keepingupwithds.blogspot.com/2009/10/scrapheap-adventure-2010-registrations.html' title='Scrapheap Adventure 2010 registrations now open'/><author><name>Blog editor</name><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='14401421058688395171'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://4.bp.blogspot.com/_wECfy8ampaw/Su6VB1vU0TI/AAAAAAAABUs/ULfuDLOeoGk/s72-c/Bike%25202%2520web.jpg' height='72' width='72'/><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5794391632872351899.post-5899985944225545559</id><published>2009-11-03T06:59:00.002+11:00</published><updated>2009-11-03T07:04:44.321+11:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Other people&apos;s blogs'/><title type='text'>New addition to the Blogroll</title><content type='html'>&lt;span style="font-family:verdana;color:#000099;"&gt;The &lt;strong&gt;Blogroll&lt;/strong&gt; is the list of blogs that we check into regularly - scroll down the right hand column of this page and you'll come to it.  &lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;"&gt;&lt;span style="color:#000099;"&gt;We've just added&lt;/span&gt; &lt;/span&gt;&lt;a href="http://welcometoillinois.wordpress.com/"&gt;&lt;span style="font-family:verdana;"&gt;&lt;em&gt;&lt;strong&gt;Welcome to Illinois&lt;/strong&gt;&lt;/em&gt;&lt;/span&gt;&lt;/a&gt;&lt;span style="font-family:verdana;"&gt;&lt;span style="color:#000099;"&gt;, views from Matt, one of many dads who have chosen to blog about his thoughts and experiences&lt;/span&gt; &lt;span style="color:#000099;"&gt;arising from being the father of a child with Down syndrome, and one without.&lt;/span&gt;&lt;/span&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/5794391632872351899-5899985944225545559?l=keepingupwithds.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://keepingupwithds.blogspot.com/feeds/5899985944225545559/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=5794391632872351899&amp;postID=5899985944225545559' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/5899985944225545559'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/5899985944225545559'/><link rel='alternate' type='text/html' href='http://keepingupwithds.blogspot.com/2009/11/new-addition-to-blogroll.html' title='New addition to the Blogroll'/><author><name>Blog editor</name><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='14401421058688395171'/></author><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5794391632872351899.post-5264050918818766376</id><published>2009-11-02T18:42:00.005+11:00</published><updated>2009-11-02T19:00:14.479+11:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='News'/><category scheme='http://www.blogger.com/atom/ns#' term='Statistics'/><category scheme='http://www.blogger.com/atom/ns#' term='Prenatal testing'/><category scheme='http://www.blogger.com/atom/ns#' term='Media'/><title type='text'>Scotland on Sunday: opinion on UK research and media</title><content type='html'>&lt;p&gt;&lt;em&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;This article from a Scottish Sunday paper was also prompted by the media response to the UK statistics released last week.&lt;/span&gt;&lt;/em&gt;&lt;/p&gt;&lt;p&gt;&lt;a href="http://scotlandonsunday.scotsman.com/comment/Dani-Garavelli-The-upside-of.5784338.jp"&gt;&lt;span style="font-family:verdana;"&gt;&lt;strong&gt;&lt;em&gt;The upside of Down's&lt;/em&gt;&lt;/strong&gt;&lt;/span&gt;&lt;/a&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;span style="font-size:85%;"&gt;Dani Garavelli,  &lt;strong&gt;Scotland on Sunday&lt;/strong&gt;, 01 November 2009&lt;/span&gt;   &lt;/span&gt;&lt;/p&gt;&lt;p&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;Almost every day, I pass a little boy with Down's syndrome coming home from school. &lt;/span&gt;&lt;/p&gt;&lt;p&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;As he bounces along the road, his face beaming, he is so cute I want to pick him up and take him home. At my local church, too, there are special masses in which adults with DS play a leading role. They are among the most moving services I've been to, perhaps because those involved throw themselves so unreservedly and so unselfconsciously into proceedings.&lt;/span&gt;&lt;/p&gt;&lt;p&gt;&lt;span style="font-family:verdana;"&gt;&lt;span style="color:#000099;"&gt;Of course, I realise these brief encounters give me no real insight into what it would be like to raise a child born with this condition. Moreover, harping on about how "loving" and "unaffected" people with DS are, is borderline offensive, suggesting as it does that they are a homogeneous mass rather than individuals with distinctive personalities like everyone else.&lt;/span&gt; &lt;/span&gt;&lt;a href="http://scotlandonsunday.scotsman.com/comment/Dani-Garavelli-The-upside-of.5784338.jp"&gt;&lt;span style="font-family:verdana;"&gt;&lt;em&gt;Click here to read the whole article.&lt;/em&gt;&lt;/span&gt;&lt;/a&gt;&lt;/p&gt;&lt;p&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;em&gt;(Ed - I had to read the third last paragraph a couple of times to be sure what it said.  A quick Google search showed that Claire Rayner's patronage of the Down's Syndrome Association (in London) was immediately terminated when she made the remarks referred to.)&lt;/em&gt;&lt;/span&gt;&lt;/p&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/5794391632872351899-5264050918818766376?l=keepingupwithds.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://keepingupwithds.blogspot.com/feeds/5264050918818766376/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=5794391632872351899&amp;postID=5264050918818766376' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/5264050918818766376'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/5264050918818766376'/><link rel='alternate' type='text/html' href='http://keepingupwithds.blogspot.com/2009/11/scotland-on-sunday-opinion-on-uk.html' title='Scotland on Sunday: opinion on UK research and media'/><author><name>Blog editor</name><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='14401421058688395171'/></author><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5794391632872351899.post-3319349348727068326</id><published>2009-11-02T07:19:00.001+11:00</published><updated>2009-11-02T14:57:17.045+11:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='News'/><category scheme='http://www.blogger.com/atom/ns#' term='Statistics'/><category scheme='http://www.blogger.com/atom/ns#' term='Prenatal testing'/><category scheme='http://www.blogger.com/atom/ns#' term='Families'/><category scheme='http://www.blogger.com/atom/ns#' term='Media'/><title type='text'>From disbelief at Down diagnosis to joy and delight</title><content type='html'>&lt;span style="font-family:verdana;color:#000099;"&gt;Prompted by the media response to UK research published last week, the Sun-Herald investigated local statistics, and published this report today. It was accompanied by a delightful photoraph of Ian and Jo Smith with their children:&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;/span&gt;&lt;br /&gt;&lt;a href="http://newsstore.fairfax.com.au/apps/viewDocument.ac?&amp;amp;ectsup=&amp;amp;docID=SHD091101JF72Q691SFO"&gt;&lt;em&gt;&lt;strong&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;From disbelief at Down diagnosis to joy and delight&lt;/span&gt;&lt;/strong&gt;&lt;/em&gt; &lt;/a&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;by Jessica Mahar, &lt;strong&gt;Sun-Herald&lt;/strong&gt; (Sydney) 01/11/2009&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;Ian and Jo Smith knew their third child would have Down syndrome from the time Ms Smith was 15 weeks pregnant. A 12-week screening showed a one-in-six risk but the couple wanted to be sure. &lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;When the result came back positive, Ms Smith, 43, could hardly believe the results. "I thought I was going to be sick, I had no idea how I was going to cope with it and I probably cried for three days and then I didn't cry any more. Then we just started our research."&lt;br /&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;Their daughter, Catherine Rose, was born three weeks ago. &lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;"I went through that, feeling guilty about the impact it would have on my other children and who would look after Cate when we've gone," said Ms Smith, from Sydney's eastern suburbs.&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;br /&gt;"My five-year-old saw me crying a lot. He heard me saying the words Down syndrome so I told him his sister has got something called Down syndrome and it means she might take longer to do things and she might need more help from us."&lt;br /&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;The number of diagnoses of Down syndrome in NSW has increased as women have delayed motherhood. &lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;But the number of babies born with the syndrome has dropped as prenatal screening has improved and more people have chosen to terminate their pregnancies. &lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;In 1995, there were 140 diagnoses of Down syndrome and, of that number, 113 ( 81 per cent ) were born. The rest were either stillbirths, neonatal deaths or terminated. &lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;Figures from 2005 reveal 211 cases, with 73 babies born (a 35 per cent birth rate). &lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;br /&gt;A 20-year-old woman has a one in 1411 chance of having a baby born with Down syndrome. Ten years later, at 30, the risk rises to one in 959. At 40 it is one in 84 and at 45 it's one in 32. &lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;br /&gt;&lt;/span&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;/span&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;Down Syndrome NSW information and services director Jill O'Connor said she was worried people didn't have enough time or information when they were told the news. &lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;"We're not convinced that people are getting all the information that they might like to have when they are making these decisions," she said. &lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;"We want them to know what Down syndrome is and we'd also like to see people not being made to make quick decisions." &lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;Ms O'Connor has a 24-year-old son with the condition, who was diagnosed at birth. "Nearly every child who is diagnosed with Down syndrome is going to be a wanted baby," she said. "People are still being given very negative information and very often the assumption of health professionals and family professionals is if you have a diagnosis you will terminate." &lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;br /&gt;&lt;/span&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;/span&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;Andrew McLennan from the Royal Australian and New Zealand College of Obstetricians and Gynaecologists said screening had improved but it needed to be offered to all. &lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;"This is all about choice," he said. "It's certainly not about running a program seeking to increase the terminations for abnormalities."&lt;br /&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;Genetics counsellor Mona Saleh, who works for the Centre for Genetics Education, said the statistics showed a change of demographics in prenatal testing. &lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;"There are more people being screened now than 10 to 15 years ago," she said. "It was only older mothers who were being offered testing." &lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;The Smiths say they would not have it any other way. &lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;"We would not swap this journey," Ms Smith said. "I wouldn't even swap the Down syndrome because our family has just now come together. &lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;"I don't even see the Down syndrome when I look at her. She's the joy of my life."&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:Verdana;color:#000099;"&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:Verdana;color:#000099;"&gt;&lt;em&gt;This information was presented in a table, highlighting the increased diagnoses and termination rate:&lt;/em&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;"&gt;&lt;span style="color:#000099;"&gt;&lt;br /&gt;The 1995 birth rate of foetuses diagnosed with Down syndrome.&lt;br /&gt; 140 cases of Down syndrome were diagnosed.&lt;br /&gt; 113 babies were born with the disorder.&lt;br /&gt; 27 terminated, stillborn or neonatal death (vast majority terminated)&lt;br /&gt;&lt;br /&gt;The 2005 birth rate of foetuses diagnosed with Down syndrome.&lt;br /&gt; 211 cases of Down syndrome were diagnosed.&lt;br /&gt; 73 babies were born with the disorder.&lt;br /&gt; 138 terminated, stillborn or neonatal death (vast majority terminated).&lt;br /&gt;&lt;em&gt;Source: NSW Mothers and Babies reports&lt;/em&gt;&lt;/span&gt;&lt;/span&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/5794391632872351899-3319349348727068326?l=keepingupwithds.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://keepingupwithds.blogspot.com/feeds/3319349348727068326/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=5794391632872351899&amp;postID=3319349348727068326' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/3319349348727068326'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/3319349348727068326'/><link rel='alternate' type='text/html' href='http://keepingupwithds.blogspot.com/2009/11/from-disbelief-at-down-diagnosis-to-joy.html' title='From disbelief at Down diagnosis to joy and delight'/><author><name>Blog editor</name><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='14401421058688395171'/></author><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5794391632872351899.post-2823413632791721795</id><published>2009-10-30T18:29:00.004+11:00</published><updated>2009-10-30T18:49:12.327+11:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Supported accommodation'/><title type='text'>"ADHC"; revised supported accommodation document; new supported accommodation places</title><content type='html'>&lt;span style="font-family:verdana;color:#000099;"&gt;Since the creation of the "super-department" of Human Services, the Department of Ageing, Disability and Home Care is no longer a government "department", and will be known as NSW &lt;em&gt;&lt;strong&gt;Ageing, Disability and Home Care (ADHC).&lt;/strong&gt;&lt;/em&gt;  Its CEO is Jim Moore, who was previously called the Director-General.&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;strong&gt;ADHC&lt;/strong&gt; has published its revised protocols for allocating supported accommodation places in non-government services that are ADHC operated and funded. &lt;/span&gt;&lt;a href="http://www.carersnsw.asn.au/ebulletins/Oct2008.htm#SupportedAccommodation" target="_blank"&gt;&lt;/a&gt;&lt;span style="font-family:verdana;"&gt;&lt;span style="color:#000099;"&gt;Read the new ADHC document here:&lt;/span&gt; &lt;/span&gt;&lt;a href="http://www.dadhc.nsw.gov.au/NR/rdonlyres/C21BABCF-6001-400F-9D38-E4042FAD6281/4650/APSAweb.pdf" target="_blank"&gt;&lt;span style="font-family:verdana;"&gt;&lt;strong&gt;&lt;em&gt;Allocation of places in supported accommodation policy and procedures　&lt;/em&gt;&lt;/strong&gt;&lt;/span&gt;&lt;/a&gt;&lt;br /&gt;&lt;span style="font-family:verdana;"&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;"&gt;&lt;span style="color:#000099;"&gt;&lt;em&gt;These extracts briefly address the most common enquiries we receive from families, about availability and the process for accessing ADHC supported accommodation (of course the document includes a great deal more detail)&lt;/em&gt;:&lt;/span&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;"&gt;&lt;span style="color:#000099;"&gt;&lt;strong&gt;4.1 Guiding principles&lt;/strong&gt; ..... (4) A person’s needs are more likely to be met effectively by making &lt;strong&gt;early contact&lt;/strong&gt; with DADHC, before any crises occur. &lt;em&gt;Carers may contact the regional &lt;a href="http://www.dadhc.nsw.gov.au/dadhc/Contact+DADHC/DADHC+Regional.htm"&gt;Information, Referral and Intake&lt;/a&gt; teams &lt;strong&gt;at any time&lt;/strong&gt;&lt;/em&gt; to discuss their circumstances and to explore the support options available to them.&lt;/span&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;"&gt;&lt;span style="color:#000099;"&gt;&lt;strong&gt;5.1 Requesting a supported accommodation place&lt;/strong&gt; ..... Where a person with a disability is eligible for and seeks supported accommodation, the case manager will confirm the person’s eligibility for supported accommodation and consider all other support options with the person and his or her family/support person/guardian. Once this has occurred, the case manager will submit a written request for a place on the &lt;strong&gt;Register of Requests for Supported Accommodation&lt;/strong&gt;. The person with a disability will be notified in writing that his or her request has been added to the register. &lt;/span&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;"&gt;&lt;span style="color:#000099;"&gt;&lt;strong&gt;5.1.1 Indication of future service need&lt;/strong&gt; ..... A person may indicate to DADHC if they consider they will have a future need for supported accommodation. &lt;em&gt;&lt;strong&gt;This information will be recorded by DADHC and may be used in future planning.&lt;/strong&gt;&lt;/em&gt; When a client notifies DADHC that their indicated future need has become an immediate need services will be offered on the basis of assessed need, priority and available places.&lt;/span&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;"&gt;&lt;span style="color:#000099;"&gt;&lt;strong&gt;5.7 Creating a shortlist&lt;/strong&gt; [for a vacancy].....&lt;/span&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;(d) Priority and in order: &lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;em&gt;&lt;strong&gt;High:&lt;/strong&gt;&lt;/em&gt; &lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;• homeless or effectively homeless, or&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;• at imminent risk of homelessness – the person’s support system has broken down, or&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;• the person’s own support needs have increased and the family is unable to continue to provide support in the family home, or&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;• the person’s primary carer is older than 65, or who has ageing related support needs, or&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;• the person is in receipt of emergency funded support and has applied for supported accommodation, or&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;• the person or placement is at risk, or&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;• a person requesting to move from one supported accommodation place funded by DADHC to another supported accommodation place funded by DADHC where the current place does not adequately support a person’s living arrangements or social connections, or&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;• a person exiting from the Integrated Services Project (ISP).　&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;strong&gt;&lt;em&gt;Moderate:&lt;/em&gt;&lt;/strong&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;• A person whose current living arrangements are not likely to be sustainable or whose current placement is showing early signs of breaking down.&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;strong&gt;&lt;em&gt;Low:&lt;/em&gt;&lt;/strong&gt;　&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;• For any other reason not mentioned above.&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:Verdana;color:#000099;"&gt;&lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;The continued roll out of new supported accommodation places under the &lt;em&gt;&lt;strong&gt;Stronger Together&lt;/strong&gt;&lt;/em&gt; initiative is announced in this &lt;/span&gt;&lt;a href="http://www.dadhc.nsw.gov.au/dadhc/Media+Releases/2009108.htm"&gt;&lt;span style="font-family:verdana;"&gt;&lt;strong&gt;Ministerial media release (8th October).&lt;/strong&gt;&lt;/span&gt;&lt;/a&gt;&lt;span style="font-family:verdana;"&gt; &lt;/span&gt;&lt;span style="font-family:verdana;"&gt;&lt;/span&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/5794391632872351899-2823413632791721795?l=keepingupwithds.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://keepingupwithds.blogspot.com/feeds/2823413632791721795/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=5794391632872351899&amp;postID=2823413632791721795' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/2823413632791721795'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/2823413632791721795'/><link rel='alternate' type='text/html' href='http://keepingupwithds.blogspot.com/2009/10/adhc-revised-supported-accommodation.html' title='&quot;ADHC&quot;; revised supported accommodation document; new supported accommodation places'/><author><name>Blog editor</name><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='14401421058688395171'/></author><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5794391632872351899.post-3164856786330298720</id><published>2009-10-29T10:00:00.006+11:00</published><updated>2009-10-29T10:00:00.064+11:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Library'/><title type='text'>Library Thursdays: Up Up and Away DVD and Manual</title><content type='html'>&lt;a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://1.bp.blogspot.com/_cqIaRrwI_Go/SugPduH0oRI/AAAAAAAAAOo/kdIMbJWd54c/s1600-h/U+A+logo+small.jpg"&gt;&lt;img style="float:left; margin:0 10px 10px 0;cursor:pointer; cursor:hand;width: 200px; height: 139px;" src="http://1.bp.blogspot.com/_cqIaRrwI_Go/SugPduH0oRI/AAAAAAAAAOo/kdIMbJWd54c/s200/U+A+logo+small.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5397581156675002642" /&gt;&lt;/a&gt;&lt;span class="Apple-style-span"   style="font-family:verdana;color:#000099;"&gt;Following on from &lt;a href="http://keepingupwithds.blogspot.com/2009/10/library-thursdays-futuro-presente-dvd.html"&gt;last week&lt;/a&gt;, another DVD has come into the library about adults with Down syndrome working towards their goals. The &lt;a href="http://www.dsansw.org.au/index.php?pg=184"&gt;Up Up and Away project&lt;/a&gt; recently launched its DVD and manual showing how to set up a program that enables adults to identity their interests and goals and set up the supports that make attaining those goals possible. The DVD is inspiring to watch. It shows the change that occurs for the young adults throughout the program. And the young people, their family and support teams all give their views.&lt;/span&gt;&lt;div&gt;&lt;span class="Apple-style-span"   style="font-family:verdana, serif;color:#000099;"&gt;&lt;img style="float:right; margin:0 0 10px 10px;cursor:pointer; cursor:hand;width: 140px; height: 181px;" src="http://1.bp.blogspot.com/_cqIaRrwI_Go/SugPJfzpL-I/AAAAAAAAAOg/fQigRttCbQs/s320/next_chapter_book_club.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5397580809234886626" /&gt;&lt;/span&gt;&lt;div&gt;&lt;div&gt;&lt;span class="Apple-style-span"   style="font-family:verdana, serif;color:#000099;"&gt;&lt;br /&gt;&lt;/span&gt;&lt;/div&gt;&lt;div&gt;&lt;span class="Apple-style-span"   style="font-family:verdana;color:#000099;"&gt;Also new to the library is another book which may help some people with Down syndrome follow their interests or reach some goals. It is the &lt;b&gt;Next Chapter Book Club&lt;/b&gt; (Woodbine House, 2009).  We have &lt;a href="http://keepingupwithds.blogspot.com/2009/03/library-thursdays-next-chapter-book.html"&gt;blogged before about this co&lt;/a&gt;&lt;a href="http://keepingupwithds.blogspot.com/2009/03/library-thursdays-next-chapter-book.html"&gt;ncept&lt;/a&gt;, but now everything you need to know to set up your own book group is contained in this book. It also explains the benefits&lt;/span&gt;&lt;/div&gt;&lt;div&gt;&lt;span class="Apple-style-span"   style="font-family:verdana;color:#000099;"&gt;and talks about the groups already in existence. We still hope to get funding to set up a trial group, but now you don't need to wait for that, just borrow this book and get started.&lt;/span&gt;&lt;/div&gt;&lt;div&gt;&lt;span class="Apple-style-span"   style="font-family:verdana, serif;color:#000099;"&gt;To borrow this or the Up Up and Away program DVD and manual, just &lt;a href="mailto:library@dsansw.org.au"&gt;email&lt;/a&gt; us.&lt;/span&gt;&lt;/div&gt;&lt;/div&gt;&lt;/div&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/5794391632872351899-3164856786330298720?l=keepingupwithds.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://keepingupwithds.blogspot.com/feeds/3164856786330298720/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=5794391632872351899&amp;postID=3164856786330298720' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/3164856786330298720'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/3164856786330298720'/><link rel='alternate' type='text/html' href='http://keepingupwithds.blogspot.com/2009/10/library-thursdays-up-up-and-away-dvd.html' title='Library Thursdays: Up Up and Away DVD and Manual'/><author><name>Library</name><uri>http://www.blogger.com/profile/13459297793735742220</uri><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='17885542880445698436'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://1.bp.blogspot.com/_cqIaRrwI_Go/SugPduH0oRI/AAAAAAAAAOo/kdIMbJWd54c/s72-c/U+A+logo+small.jpg' height='72' width='72'/><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5794391632872351899.post-5077493710546338923</id><published>2009-10-28T20:21:00.005+11:00</published><updated>2009-10-29T08:31:29.307+11:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='News'/><category scheme='http://www.blogger.com/atom/ns#' term='Research'/><category scheme='http://www.blogger.com/atom/ns#' term='Prenatal testing'/><category scheme='http://www.blogger.com/atom/ns#' term='Other people&apos;s blogs'/><category scheme='http://www.blogger.com/atom/ns#' term='Families'/><category scheme='http://www.blogger.com/atom/ns#' term='Media'/><title type='text'>UK research  widely reported:  increased diagnoses, steady birth rate</title><content type='html'>&lt;span style="font-family:verdana;"&gt;&lt;span style="color:#000099;"&gt;This paper published online this week by the&lt;/span&gt; &lt;/span&gt;&lt;a href="http://www.bmj.com/cgi/content/full/339/oct26_3/b3794?maxtoshow=&amp;amp;HITS=10&amp;amp;hits=10&amp;amp;RESULTFORMAT=&amp;amp;fulltext=down+syndrome&amp;amp;searchid=1&amp;amp;FIRSTINDEX=0&amp;amp;sortspec=date&amp;amp;resourcetype=HWCIT"&gt;&lt;span style="font-family:verdana;"&gt;&lt;strong&gt;British Medical Journal&lt;/strong&gt;&lt;/span&gt;&lt;/a&gt;,&lt;span style="color:#000099;"&gt;&lt;span style="font-family:verdana;"&gt; on the observed increase in prenatal diagnosis and a steady rate of live births while termination rates remain very high in the UK,&lt;/span&gt; &lt;/span&gt;&lt;span style="font-family:verdana;"&gt; &lt;span style="color:#000099;"&gt;has produced widespread reporting and reaction in the British and international press, including various family responses: &lt;/span&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;/span&gt;&lt;br /&gt;&lt;em&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;Trends in Down’s syndrome live births and antenatal diagnoses in England and Wales from 1989 to 2008: analysis of data from the National Down Syndrome Cytogenetic Register&lt;/span&gt;&lt;/em&gt;&lt;br /&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;Joan K Morris, professor of medical statistics, Eva Alberman, emeritus professor, &lt;br /&gt;Wolfson Institute of Preventive Medicine, Barts and the London School of Medicine and Dentistry, Queen Mary University of London, London &lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;"&gt;&lt;span style="color:#000099;"&gt;The media is well summarised, linked and collated in &lt;strong&gt;Patricia Bauer's&lt;/strong&gt; commentary,&lt;/span&gt;  &lt;/span&gt;&lt;a href="http://www.patriciaebauer.com/"&gt;&lt;strong&gt;&lt;span style="font-family:verdana;"&gt;Disability News&lt;/span&gt;&lt;/strong&gt;&lt;/a&gt; &lt;span style="font-family:verdana;color:#000099;"&gt;(go to entries dated 28th October 2009).&lt;/span&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/5794391632872351899-5077493710546338923?l=keepingupwithds.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://keepingupwithds.blogspot.com/feeds/5077493710546338923/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=5794391632872351899&amp;postID=5077493710546338923' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/5077493710546338923'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/5077493710546338923'/><link rel='alternate' type='text/html' href='http://keepingupwithds.blogspot.com/2009/10/uk-research-widely-reported-increased.html' title='UK research  widely reported:  increased diagnoses, steady birth rate'/><author><name>Blog editor</name><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='14401421058688395171'/></author><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5794391632872351899.post-9110960655111162821</id><published>2009-10-28T20:11:00.002+11:00</published><updated>2009-10-28T20:18:34.896+11:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='National Disability Insurance Scheme'/><category scheme='http://www.blogger.com/atom/ns#' term='Life-long planning'/><category scheme='http://www.blogger.com/atom/ns#' term='Support'/><title type='text'>ABC TV's Q and A on National Disability Insurance Scheme</title><content type='html'>&lt;span style="font-family:verdana;"&gt;&lt;span style="color:#000099;"&gt;On Thursday 29 October at 9.30 pm, the &lt;strong&gt;ABC TV 'Q&amp;amp;A'&lt;/strong&gt; program will feature &lt;strong&gt;Bill Shorten&lt;/strong&gt; and &lt;strong&gt;Tony Abbott&lt;/strong&gt;. &lt;/span&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;"&gt;&lt;span style="color:#000099;"&gt;&lt;/span&gt;&lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;span style="font-family:verdana;"&gt;&lt;span style="color:#000099;"&gt;Written and video questions are now being taken. Please take a moment to show your support by posting a question about the &lt;strong&gt;National Disability Insurance Scheme&lt;/strong&gt; on the&lt;/span&gt; &lt;/span&gt;&lt;a href="http://www.abc.net.au/tv/qanda/coming_up.htm"&gt;&lt;span style="font-family:verdana;"&gt;&lt;strong&gt;Q&amp;amp;A website&lt;/strong&gt;&lt;/span&gt;&lt;/a&gt;&lt;span style="font-family:verdana;"&gt;.&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:Verdana;"&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:Verdana;color:#000099;"&gt;The program will be available as a Vodcast following the broadcast.&lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;span style="font-family:Verdana;"&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:Verdana;"&gt;&lt;span style="color:#000099;"&gt;Visit the &lt;strong&gt;National Disability Insurance Scheme&lt;/strong&gt; website&lt;/span&gt; &lt;strong&gt;&lt;a href="http://www.ndis.org.au/index.php"&gt;here&lt;/a&gt;&lt;/strong&gt;.&lt;/span&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/5794391632872351899-9110960655111162821?l=keepingupwithds.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://keepingupwithds.blogspot.com/feeds/9110960655111162821/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=5794391632872351899&amp;postID=9110960655111162821' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/9110960655111162821'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/9110960655111162821'/><link rel='alternate' type='text/html' href='http://keepingupwithds.blogspot.com/2009/10/abc-tvs-q-and-on-national-disability.html' title='ABC TV&apos;s Q and A on National Disability Insurance Scheme'/><author><name>Blog editor</name><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='14401421058688395171'/></author><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5794391632872351899.post-468150429986676999</id><published>2009-10-27T18:24:00.004+11:00</published><updated>2009-10-27T22:55:20.761+11:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='People with Down syndrome'/><category scheme='http://www.blogger.com/atom/ns#' term='Learning'/><category scheme='http://www.blogger.com/atom/ns#' term='Media'/><title type='text'>Photo Project</title><content type='html'>&lt;em&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;An invitation to men and women with Down syndrome:&lt;/span&gt;&lt;/em&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;Would you like to have a photograph taken with your boyfriend or girlfriend, partner or family? &lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;At your home, in a local park or at a wedding or commitment ceremony?&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;strong&gt;Liz Dore&lt;/strong&gt;, from &lt;strong&gt;&lt;a href="http://www.relationshipsandprivatestuff.com/"&gt;Relationships and Private Stuff&lt;/a&gt;,&lt;/strong&gt; is hoping to collect photos of a diverse range of couple, including those with intellectual disability. They would be used to create a set of A4 and A5 laminated cards to be used in relationships counselling and educational workshops. You would receive a photo enlargement and digital frames.&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;"&gt;&lt;span style="color:#000099;"&gt;If you and your partner are interested, please contact &lt;strong&gt;Liz Dore&lt;/strong&gt;, Relationships Counsellor and Educator: &lt;strong&gt;0416 122 634&lt;/strong&gt; or email&lt;/span&gt; &lt;/span&gt;&lt;a href="mailto:lizdore@bigpond.com" target="PLSUITE_EXTBROWSERWINDOW"&gt;&lt;strong&gt;&lt;span style="font-family:verdana;"&gt;lizdore@bigpond.com&lt;/span&gt;&lt;/strong&gt;&lt;/a&gt;&lt;span style="font-family:verdana;"&gt; &lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;"&gt;&lt;/span&gt;&lt;br /&gt;&lt;a href="http://dsansw.e-newsletter.com.au/link/id/c45d99cc812d7ec9a193/page.html" target="PLSUITE_EXTBROWSERWINDOW"&gt;&lt;strong&gt;&lt;span style="font-family:verdana;"&gt;www.relationshipsandprivatestuff.com&lt;/span&gt;&lt;/strong&gt;&lt;/a&gt;&lt;span style="font-family:verdana;"&gt; &lt;/span&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/5794391632872351899-468150429986676999?l=keepingupwithds.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://keepingupwithds.blogspot.com/feeds/468150429986676999/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=5794391632872351899&amp;postID=468150429986676999' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/468150429986676999'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/468150429986676999'/><link rel='alternate' type='text/html' href='http://keepingupwithds.blogspot.com/2009/10/photo-project.html' title='Photo Project'/><author><name>Blog editor</name><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='14401421058688395171'/></author><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5794391632872351899.post-5551826308999197753</id><published>2009-10-27T15:21:00.003+11:00</published><updated>2009-10-27T17:27:29.981+11:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Events'/><category scheme='http://www.blogger.com/atom/ns#' term='People with Down syndrome'/><category scheme='http://www.blogger.com/atom/ns#' term='Families'/><title type='text'>Relationships and Private Stuff:  2 workshops</title><content type='html'>&lt;p&gt;&lt;span style="font-family:verdana;"&gt;&lt;span style="font-size:130%;color:#cc0000;"&gt;&lt;em&gt;Friendship &amp;amp; Dating Skills Workshops&lt;/em&gt;&lt;/span&gt; &lt;/span&gt;&lt;/p&gt;&lt;p&gt;&lt;span style="font-family:verdana;"&gt;&lt;span style="color:#000099;"&gt;&lt;em&gt;For people with intellectual disability, aged 25 – 50 years&lt;/em&gt;&lt;/span&gt; &lt;/span&gt;&lt;/p&gt;&lt;p&gt;&lt;span style="font-family:verdana;font-size:130%;color:#cc0000;"&gt;3pm – 6pm 21st and 28&lt;span id="SPELLING_ERROR_0" class="blsp-spelling-error"&gt;th&lt;/span&gt; November&lt;/span&gt;&lt;/p&gt;&lt;p&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;Woodstock Community Centre, 22 Church St, &lt;strong&gt;&lt;span id="SPELLING_ERROR_1" class="blsp-spelling-error"&gt;Burwood&lt;/span&gt;&lt;/strong&gt;&lt;/span&gt;&lt;/p&gt;&lt;p&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;em&gt;Each group participates in two 3 hour sessions held over two consecutive Saturdays&lt;/em&gt; &lt;/span&gt;&lt;/p&gt;&lt;p&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;Activities and DVD’s will be used for structured education sessions in a group. Informal activities to reinforce learning will include going out to a local &lt;span id="SPELLING_ERROR_2" class="blsp-spelling-error"&gt;café&lt;/span&gt; or pub.&lt;/span&gt;&lt;/p&gt;&lt;p&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;The cost is $120 and includes the two 3 hour sessions. &lt;/span&gt;&lt;/p&gt;&lt;p&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;span id="SPELLING_ERROR_3" class="blsp-spelling-error"&gt;BYO&lt;/span&gt; money for outing. (Discount $100 for pensioners &amp;amp; low income earners).&lt;/span&gt;&lt;/p&gt;&lt;p&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;For enquiries contact &lt;strong&gt;Liz Dore&lt;/strong&gt; &lt;strong&gt;0416 122 634&lt;/strong&gt; or &lt;/span&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;a href="mailto:lizdore@bigpond.com"&gt;&lt;strong&gt;lizdore@bigpond.com&lt;/strong&gt;&lt;/a&gt; &lt;/span&gt;&lt;/p&gt;&lt;p&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;To find out more and for directions &lt;/span&gt;&lt;a href="http://www.relationshipsandprivatestuff.com/" target="_blank"&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;a href="http://www.relationshipsandprivatestuff.com/"&gt;&lt;strong&gt;&lt;a href="http://www.relationshipsandprivatestuff.com/"&gt;www.&lt;span style="font-family:verdana;"&gt;&lt;span id="SPELLING_ERROR_4" class="blsp-spelling-error"&gt;relationshipsandprivatestuff&lt;/span&gt;.co&lt;/span&gt;&lt;/strong&gt;&lt;/span&gt;&lt;/a&gt;&lt;span style="font-family:verdana;"&gt;&lt;strong&gt;m&lt;/a&gt;&lt;/strong&gt;&lt;/span&gt;&lt;/a&gt;&lt;strong&gt; &lt;span style="font-family:verdana;color:#000099;"&gt;&lt;/span&gt;&lt;/strong&gt;&lt;/p&gt;&lt;p&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;strong&gt;&lt;/strong&gt;&lt;/span&gt;&lt;/p&gt;&lt;p&gt;&lt;span style="font-family:verdana;"&gt;&lt;span style="font-size:130%;color:#cc0000;"&gt;&lt;em&gt;&lt;/em&gt;&lt;/span&gt;&lt;/span&gt; &lt;/p&gt;&lt;p&gt;&lt;span style="font-family:verdana;"&gt;&lt;span style="font-size:130%;color:#cc0000;"&gt;&lt;em&gt;A practical approach to teenage private stuff - for parents&lt;br /&gt;&lt;/em&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="color:#000099;"&gt;This workshop gives parents strategies for teenagers who have an intellectual disability or &lt;span id="SPELLING_ERROR_5" class="blsp-spelling-error"&gt;ASD&lt;/span&gt; and difficulties relating to others. It will include practical ideas to support them to have healthy relationships. Resources and discussion will focus on:&lt;br /&gt;&lt;br /&gt;&lt;em&gt;Puberty and self esteem&lt;br /&gt;Relationship and communication skills&lt;br /&gt;Appropriate and positive ways to sexual expression&lt;br /&gt;Sex, consent and safe sex&lt;br /&gt;Protective behaviours&lt;br /&gt;&lt;/em&gt;&lt;span style="color:#cc0000;"&gt;&lt;br /&gt;&lt;span style="font-size:130%;"&gt;10 AM – 1 PM Saturday 5&lt;span id="SPELLING_ERROR_6" class="blsp-spelling-error"&gt;th&lt;/span&gt; December 2009&lt;/span&gt;&lt;/span&gt; &lt;/span&gt;&lt;/span&gt;&lt;/p&gt;&lt;p&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;Australian Technical College, Bridge St, &lt;strong&gt;&lt;span id="SPELLING_ERROR_7" class="blsp-spelling-error"&gt;Coniston&lt;/span&gt;&lt;/strong&gt; (Wollongong)&lt;br /&gt;&lt;br /&gt;Workshop cost $60 for one or $100 for couple. &lt;/span&gt;&lt;/p&gt;&lt;p&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;To register send cheque and form to &lt;strong&gt;Liz Dore&lt;/strong&gt; PO Box 1060 &lt;span id="SPELLING_ERROR_8" class="blsp-spelling-error"&gt;Burwood&lt;/span&gt; North 2134 before 30/11/09.&lt;/span&gt;&lt;/p&gt;&lt;p&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;For enquiries ring &lt;strong&gt;0416 122 634&lt;/strong&gt; or email &lt;/span&gt;&lt;a href="mailto:lizdore@bigpond.com"&gt;&lt;span style="font-family:verdana;"&gt;&lt;strong&gt;lizdore@bigpond.com&lt;/strong&gt;&lt;/span&gt;&lt;/a&gt;&lt;/p&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/5794391632872351899-5551826308999197753?l=keepingupwithds.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://keepingupwithds.blogspot.com/feeds/5551826308999197753/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=5794391632872351899&amp;postID=5551826308999197753' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/5551826308999197753'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/5551826308999197753'/><link rel='alternate' type='text/html' href='http://keepingupwithds.blogspot.com/2009/10/relationships-and-private-stuff-2.html' title='Relationships and Private Stuff:  2 workshops'/><author><name>Blog editor</name><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='14401421058688395171'/></author><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5794391632872351899.post-7858640538684011702</id><published>2009-10-26T08:28:00.004+11:00</published><updated>2009-10-26T08:35:20.062+11:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Media'/><title type='text'>Interview with Lewis</title><content type='html'>The BBC site &lt;strong&gt;Ouch!&lt;/strong&gt; currently features &lt;a href="http://www.bbc.co.uk/ouch/interviews/13_questions_lewis_from_the_specials.shtml"&gt;an interview with Lewis&lt;/a&gt;, one of the housemates from the UK  online reality series, &lt;strong&gt;&lt;a href="http://www.the-specials.com/"&gt;The Specials.&lt;/a&gt;&lt;/strong&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/5794391632872351899-7858640538684011702?l=keepingupwithds.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://keepingupwithds.blogspot.com/feeds/7858640538684011702/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=5794391632872351899&amp;postID=7858640538684011702' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/7858640538684011702'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/7858640538684011702'/><link rel='alternate' type='text/html' href='http://keepingupwithds.blogspot.com/2009/10/interview-with-lewis.html' title='Interview with Lewis'/><author><name>Blog editor</name><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='14401421058688395171'/></author><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5794391632872351899.post-7895080122700348286</id><published>2009-10-24T08:05:00.004+11:00</published><updated>2009-10-26T07:53:51.032+11:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Community'/><category scheme='http://www.blogger.com/atom/ns#' term='Media'/><title type='text'>US Parenting magazine celebrates Down Syndrome Awareness Month</title><content type='html'>&lt;span style="font-family:verdana;"&gt;&lt;span style="color:#000099;"&gt;To mark Down Syndrome Awareness Month (all of October in the US), US &lt;em&gt;&lt;strong&gt;Parenting&lt;/strong&gt;&lt;/em&gt; magazine has posted a gallery of photographs of children with Down syndrome,&lt;/span&gt; &lt;/span&gt;&lt;a href="http://www.parenting.com/article/Child/Health/A-Special-Joy-2009-Kids-With-Down-Syndrome-Galleries"&gt;&lt;strong&gt;&lt;span style="font-family:verdana;"&gt;here&lt;/span&gt;&lt;/strong&gt;&lt;/a&gt;&lt;span style="font-family:verdana;"&gt;.&lt;/span&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/5794391632872351899-7895080122700348286?l=keepingupwithds.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://keepingupwithds.blogspot.com/feeds/7895080122700348286/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=5794391632872351899&amp;postID=7895080122700348286' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/7895080122700348286'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/7895080122700348286'/><link rel='alternate' type='text/html' href='http://keepingupwithds.blogspot.com/2009/10/us-parenting-magazine-celebrates-down.html' title='US Parenting magazine celebrates Down Syndrome Awareness Month'/><author><name>Blog editor</name><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='14401421058688395171'/></author><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5794391632872351899.post-1900874963787168860</id><published>2009-10-23T12:48:00.002+11:00</published><updated>2009-10-23T13:01:07.311+11:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Research'/><category scheme='http://www.blogger.com/atom/ns#' term='reading'/><title type='text'>Royal Society grant for work on Down syndrome</title><content type='html'>&lt;a href="http://3.bp.blogspot.com/_wECfy8ampaw/SuEONW_WOkI/AAAAAAAABR0/qH556I_kJIs/s1600-h/Prof+Chris+Jarrold.jpg"&gt;&lt;img style="MARGIN: 0px 0px 10px 10px; WIDTH: 170px; FLOAT: right; HEIGHT: 255px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5395609451238931010" border="0" alt="" src="http://3.bp.blogspot.com/_wECfy8ampaw/SuEONW_WOkI/AAAAAAAABR0/qH556I_kJIs/s400/Prof+Chris+Jarrold.jpg" /&gt;&lt;/a&gt; &lt;em&gt;&lt;a href="http://www.bristol.ac.uk/news/2009/6614.html"&gt;&lt;span style="font-family:verdana;"&gt;News release from the University of Bristol (UK),&lt;/span&gt;&lt;/a&gt;&lt;span style="font-family:verdana;"&gt; &lt;span style="color:#000099;"&gt;22 October 2009:&lt;/span&gt;&lt;/span&gt;&lt;/em&gt;&lt;br /&gt;&lt;div&gt;&lt;br /&gt;&lt;span style="font-family:verdana;"&gt;&lt;span style="color:#000099;"&gt;&lt;strong&gt;&lt;a href="http://psychology.psy.bris.ac.uk/people/chrisjarrold.htm"&gt;Professor Chris Jarrold&lt;/a&gt;&lt;/strong&gt; from the&lt;/span&gt; &lt;/span&gt;&lt;a href="http://psychology.psy.bris.ac.uk/"&gt;&lt;span style="font-family:verdana;"&gt;Department of Experimental Psychology&lt;/span&gt;&lt;/a&gt;&lt;span style="font-family:verdana;"&gt; &lt;span style="color:#000099;"&gt;has been awarded a £12,000 grant from the &lt;/span&gt;&lt;/span&gt;&lt;a href="http://royalsociety.org/"&gt;&lt;span style="font-family:verdana;"&gt;Royal Society&lt;/span&gt;&lt;/a&gt;&lt;span style="font-family:verdana;"&gt; &lt;span style="color:#000099;"&gt;for his research into children with Down syndrome.&lt;/span&gt;&lt;/span&gt;&lt;/div&gt;&lt;div&gt;&lt;span style="font-family:verdana;"&gt;&lt;span style="color:#000099;"&gt;&lt;br /&gt;The main aim of the project is to analyse the extent to which individuals with Down syndrome are able to understand what they read. Individuals with Down syndrome often show relatively strong reading skills but their comprehension of what they read lags behind their ability to read words.&lt;/span&gt;&lt;/span&gt;&lt;/div&gt;&lt;br /&gt;&lt;div&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;The research aims to evaluate whether reading comprehension in Down syndrome is simply delayed, or whether it is dissociated from reading skills by seeing whether individuals make use of sentence contexts when reading homographs (words with different meanings but the same spellings).&lt;/span&gt;&lt;/div&gt;&lt;div&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;This will shed important light on the question of whether people with Down syndrome are just ‘good readers’ of words or are also able to ‘read for meaning’, the ultimate aim of literacy acquisition.&lt;/span&gt;&lt;/div&gt;&lt;br /&gt;&lt;div&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;The project will run until May 2011.&lt;/span&gt;&lt;/div&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/5794391632872351899-1900874963787168860?l=keepingupwithds.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://keepingupwithds.blogspot.com/feeds/1900874963787168860/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=5794391632872351899&amp;postID=1900874963787168860' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/1900874963787168860'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/1900874963787168860'/><link rel='alternate' type='text/html' href='http://keepingupwithds.blogspot.com/2009/10/royal-society-grant-for-work-on-down.html' title='Royal Society grant for work on Down syndrome'/><author><name>Blog editor</name><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='14401421058688395171'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://3.bp.blogspot.com/_wECfy8ampaw/SuEONW_WOkI/AAAAAAAABR0/qH556I_kJIs/s72-c/Prof+Chris+Jarrold.jpg' height='72' width='72'/><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5794391632872351899.post-4599390223549954292</id><published>2009-10-22T10:00:00.003+11:00</published><updated>2009-10-22T10:00:00.213+11:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Library'/><category scheme='http://www.blogger.com/atom/ns#' term='Film'/><title type='text'>Library Thursdays: Futuro Presente DVD</title><content type='html'>&lt;a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://1.bp.blogspot.com/_cqIaRrwI_Go/St6DNhsSDdI/AAAAAAAAAOA/AKMH3HrSKCQ/s1600-h/futuropresente.jpg"&gt;&lt;img style="float:left; margin:0 10px 10px 0;cursor:pointer; cursor:hand;width: 76px; height: 70px;" src="http://1.bp.blogspot.com/_cqIaRrwI_Go/St6DNhsSDdI/AAAAAAAAAOA/AKMH3HrSKCQ/s400/futuropresente.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5394893672042073554" /&gt;&lt;/a&gt;&lt;span class="Apple-style-span"   style="font-family:verdana;color:#000099;"&gt;If you have enjoyed watching &lt;a href="http://keepingupwithds.blogspot.com/2009/09/new-media-webcast-documentary-uk.html"&gt;The Specials&lt;/a&gt;, then you may be interested in a documentary from the Italian Down syndrome association (&lt;a href="http://www.aipd.it/cms/index.php"&gt;Associazione Italiana Persone Down&lt;/a&gt;), &lt;b&gt;Futuro Presente&lt;/b&gt; (Future and Present).&lt;/span&gt;&lt;div&gt;&lt;div&gt;&lt;span class="Apple-style-span"   style="font-family:verdana, serif;color:#000099;"&gt;This film also looks at the lives of young adults with Down syndrome, but this focuses on a training course a group are doing to learn about living independently and what they need to do to succeed. The film shows some of the activities the class does but the best parts are when other people with Down syndrome who are already living independently, advise the "trainees" about what is important and the benefits of independent living. Another nice part has two sisters interviewing each other about their views of things. &lt;/span&gt;&lt;/div&gt;&lt;div&gt;&lt;span class="Apple-style-span"   style="font-family:verdana, serif;color:#000099;"&gt;The film is in Italian with English subtitles which are understandable if not always perfect English. The style is much different to The Specials. It is not as polished or tightly edited nor is it narrated by the characters, but it is an interesting view into the lives of young adults with Down syndrome in Italy.&lt;/span&gt;&lt;/div&gt;&lt;div&gt;&lt;span class="Apple-style-span"   style="font-family:verdana, serif;color:#000099;"&gt;&lt;br /&gt;&lt;/span&gt;&lt;/div&gt;&lt;img style="float:right; margin:0 0 10px 10px;cursor:pointer; cursor:hand;width: 134px; height: 200px;" src="http://1.bp.blogspot.com/_cqIaRrwI_Go/St7hZfJPWkI/AAAAAAAAAOI/fm20QoTW9BY/s200/gifts2.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5394997231609666114" /&gt;&lt;div&gt;&lt;span class="Apple-style-span"   style="font-family:verdana, serif;color:#000099;"&gt;Also available for borrowing this week is the new Gifts 2 book. Having stories from all kinds of people who care for and about a person with Down syndrome as opposed to just mothers (as in the original Gifts) makes it a more interesting book in my opinion.&lt;/span&gt;&lt;/div&gt;&lt;div&gt;&lt;span class="Apple-style-span"   style="font-family:verdana, serif;color:#000099;"&gt;&lt;br /&gt;&lt;/span&gt;&lt;/div&gt;&lt;div&gt;&lt;span class="Apple-style-span"   style="font-family:verdana, serif;color:#000099;"&gt;&lt;a href="mailto:library@dsansw.org.au"&gt;Email&lt;/a&gt; us if you'd like to borrow Futuro Presente or Gifts 2 or anything else...&lt;/span&gt;&lt;/div&gt;&lt;/div&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/5794391632872351899-4599390223549954292?l=keepingupwithds.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://keepingupwithds.blogspot.com/feeds/4599390223549954292/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=5794391632872351899&amp;postID=4599390223549954292' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/4599390223549954292'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/4599390223549954292'/><link rel='alternate' type='text/html' href='http://keepingupwithds.blogspot.com/2009/10/library-thursdays-futuro-presente-dvd.html' title='Library Thursdays: Futuro Presente DVD'/><author><name>Library</name><uri>http://www.blogger.com/profile/13459297793735742220</uri><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='17885542880445698436'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://1.bp.blogspot.com/_cqIaRrwI_Go/St6DNhsSDdI/AAAAAAAAAOA/AKMH3HrSKCQ/s72-c/futuropresente.jpg' height='72' width='72'/><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5794391632872351899.post-3027670209017303625</id><published>2009-10-22T07:47:00.005+11:00</published><updated>2009-10-22T08:19:37.458+11:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Fund-raising'/><category scheme='http://www.blogger.com/atom/ns#' term='DS NSW event'/><title type='text'>Comedy is King in pictures</title><content type='html'>&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;strong&gt;Craig Peihopa&lt;/strong&gt; (&lt;a href="http://www.timelinephoto.com/"&gt;Timeline Photography&lt;/a&gt;) donated his time and expertise as the DS NSW photographer for &lt;strong&gt;&lt;em&gt;Comedy is King&lt;/em&gt;&lt;/strong&gt; on 23rd September - here is a sample ....&lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;div align="center"&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;em&gt;All ages enjoyed meeting the celebrities, and some agreed to join in the performance!&lt;br /&gt;&lt;br /&gt;&lt;/em&gt;&lt;/span&gt;&lt;/div&gt;&lt;img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 400px; DISPLAY: block; HEIGHT: 314px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5395158787406180754" border="0" alt="" src="http://3.bp.blogspot.com/_wECfy8ampaw/St90VRYsMZI/AAAAAAAABO0/tyoNqxmNoPs/s400/Comedy+is+King+230909+013.jpg" /&gt;&lt;img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 400px; DISPLAY: block; HEIGHT: 322px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5395158792270111218" border="0" alt="" src="http://1.bp.blogspot.com/_wECfy8ampaw/St90VjgV4fI/AAAAAAAABO8/hDi3ImRhAUg/s400/Comedy+is+King+230909+043.jpg" /&gt;&lt;img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 400px; DISPLAY: block; HEIGHT: 327px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5395158800715605634" border="0" alt="" src="http://3.bp.blogspot.com/_wECfy8ampaw/St90WC955oI/AAAAAAAABPM/CK-LHIiTMGI/s400/Comedy+is+King+230909+051.jpg" /&gt;&lt;img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 400px; DISPLAY: block; HEIGHT: 300px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5395158796914143986" border="0" alt="" src="http://1.bp.blogspot.com/_wECfy8ampaw/St90V0zkMvI/AAAAAAAABPE/tlUZACqTmqs/s400/Comedy+is+King+230909+044.jpg" /&gt;&lt;img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 400px; DISPLAY: block; HEIGHT: 259px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5395163149173554450" border="0" alt="" src="http://2.bp.blogspot.com/_wECfy8ampaw/St94TKPEfRI/AAAAAAAABPc/ngSrJKu-QJU/s400/Comedy+is+King+230909+315.jpg" /&gt; &lt;div align="center"&gt;&lt;br /&gt;&lt;em&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;And here is a much better shot of Greg Anderson, Australia's "Electric Cowboy", and Stardust - his performance stunned and delighted.&lt;/span&gt;&lt;/em&gt;&lt;br /&gt;&lt;br /&gt;&lt;/div&gt;&lt;div&gt;&lt;img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 263px; DISPLAY: block; HEIGHT: 319px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5395158805087159986" border="0" alt="" src="http://1.bp.blogspot.com/_wECfy8ampaw/St90WTQKhrI/AAAAAAAABPU/o-8xgdUzLK8/s400/Comedy+is+King+230909+151.jpg" /&gt; &lt;/div&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/5794391632872351899-3027670209017303625?l=keepingupwithds.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://keepingupwithds.blogspot.com/feeds/3027670209017303625/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=5794391632872351899&amp;postID=3027670209017303625' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/3027670209017303625'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/3027670209017303625'/><link rel='alternate' type='text/html' href='http://keepingupwithds.blogspot.com/2009/10/comedy-is-king-in-pictures.html' title='Comedy is King in pictures'/><author><name>Blog editor</name><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='14401421058688395171'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://3.bp.blogspot.com/_wECfy8ampaw/St90VRYsMZI/AAAAAAAABO0/tyoNqxmNoPs/s72-c/Comedy+is+King+230909+013.jpg' height='72' width='72'/><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5794391632872351899.post-4271588282148506972</id><published>2009-10-21T07:16:00.004+11:00</published><updated>2009-10-21T08:22:14.844+11:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Publication'/><category scheme='http://www.blogger.com/atom/ns#' term='Communication'/><title type='text'>The Auslan Dictionary</title><content type='html'>&lt;a href="https://bilby.net/Sign/Products/DictionaryAuslan.asp"&gt;&lt;span style="font-family:verdana;"&gt;&lt;strong&gt;Bilby Publishing&lt;/strong&gt;&lt;/span&gt;&lt;/a&gt;&lt;span style="font-family:verdana;"&gt; &lt;span style="color:#000099;"&gt;has released a new &lt;strong&gt;Auslan Dictionary&lt;/strong&gt; for teachers, parents and professionals, &lt;/span&gt;&lt;/span&gt; &lt;a href="http://1.bp.blogspot.com/_wECfy8ampaw/St4oIey7hWI/AAAAAAAABNg/2nskDCjik7o/s1600-h/AuslanDictionary.jpg"&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;img style="MARGIN: 0px 0px 10px 10px; WIDTH: 184px; FLOAT: right; HEIGHT: 277px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5394793529807177058" border="0" alt="" src="http://1.bp.blogspot.com/_wECfy8ampaw/St4oIey7hWI/AAAAAAAABNg/2nskDCjik7o/s400/AuslanDictionary.jpg" /&gt;&lt;/span&gt;&lt;/a&gt;&lt;br /&gt;&lt;br /&gt;&lt;em&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;..... the first ever Auslan dictionary to include not only the sign image but also: &lt;/span&gt;&lt;/em&gt;&lt;br /&gt;&lt;br /&gt;&lt;em&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;Descriptions of how to perform the sign;&lt;br /&gt;Hints to help you remember and teach the sign to children; &lt;/span&gt;&lt;/em&gt;&lt;br /&gt;&lt;br /&gt;&lt;em&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;A list of English words associated with the sign;&lt;br /&gt;State usage information; &lt;/span&gt;&lt;/em&gt;&lt;br /&gt;&lt;br /&gt;&lt;em&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;Context usage information. &lt;/span&gt;&lt;/em&gt;&lt;br /&gt;&lt;em&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;/span&gt;&lt;/em&gt;&lt;br /&gt;&lt;em&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;For example, 'can' has two listings: one for 'I can...' and the other refers to the 'ring pull can'. &lt;/span&gt;&lt;/em&gt;&lt;br /&gt;&lt;em&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;/span&gt;&lt;/em&gt;&lt;br /&gt;&lt;em&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;Each listing includes notes to help you understand the context under which it is appropriate to use that sign.&lt;/span&gt;&lt;/em&gt;&lt;br /&gt;&lt;em&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;/span&gt;&lt;/em&gt;&lt;br /&gt;&lt;em&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;It includes over 1400 signs in alphabetical order and a thorough English word index. Being a 2009 edition, it contains many modern signs never before documented such as extreme sports and internet terms. &lt;/span&gt;&lt;/em&gt;&lt;br /&gt;&lt;em&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;/span&gt;&lt;/em&gt;&lt;br /&gt;&lt;em&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;Please be aware that this is an dictionary for adults and does include adult words, including those of a sexual nature. These are important for sexual awareness education of children, and thus have been included. &lt;/span&gt;&lt;/em&gt;&lt;br /&gt;&lt;em&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;/span&gt;&lt;/em&gt;&lt;br /&gt;&lt;em&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;This dictionary has already received glowing recommendations and reviews and is available at a special introductory price of only $50!&lt;/span&gt;&lt;/em&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;For further details and ordering, go to the &lt;/span&gt;&lt;a href="https://bilby.net/Sign/Products/DictionaryAuslan.asp"&gt;&lt;span style="font-family:verdana;"&gt;Bilby website&lt;/span&gt;&lt;/a&gt;&lt;span style="font-family:verdana;"&gt;.&lt;/span&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/5794391632872351899-4271588282148506972?l=keepingupwithds.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://keepingupwithds.blogspot.com/feeds/4271588282148506972/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=5794391632872351899&amp;postID=4271588282148506972' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/4271588282148506972'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/4271588282148506972'/><link rel='alternate' type='text/html' href='http://keepingupwithds.blogspot.com/2009/10/auslan-dictionary.html' title='The Auslan Dictionary'/><author><name>Blog editor</name><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='14401421058688395171'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://1.bp.blogspot.com/_wECfy8ampaw/St4oIey7hWI/AAAAAAAABNg/2nskDCjik7o/s72-c/AuslanDictionary.jpg' height='72' width='72'/><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5794391632872351899.post-4216000962684704541</id><published>2009-10-20T12:59:00.005+11:00</published><updated>2009-10-22T07:41:55.473+11:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='People with Down syndrome'/><category scheme='http://www.blogger.com/atom/ns#' term='Research'/><category scheme='http://www.blogger.com/atom/ns#' term='Communication'/><title type='text'>Research report on speech and cognitive ability in children with Down syndrome</title><content type='html'>&lt;span style="font-family:verdana;color:#000099;"&gt;A new report on language development in children with Down syndrome was published online on Oct 13 2009:&lt;br /&gt;&lt;br /&gt;Cleland J, Wood S, Hardcastle W, Wishart J, Timmins C. , &lt;em&gt;Relationship between speech, oromotor, language and cognitive abilities in children with Down's syndrome,&lt;/em&gt; &lt;strong&gt;International Journal of Language &amp;amp; Communication Disorders.&lt;/strong&gt; (doi: 10.3109/13682820902745453) &lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:Verdana;color:#000099;"&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:Verdana;color:#000099;"&gt;Despite a lot of investigation into communication impairment amongst people with Down syndrome that has produced a good deal of information, much remains unknown.  This study aims to clarify the contribution of cognitive factors to communication: &lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:Verdana;color:#000099;"&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;em&gt;......  whether speech is delayed or disordered is a controversial topic. Most studies suggest a delay, but no studies explore the relationship between cognitive or language skills and intelligibility.&lt;/em&gt;&lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;span style="font-family:Verdana;color:#000099;"&gt;The researchers concluded:&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:Verdana;color:#000099;"&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;em&gt;Children with Down's syndrome present with speech disorders characterized by atypical, and often unusual, errors alongside many developmental errors. A lack of correlation between speech and cognition or language measures suggests that the speech disorder in Down's syndrome is not simply due to cognitive delay. Better differential diagnosis of speech disorders in Down's syndrome is required, allowing interventions to target the specific disorder in each individual.&lt;/em&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;span style="font-family:verdana;"&gt;&lt;span style="color:#000099;"&gt;The abstract is available online&lt;/span&gt; &lt;/span&gt;&lt;a href="http://informahealthcare.com/doi/abs/10.3109/13682820902745453?prevSearch=allfield%253A%2528Cleland%2529&amp;amp;searchHistoryKey="&gt;&lt;span style="font-family:verdana;"&gt;here&lt;/span&gt;&lt;/a&gt;&lt;span style="font-family:verdana;"&gt;, &lt;span style="color:#000099;"&gt;and while the full text can be purchased, the publisher's charge is $US86 for 24 hour access. Our &lt;/span&gt;&lt;/span&gt;&lt;a href="mailto:library@dsansw.org.au"&gt;&lt;span style="font-family:verdana;"&gt;librarian&lt;/span&gt;&lt;/a&gt;&lt;span style="font-family:verdana;"&gt; &lt;span style="color:#000099;"&gt;is investigating alternative access options.&lt;/span&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;"&gt;&lt;span style="color:#000099;"&gt;&lt;/span&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;"&gt;&lt;span style="color:#000099;"&gt;The research was done at the Speech Science Research Centre, Musselburgh, UK.&lt;span style="color:#000000;"&gt;&lt;br /&gt;&lt;br /&gt;&lt;/span&gt;&lt;/span&gt;&lt;/span&gt;&lt;span style="font-family:verdana;"&gt;&lt;span style="color:#000099;"&gt;&lt;span style="color:#000000;"&gt;&lt;/span&gt;&lt;span style="font-family:verdana;"&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;The journal is published by the Royal College of Speech &amp;amp; Language Therapists.&lt;/span&gt;&lt;br /&gt;&lt;/span&gt;&lt;/span&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/5794391632872351899-4216000962684704541?l=keepingupwithds.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://keepingupwithds.blogspot.com/feeds/4216000962684704541/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=5794391632872351899&amp;postID=4216000962684704541' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/4216000962684704541'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/4216000962684704541'/><link rel='alternate' type='text/html' href='http://keepingupwithds.blogspot.com/2009/10/research-report-on-speech-and-cognitive.html' title='Research report on speech and cognitive ability in children with Down syndrome'/><author><name>Blog editor</name><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='14401421058688395171'/></author><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5794391632872351899.post-3643501632363049482</id><published>2009-10-19T14:00:00.000+11:00</published><updated>2009-10-19T21:37:23.944+11:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='People with Down syndrome'/><category scheme='http://www.blogger.com/atom/ns#' term='Buddy Walk'/><category scheme='http://www.blogger.com/atom/ns#' term='Community'/><title type='text'>A string of successful Buddy Walks ......</title><content type='html'>&lt;span style="font-family:verdana;"&gt; &lt;/span&gt;&lt;span style="font-family:verdana;"&gt;&lt;img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 430px; DISPLAY: block; HEIGHT: 326px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5394246200032699698" border="0" alt="" src="http://4.bp.blogspot.com/_wECfy8ampaw/Stw2VsfzJTI/AAAAAAAABNI/FJ8DBmZhvJ4/s400/Louise+and+Japanese+friend.JPG" /&gt;&lt;img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 431px; DISPLAY: block; HEIGHT: 236px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5394245691192312914" border="0" alt="" src="http://2.bp.blogspot.com/_wECfy8ampaw/Stw14E6zBFI/AAAAAAAABNA/u1sHQuRzFwY/s400/Love+Junx.JPG" /&gt;&lt;img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 431px; DISPLAY: block; HEIGHT: 241px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5394246817448462354" border="0" alt="" src="http://1.bp.blogspot.com/_wECfy8ampaw/Stw25ojMCBI/AAAAAAAABNQ/xG4Vt_-Vfuw/s400/Love+Junx+2+Sydney.JPG" /&gt;&lt;span style="color:#000099;"&gt;&lt;strong&gt;Buddy Walk Sydney&lt;/strong&gt;, as we said was a great success. Thanks to Louise who has sent through her photos - here is a sample ..... Love Junx energised the whole event, and we had a great time meeting up with the Love Junx members and their families.&lt;/span&gt;&lt;/span&gt; &lt;div&gt;&lt;div&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;/span&gt;&lt;/div&gt;&lt;br /&gt;&lt;div&gt;&lt;span style="color:#000099;"&gt;&lt;span style="font-family:verdana;"&gt;&lt;strong&gt;Buddy Walk Newcastle&lt;/strong&gt; (yesterday) was huge, and great fun. Thanks to the Brown, Hepplewhite, Moran, Pettet and Taylor families who were the core of the organising team. It was a beautiful setting, the weather held, the entertainment was magnificent. Pictures to come.&lt;/span&gt;&lt;/span&gt;&lt;/div&gt;&lt;br /&gt;&lt;div&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;/span&gt;&lt;/div&gt;&lt;div&gt;&lt;span style="color:#000099;"&gt;&lt;span style="font-family:verdana;"&gt;&lt;strong&gt;Wollongong&lt;/strong&gt; (also yesterday)&lt;strong&gt; &lt;/strong&gt;was informal and low key, but very enjoyable for the happy local band who met for a picnic and a stroll around their beautiful harbour.&lt;br /&gt;&lt;br /&gt;&lt;img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 400px; DISPLAY: block; HEIGHT: 245px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5394257935871950130" border="0" alt="" src="http://4.bp.blogspot.com/_wECfy8ampaw/StxBAz56vTI/AAAAAAAABNY/Aol11ogn1VU/s400/BUDDY+WALK++ACT+2009.jpg" /&gt;&lt;/span&gt;&lt;/span&gt;&lt;/div&gt;&lt;div&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;/span&gt;&lt;/div&gt;&lt;div&gt;&lt;span style="color:#000099;"&gt;&lt;span style="font-family:verdana;"&gt;&lt;strong&gt;Buddy Walk Canberra (on Saturday)&lt;/strong&gt; was also a great success - the kids had good fun having their "passports" checked along the way, Lake Burley Griffin sparkled, there were fairies, Muppets, and all sorts of characters.&lt;/span&gt;&lt;/span&gt;&lt;/div&gt;&lt;div&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;/span&gt;&lt;/div&gt;&lt;br /&gt;&lt;div&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;We hear that the inaugural &lt;strong&gt;Buddy Walk in Melbourne&lt;/strong&gt; went off with a bang too - more than 600 people registered.&lt;/span&gt;&lt;/div&gt;&lt;div&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;/span&gt;&lt;/div&gt;&lt;br /&gt;&lt;div&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;By the time the &lt;strong&gt;Wagga Wagga Twilight Walk&lt;/strong&gt; ends next Saturday evening (24th), more than 1000 people will have participated in NSW this year.&lt;/span&gt;&lt;/div&gt;&lt;br /&gt;&lt;div&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;/span&gt;&lt;/div&gt;&lt;div&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;Thanks for being part of the fun.&lt;/span&gt;&lt;/div&gt;&lt;/div&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/5794391632872351899-3643501632363049482?l=keepingupwithds.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://keepingupwithds.blogspot.com/feeds/3643501632363049482/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=5794391632872351899&amp;postID=3643501632363049482' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/3643501632363049482'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/3643501632363049482'/><link rel='alternate' type='text/html' href='http://keepingupwithds.blogspot.com/2009/10/string-of-successful-buddy-walks.html' title='A string of successful Buddy Walks ......'/><author><name>Blog editor</name><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='14401421058688395171'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://4.bp.blogspot.com/_wECfy8ampaw/Stw2VsfzJTI/AAAAAAAABNI/FJ8DBmZhvJ4/s72-c/Louise+and+Japanese+friend.JPG' height='72' width='72'/><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5794391632872351899.post-8191226917400257290</id><published>2009-10-19T08:00:00.003+11:00</published><updated>2009-10-19T08:40:31.820+11:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Technology'/><category scheme='http://www.blogger.com/atom/ns#' term='Interventions'/><category scheme='http://www.blogger.com/atom/ns#' term='Website'/><category scheme='http://www.blogger.com/atom/ns#' term='Support'/><title type='text'>thefuntheory.com</title><content type='html'>&lt;a href="http://www.thefuntheory.com/"&gt;&lt;span style="font-family:verdana;"&gt;These videos&lt;/span&gt;&lt;/a&gt;&lt;span style="font-family:verdana;"&gt; &lt;span style="color:#000099;"&gt;have nothing to do with Down syndrome or any other disability - &lt;strong&gt;The Fun Theory&lt;/strong&gt; is actually a European design competition, but they are great examples of adapting the environment to support desired behaviours by the people who live in them. &lt;/span&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:Verdana;color:#000099;"&gt;&lt;/span&gt;&lt;br /&gt;&lt;em&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;"This site is dedicated to the thought that something as simple as fun is the easiest way to change people’s behaviour for the better. Be it for yourself, for the environment, or something entirely different, just so long as it’s change for the better."&lt;/span&gt;&lt;/em&gt;&lt;br /&gt;&lt;span style="font-family:verdana;"&gt;&lt;span style="color:#000099;"&gt;&lt;/span&gt;&lt;/span&gt;&lt;br /&gt;&lt;span style="font-family:verdana;"&gt;&lt;span style="color:#000099;"&gt;Look, laugh and think about the principles that we could apply in everyday life - we don't always need such high tech responses (although these ones really are fun) ...... but we do sometimes need reminding of the principle.&lt;/span&gt;&lt;/span&gt;&lt;span style="color:#000099;"&gt; &lt;/span&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/5794391632872351899-8191226917400257290?l=keepingupwithds.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://keepingupwithds.blogspot.com/feeds/8191226917400257290/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=5794391632872351899&amp;postID=8191226917400257290' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/8191226917400257290'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/8191226917400257290'/><link rel='alternate' type='text/html' href='http://keepingupwithds.blogspot.com/2009/10/thefuntheorycom.html' title='thefuntheory.com'/><author><name>Blog editor</name><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='14401421058688395171'/></author><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5794391632872351899.post-6899409574100008049</id><published>2009-10-17T10:00:00.003+11:00</published><updated>2009-10-17T10:06:08.487+11:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Buddy Walk'/><category scheme='http://www.blogger.com/atom/ns#' term='DS NSW event'/><title type='text'>Buddy Walk - Newcastle:  Sunday 18th October, 2009</title><content type='html'>&lt;div align="center"&gt;&lt;a href="http://4.bp.blogspot.com/_wECfy8ampaw/Stj8Cl3rYvI/AAAAAAAABMo/rKlSI83WoYY/s1600-h/Bakers.jpg"&gt;&lt;img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 408px; DISPLAY: block; HEIGHT: 333px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5393337675231748850" border="0" alt="" src="http://4.bp.blogspot.com/_wECfy8ampaw/Stj8Cl3rYvI/AAAAAAAABMo/rKlSI83WoYY/s400/Bakers.jpg" /&gt;&lt;/a&gt; &lt;span style="font-family:verdana;color:#000099;"&gt;&lt;em&gt;Please meet &lt;strong&gt;tomorrow 9:30am&lt;/strong&gt; at Newcastle Foreshore Park, &lt;/em&gt;&lt;/span&gt;&lt;br /&gt;&lt;div align="center"&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;em&gt;Carriageway Shed, for &lt;strong&gt;Buddy Walk Newcastle&lt;/strong&gt;&lt;/em&gt;&lt;/span&gt;&lt;/div&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;br /&gt;&lt;div align="center"&gt;Prestart entertainment &amp;amp; welcome: &lt;strong&gt;9.45am&lt;/strong&gt;&lt;/div&gt;&lt;div align="center"&gt;&lt;/div&gt;&lt;br /&gt;&lt;div align="center"&gt;&lt;strong&gt;Hunter School of Performing Arts - Marching Band&lt;/strong&gt;&lt;br /&gt;&lt;/div&gt;&lt;div align="center"&gt;&lt;br /&gt;Walk starts: 10:00am (registration essential)&lt;/div&gt;&lt;div align="center"&gt;&lt;br /&gt;Walk Launch - &lt;strong&gt;Lord Mayor of Newcastle&lt;/strong&gt;&lt;/div&gt;&lt;br /&gt;&lt;div align="center"&gt;&lt;em&gt;BYO Picnic/Sausage Sizzle &amp;amp; entertainment afterwards&lt;/em&gt;&lt;/div&gt;&lt;br /&gt;&lt;div align="center"&gt;&lt;/span&gt;&lt;a href="http://www.dsansw.org.au/downloads/Buddy%20Walk%202009%20Event%20Kit%20Newcastle.pdf" target="top"&gt;&lt;span style="font-family:verdana;"&gt;&lt;strong&gt;Full details in your Buddy Walk Newcastle Event Kit - click here&lt;/strong&gt;&lt;/span&gt;&lt;/a&gt;&lt;/div&gt;&lt;div align="center"&gt;&lt;br /&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;em&gt;For more information contact:&lt;/em&gt;&lt;/span&gt;&lt;/div&gt;&lt;br /&gt;&lt;div align="center"&gt;&lt;span style="font-family:verdana;color:#000099;"&gt;&lt;strong&gt;Jennine - 0406 057 402&lt;/strong&gt; or &lt;strong&gt;Anna - 0414 909 040&lt;/strong&gt;&lt;/span&gt;&lt;/div&gt;&lt;/div&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/5794391632872351899-6899409574100008049?l=keepingupwithds.blogspot.com'/&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://keepingupwithds.blogspot.com/feeds/6899409574100008049/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='https://www.blogger.com/comment.g?blogID=5794391632872351899&amp;postID=6899409574100008049' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/6899409574100008049'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5794391632872351899/posts/default/6899409574100008049'/><link rel='alternate' type='text/html' href='http://keepingupwithds.blogspot.com/2009/10/buddy-walk-newcastle-sunday-18th.html' title='Buddy Walk - Newcastle:  Sunday 18th October, 2009'/><author><name>Blog editor</name><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='14401421058688395171'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://4.bp.blogspot.com/_wECfy8ampaw/Stj8Cl3rYvI/AAAAAAAABMo/rKlSI83WoYY/s72-c/Bakers.jpg' height='72' width='72'/><thr:total xmlns:thr='http://purl.org/syndication/thread/1.0'>0</thr:total></entry></feed>