Address details


Down Syndrome NSW
Level 6/410 Church St, North Parramatta
9am-5pm Monday - Thursday
T: 9841 444


Friday, 6 March 2009

"There is no such thing as colour coordination": Surry Hills

Blank Space Gallery in Surry Hills is hosting an exhibition next week (12 - 17th March) of work by three artists from Studio ARTES Northside, "There is no such thing as colour coordination". The artists are Alex Ogden, Rachelle Rodriguez, and Nerine Whitehouse. Rachelle Rodriguez, is a young woman with Down syndrome.

Click here for details, and scroll down to "There is no such thing as colour coordination".


PWD on supported living options in NSW

People with Disability is a peak body, with a strong systems advocacy focus. The PWD e Bulletin is published from time to time. The most recent issue, dated February 2009 includes a stringent analysis of the NSW Government's recent (and not so recent) performance on supported living for people with disabilities, including the Department of Ageing, Disability and Home Care's recently released Innovative Accommodation Framework.

Thursday, 5 March 2009

Library Thursdays: Next Chapter Book Club

Next Chapter Book Club is an organisation with "chapters" located in the United States, Canada and Germany. The groups are made up of adults and adolescents with intellectual disabilities who meet once a week and read a chapter of a book chosen by the group and then are led in discussion of each chapter. The aims are to increase literacy, comprehension and social skills. And, as everyone who belongs to a reading group knows, it is fun to discuss things we have read and it leads to greater understanding and insight into ourselves, others and life.
The Down Syndrome NSW library is interested in facilitating and supporting similar sorts of book clubs (depending on interest and funding). We could provide book sets and questions and also facilitate bringing interested people together. If this seems interesting to you, please contact the library.

Wednesday, 4 March 2009

Playing to Their Strengths: Coffs Harbour, 3rd April 2009

a workshop for infants/primary teachers or school personnel
presented by Down Syndrome NSW

Are you teaching or supporting a student who has Down syndrome, in yrs K – 6 in your class or school?
Do you have access to the latest research and practice information
about -

• how a student’s learning, communication and behaviour can be impacted?
• how you can best support a child to succeed in the school environment?
• the range of excellent resources available to you and your school?



We invite you to join us for this one day workshop in Coffs Harbour, on

Friday 3rd April 2009
9:30am - 3:00pm


Coffs Harbour Ex Services Club
Cnr Pacific Highway & Vernon Street, Coffs Harbour


Cost per person: $132 - non-members; $99 – DS NSW members
(includes GST, morning tea, and a light lunch)


Click here to download a flier with full details and registration form

Tuesday, 3 March 2009

Dominic Lawson on Ivan Cameron and the Meaning of Life

Dominic Lawson is a very well known UK journalist, from a well known family. He is also the father of a daughter with Down syndrome. He has often written very thoughtfully and confrontationally about issues raised by disability and other people's perceptions of people with disabilities. And he has done it again in the Sunday Times (1st March, 2009), reflecting on the recent death of six year Ivan Cameron, the son of the leader of the Tory Party, David Cameron, and his wife, Samantha

Click here to read the article online, and the comments it has stimulated.


Monday, 2 March 2009

Sunday Brunch air date changed

If you took any notice of Saturday's post about Gerard O'Dwyer being the subject of ABC radio's Weekend segment, Sunday Brunch yesterday, you might have also noticed that we were wrong! It was planned for yesterday, but they are going to tie it into a piece later in the year about another film that Gerard is working on ..... more on that later! Thanks to ABC's Simon Marnie for getting back to us so quickly.

Saturday, 28 February 2009

Sunday Brunch with Gerard O'Dwyer: ABC Radio, 702

Gerard O'Dwyer, who won the best actor award at Tropfest last weekend for his performance in Be My Brother is having a big week - many congratulations, lots of media, and interest from film festivals and film makers. Tomorrow morning (Sunday 1st March) on ABC Local Radio (702 in Sydney), Simon Marnie will visit Gerard at home for Sunday Brunch, at 11.00 am.

Today's Sydney Morning Herald included a free DVD of all of the Tropfest finalists, and this interview with Gerard and the film's director, Genevieve Clay, by film writer Garry Maddox, on page 2. It is accompanied by a fabulous photo of the famous pair.


Prof William Mobley appointed Chair of Neurosciences, UC San Diego


William C. Mobley, MD, PhD – a clinician and researcher who is internationally known for his work on degenerative diseases of the central nervous system and the neurobiology of Down syndrome – has been selected the new chair of the department of neurosciences at the University of California, San Diego School of Medicine. Mobley, currently the John E. Cahill Family Professor in the department of neurology and neurological sciences at Stanford University Medical Center, is expected to begin at UC San Diego on April 1.

“We are truly fortunate that Dr. Mobley will be at the helm of the prestigious team of researchers and physicians in UC San Diego’s neurosciences department, one of the top-ranked neurosciences departments in the nation for NIH funding,” said David Brenner, MD, Vice Chancellor for Health Sciences and Dean of the School of Medicine. “It takes a unique person, one with expertise in patient care, research and leadership, to direct this department. Bill Mobley is one of these rare people, and we expect him to play a key role both here at UC San Diego and within the area’s neurosciences community.”

UC San Diego’s neuroscience department is unique in that it includes both clinical neurologists and basic scientists. Together, they work in diagnosis, management, and research.

“UC San Diego’s neurosciences department has the ability to change the game for people with neurological diseases, and we intend to do just that,” said Mobley. “The researchers and clinicians here are the best in the world at what they do.”

Mobley’s research relates to the biological study of the nervous system, particularly actions and signaling that influence the survival of neurons, looking at how dysfunction of neuronal signaling mechanisms can contribute to developmental and age-related disorders of the nervous system. His special interest in the neurobiology of Down syndrome has brought important new insights to that disorder, including the identification of possible treatments.

The full text of the UC San Diego Medical Centre's media release is here.

Free Tropfest DVD in today's Sydney Morning Herald

Don't forget that the free DVD of Tropfest 2009 finalists comes with today's Sydney Morning Herald, so you can have your own copy of Be My Brother, the 2009 winner of best film , starring Gerard O'Dwyer, winner of the best male actor award!

Friday, 27 February 2009

Down Syndrome and You : revised booklet

The Canadian Down Syndrome Society has recently released a revised edition of its booklet for people with Down syndrome, Down Syndrome and You. Click here to download a copy.

Blair Williamson SCRUBS episode to air Thursday 5th March

Channel 7 is now broadcasting a double episode of SCRUBS each week, so the episode in which Blair Williamson has a role (see this post) is now scheduled for next Thursday, 5th March. The show is due to start at 10.30 pm but the episode "My Lawyer's In Love" appears to be screening second, at about 11.00 pm.
(Source: TV Week - we consult very widely for this blog!)

Thursday, 26 February 2009

Library Thursdays: Late, Lost and Unprepared

I was interested in reading Late, Lost and Unprepared: A guide to helping children with executive functioning (by Joyce Cooper-Kahn, Ph.D. & Laurie Dietzel, Ph.D., Woodbine House, 2008) because I had heard that people with Down syndrome have problems with executive functioning. This book is not specifically for people with Down syndrome, but it does seem to address some skills that may be of use to people with Down syndrome. Executive functioning is mental control and self-regulation to achieve a goal. This book lists the executive functions as: Inhibition, Shift (thinking and acting flexibly), Emotional control, Initiation, Working memory, Planning/organisation, Organisation of materials, and Self-monitoring. Many of these are considered areas of weakness for many people with Down syndrome. The second part of the book gives concrete strategies to help in each area. Many of the solutions are ones already suggested for people with Down syndrome--using visual prompts, routines, etc. However, it can be useful to see it presented in a different way. The book is very easy to read and skim. When needing a solution to a problem, it is possible to turn straight to the section and obtain a practical answer. The solutions may not be anything new to parents of people with Down syndrome, but I feel the book is useful and encouraging.
To borrow this book or any other from the library, just ask.

Related:
Working memory is discussed in Memory development for individuals with Down syndrome by Downs Ed UK.

Wednesday, 25 February 2009

26th Annual Charity Shield - some free tickets for DS NSW members

Come join Craig Wing (DS NSW Patron) at this year's Charity Shield match and cheer on the South Sydney Rabbitohs as they take on the St George Illawarra Dragons!

Saturday 28th February

8:00pm kick off @ ANZ Stadium

Only a limited number of free tickets available!

Dinner before the game from 4:30 - 6:30pm, North Strathfield

A bus will be provided to take everyone to and from North Strathfield and ANZ Stadium.

For further details or enquiries please contact Priscilla Leong on 9683 1900 or
priscilla@dsansw.org.au

From a grown-up sibling ....

Here is an interesting and thoughtful reflection from the older sister of a 48 year old man with Down syndrome, about their growing up together in a busy and well known British musical family.

Sally Beamish, a composer, was interviewed about her brother Christopher, by The Guardian (UK), published on Saturday 21st February 2009.

Tuesday, 24 February 2009

Bill Shorten to address the National Press Club about disability - 1 April 2009

Bill Shorten, Parliamentary Secretary for Disabilities in the Australian Government, is speaking at the National Press Club, in Canberra on 1 April, 2009 between 11.45 to 1.30 pm.
The lunch will be televised by ABC 1 at 12.30 pm on the day and repeated at 3.25 pm - see this link and look for "Bill Shorten" on 01-04-2009.

The registration form is also on this page for anyone is interested in going to the lunch.
Click here for Mr Shorten's media release of 20/02/2009, following his Adelaide roundtable with people with disability and carers.

Monday, 23 February 2009

Gerard O'Dwyer wins Best Male Actor at Tropfest

Actor, Gerard O'Dwyer won best male actor for his role in the winning film, Be My Brother, directed by Genevieve Clay. Congratulations to both of them and to the rest of the cast and crew. A DVD of all the Tropfest 2009 Finalists will be available with the Saturday Sydney Morning Herald.

Other related reports:

More than a Market Day - Wattle Grove, 29th March

Market Day

Wattle Grove Community Centre
Village Way, Wattle Grove

9.00am - 4.00pm, Sunday 29 March 2009



A small part of the very large crowd at Market Day 2008

• There will be something for everyone - variety of stalls, sausage sizzle, face painting, Easter show-bags, raffle, chocolate wheel and auction - lots of prizes to be won.

• Come along and have some fun and be pleasantly surprised by what you might find.

• All money raised goes directly to Down Syndrome NSW.

Information about Down syndrome will be on display.

All enquiries to Melissa Cotterill: 0418 162 544 or mcotterill@bigpond.com.au

A World Down Syndrome Day event.

Sunday, 22 February 2009

Filipino-Australian families sought for research project

Alex Higgins is a rehabilitation student completing research for an honours degree, at the University of Sydney by ....

" ...... conducting a research project on the use of early intervention services for families who are of Filipino-Australian descent and are caring full time for a child under the age of eighteen years who is diagnosed as having an intellectual disability.

The families can be single-parent or two parent families, however the child must have two Filipino parents irrespective of whether both parents are actively raising the child or not.

The method for this study will be to conduct structured survey interviews with representatives of the families. Each family is able to nominate who they feel bears the primary responsibility for caring for this child with a disability. "

If your family or a family you know might be interested in participating, please contact info@dsansw.org.au to be put in touch with Alex, and for further information.

Saturday, 21 February 2009

World Down Syndrome Day events for your diary: T 4321

World Down Syndrome Day 2009 is being celebrated on Saturday 21 March. The date signifies the fact Down syndrome is caused by nothing more than an extra chromosome - 3 copies of the 21st chromosome (or ‘3-21’).
Now in its third year, T4321 (or 'Tea for 3-21') is a simple way everyone in the community can mark this day and celebrate the achievements of people with Down syndrome as well as raise a few useful dollars to support children and adults with Down syndrome in achieving their full potential.

This year we invite you to again join in the celebrations with us by holding your own ‘T4321’ on or sometime around the 21st of March or by attending an event someone else has organised - look for them in your community too.

Here are details of the first T4321s notified to us so far:


Mornin’ Tea Open Day

Costa Azzurra Woodfire Restaurant
71 Princess Highway, Fairy Meadow NSW
  • Sunday 15th March @ 10:00am
Further details contact Tracy Barker on 0439 729 993
Click here to download the Mornin’ Tea Open Day flier

Morning Tea

at All Hallows Catholic Church

2 Halley Street, Five Dock


Sunday 29th March @ 11:00am (in the hall next to the church)

More responses to Brendan O'Reilly on a disability levy

Four further letters of response supporting the need for a disability levy, attesting to the inadequacy of current services, and wondering at the timing of Brendan O'Reilly's comments as he nears retirement as Director-General of the Dept of Ageing, Disability and Home Care, are publishing in today's Sydney Morning Herald, under the heading:

Eleventh-hour honesty on disabled is better late than never