This website and forum could be useful for the small number of families whose children with Down syndrome have extreme feeding difficulties, and have to consider or actually have a PEG (percutaneous endoscopic gastrostomy) for temporary or long term nutrition:
The newly launched online GISS Forum can be accessed through the GISS website: www.giss.org.au
“This forum is for information sharing, seeking support and raising issues related to gastrostomies and jejunostomies.”
The website includes contact details for the NSW branch of GISS, and the services GISS provides.
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