Quite a number of opportunities are currently available for people with Down syndrome and/or their families to participate in Australian research projects, either online, or in person. See our 'Research participation opportunities' page (link at the top of this blog) for a full listing of current projects. These three are new notifications:The legal function of serious disability in prenatal and neonatal healthcare setting - a nation-wide study is being conducted by researchers at the University of Technology Sydney and at the University of Sydney:
Download information provided by the researchers here.
HAVE YOU HAD PRENATAL TESTING FOR A DISABILITY?
HAD A CHILD IN NEONATAL INTENSIVE CARE? USED PGD?
DO YOU HAVE A CHILD WITH A DISABILITY?
We would like to hear about your experiences and, in particular, your thoughts and opinions about the management of potential disability before or during pregnancy or after birth. This Australian study examines the meaning of serious disability in prenatal and neonatal settings. Your contribution is valuable and will inform our analysis of law and policy relating to these practices.
This study is supported by an Australian Research Council Discovery grant. To share your thoughts in a confidential online survey, visit http://seriousdisabilityproject.blogspot.com
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Cognition and gait in people with Down syndrome is a Macquarie University project, recruiting people with Down syndrome aged from 6 years to adulthood.
Documents provided by the researcher, Alicia Wilcox:
- information and consent for parents of children with Down syndrome
- information and consent for adult s with Down syndrome
Social processing in people with Down syndrome is also a Macquarie University project, recruiting people with Down syndrome aged 6 to 60 years.
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Please contact the researchers directly via the numbers or email addresses in the linked documents, if you are interested in participating.
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