Coffee Reflections: Society and Syndrome
Jennifer Bekins, Talk - Down Syndrome, 27th July 2013
... “No, scars never disappear. They are there to remind us of something that happened in our life to make us stronger." Comments, attitudes, and experiences may leave invisible scars on the heart ...
... “No, scars never disappear. They are there to remind us of something that happened in our life to make us stronger." Comments, attitudes, and experiences may leave invisible scars on the heart ...
Kaite O'Reilly, The Guardian (Book Blogs), 11th July 2013
I was disappointed to read Paul Wilson's top 10 books about disability – what a missed opportunity. One of the slogans of the disability rights movement is "Nothing About Us Without Us"
Theatrical ability
Jenna Hand, artery, 15th July 2013
... When a handful of artists started a theatre workshop for people with intellectual disabilities in Geelong in 1987, none would have anticipated it reaching these heights. But Back to Back Theatre has flourished under Nash and Gladwin, its director for 15 years, to become an award-winning ensemble that is this year doing four international tours, a four-week run at the Sydney Theatre Company, three weeks at Melbourne’s Malthouse Theatre, and devising new work ...
I was disappointed to read Paul Wilson's top 10 books about disability – what a missed opportunity. One of the slogans of the disability rights movement is "Nothing About Us Without Us"
Theatrical ability
Jenna Hand, artery, 15th July 2013
... When a handful of artists started a theatre workshop for people with intellectual disabilities in Geelong in 1987, none would have anticipated it reaching these heights. But Back to Back Theatre has flourished under Nash and Gladwin, its director for 15 years, to become an award-winning ensemble that is this year doing four international tours, a four-week run at the Sydney Theatre Company, three weeks at Melbourne’s Malthouse Theatre, and devising new work ...
Viewpoint: 10 jargon phrases used for my autistic son
Mark Neary (Guest blogger), OUCH, 24th July 2013
I was recently comparing with a friend the way I present the everyday norms of my own life with the way the social care world presents Steven's life. We were having the conversation in a pub. If Steven were to go to that pub, or to a gym or swimming pool, for instance, he might be described as accessing the community.
Lori and Miles Celebration of Love
A lovely gallery of photos from a celebration of a couple's 27 years together.
A lovely gallery of photos from a celebration of a couple's 27 years together.
Becca, The Bates Motel, 1st August 2013
Independence is a sneaky thing. For so long you dote and mind, and watch oh-so-carefully, you hold hands and cut food into tiny pieces so tender mouths don't burn, you carry and lift, find and recover, read, build, dress and put away. And then one day...when you least expect it ... you realize that don't really have to ...
The truth about sleep studies in children with Down syndrome
Maureen Wallace, She Knows (Parenting), 26th July 2013
The Massachusetts research published two weeks ago, on 'silencing' the third 21st chromosome in cell cultures continue to stimulate discussion across the internet. Here are some recent offerings:
The truth about sleep studies in children with Down syndrome
Maureen Wallace, She Knows (Parenting), 26th July 2013
... as the parent accompanying your child to a sleep study, you will get no sleep. None, people. Not a blink.
Decisions, decisions, decisions,
Decisions, decisions, decisions,
SpeakOutAdvocacy, 21 May 2013
Casey and Reece talk about making choices and decisions. This is a DVD designed to teach young people with intellectual disability about choice and decision making. 3m 57s video
Casey and Reece talk about making choices and decisions. This is a DVD designed to teach young people with intellectual disability about choice and decision making. 3m 57s video
The Massachusetts research published two weeks ago, on 'silencing' the third 21st chromosome in cell cultures continue to stimulate discussion across the internet. Here are some recent offerings:
So Here's Us.... life on the raggedy edge, 1st August 2013
... when I was asked to speak on a radio talk show this week (CBC Radio – The Current) about breakthroughs in genetic research (Researchers turn off Down syndrome genes), it was harder than I expected.
Before we silence Down syndrome, shouldn’t we try to understand it better?
... when I was asked to speak on a radio talk show this week (CBC Radio – The Current) about breakthroughs in genetic research (Researchers turn off Down syndrome genes), it was harder than I expected.
Before we silence Down syndrome, shouldn’t we try to understand it better?
Mark Leach, Down Syndrome Prenatal Testing, 25th July 2013
Reactions to the news of the researchers “turning off” the extra 21st Chromosome that is the genetic cause of Down syndrome continue to be shared. Yesterday brought the most concise explanation of the actual research and a question that has not yet been raised about it.
The Problem With Down Syndrome: Part 1
The Problem With Down Syndrome: Part 1
Jisun Lee, Kimchi Latkes, 31st July 2013
Is there a problem with Down syndrome? Is having 46 chromosomes fundamentally better than having 47? If one can designate a certain genetic condition as less than ideal, what are ideal genetics? More importantly, where does this contemplation lead us?
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