Saturday, 14 September 2013

Weekend reading and viewing: 14th - 15th Septemer 2013


UnBard TV... unbarring the arts
Australia's only Arts and Disability weekly television program
Foxtel's Aurora Channel 8th September - 22nd December 2013
I'm extremely proud to support the Sunnyfield UnBard arts and TV program. UnBard will be Australia's first accessible creative community forum, enabling thousands of people to share and access Community, Culture and Arts programs by showcasing drama, music, dance and multimedia activities created through collaborations with people with disabilities, independent film makers and emerging artists. It will be a positive platform for people with or without a disability to share their creative stories, showcase their individual talents and celebrate their community achievements. UnBard TV will engage and capture your imagination and open the doors for everyone to enjoy. Congratulations to Sunnyfield on this groundbreaking innovative project." Rachel Ward - Ambassador for Sunnyfield
Leigh Creighton for DisabilityCare Australia, July 2013 (video 1:17)
A short video, shows that Leigh is a man who can speak for himself, and knows what he wants.
Leigh also features in this local news story about being a speaker at a My Choice Matters event in Taree on Tuesday next.

5 Compliments you need to stop giving about children with Down syndrome
Lexi (Sweatpants) Magnusson, Scary Mommy, 12th September 2013
... Then there are times…well… that well-meaning, very nice people say things that just drive me crazy. I know that they are just trying to be nice. But whether it’s because I hear these things all of the time, or because they just aren’t the reality of the world I live in, there are a few compliments that make me batty

Need a Perspective Change?
Trudy Bourgeois, Huffington Post, 9th September 2013
If you've known me for a while or followed along on social media, you know that we have a 30-year-old son with Down Syndrome. His name is Adam. And let me tell you something... that boy has taught me some of THE MOST POWERFUL life lessons over the years. Here's one of them ...

Sadie
Brittany Nott, Down Syndrome Research Foundation, 12th September 2013
Running down the hallway, I could always hear her two footsteps right beside me. The one thing I could always count on would be that Sadie, my cousin was always right beside me. She is 16 years old so we are one year apart. Over the years Sadie has taught me countless lessons without even realizing it ...

There are around 250,000 people with Down syndrome living in the US – not 400,000
Frank Buckley, Frank Talk - Down Syndrome Education International, 12th September 2013
A paper published recently in The Journal of Pediatrics estimates the population of people with Down syndrome alive in the USA in 2008 – not the oft-stated 400,000. Even this may be an overestimate. It is important to understand the size and the demographics of populations of people with Down syndrome in order to plan services. In an important paper, recently published online by The Journal of Pediatrics, Angela Presson and colleagues present an estimate of the current population of people with Down syndrome living in the USA in 2008, which they calculate to be 250,700 with a 90% uncertainty interval of 185,900-321,700 ... Analysis of how the revised estimate was reached.

Keeping Adults with Down syndrome Healthy
Dr. Alison T. Schwartz, clinical co-director of the Mass General Down Syndrome Program, and Ben Majewski, self-advocate resource specialist, talk about how to keep adults with Down syndrome healthy.

Presumption
Lene Andersen, The Seated View, 10th April 2012
... How dare you presume to decide what makes life worthwhile? How dare you say that because this person can't walk, that person has an intellectual disability and the one over there lives with chronic pain, their lives are not worthy of being lived? Who are you to judge? By making these statements, you have proven yourself to not have the capacity to imagine a situation other than perfect health and therefore you cannot be trusted to make decisions about anyone else's life ...

The wonder of discrimination
Shakira Hussein, Ramp Up, 10th September 2013
As a brown-skinned Muslim and single mother diagnosed with multiple sclerosis, Shakira Hussein discovers the main lesson that some people seem to draw from their experience of discrimination is how to dish it out to others.

Pathologising normality in intellectual disability
Peter Smith, LINK Magazine, Vol 22 Issue 3, August 2013
... this particular Elvis has a moderate intellectual disability with comorbid mental illness and lives right here in Australia. But, if you tried to ignore the Elvis persona, you'd be greeted with silence. So as a support worker you had to buy into the gig or be frozen out. Normal behaviour, abnormal behaviour, delusional behaviour – what label would you like to give it? Staff fell into two camps: normal and you went along for the ride, or abnormal and you tried to ‘extinguish’ the behaviour.

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