“Silencing” the extra 21st chromosome
Voices at the Table Advocacy (VATTA), 10th September 2013
... scientist(s) may be able to turn off the extra chromosome that makes people have Down syndrome. When I heard about this I had mixed feelings. Some talk was about “curing” Down syndrome. People with Down syndrome are not sick. It is only a small part of them and they do not need to be cured. There some positives to this research that make me feel hopeful ...
Beyond the gift,
Dave Hingsburger, Rolling Around in My Head, 14th September 2013
... She wasn't setting out to smash stereotypes, she was setting out to make a gift. And it was the fact that she had a gift to give that I hope people notice ...
'When he came along I was just a child myself and suddenly I had a child of my own with special needs.'
Mail Online, 17th September 2013
A teenager who became the youngest mother in Britain to a Down’s Syndrome baby after falling pregnant aged 15 has spoken of her pride in proving her doubters wrong. Despite being just a child herself, single teen mother Catherine Moore, now 19, refused to give her baby up after learning he had Down’s Syndrome, vowing to raise him herself despite concerns that she wouldn’t cope ...
Note: the article says that ... 'Recent figures show up to 90 per cent of Down's babies are aborted - a figure which Catherine finds distressing.' The 90% estimate refers to pregnancies in which a definitive prenatal diagnosis is made in some populations.
I'm not a great parent just because I have a kid with special needs
Ellan Seidman, Love That Max, 18th September 2013
... The help we give Max is part of parenthood; we just happened to get a kid who needs extra assistance. When people admire me or Dave for the simple act of parenting Max, it makes me hyper-aware that they think it must be so tough—a burden, even—to parent a child with special needs. Considering parents of kids with special needs to be saints overestimates us, and underestimates our children ...
For your eyes
Esther Joosa, for Down Syndrome International, 18th September 2013
... As part of the events (at the 11th World Down Syndrome Congress in South Africa in 2012), to show their skills with communicative technology, the Conference provided opportunities for young participants with Down syndrome to enter a photography competition. Looking at the photographs, shows their engagement and that each camera person, not only has a story to tell, but is capable of doing so ... (Two Australian photographers are featured in this article).
Why Sign with your Child?
... The help we give Max is part of parenthood; we just happened to get a kid who needs extra assistance. When people admire me or Dave for the simple act of parenting Max, it makes me hyper-aware that they think it must be so tough—a burden, even—to parent a child with special needs. Considering parents of kids with special needs to be saints overestimates us, and underestimates our children ...
For your eyes
Esther Joosa, for Down Syndrome International, 18th September 2013
... As part of the events (at the 11th World Down Syndrome Congress in South Africa in 2012), to show their skills with communicative technology, the Conference provided opportunities for young participants with Down syndrome to enter a photography competition. Looking at the photographs, shows their engagement and that each camera person, not only has a story to tell, but is capable of doing so ... (Two Australian photographers are featured in this article).
Why Sign with your Child?
Cyndi Johnson, Down Syndrome Research Foundation, 17th September 2013
... Then along came my daughter R, born with Down syndrome. I knew instinctively that signing with her was anything but faddish. When I learned that hearing loss is common among children with Down syndrome, and that their speech and language is significantly delayed, I was determined to provide R the tools to communicate with her hands ...
... Then along came my daughter R, born with Down syndrome. I knew instinctively that signing with her was anything but faddish. When I learned that hearing loss is common among children with Down syndrome, and that their speech and language is significantly delayed, I was determined to provide R the tools to communicate with her hands ...
Stella Young, Ramp Up, 19th September 2013
Given Australia's lacklustre record and the number of people relying on improvement, let's hope we don't rue the abolition of a dedicated minister for disability reform ... Awaiting the announcement of Prime Minister Tony Abbott's new Cabinet appointments earlier this week, there was one question on my mind: Would Senator Mitch Fifield be our new minister for disability reform? I was hopeful. In his role as shadow minister for disabilities, carers and the voluntary sector, Fifield was a tireless champion ... (and) he understands that disability reform isn't just about the NDIS; it's about education, employment, infrastructure and inclusion in all aspects of Australian life.
From a service to a life
Ruth Gorman, Learning Disability Today, 12th September 2013
... I felt that if paid support could, in some scenarios, be replaced by richer, natural and more sustainable support networks and community connections we could enable people to enjoy a better life. Person-centred thinking was central to this approach ...
Disability care sector needs thousands of workers
Elise Worthington, ABC News, 20th September 2013
State and federal governments are working to more than double the disability sector workforce ahead of the roll-out of the National Disability Insurance Scheme (NDIS). A draft report by PricewaterhouseCoopers obtained by the ABC shows more than 80,000 extra workers will be needed across Australia. That includes more than 20,000 management and administration positions and a similar number of personal care assistants ...
When disability discrimination is legal
Ruth Gorman, Learning Disability Today, 12th September 2013
... I felt that if paid support could, in some scenarios, be replaced by richer, natural and more sustainable support networks and community connections we could enable people to enjoy a better life. Person-centred thinking was central to this approach ...
Disability care sector needs thousands of workers
Elise Worthington, ABC News, 20th September 2013
State and federal governments are working to more than double the disability sector workforce ahead of the roll-out of the National Disability Insurance Scheme (NDIS). A draft report by PricewaterhouseCoopers obtained by the ABC shows more than 80,000 extra workers will be needed across Australia. That includes more than 20,000 management and administration positions and a similar number of personal care assistants ...
When disability discrimination is legal
Alecia Simmonds, Daily Life, 18th September 2013
If Vincent van Gogh, Ludwig van Beethoven, Helen Keller or Frida Kahlo were alive today and in a moment of wild-eyed madness decided to permanently migrate to Australia, would we accept them?
I suppose you could argue that they’re highly skilled and their social contributions are quite possibly monumental. But judging by the requirements of Australian migration law the odds are against them. Why? Because they all had disabilities: Van Gogh suffered depression, Beethoven was deaf, Keller was blind and Kahlo had polio.
In order to migrate to Australia you have to pass a health test where disability is taken into consideration. Applicants are assessed based on the potential cost to the state of their disability ...
If Vincent van Gogh, Ludwig van Beethoven, Helen Keller or Frida Kahlo were alive today and in a moment of wild-eyed madness decided to permanently migrate to Australia, would we accept them?
I suppose you could argue that they’re highly skilled and their social contributions are quite possibly monumental. But judging by the requirements of Australian migration law the odds are against them. Why? Because they all had disabilities: Van Gogh suffered depression, Beethoven was deaf, Keller was blind and Kahlo had polio.
In order to migrate to Australia you have to pass a health test where disability is taken into consideration. Applicants are assessed based on the potential cost to the state of their disability ...
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