Saturday, 5 October 2013

Weekend reading and viewing: 5th - 6th October 2013


Two Opposite Issues and 

Part 2, Two Opposite Issues: Common characteristics
Brian Chicoine,
Adult Down Syndrome Clinic, 3rd  and 4th October 2013

... People with DS can develop illnesses that are treatable; all is not Down syndrome. Families share stories that this adage is not always followed and evaluation is skipped and the diagnosis becomes “It is just Down syndrome”. The corollary to “All is not Down syndrome” is that all people with Down syndrome are not the same …


Michael J. Fox a role model for disabled
Jennifer Laszlo Mizrahi, USA Today, 26th September 2013
... with the premiere of the Michael J. Fox Show Thursday night, Fox's role as an actor could transition him into a major civil rights leader for people living with disabilities ...

Reflections on Italy
Kate Strohm, Siblings Australia, 29th September 2013
... the term ‘carer' was not heard the whole weekend ... there is no such word in the Italian language. Parents were referred to as parents, and families as families, regardless of whether they include a child with a disability ...
Rachel Adams, Maria Shriver, 24th September 2013
Lately I’ve been thinking a lot about Lillian and Martin, a couple I met last summer just after they learned that the baby they’re expecting has Down syndrome. They were devastated at the news, and thinking of giving the child up for adoption.A mutual friend asked if I would tell them what it has been like for me to raise a son with Down syndrome ... I’ve had conversations like this before, and they are never easy. They’re hard on expecting parents ... They’re also hard for me. I try to keep an open mind, and not to pass judgment. This doesn’t mean I don’t have opinions ...

Wellcome Image of the Week: Down’s Syndrome
Iona Twadell, Wellcome Trust, 2nd August 2013
This week’s Image was taken as part of the ‘Shifting Perspectives’ exhibition, which celebrates the lives and achievements of people with Down’s syndrome through photography. It shows Kate Powell and her friends sharing a lunch break while working at the Platform One café in Clapham, London.

The Damaging Language of “Cure” and Down Syndrome
Rachel Adams, Thin Places, 2nd October, 2013
... when I look more closely at what the scientists are saying about their own work, they rarely speak of “curing” Down syndrome but rather of mitigating its effects. The problem really arises as the popular media attempts to translate what may be very complicated and very preliminary research findings into something newsworthy ...

Recruiters must have working solution to deal with disability
Graeme Innes, Sydney Morning Herald, 3rd October 2013
Forty-five per cent of the two million Australians living with a disability, live in or near poverty, according to the Organisation for Economic Co-operation and Development. This is partly because most of us spend much of the small income we receive on services and supports. The new national disability insurance scheme will address this over the next few years. Another reason is because we participate in the job market at a rate that is 30 per cent lower than that of the general population. And when we are employed, we are significantly underemployed ...

A letter to my younger self
Stella Young, Ramp Up, 4th October 2013
There are a lot of things I could tell you. I could tell you about moving away from home and all the friends you'll make ... that your life will be exciting and full of wonderful people who love you. All these things are true.

But I know what you really want from me. You want to know about sex and love and relationships - not necessarily in that order. So that's what I'm going to tell you about, because god knows no-one else has anything to offer that can calm your fears ...





The 2013 IDSC World Down Syndrome Day video was produced for the International Down Syndrome Coalition, and features the song "Who I Am" written and sung by Sarah Conant.

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