A closed Facebook group for families and educators using or interested in using Down Syndrome Education International's Reading and Language Intervention for Children with Down Syndrome (RLI).
RLI is an evidence-based program designed to teach reading and language skills to children with Down syndrome. It incorporates best practice in structured activities delivered in fast-paced daily teaching sessions. It was evaluated in a randomized controlled trial and found to improve rates of progress compared to ordinary teaching.Disabi(LIT)y - disability in literature
A blog about books focussing on or featuring people with disability - fiction and non-fiction, including reviews and recommendations, written by the mother of a boy with Down syndrome. If you are a reader, this one's for you. A link has been added to our list of 'blogs we read' in the right hand column of this page.
Too Many Elephants In This House - Auslan
Children's book in Auslan and text on video
New book for health professionals
Down syndrome: Current Perspectives
Richard W. Newton, Liz Marder, Shiela C. Puri, April 2015
Frans Families, by Lorraine Maclarty
A beautiful large format book, featuring photos and stories about twelve people with disability associated with FRANS, a Disability Support Organisation located in Sydney's inner west. The book features a number of young people who are also members of DS NSW. Thanks to Margot Elliffe for donating the resource to our library.
Email: library@dsansw.org.au
Safe at Schools - exploring safety and harm of students with cognitive disability
Down syndrome; Clinical Perspectives provides doctors and other health professionals (Publisher's note)
with the information they need to address the challenges that can present in the management of syndrome. Chapters written by internationally respected paediatricians with a special interest in Down syndrome, cover Down syndrome comorbidities, such hearing problems, gastrointestinal disorders, congenital heart diseases, as well as the underlying biology and new developments in molecular genetics. Contributions from the UK Down Syndrome Association and Down Syndrome Medical Interest Group define how doctors can work effectively with other professionals to improve health care provisions for this group. Each chapter is illustrated by informative case scenarios and answers to FAQs from parents and carers.
New in the DS NSW library
Frans Families, by Lorraine Maclarty
A beautiful large format book, featuring photos and stories about twelve people with disability associated with FRANS, a Disability Support Organisation located in Sydney's inner west. The book features a number of young people who are also members of DS NSW. Thanks to Margot Elliffe for donating the resource to our library.
Email: library@dsansw.org.au
Safe at Schools - exploring safety and harm of students with cognitive disability
Dr Sally Robinson, Lel D'Aegher, Anne Graham, Dominique McGovern, Southern Cross University, 2015
Students with cognitive disability experience higher rates of abuse, neglect and exploitation than students without disability. This research project investigated what students, their families and other key supporters such as teachers, disability, and child protection workers think about personal safety in and around school, together with their perspectives on what might make things better. The research was supplemented by an extensive analysis of relevant law and policy in this area.
The project resulted in a research report; and resources for students, families and professionals working with students who have cognitive disability.
There are five modules:
1. Introduction to Picture My Future
2. Communicating with a person with disability
3. Where does Picture My Future fit in the planning process?
4. Picture My Future - a guide
5. Using pictures to explore hopes and dreams
Someone is No One. Someday is Never
Crystal Lynn, Service, Support and Success, Volume 4, Issue 5, May 2015
A person receiving services (the term ‘member’ will be used hereafter) approaches a staff supporting him in his home and says, “I want to go to the movies.” Staff looks up from a pile of paperwork and responds, “Yeah, that sounds nice. Someone can take you soon.” ... These are common dialogues between members and staff. On the surface it seems harmless, but it can actually be quite damaging. In the field of service provision to people with disabilities, we’ve talked about the importance of supporting individuals to make choices. We’ve talked about the hazards of saying ‘no.’ What we need to talk about now is the tendency to – and the danger of – non-committal responses ...
Crystal Lynn, Service, Support and Success, Volume 4, Issue 5, May 2015
A person receiving services (the term ‘member’ will be used hereafter) approaches a staff supporting him in his home and says, “I want to go to the movies.” Staff looks up from a pile of paperwork and responds, “Yeah, that sounds nice. Someone can take you soon.” ... These are common dialogues between members and staff. On the surface it seems harmless, but it can actually be quite damaging. In the field of service provision to people with disabilities, we’ve talked about the importance of supporting individuals to make choices. We’ve talked about the hazards of saying ‘no.’ What we need to talk about now is the tendency to – and the danger of – non-committal responses ...
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