Friday, 8 May 2015

Weekend reading: 9th - 10th May 2015


Coming along in leaps and bounds
Laura Cox, Daily  Mail (Australia), 5th May 2015
Born with Down’s Syndrome, Archie Aspin was told he would never manage to keep up with his peers. But at the age of just three, he is already progressing in leaps and bounds. His mother Amanda has credited ‘baby ballet’ classes with sending her little boy’s confidence soaring, and says Archie now walks, jumps and hops – skills once thought too challenging for him ...
  • Beautiful photos with this article.
Tell Me Why
Mariah Nichols, A Little Moxie, 7th May 2015
... Tell me why people will jump to the conclusion that she is “high functioning” because somehow so much beauty and moxie are not justifiable in someone who isn’t ...

Sharing the Sad Stuff...

Pudge and Biggie, 1st May 2015When it comes to sharing about my extra-chromosomed squibs, I admit to often withholding about episodes that make my stomach hurt. I obviously experience them. They obviously experience them.


35 Secrets of Being a Special Needs Parent
The Mighty, 29th April 2015
... we asked our readers ... to share one secret about parenting a child with special needs. Here is what we learned.

Opinion: Phenotypes, Oligonucleotides and Me
Olivia Shivas, Attitude Live, 30th April 2015
... you have people who want to know everything and anything about their disability – this may include the science, the genetics or talking to other people in the same situation for advice. On the other hand, there are people who don’t want to know anything about their disability and just want to live their life without it perhaps being a burden as such ...

What it's like to have to defend your right to live
Jacki Brown, Daily Life, 1st May 2015
... I went to a dinner party with some new friends and towards the end of the night talk turned to the vaccination debate. My new friends talked of the polio epidemic as evidence of the need for preventive medical intervention and this led us to talk about preventive screening for Downs Syndrome and the desire for a 'normal', 'perfect' child. It was agreed by the majority that of course you would terminate a pregnancy that was found to be 'abnormal' or disabled ...

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