Predicting and Preventing Leukaemia in Children with Down Syndrome: The PreP 21 Study

The Board of Down Syndrome NSW supports participation in this research project, coordinated by Sally Byatt at Sydney Children's Hospital, Randwick:

The Kids Cancer Centre at the Sydney Children’s Hospital Randwick in NSW is currently running an exciting new Australian study called Predicting and Preventing Leukaemia in Children with Down Syndrome (The PreP 21 Study).

The aim of The PreP 21 Study is to devise a method of predicting which children will later develop leukaemia. If successful, this study may form the basis for a later therapeutic trial to prevent babies with Down syndrome developing leukaemia, with enormous potential impact on the many other types of child cancer which have a prenatal origin.

The researchers would like to invite children in NSW with Down syndrome between the ages of 0 – 2 (from birth up to the third birthday) to have the chance to take part in the study. Participants will be followed up until the age of 4 years.

It is anticipated that the study will become available for ACT residents in the near future.

If you are interested in having your child take part in The PreP 21 Study or would like further information, please contact the study by:

Telephone: 0410 346 294
Email the Study Co-ordinator, Ms Sally Byatt: sallyanne.byatt@health.nsw.gov.au
Or visit the study website