Twenty Things I Want My Health Care Provider to Know
A series of videos from the Adult Down Syndrome Center, published on their Facebook page. The quickest way to reach them is via this link, or via the 'Videos' tab in the left column of the ADSC home page :
Before We Get Started - published October 2016. A 'welcome to the series', includes a brief history of the Adult Down Syndrome Center. (3m 6s)
It Is More Than Just Language - published 13 February 2017. It is about language but it is also a philosophy on interacting with people with Down syndrome. (1 m 10s)
Common Characteristics of People with Down Syndrome - published 16 February 2017. All is not Down syndrome. (3m 33s)
Life Expectancy and Two Syndromes - published 19 February 2017. People with Down syndrome are living much longer than in the past and despite the same genetics from years ago, the lives of people with Down syndrome look much different than they did in the past. (7 m)
Keratoconus and Down’s syndrome
Stephanie Campbell, Down's Syndrome Association (London), 3 January 2017
Keratoconus is a condition in which the cornea, the transparent ‘window’ at the front of the eye, grows abnormally thin and into a cone shape, causing distorted vision.
... Until recently, there was no treatment for early stages of keratoconus, and nothing to be done about it until vision was affected, when contact lenses can be a real help. In cases of severe progression, scarring of the cornea meant that a corneal transplant was the only means of providing reasonable vision.
Now, there is a new treatment becoming available, called collagen cross-linkage therapy that can halt the progress of the abnormal growth and prevent sight deteriorating ...
Keratoconus is a condition in which the cornea, the transparent ‘window’ at the front of the eye, grows abnormally thin and into a cone shape, causing distorted vision.
... Until recently, there was no treatment for early stages of keratoconus, and nothing to be done about it until vision was affected, when contact lenses can be a real help. In cases of severe progression, scarring of the cornea meant that a corneal transplant was the only means of providing reasonable vision.
Now, there is a new treatment becoming available, called collagen cross-linkage therapy that can halt the progress of the abnormal growth and prevent sight deteriorating ...
- Keratoconus and Down’s syndrome: Rachel’s story, DSA (UK), 27 January 2017
Lack of Specialist Clinicians Failing Australians with an Intellectual Disability
Simon Wardale, Probono News, 3 October 2016
Bluntly speaking, complex and challenging behaviours are not very well understood, even within the disability sector, and that situation is borne out by the training – or lack thereof – available for Australian practitioners ...
... At age 4, Talia Duff, who was born with Down syndrome, began to slowly lose motor milestones that were hard to achieve initially. Doctors believed her motor skills were delayed because of her Down syndrome ...
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