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Showing posts with label World Down Syndrome Congress. Show all posts
Showing posts with label World Down Syndrome Congress. Show all posts

Wednesday, 9 November 2016

Down Syndrome Australia media release on World Down Syndrome Congress 2022

8 November 2016

We are pleased to announce that after a competitive bidding process, Down Syndrome Australia has been selected by Down Syndrome International to host the 2022 World Down Syndrome Congress in Brisbane.

This international conference brings together people with Down syndrome, family members, researchers and service providers to showcase the latest research and best practice as well as the lived experience of Down syndrome from around the world. The Congress will continue to support the ongoing agenda of Down Syndrome International to improve quality of life for people with Down syndrome worldwide and promote their inherent right to be accepted and included as valued and equal members of their communities ...
  • To read the full media release, click here
  • WDSC 2018 will take place in Scotland
  • WDSC 2020 will take place in Dubai

Monday, 3 October 2016

World Down Syndrome Congress 2022: Brisbane.

An exciting announcement from Down Syndrome international:

Following receipt of a number of excellent applications to host World Down Syndrome Congress (WDSC) 2021, the Board of Down Syndrome International (DSi) has agreed to revert to a 2 year cycle for the WDSC, with effect from 2020. 

There were compelling reasons to accept the proposals of Emirates Down Syndrome Association, in the city of Dubai, United Arab Emirates and Down Syndrome Australia, in the city of Brisbane, Australia. Following consultation with these parties,

WDSC 2020 will take place in Dubai and WDSC 2022 in Brisbane.

DSi looks forward to working with Emirates Down Syndrome Association and Down Syndrome Australia and further announcements will follow in due course.
  • For further information about the World Down Syndrome Congress, please visit the DSi website.
  • For information and to register for WDSC 2018 in Scotland, please visit this website
  • You can also keep up with Down Syndrome International activities through the Facebook page.

Tuesday, 2 February 2016

Rescources

World Down Syndrome Congress 2015: presentationsIn case you missed the World Down Syndrome Congress 2015, the speakers' presentations and videos are now available online, here.


  • Down Syndrome NSW Executive Director, Tracylee Arestides' report on her 12th WDSC experience:

Planning for an emergency situation
Carer Gateway
An emergency care plan is a folder or a piece of paper with all the important information in one place. The idea is to make it easy for someone to take over from you in a hurry ...

Creating One Page Profiles with people who do not use words
Helen Sanderson Associates, 30 September 2014
The purpose of a one-page profile is to provide a summary of person-centred information that people in a person's life can use to either get to know them quickly, or ensure that they are providing consistent support in the way that the person wants. By considering what is important to and for a person, and what good support looks like, one page profiles illuminate actions that make a real difference in a person's life. This animate explores the ways that a one page profile can be created with people who do not use words to communicate.


Tuesday, 17 November 2015

Glasgow, 2018

Down’s Syndrome Congress is real world changer
The Scotsman, 13th November 2015

With Scotland due to host 2018 event, young participants in the Handover Ceremony in India explain the impact it has on their lives and aspirations.
In 2018 Down’s Syndrome Scotland will host the World Down’s Syndrome Congress in Glasgow. In August a team of staff and representatives of the charity travelled to India to attend the World Down’s Syndrome Congress 2015 to learn and to take part in the handover ceremony as the next host nation. Our lead commissioners for the WDSC in 2018, Andrew MacIntyre, 26, Stuart Campbell, 27, and Sam Ross, 25, all had important roles to play. They wanted to share their stories with you ... read on, here

  • If you would like to find out more about the World Down’s Syndrome Congress 2018 you can register your interest and receive regular updates by visiting www.wdsc2018.org.uk.

Wednesday, 4 November 2015

Register your interest in Glasgow, 2018

 If Tracylee, Rohan and Tara's feedback from the 12th World Down Syndrome Congress in India earlier this year has you thinking about the possibility of Glasgow in 2018, you can now register your interest with the hosts, Down's Syndrome Scotland, and receive news about the planning, program, accommodation and speakers as it progresses. It's not a commitment, just an expression of interest - register here.




Thursday, 29 October 2015

12th World Down Syndrome Congress, Chennai 2015

Up! Club members Rohan Fullwood and Tara Elliffe spoke about there experience at the 12th World Down Syndrome Congress in Chennai, India in August at our AGM on 18th October. Their presentation is on our website, here. Be sure to click on the link to see their wonderful photos. Down Syndrome NSW Executive Director, Tracylee Arestides also attended the 12th WDSC and reports back:



Every three years Down Syndrome International (DSi), a London based charity, organizes the World Down Syndrome Congress. August 2015 saw 500 delegates from over 25 countries come together in Chennai, the capital of Tamil Nadu in southern India, to share information, make connections and work toward making ‘An inclusive tomorrow’.

Of those gathered in Chennai just over 100 delegates were people with Down syndrome. One of the great things about this was that every time you looked around the room about every 4th or 5th person had Down syndrome! Australia had its fair share of delegates with DS including dancers and drummers from Victorian group eMotion 21 and rock’n’rollers Club Slick from South Australia. Many individuals travelled to India as well, including several members of DS NSW.

The Congress took place over three action packed days and covered a wide variety of subjects ranging from weight management to independent living to the paranormal abilities of people with DS!

An important part of each Congress is the parallel stream of presentations and activities that is exclusively for people with DS. At the end of the 2015 Congress, the self advocates session of this stream agreed on the following resolutions
  • To be respected and accepted so that disabled citizens are treated equally 
  • To have the right to date and get married like everyone else, without parental interference 
  • To have the opportunity for self-care and a healthy life, living independently including pay bills and make own decisions. 
  • Education be made free for all 
  • To be provided with a trained counsellor in all schools and colleges with inclusive practices without comparison to other people without Down syndrome 
  • Insurance policy coverage from birth 
  • The right to vote 
  • Right to transportation 
  • Develop a clear social model of service provision relating to the health, education. Training and employment and career development of persons with Down syndrome and intellectual disabilities ensuring that those involved in its implementation are adequately trained. 
  • Allocate resources to develop and sustain innovative approaches to training and employment related to programmes and services for persons with Down syndrome. 
  • Make reasonable accommodations, provide employer incentives, Encourage networking and collaboration in particular on supported employment 
  • Take strong measures to prevent sexual and physical abuse or exploitation and provide equitable justice where criminal activity has occurred. 
  • Provide access to general healthcare services which respect the dignity and privacy of individuals with Down syndrome and intellectual disabilities and which facilitates informed decision making. 
  • Sport and recreation policies of governments should facilitate sponsorships, accessibility, education training and participation at all levels. 
Many of the issues addressed in Chennai spoke directly to the experience of people with DS and their families in the Asian region. While it is interesting to see how far we may have come respecting the rights of people with DS in Australia it was also a reminder that those rights can not be taken for granted.

One of the most insightful and entertaining speakers at the Congress was American geneticist, and younger brother of Kristen who has DS, Dr Brian Skotko. Dr Skotko presented findings of some recent research he has undertaken about people with DS and their families. Among other things the research showed that 61% of siblings between the ages of 9 and 11 worry about their sibling with DS being made fun of while 89% felt that their friends were quite comfortable with their sibling and only 7% were embarrassed by having a sibling with Down syndrome.

Dr Skotko’s recommendations for parents arising from the research included
  • Allow brothers and sisters to express negative feelings 
  • Be open and honest and explain DS as early as possible 
  • Recognize the difficult moments that brothers and sisters may be experiencing 
  • Limit caregiving responsibilities 
  • Recognize the individuality and uniqueness of each child in the family 
  • Be fair
(Dr Skotko’s recent book Fasten Your Seatbelts – A crash course on Down syndrome for brothers and sisters is available from the library).

Overall the WDSC 2015 was a highly informative, very full and a joyous occasion.

Presentations from the 12th WDSCongress can be viewed here.


The next WDSC is in Glasgow, Scotland, 24th - 27th July 2018 
and its highly recommended - so start saving and planning!

Monday, 17 August 2015

12th World Down Syndrome Congress, Chennai, India: this week

From Down Syndrome International:
We are excited and looking forward to welcoming you to Chennai, India for the 12th World Down Syndrome Congress 19 - 21 August.

If you are not able to be at the Congress in person, you can follow us on social media where we will be sending updates during the proceedings of the Congress. 


Thursday, 9 July 2015

World Down Syndrome Congress - programme feedback survey



The World Down Syndrome Congress 2015 programme is now available to view on the WDSC website. We hope it provides a high quality mix of unique expert insight into all things Down syndrome, while celebrating our visit to wonderful India!

Click on the link below to access our WDSC Programme Feedback Survey.From here you can view the programme and we would really appreciate you completing our survey. Then why not register (if you have not already) to join us in Chennai 19-21 August 2015:

https://www.surveymonkey.com/s/2BK9RTS
We would like to get feedback from the global community so we can make reasonable changes that people feel strongly about, both this time and for WDSC 2018.

We would like to hear from you as previous WDSC attendees. We would also be very grateful if you share this survey with as many of your friends and contacts as possible. That way, we can make WDSC a truly global meeting with something for everyone.

Please note: individuals who complete the survey will qualify for discounted registration fees equivalent to early rates, which are otherwise no longer available. So there is an extra incentive to complete this survey. Contact Roxy Harley roxy.harley@ds-int.org if you want to benefit from reduced fees.

Please help us to improve the WDSC experience by completing this survey today and sharing it as widely as possible.

Thank You

Andrew BoysDirector
Down Syndrome International
Email: andrew.boys@ds-int.org Website: www.ds-int.org

Monday, 1 September 2014

12th World Down Syndrome Congress: India, 2015

Registrations are now open for next year's World Down Syndrome Congress in Chennai, India:


17th August - 21st August 2015

Call for papers
Opening - August 2014
Final call - November 2014

Friday, 1 November 2013

World Down Syndrome Congress 2018 (WDSC 2018): Glasgow

Down Syndrome International (DSi), announced today that World Down Syndrome Congress 2018 (WDSC 2018) will be hosted in Glasgow by Scottish charity Down’s Syndrome Scotland.

It is expected that more than 1,200 people from around the world will attend the four day conference, which will be held in August 2018 at the Scottish Exhibition and Conference Centre. It will be the first time that the World Down Syndrome Congress will be held in Scotland.

Andrew Boys, Director of Down Syndrome International said:

“Applications were received from organisations in 5 countries, all of which were comprehensive and impressive and were given due consideration. We would like to say a big thank you to all applicants for taking the time and effort to produce excellent bids.

Following lengthy scrutiny and discussion, DSi is delighted to announce that Down’s Syndrome Scotland have been successful and we look forward to working with them to hold a Congress which will help to fulfil our mission to improve quality of life for people with Down syndrome worldwide and promote their inherent right to be accepted and included as valued and equal members of their communities.”

In the meantime, the next (12th) World Down Syndrome Congress will be held in India in 2015

Friday, 20 September 2013

12th World Down Syndrome Congress 2015: India

The 12th World Down Syndrome Congress is scheduled to be held in Chennai, India, in 2015.

The Congress website is now live.  Check in often for further information about speakers, the program,  social events, facilities and registration details.


Wednesday, 12 September 2012

Resolutions and Declaration by Persons with Down Syndrome - 11th WDSC, South Africa, August 2012

From Down Syndrome International:


11th World Down Syndrome Congress Resolutions

WE, THE DELEGATES OF THE 11TH WORLD DOWN SYNDROME CONGRESS: Advancing Inclusion of Persons with Down Syndrome, assembled here in Cape Town, South Africa from the 14th – 18th August 2012, hereby reaffirm our commitment to the promotion, protection and implementation of the human rights of individuals with Down syndrome and intellectual disability.

We recognise that a fundamental shift has taken place at international policy level with the adoption and entry into force of the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD), signalling a move away from practices that segregate people with disabilities to an approach that seeks to promote their inclusion in all sectors of society in respect of human rights.

Read on for the detailed resolutions, here.


  • The next (12th) World Down Syndrome Congress will be held in Chennai, India, in 2015

Saturday, 18 August 2012

Weekend reading and viewing: 18th and 19th August

Proloquo2Go Changes, Aileen Ryan, Key Word Signing and Proloquo2Go (blog)  13th August 2012

Being an Adult with Down Syndrome, Paul Sawka, Canadian Down Syndrome Society - Paul's latest blog post.


Young people with disabilities have something to sayGeorge Taleporos, Ramp Up, 14th August 2012


Overpronation (of the ankle), Adult Down Syndrome Center, 17th August 2012  - on inward rolling of the ankle.


NSW Disability Industry Innovation Awards winners announced, Minister for Disability Services, 14th August 2012


Aukland flashmob  4 1/2 minutes of sheer fun. A hundred young people with disabilities surprised thousands of shoppers at Auckland’s Sylvia Park shopping mall on Saturday 9th June by performing to Lady Gaga’s Born This Way.


11th World Down Syndrome Congress (Capetown, 15th - 17th August) social media:
The main Congress program has now finished, but more material will be posted over the next few days.

Friday, 17 August 2012

11 WDSC, Capetown, Day 2

The second post on the 11th World Down Syndrome Congress (currently proceeding in Capetown) on the Global Down Syndrome Foundation's blog is from Patti McVay. She writes about the differences between the first and third world experiences of people with Down syndrome and their families. The location of the Congress in Africa opens it up to different (and often sobering) perspectives, from countries we do not hear from often. Patti McVay's observations are also reflected in the daily postings on the WDSC Facebook community page from yesterday.



Wednesday, 15 August 2012

11th World Down Syndrome Congress: Day 1 begins

The 11th WDSC has just got underway in Capetown - a wonderful series of updates, photos and videos from the pre-conference sessions yesterday were posted on the WDSC Facebook page overnight, and these are amongst the comments that have appeared in the last hour

... Good morning to all of our WDSC followers on Facebook! The 11th World Down Syndrome Congress Plenary Sessions are about to start and we will provide updates, photos and video extracts all day.


... Well over 600 delegates have now arrived and WDSC 2012 is about to start.


.... a dance group from Soweto with drums and singing lead flag bearers with Down syndrome from 40 countries around the world into the hall as a part of the opening ceremony. Then 7 female acapella singers from Bloemfontein perform the official WDSC 2012 song.




Posts from 14th August include the resolutions proposed by people with Down syndrome during the Indaba (meeting of adults with Down syndrome). They address the BIG Five theme of the Congress:

Resolutions - RIGHTS
1. We have the right to say what we think so we need opportunities to speak up.
2. We need to have role models to teach us to be leaders. 
3. We want to have the right to live independently and pay our own bills.
4. We want to have a driver’s license.
5. We want to have self-advocacy groups where we can discuss our own opinions.

Resolutions - SOCIAL PARTICIPATION
1. We have relationships and deal with issues like everyone else. 
2. We want to be respected by our friends, girlfriends or boyfriends – this means making time for us and boyfriends or girlfriends not going out with others.
3. It is our right to choose whom we want to date. We prefer our parents not to interfere.
4. We sometimes find it hard to communicate with new people outside our group and to organise events with our friends.
5. We like the same things as other people – skiing, basketball, swimming, scrapbooking, dancing, acting, yoga, computer games, candlelit dinners and long walks on the beach.

Resolutions - HEALTH
1. We need to do sport and exercise for our health.
2. We need to eat good food, not junk food and don’t do drugs and alcohol.
3. Working and doing your own chores at home keeps you healthy.
4. Family, close friends, boyfriends and girlfriends are important for our health.

Resolutions - EDUCATION
1. It is important to start learning early.
2. We need to learn through playing games.
3. Other people also need to learn how to behave towards people with Down syndrome.
4. Don’t help too much.
5. People should not look down upon us.

Resolutions - EMPLOYMENT
1. We need to earn more money to become independent.
2. People must give people with Down syndrome a chance to prove themselves.
3. Work is for everyone. 
4. Believe in us and we will work hard.
5. We like to work helping other people.

Jackie Softly, from Down Syndrome Western Australia says of the Big Five resolutions:
It makes my heart sing to read these resolutions, and to know they are being developed and put forward at the WDSC by people with Down syndrome is truly wonderful. Those of us who know adults with Down syndrome know these resolutions to be authentic and potent messages that must inform, support and guide us in advocating with and for them.
We could not have said it better - thanks for letting us re-post your response, Jackie.

The best way to keep up is to 'like' the Facebook page , and check in there as you have time. You do not need to have a Facebook account to view the page. Capetown is 8 hours behind Eastern Australian Time.

Tuesday, 14 August 2012

World Down Syndrome Congress: in touch with Capetown

Social media and instant communications will help those of us who are not in Capetown to have some insights into the 11th World Down Syndrome Congress that starts with pre-Congress meetings today, including a gathering of the Down Syndrome Medical interest Group.

Michelle Livingstone from the Global Down Syndrome Foundation (in Denver, Colorado) is there, and '... will provide updates on the conference, the people, the research and how it all relates to the global human rights of people with Down syndrome', via the Foundation's blog.  Her first post is about the people she has met so far.





Other ways to follow what's happening in Capetown this week:

LIKE US on Facebook “World Down Syndrome Congress”

FOLLOW US on Twitter “World DS Congress” 

SUBSCRIBE TO OUR CHANNEL on YouTube "wdsc2012"

Saturday, 11 August 2012

Friday, 10 August 2012

Indelible: you have to watch this

Do yourself a favour, and take 16 minutes and 47 seconds to get to know the 7 people in this extract from Indelible ... and then send the link to someone else who cares for those with Down syndrome.  If you are going to the WDSC in Capetown next week, you might want to wait to see it on a big screen ...

This is an introduction to a feature length documentary that tells the inspiring stories of seven people with Down Syndrome in India. This short version of the film has been created specifically for the World Down Syndrome Congress in South Africa. This is the official film for the Downs Federation of India.


 

 Indelible on Facebook - have a look at their cover photo, defining 'indelible'. 

Wednesday, 8 August 2012

11th World Down Syndrome Congress - online options

For those of us unable to get to Capetown for the 11th World Down Syndrome Congress starting next week, congress organisers have provided an update on how we can tap into the gathering and the expertise of the speakers from home. This message is from Andrew Boys, Director of Down Syndrome International:

The 11th World Down Syndrome Congress (WDSC) is finally upon us (14-18 August 2012) and for the first time in 2012 you can join us from the comfort of your computer screens by taking part in the WDSC SOCIAL MEDIA PROJECT. 

For the durati
on of the WDSC, we will post minute by minute coverage including quotes from our speakers and presentations, photographs and video which we hope will enable you to feel an integral part of this global event.

TO JOIN US:

LIKE US on Facebook “World Down Syndrome Congress”

FOLLOW US on Twitter “World DS Congress” 

SUBSCRIBE TO OUR CHANNEL on YouTube “wdsc 2012” 



The theme of the WDSC is the “BIG FIVE” - RIGHTS, HEALTH, SOCIAL PARTICIPATION, EDUCATION and EMPLOYMENT. We will post details of the WDSC Speakers Programme to our Facebook page, but you can also find out much more about the WDSC at our website 

We look forward to a successful WDSC and we hope that many of you can participate in 2012 from the comfort of your computer screens!

Wednesday, 27 June 2012

11th World Congress on Down Syndrome, South Africa, August


It is not too late to book for the  ...

11th WORLD DOWN SYNDROME CONGRESS 
CAPE TOWN, SOUTH AFRICA 

15-17 AUGUST 2012 

... for what promises to be a congress to remember. For the first time on African soil, the 11th WDSC will take place in the beautiful city of Cape Town, South Africa at the Cape Town International Convention Centre (CTICC). 

REGISTER HERE TODAY! 
INTERNATIONAL AND NATIONAL RENOWNED SPEAKERS. JUST TO WHET YOUR APPETITE ...

Sheri Brynard - Hopes & challenges of living with Down syndrome
Sheri is the only learner with Down syndrome who has passed a National Technical College Diploma in South Africa, without having been granted any concessions. Sheri has a full life, working, motivating, travelling and most importantly she changes perceptions of people with Down syndrome. She is proud to be who she is, a girl with Down syndrome! READ MORE 

Christy Lynch - Employment - the time is now!
Christy is nationally and internationally recognised for his pioneering work in achieving integrated employment for individuals with a disability. READ MORE 

Roy McConkey - Self Actualisation of Persons with Down Syndrome - An International Perspective
Roy is Professor of Developmental Disabilities at the University of Ulster, Northern Ireland. 

READ MORE

Plus many more exciting speakers...Check out the programme on the website 



PRE CONGRESS WORKSHOPS - 14 AUGUST 2012

INDABA - For people with Down syndrome facilitated by the UN SPECIAL RAPPORTEUR - MR SCHUAIB CHALKLEN
The purpose of the Indaba is to give adults and young people with Down syndrome an opportunity to meet their peers from across the globe and to discuss issues that affect their daily lives in this open forum. The agenda will be based on the five themes of the congress. As a person with Down syndrome, registration for the full three day conference will include free registration for the Indaba.

BOOK TODAY! READ MORE 

DOWN SYNDROME MEDICAL INTEREST GROUP (DSMIG)
Health Professionals attending the WDSC are invited to an International Down Syndrome Medical Interest Group to be held the day prior to the main congress. It is only open to health professionals, who currently are actively involved in provision of health care to individuals with Down syndrome, or research in the field. The DSMIG meeting will also be open to local health professionals who are not able to attend the whole congress. READ MORE 
POST CONGRESS WORKSHOPS ON EDUCATION AND EMPLOYMENT - 18 AUGUST 2012

Education
Dr Gordon Porter, Dr Elizabeth Dalton, Prof Roy McConkey

Employment
Christy Lynch, Ruth Parker & Alison Newby, Representative from the International Labour Organisation