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Down Syndrome NSW
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T: 9841 444


Showing posts with label Carers. Show all posts
Showing posts with label Carers. Show all posts

Thursday, 11 May 2017

Budget 2017: What it means for carers

Carers Australia
11 May 2017
Carers Australia has produced a document outlining a number of the key measures in the recent Federal Budget which may affect unpaid carers. 
Please note that Budget measures must be passed by Parliament before they can come into effect.
Summary The Budget did not include any new measures that will directly affect carer support services or social welfare payments devoted to carers. 
Several measures were announced that relate to the interests of carers, including additional supports for the people to whom they provide care.

Thursday, 23 February 2017

NSW Young Carer Leadership Program 2017 – applications open

Young Carers NSW is a Carers NSW program for carers aged 25 years and under. Applications are now open for the 2017 Young Carer Leadership Program:
Are you passionate about your role as a young carer? Would you like to gain valuable leadership and presentation skills? Would you like to help raise awareness of young carers? If so, we want YOU to become a Young Carer Leader!!

The Carers NSW Young Carer Leadership Program is designed to give young carers, like you, a stronger voice in the community. Each year, we offer up to 20 places to passionate young carers from across NSW. Selected applicants are invited to Sydney for a jam packed 4 day introductory workshop to leadership, media and presentation skills. Not only will you learn and develop new skills, you’ll also get to meet other young carers and check out some of the sights of Sydney! 
Young carers aged 16-22. Young carers from all cultural backgrounds and living all across NSW (including regional and remote areas) are encouraged to apply! 
The Young Carer Leadership Program will take place between Monday 10th April 2017 – Wednesday 12th April 2017.

Applications are open until Sunday 12th March 2017!

Wednesday, 25 January 2017

Intellectual disability / mental health e-learning

Intellectual Disability Mental Health e-Learning provides free eLearning about intellectual disability to professionals, carers, and consumers. Our goal is to improve your knowledge, skills and confidence, leading to better mental health and wellbeing for people with an intellectual disability. 
The program is an initiative of the Department of Developmental Disability Neuropsychiatry (3DN) at the University of NSW.

New e-Learning module on intellectual disability mental health now available
3DN, 12 January 2017
The new module aims to enhance the working relationship between disability professionals and other professionals involved in a person’s supports. It covers topics such as ‘what is interagency working?’, ‘how do different agencies work together?’ and ‘how can professionals work together to enhance mental health support?’ 
The module is freely available now at www.idhealtheducation.edu.au
New e-Learning modules for carers are in development
Currently, 3DN staff are designing online modules for carers of someone with an intellectual disability and mental illness. They would like your input:




Contact Thea Kremser at 3DN on 02 9385 2580  or
email t.kremser@unsw.edu.au
for further information

Tuesday, 20 December 2016

National Disability and Carers Advisory Council Communiqué

The National Disability and Carers Advisory Council (NDCAC) held its inaugural meeting on Wednesday 14 December 2016 in Canberra.

At its first meeting the Council discussed and agreed on the Terms of Reference and the role of Council in a number of key policy areas:

  • National Disability Strategy (NDS) Reinvigoration
  • National Disability Insurance Scheme – Transition 
  • Disability Employment Services Reform
  • Carer Reform and the Integrated Plan for Carer Support Services
  • Regulatory Reform
  • Working Groups

Tuesday, 13 December 2016

2015 Survey of Disability, Ageing and Carers: report

Carers Australia and the Australian Bureau of Statistics launch crucial survey
Carers Australia, 2 December 2016

Carers Australia and the Australian Bureau of Statistics (ABS) officially released the 2015 Survey of Disability, Ageing and Carers (SDAC) at a press conference at Parliament House during National Carers Week.

Data from the 2015 SDAC showed the weekly median income of primary carers was 42% lower than non-carers. The total number of primary carers (those who provided the majority of assistance with core activities of daily living) had also increased in 2015 to 855,000 – a rise of 11%; and just 56% of primary carers between the ages of 15 and 64 participated in the workforce compared to 80% of non-carers.

To coincide with National Carers Week 2016, the ABS released a one page profile of carers in Australia, as well as a video breakdown of many of the carer-related statistics.

Friday, 11 November 2016

Two media releases from the Assistant Minister for Disability Services, on aspects of carer support

Have your say on a new integrated carer support service system
Jane Prentice MP, Assistant Minister for Social Services and Disability Services, 6 November 2016
The Coalition Government is calling for submissions on the draft Service Delivery Model for services to support and sustain the work of unpaid carers ... Assistant Minister for Social Services and Disability Services, Jane Prentice said the draft Service Delivery Model sets out a new integrated carer support system and outlines the types of services and how they are proposed to be delivered in the future ...

As part of the 2015-16 Budget, the Coalition Government announced the development of an Integrated Plan for Carer Support Services (the Plan) ... The second phase of the Plan involves developing a new integrated carer support service system through a co-design process.

Mrs Prentice said continued public consultation is important in ensuring the community has their say on the best way to deliver carer services and support ...

Feedback on the draft Service Delivery Model can be provided by participation in an online survey, or through making a written submission. The survey and submission process will be open from 6 November 2016 at 9am and will close on 15 December at 5pm.
Jane Prentice MP, Assistant Minister for Social Services and Disability Services, 7 November 2016
The Coalition Government today announced the establishment of the National Disability and Carers Advisory Council.

The new Council brings together leaders from business and the disability and carer sectors, to provide advice on proposed policies and legislation affecting people with disability, carers and the sector that serves them.

Assistant Minister for Social Services and Disability Services, Jane Prentice said the Council will provide advice on issues of strategic importance at a time of major reform in the disability and carer sectors.

“The Council will play an important role in helping to drive the implementation of the overarching National Disability Strategy 2010-20,” she said.

“It will also look at reforms in disability employment and carer support, and the full roll-out of the National Disability Insurance Scheme, including the interfaces with mainstream services.”

“Members represent every state and territory as well as business and the disability and carer sector, and advocates.

“I will co-chair the Council with Ms Keran Howe, who is well respected as a strong advocate in the sector and who has lived experience,” she said.

The Council will meet formally at least twice a year and establish working groups and community consultations as needed.
  • The National Disability and Carers Advisory Council members are listed here.

Wednesday, 21 September 2016

Carers Australia: Evidenced-based and intensive support approaches to avoiding long-term welfare dependence have merit

Released 20 September 2016:

Carers Australia can see merit in the Government’s announcement of the Try, Test and Learn Fund to explore interventions which may help people at risk of long term dependence on income support, including young carers, to break the cycle.

However, this should not come at the expense of a reduction in necessary income support for any carer and those they care for while the trial is underway and before benefits are realised.

Carers Australia CEO, Ara Cresswell, said, “Young carers have been correctly identified as some of those most at risk of welfare dependence throughout their lives. They are more susceptible than other young people to the problems of workforce accessibility given the nature of their caring role.

“It is crucial, however, that any programs geared towards securing better life outcomes for young carers do not do so at the expense of those supports currently relied upon simply to maintain a means of living. It is also important to understand that many young carers face a range of complex challenges which impact on their capacity to engage in education and employment and these must be addressed under any program to support them into work.

“Young carers often experience extreme social isolation, financial hardship and high levels of emotional stress due to caring responsibilities way beyond those expected of other young people their age. An intensive program of support will be required to address all these disadvantages and replacement care will need to be provided to those they care for if the trial is to work.

“It is very important that the employment outcomes for young carers and other groups engaged in the trial must be sustainable and monitored over the long term. Fixed term budget savings from a reduction in welfare benefits in and of itself are not a good indicator of the success of the social investment approach.

“In 2012 there were 306,000 young carers under the age of 25 in Australia, 23,200 of whom provided the majority of care in the household. Of these, in March 2016 there were 9,623 receiving the Carer Payment and Carer Allowance and an additional 2,197 receiving the Carer Allowance only.”

Media reports:

Coalition to reveal plan to tackle welfare dependence across generations
katherine Murphy, The Guardian, 20 September 2016

A New 'Investment Approach' To Breaking The Welfare Cycle
Karen Barlow, Huffington Post, 20 September 2016

Young carers fear being depicted as a burden on society, Carers NSW says,
Emily Bourke, PM (ABC Radio), 20 September 2016

Tuesday, 6 September 2016

'Attack on family and friend carers insulting and ill-informed': Carers Australia

Media release from Carers Australia, 5 September 2016:
“Carers Australia is heartily sick of attacks on carers of people with disability, chronic illness, mental illness and the frail aged who are receiving a Carer Payment and/or Carer Allowance, and the frequently crude statistical underpinnings of their arguments,” said Ara Cresswell, CEO of Carers Australia today.

“A case in point is Rick Morton’s article in today’s Australian which is self-evidently pitched at serving a number of agendas.

“Mr Morton points out that the numbers of people on Carer Payment and Carer Allowance are growing, going back 20 years as a point of comparison for the Carer Allowance to dramatise the point.

“Of course the number of people on the payments is growing, along with population growth, growth in the aged population, and growth in the number of people with disability and chronic illness living longer.

“Very importantly, more people are becoming aware that they are classified as carers and that there is help out there for them to deal with the physical, mental and financial stress which accompanies putting in long hours, weeks and years of caring.

“According to the Australian Bureau of Statistics (ABS), in 2012 close to 40% of Australia’s 770,000 primary carers provided on average 40 plus hours of care every week.

“Almost two thirds (65%) of primary carers resided in a household with equivalised gross household income in the lowest two quintiles, compared with 36% of non-carers.

“Nor are carers a drain on the economy. Deloitte Access Economics estimated in 2015 that family and friend carers provided 1.9 billion hours in unpaid care and the annual cost for replacing this care with paid care services amounted to $60.3 billion. It is widely acknowledged by government that, without unpaid carers, aged care and disability care would be unaffordable.

“In time the National Disability Insurance Scheme (NDIS) and aged care reform may well reduce the number of carers who have to rely on income support. Indeed, as the article shows, the numbers have plateaued in the last two years.

“However, the NDIS will provide individualised package support to only 430,000 people on full roll-out – leaving about twice as many who will not be eligible. And the number of aged care Home Care Packages is capped. This means family and friend carers will have to continue to fill in the gaps.

“Morton quotes both Patrick McClure, who headed up the government’s welfare reform review, and Minister Porter, both of whom lament that young carers are often faced with lengthy periods of welfare dependency. This is a problem Carers Australia has long acknowledged and has been asking governments for a number of years to address through programs that help young carers to stay in education and to assist them to find employment.

“But Morton’s suggestion, which he attributes to the Department of Social Services, that young carers are going onto the Carer Payment because it is worth more than the dole is both insulting and ludicrous.

“Quoting the ABS again, in 2012 there were 306,000 young carers under the age of 25 in Australia, 23,200 of whom provided the majority of care – usually for a parent. Of these, in March 2016 there were 9623 receiving the Carer Payment and Carer Allowance and an additional 2197 receiving the Carer Allowance only.

“These young carers are often extremely socially isolated, face severe financial hardship and suffer high levels of emotional stress. They have to take on responsibilities way beyond those expected of other young people their age. They care out of a sense of duty and love.

“Carers Australia welcomes the government’s commitment to assisting young carers to avoid a long-term social welfare trap. This will be achieved by providing them with more intensive support. Not simply by removing their means of living.”

Tuesday, 30 August 2016

National survey of carers' respite needs

Carers NSW is conducting a survey to understand carers' respite needs and experiences to inform the advocacy work of all Carer Associations.

Please take 10 or 15 minutes to complete this anonymous survey by 23rd September.

Tuesday, 19 July 2016

Young Carer Bursaries, 2017


The Young Carer Bursary Programme is an initiative of Carers Australia, funded by the Department of Social Services.

Applications for 2017 bursaries open on 2 August 2016, and close on 14 September 2016:
The aim of the Young Carer Bursary Programme is to help relieve the financial pressure on young carers to undertake part-time employment, in addition to managing their educational and caring responsibilities. 
The provision of a bursary increases the opportunity for young carers to remain in, or return to, education or training leading to improved employment opportunities and long-term finances. 
A bursary is similar to a grant. It is not a loan, and so does not need to be repaid.
If you are eligible you could receive an Australian Government Bursary of $3,000.

Thursday, 2 June 2016

2016 NSW Carers Awards


Nominations for the 2016 NSW Carers Awards are now open:
The NSW Carers Awards recognise the contribution unpaid carers make in our community and the important role they play for the people they care for. By nominating a carer you know, you are helping raise awareness of the challenges faced by carers while also celebrating their role. Applications will close at midnight on 10 July 2016
This year there will be 10 Awards in total, two for each category outlined below. One of the ten recipients will become the 2016 NSW Carer of the Year.

The graphics at the foot of the Care for a Carer awards page are the links to online nominations:



Friday, 20 May 2016

Influenza vaccination recommendations

Specific recommendation for flu vaccination for people with Down syndrome and their carers, issued by the Australian Department of Health in April 2016:


4.7 Influenza (page last updated: 08 April 2016)

Persons at increased risk of complications from influenza infection
Persons aged ≥6 months with conditions predisposing to severe influenza, such as:
... Down syndrome – Persons with Down syndrome should receive annual seasonal influenza vaccine whether or not they have congenital heart disease. This is due to the presence of anatomical abnormalities, which put them at increased risk of upper respiratory tract infections, as well as a high prevalence of other medical conditions that put them at increased risk of severe influenza.
Persons who may transmit influenza to persons at increased risk of complications from influenza infection
The following groups of people can potentially transmit influenza to persons at increased risk of complications from influenza infection; vaccination of these groups is therefore recommended to protect those at risk:
... household contacts (including children ≥6 months of age) of those in high-risk groups, including providers of home care to persons at risk of high influenza morbidity

In addition, vaccination is recommended for 'residents ... of long-term residential facilities, ... due to high rates of influenza transmission and complications during outbreaks in such facilities.

Tuesday, 17 May 2016

Radio interview: remarkable parenting

Sue and Neil Coutts from Martins Creek (in the Hunter region) have opened their home to over 55 children in the past 20 years ... that's on top of raising their three biological children. They spoke to Ben Millington on 1233 (Newcastle) Mornings yesterday, to highlight the need for foster parents in NSW. 

Sue and Neil have cared both short and long term for a number of children with complex health care needs and disabilities. Their very strong and successful advocacy for their daughter Sarah to remain at the local primary school into her high school years because of her fragile health, was well supported by the local community and press as you can see from previous posts here and here. Sarah died at 14 in 2010, and Sue and Neil are now foster parents to two young sons with Down syndrome. 

This excellent interview is 14 minutes long, and well worth the time to listen, and contemplate the remarkable parenting of two of the most grown-up people you will ever hear.

Friday, 13 May 2016

Have your say on a new integrated carer support service

From the Department of Social Services:

The Australian Government is developing an Integrated Plan for Carer Support Services to better support and sustain the work of unpaid carers.

The first stage of the Plan included design and implementation of Carer Gateway. Established in December 2015, Carer Gateway is a national website and contact centre that provides carers with practical information and support and helps them connect with local support services.

An important second stage of the Plan involves developing a new integrated carer support service system through a co-design process.

The purpose of the new service system is to deliver supports that reduce carer strain, increase carer well-being and support them to continue in their caring role.

A draft Service Concept was developed through research, co-design workshops with carers, and input from subject matter experts and the Carer Gateway Advisory Group.

The draft Service Concept sets out the types of services that could be delivered under a future service delivery model.

We want to hear your views on the draft Service Concept.

Monday, 9 May 2016

Carers in the Kitchen workshops and more - Carers NSW 40th anniversary

Carers NSW is celebrating its 40th anniversary this year, with a series of events across NSW, including:
As part of the Carers NSW 40th Birthday celebrations we are launching a series of Carers in the Kitchen cooking workshops with My Kitchen Rules finalists, Helena and Vikki Moursellas. 
The monthly workshops run from June – November 2016 and will take place at the William Angliss Institute, 26/32 Waterloo St, Surry Hills 2010, and are dedicated to teaching you everything you need to know about budgeting, planning and preparing scrumptious meals for your family and friends.
Attendance is free for carers who are members of Carers NSW and you can register your interest online or by contacting the Communications Team on commsteam@carersnsw.org.au to obtain a printed copy of the registration form. 
Expressions of interest close Friday 13th May 2016.
40 years 40 stories
Throughout 2016 we are asking carers across NSW to share their caring stories. The stories will be complied and used to raise awareness of over 850,000 unpaid family and friend carers in NSW and the work they do in supporting a loved one. 
If you have a caring story or any pictures you would like to share, please send them to contact@carersnsw.org.au or post them to PO Box 20156 World Square NSW 2002.
A calendar of events across regional NSW is online here. To find out more about events happening near you or to request promotional material for your carer support group or organisation, contact the Communications Team on 02 9280 4744 or commsteam@carersnsw.org.au.

Monday, 2 May 2016

Key Word Sign workshops: Hunter



Members/Family/Carers: $32 

Service Providers: $100 


Registration closes 11 May 2016

Friday, 22 April 2016

Summary of dates, location for seminars with Dr Dennis McGuire

Summary of dates and venues for Dr Dennis McGuire's speaking tour in May, to give you an overview of the opportunities available:


Newcastle
Saturday 7 May
Menatal Wellness and Healthy Living for Adults with Down Syndrome
Families, carers, professionals
Sydney
Monday 9 May
Getting Strong, Living Healthy
Adults with Down syndrome (accompanied by a support person)
Sydney
Tuesday 10 May

Promoting strengths and mental wellbeing in siblings with Down syndrome
Siblings

Sydney
Friday 13 May
Promoting strengths and mental well being in Adults with Down Syndrome: Lessons learned from the Adult Down Syndrome Center, Chicago
Professionals
Sydney
Saturday 14 May
Promoting strengths and mental well being in Adults with Down Syndrome: Lessons learned from the Adult Down Syndrome Center, Chicago
Families, carers (support workers can attend with family at a discounted fee)

Tuesday, 29 March 2016

Early Intervention survey - Dr Kathy Cologon, Macquarie University

Parents/caregivers of children in early childhood intervention services are invited to take part in a survey conducted by Dr Kathy Cologon, a well-known researcher in this field at Macquarie University:

Priorities and practices in early intervention: Parent perspectives
... The survey involves the completion of a questionnaire for parents/caregivers who have a child (or children) who participates in early childhood intervention services in Australia. This research is being conducted by Dr Kathy Cologon from the Institute of Early Childhood, Macquarie University (email: kathy.cologon@mq.edu.au or phone: 9850 9864). 
Early intervention services and supports are going through a period of considerable change in Australia at present. Through exploring the views and experiences of families and staff who participate in early intervention, this study will contribute evidence that is important for developing policy and practice in early intervention ...
The questionnaire incorporates 14 open-ended questions, followed by questions that need to be rated on a scale from 1-5 (these questions relate to your experiences of and your priorities for early intervention support). The final section asks for some brief demographic information and provides the opportunity for you to make any additional comments/suggestions if you wish.

The survey should take approximately 30-45 minutes to complete. You are free to skip any questions that you do not wish to answer ...

Tuesday, 1 March 2016

Carers NSW - 2 yearly survey

The Carers NSW 2016 Carer Survey is now online, until 30th April 2016:
This is your chance to have your say and help us speak up for carers by sharing your experiences and getting involved.

Wednesday, 24 February 2016

MONEY MATTERS!

Financial Literacy for Learners with Down Syndrome 

A workshop for parents and caregivers of high schoolers/adults, presented by Dr Rhonda Faragher

Register now
Money skills are usually a challenge for learners with Down syndrome. Most ‘functional maths’ programs focus on outdated skills, such as using coins and calculating change.

This workshop for parents/carers explores key functional skills in financial literacy that will actually allow people with Down syndrome to participate in the adult world. 

Concepts will include 
  • understanding budgets, 
  • setting up electronic banking and using EFTPOS
  • strategies for teaching 
  • taking account of maths learning profiles 
While this session is targeted towards parents/carers, should you wish to bring along your person with DS, we are happy to offer them a discounted rate of 50% (if accompanied by a paying registrant).

Date: Wednesday 16 March 2016 Time: 7:30 – 8:30 pm Venue: SMC Conference and Function Centre, 66 Goulburn Street, Sydney Cost: $55 per session, inc GST.

Register now!

For more information, email training@dsansw.org.au