One for the night owls ...
Practical Tools Webinar Series: What's On YOUR Plate?
Strategies for Healthy Eating for Teens and Adults with Down Syndrome and Related Disabilities.
And just WHOSE PLATE are we talking about?
Healthy lives - healthy eating - health weight - all take work. The work is not limited to the person learning! It involves everyone: Mom, Dad, siblings, direct support providers, teachers, friends, and more.
In this webinar, we'll discuss some ways to build healthy living into every day life. And we'll have some fun, too!
Presented by Joan Medlen, JEM Communications and Phronesis Publishing (author of The Down Syndrome Nutrition Handbook)
Saturday, July 30, 2011
8.00 am Pacific Time (USA)
which will be:
Sunday July 31 2011
1.00 am Eastern Australian time
Click here to register
Webinar 'seats' are limited.
Monday, 13 June 2011
Sunday, 12 June 2011
My Perspective: UK photography competition winner announced
David Cormack has been announced as the winner of this year's My Perspective photographic competition in the UK. Two runners-up and 10 highly commended entries were also announced.
From the DSA (UK) website:
"My Perspective is the only photography competition for people with Down's syndrome. The competition started last year as the natural follow-on from the hugely successful Shifting Perspectives exhibition. For the past seven years, the Down’s Syndrome Association (DSA) has been showcasing work from a fantastic collection of professional photographers who all have a personal link with Down's syndrome. In years gone by, people with Down's syndrome were photographed as exhibits, where the viewer was not supposed to see the person, just the difference. My Perspective turns the camera around and gives the subjects in front of the camera a chance to show the world from their point of view."
If you are planning to visit the UK over the next few weeks, you will have an opportunity to see the exhibition.
From the DSA (UK) website:
"My Perspective is the only photography competition for people with Down's syndrome. The competition started last year as the natural follow-on from the hugely successful Shifting Perspectives exhibition. For the past seven years, the Down’s Syndrome Association (DSA) has been showcasing work from a fantastic collection of professional photographers who all have a personal link with Down's syndrome. In years gone by, people with Down's syndrome were photographed as exhibits, where the viewer was not supposed to see the person, just the difference. My Perspective turns the camera around and gives the subjects in front of the camera a chance to show the world from their point of view."
If you are planning to visit the UK over the next few weeks, you will have an opportunity to see the exhibition.
Saturday, 11 June 2011
Boonah Creative Arts Winter exhibition
Boonah is an initiative of Centacare Broken Bay which aims to provide and promote arts, education and creative expression for all people—especially people with a disability17th June - 5th July
Shop 11,131-145 Glebe Point Rd
Download an invitation adn further information from the exhibition website.Glebe
UK reading trial update, publication plans and online event
Down Syndrome Education International has released a news update about its current reading research with children with Down syndrome, and is offering an online update in July. Read about the preliminary findings and publication plans here.Find out more at free online events
To find out more about the trial and our preliminary findings, join us at one of two free online events in July:
• 19 July 2011, 6.00pm UK/BST (10.00am Los Angeles, 1.00pm New York, 7.00pm Paris). Click here to register.
• 20 July 2011, 9.30am UK/BST (10.30am Paris, 2.00pm New Delhi, 4.30pm Singapore, 6.30pm Sydney, 8.30pm Auckland). Click here to register.
Dr Kelly Burgoyne's review of reading research, Reading the evidence, is published in our quarterly journal, Voice, June 2011, and is available online here.
Friday, 10 June 2011
'Glee' series final
Are you a Gleek? Did you see the season final of Glee this week on Channel 10? What did you think of the story about Sue Sylvester and her sister?
Don't read on if you are still waiting to see it ...
Dr Jane Shulz (Billy's mother) blogged about her response after it was screened in the USA few weeks ago.
Don't read on if you are still waiting to see it ...
Dr Jane Shulz (Billy's mother) blogged about her response after it was screened in the USA few weeks ago.
Information from the Big Event 2011
In Control Australia has reported on the Big Event, held in Sydney in May 2011, in its June 2011 e-newsletter
Presentations from the Big Event are now available online from In Control (you might need to register - free - to access the files).
In Control has recently established a Facebook page. You do not need to be a Facebook account holder to access it.
Presentations from the Big Event are now available online from In Control (you might need to register - free - to access the files).
In Control has recently established a Facebook page. You do not need to be a Facebook account holder to access it.
Thursday, 9 June 2011
Library Thursday: 'Being a healthy woman' translations
All editions can be freely downloaded from the NSW Health website.
Source: NSW CID e-Bulletin, June 2011
What do people with intellectual disability think and know about the campaign for a National Disability Insurance Scheme?
NSW Council on Intellectual Disability has produced an excellent Easy Read edition of its response to the Productivity Commission's draft report on its Inquiry into Disability Care and Support. The response was prepared by the Speak Out Reach Out Committee It is very comprehensive, so long, but well worth downloading to help explain what a National Disability Insurance Scheme will mean to people with intellectual disabilities, the current inquiry and campaign process, and how people with intellectual disabilities have been supported to have their say.
A print copy is available in our library, but we recommend that you download your own copy to keep.
Wednesday, 8 June 2011
Down Syndrome Program (Boston Children's Hospital) 2011 speaker series for families online
The excellent Down Syndrome Program of speakers for parents is now in its second year at Boston Children's Hospital, in honour of paediatrician, Dr Alan Crocker.Note the next event (listed below is on 27th June, on Autism and Down syndrome.
Already available online from the 2011 series:
February 28, 2011 - William Kiernan, Ph.D., M.S., M.B.A presented Postsecondary Education, Employment and National Service
April 5, 2011 - Kim Barbas, BSN, RN, IBCLC presented Breastfeeding and Down Syndrome
May 23, 2011 - Linda Nelson, DMD, MScD and Marc Ackerman, DMD, MPH presented on Dental Issues in DS and Orthodontics in DS
Schedule for the remainder of 2011 (all times listed for live viewing are eastern USA time):
June 27th, Monday, 7:00pm - David Stein, PsyD will present on Autism and Down Syndrome
July 5th, Tuesday from 10am - 11:30am: Emily Davidson, MD, MPH will present on Complex Care Needs and Down Syndrome
September 6th, Tuesday from 11am - 12:30pm: Cynthia Haddad, CFP and John Nadworny, CFP, ChFC will present on Financial Planning for Families
October 24th, Monday from 6:30pm - 8:30pm: Margaret Kenna, MD, MPH, FACS, FAAP and Lisa Walker, AuD, CCC-A will present on Hearing/Audiologic Concerns and Down Syndrome
November 1st, Tuesday from 10am - 11:30am: JoAnn Simons, MSW, will present on Transitions for Young Adults with Down Syndrome
December 12th, Monday from 6:30 - 8:30pm: Priscilla Osborne, PT, MS, PCS and Jessica Konter, PT, MSPT, DPT will present Gross Motor Skills and Down Syndrome
Catch up with the 2010 Speaker Series here.
Tuesday, 7 June 2011
Special Olympics: Hills district (Sydney)
Special Olympics - Sydney Hills Region is offering some new activities available to ALL interested athletes:
Fitness, Fun and Athletics
The Kings School, Pennant Hills Road, North Parramatta
4-5 pmThursdays
Basketball
Castle Hill High School
6.00pm – 7.30pm Wednesdays
Soccer
Bella Vista Oval, Norwest
3.00pm Sundays
Contact Sports Co-ordinator, Kerry Nethery on 0403 786 818 or kerry.nethery@gmail.com
Fitness, Fun and Athletics
The Kings School, Pennant Hills Road, North Parramatta
4-5 pmThursdays
Basketball
Castle Hill High School
6.00pm – 7.30pm Wednesdays
Soccer
Bella Vista Oval, Norwest
3.00pm Sundays
Contact Sports Co-ordinator, Kerry Nethery on 0403 786 818 or kerry.nethery@gmail.com
Monday, 6 June 2011
Down Syndrome NSW publications online
You can now download these Down Syndrome NSW publications as .pdf files:
Down Syndrome NSW News and Update, Winter 2011
Speak UP! Issue 41, Winter 2011
DS NSW members receive print editions as part of their membership benefits.
Down Syndrome NSW News and Update, Winter 2011
Speak UP! Issue 41, Winter 2011
DS NSW members receive print editions as part of their membership benefits.
Sunday, 5 June 2011
City 2 Surf for Down Syndrome NSW
City 2 Surf has become the event on the Sydney calendar ... fast or slow, young or old, if you haven’t ‘city to surfed’ before, why not make 2011 the year!
All the best for your training!
Another great reason to take part, whether you’re a first timer or a seasoned pro, is that it’s a great fun and easy way to support people with Down syndrome and their families by selecting Down Syndrome NSW as your charity. Just go to www.city2surf.com.au and choose Down Syndrome NSW from the drop down list of charities. You can set up a ‘hero page’ or have one set up for you and email friends, family and workmates so they can cheer you on.
If you have difficulties or questions, just call Priscilla on 02 9841 4404 or email priscilla@dsansw.org.au
Congratulations to those earlybirds who have already registered for this year’s City 2 Surf, have started their training and set up their ‘hero’ pages to raise valuable funds for Down Syndrome NSW...
Richard Struthers: http://everydayhero.com.au/richard_struthers_4
Michaela Howells: http://everydayhero.com.au/michaela_howells
Michael Hearne: http://everydayhero.com.au/Michael_Hearne
Jane Grew: http://everydayhero.com.au/Jane_Grew_0493
Donna Hogan: http://everydayhero.com.au/Donna_Hogan
Johan Kusuma: http://everydayhero.com.au/Johan_Kusuma
Jan Drosselmeyer: http://everydayhero.com.au/Jan_Drosselmeyer_1148
Brendan Nolan: http://everydayhero.com.au/Brendan_Nolan_7288
... and all of those still to sign up.
Saturday, 4 June 2011
Speaking of School Leaver Expos ...
.... as we were in this post, here are some dates over the next few weeks and months:
Wyong RSL
20 June (Mon) 6pm -7.30pm
Expo showcasing ADHC Program Providers only
For more information contact
Tracey Scheitel, DET Support Teacher (Transition) 4358 2091 tracey.scheitel@det.nsw.edu.au
Gosford
22 June (Wed)
Glenvale School at Narara
Expo showcasing ADHC Program Providers only
For more information contact
Cherie Risti, DET Support Teacher (Transition) 4325 0792 cheri.risti@det.nsw.edu.au
Sydney Region
Wedenesday 3rd August 2011
Visit any time between 3 pm and 6 pm
Marrickville High School Hall
(Enter via Northcote St, marrickville - parking available in staff carpark or on Northote St)
Wheelchair accessible
Entry: free
Service providers from the eastern suburbs, city, inner west and surrounding areas will be attending.
Further information:
DET Sydney Region Support Teachers (Transition): Jennifer Dash 9555 4152 or Sue Tomasetti 9300 9579; Catholic Education, transition Officer: Fran McBride 0408 258 469
North Sydney School Leavers Expo
For school students with a disability, parents/carers and school staff
1 to 5:30 pm Wednesday 24th August
Dougherty Centre Auditorium & Extension, Chatswood
Wyong RSL
20 June (Mon) 6pm -7.30pm
Expo showcasing ADHC Program Providers only
For more information contact
Tracey Scheitel, DET Support Teacher (Transition) 4358 2091 tracey.scheitel@det.nsw.edu.au
Gosford
22 June (Wed)
Glenvale School at Narara
Expo showcasing ADHC Program Providers only
For more information contact
Cherie Risti, DET Support Teacher (Transition) 4325 0792 cheri.risti@det.nsw.edu.au
Sydney Region
Wedenesday 3rd August 2011
Visit any time between 3 pm and 6 pm
Marrickville High School Hall
(Enter via Northcote St, marrickville - parking available in staff carpark or on Northote St)
Wheelchair accessible
Entry: free
Service providers from the eastern suburbs, city, inner west and surrounding areas will be attending.
Further information:
DET Sydney Region Support Teachers (Transition): Jennifer Dash 9555 4152 or Sue Tomasetti 9300 9579; Catholic Education, transition Officer: Fran McBride 0408 258 469
North Sydney School Leavers Expo
For school students with a disability, parents/carers and school staff
1 to 5:30 pm Wednesday 24th August
Dougherty Centre Auditorium & Extension, Chatswood
Friday, 3 June 2011
Art exhibition reminder: Darlington
Don't forget that Fraser Pollock's drawings are at the Sheffer Gallery, 38 Lander Street, Darlington, as part of the Show Down exhibition.
Official opening (and drinks with the artists) is on Saturday 4th June at 2.30 pm.
Official opening (and drinks with the artists) is on Saturday 4th June at 2.30 pm.
NSW proposes that NDIS be trialled in the Hunter region
The NSW Government has embarked on a campaign to have the proposed National Disability Insurance Scheme introduced and has suggested that a trial of the scheme could be run in the Hunter region ...
Read about this proprosal here, on the Ageing, Disability and Home Care website.
Read about this proprosal here, on the Ageing, Disability and Home Care website.
Thursday, 2 June 2011
Individualised funding for people with disabilities: NSW summit in July 2011, community consultations to follow
Statement issued by the NSW Liberal Party this morning:
A two day summit will be held next month, as the O'Farrell Government looks to implement one of its key reforms to the disabilities sector.
Minister for Ageing and Disability Services, Andrew Constance, said individualised funding packages would put carers and people with a disability at the centre of decision-making.
"Under the O'Farrell Government's proposal, people with a disability won't be dictated to by bureaucrats when it comes to the services they receive," Mr Constance said.
"This will put carers and people with a disability in control of their funding arrangements."
A two day summit will be held on the 7th and 8th of July to start the important process of consultation.
"The summit will be the catalyst for a significant program of over 100 consultation sessions which will be held throughout NSW over the second half of this year," Mr Constance said.
"It'll give us the information we need to make sure we are delivering what people want," Mr Constance said.
"The NSW Government is actively seeking the advice of people with a disability about their needs and aspirations for personalised service delivery."
The Government will work with peak bodies such as the Disability Council, NSW Council of Social Services (NCOSS), National Disability Service NSW and consumer organisations.
"Individualised funding packages will give people with a disability more choice and control over their lives and futures, including how the system supports them," Mr Constance said.
After this phase of the consultation, the feedback would be analysed to produce a draft person centred model for NSW.
"The O'Farrell Government is committed to building the strongest client-focussed service arrangements in the country."
The NSW Government has committed $2 billion in new growth funding to implement the second phase of Stronger Together, which will see the roll-out of more than 47,000 new disability services and places between 2011 and 2016.
A two day summit will be held next month, as the O'Farrell Government looks to implement one of its key reforms to the disabilities sector.
Minister for Ageing and Disability Services, Andrew Constance, said individualised funding packages would put carers and people with a disability at the centre of decision-making.
"Under the O'Farrell Government's proposal, people with a disability won't be dictated to by bureaucrats when it comes to the services they receive," Mr Constance said.
"This will put carers and people with a disability in control of their funding arrangements."
A two day summit will be held on the 7th and 8th of July to start the important process of consultation.
"The summit will be the catalyst for a significant program of over 100 consultation sessions which will be held throughout NSW over the second half of this year," Mr Constance said.
"It'll give us the information we need to make sure we are delivering what people want," Mr Constance said.
"The NSW Government is actively seeking the advice of people with a disability about their needs and aspirations for personalised service delivery."
The Government will work with peak bodies such as the Disability Council, NSW Council of Social Services (NCOSS), National Disability Service NSW and consumer organisations.
"Individualised funding packages will give people with a disability more choice and control over their lives and futures, including how the system supports them," Mr Constance said.
After this phase of the consultation, the feedback would be analysed to produce a draft person centred model for NSW.
"The O'Farrell Government is committed to building the strongest client-focussed service arrangements in the country."
The NSW Government has committed $2 billion in new growth funding to implement the second phase of Stronger Together, which will see the roll-out of more than 47,000 new disability services and places between 2011 and 2016.
State Government makes Ryde families' dream come true
After almost seven years of lobbying, attending several hundred meetings that became a rollercoaster of hope and despair, the parents of a group of 20 adults with intellectual disabilities who live in the Ryde area have been granted their one wish – to have suitable supported accommodation provided for their adult children.
RASAID (Ryde Area Supported Accommodation for Intellectually Disabled) spokesperson, Estelle Shields, says, “The RASAID families welcome Minister Andrew Constance’s announcement that our project will be funded by the State government, fulfilling a promise he made to us more than eighteen months ago. We acknowledge his courage and integrity in making our ‘dare to dream’ development become a reality. We are elated.”
RASAID has been chosen to pilot a new model of supported accommodation in which a cohesive group of intellectually disabled people live together in a cluster setting within the local community they know.Their parents will oversee their adult child’s gradual and humane transition out of the family home and into the new environment.
RASAID believes that its model, favored by thousands of families of intellectually disabled people, will be a template for many similar developments. A key feature of the RASAID model is that the families are philosophically united and committed to finding local, appropriate and responsive accommodation that will meet the needs of their adult children, while allowing a high level of family governance and community involvement.
The group believes that the success of its years of advocacy will bring hope and encouragement to families on waiting lists for supported accommodation. If the proposed National Disability Insurance Scheme becomes a reality later in the year, it is expected that many families will follow the RASAID lead and form groups to pool funding, in order to secure the best outcomes for their disabled members.
There has been no announcement yet as to the location of the accommodation in Ryde.
RASAID (Ryde Area Supported Accommodation for Intellectually Disabled) spokesperson, Estelle Shields, says, “The RASAID families welcome Minister Andrew Constance’s announcement that our project will be funded by the State government, fulfilling a promise he made to us more than eighteen months ago. We acknowledge his courage and integrity in making our ‘dare to dream’ development become a reality. We are elated.”
RASAID has been chosen to pilot a new model of supported accommodation in which a cohesive group of intellectually disabled people live together in a cluster setting within the local community they know.Their parents will oversee their adult child’s gradual and humane transition out of the family home and into the new environment.
RASAID believes that its model, favored by thousands of families of intellectually disabled people, will be a template for many similar developments. A key feature of the RASAID model is that the families are philosophically united and committed to finding local, appropriate and responsive accommodation that will meet the needs of their adult children, while allowing a high level of family governance and community involvement.
The group believes that the success of its years of advocacy will bring hope and encouragement to families on waiting lists for supported accommodation. If the proposed National Disability Insurance Scheme becomes a reality later in the year, it is expected that many families will follow the RASAID lead and form groups to pool funding, in order to secure the best outcomes for their disabled members.
There has been no announcement yet as to the location of the accommodation in Ryde.
To find out more about the members of RASAID and their stories: www.rasaid.org.au
The NSW Government's media release (2/6/2011) on the RASAID funding:
Pilot Program for Individualised Funding
The NSW Government has announced $3 million for RASAID, the Ryde Area Supported Accommodation for Intellectually Disabled group, to assist them in a pilot program for supported accommodation.
The Minister for Disability Services, Andrew Constance, said that this would enable each of the 19 individuals to determine their own future, using funds provided by the Government.
"The families from RASAID were given false hope by a succession of Labor Disability Services Ministers, who had this proposal on their desks for years, but did nothing," Mr Constance said.
"The O'Farrell Government has done more for RASAID in 10 weeks, than Labor did in 10 years."
RASAID will be allowed to choose the care packages that best suit their children's needs.
"Instead of families waiting for their child's placement in a group, RASAID will be able to determine the model of care their children want and shape it themselves," Mr Constance said.
"We want to give people with a disability and their families more control over their lives into the future."
Ryde MP Victor Dominello has thanked Minister Constance for his leadership and RASAID for their strong advocacy.
"For several years, the families from RASAID have been calling out for supported accommodation for their adult children," Mr Dominello said.
The NSW Government's media release (2/6/2011) on the RASAID funding:
Pilot Program for Individualised Funding
The NSW Government has announced $3 million for RASAID, the Ryde Area Supported Accommodation for Intellectually Disabled group, to assist them in a pilot program for supported accommodation.
The Minister for Disability Services, Andrew Constance, said that this would enable each of the 19 individuals to determine their own future, using funds provided by the Government.
"The families from RASAID were given false hope by a succession of Labor Disability Services Ministers, who had this proposal on their desks for years, but did nothing," Mr Constance said.
"The O'Farrell Government has done more for RASAID in 10 weeks, than Labor did in 10 years."
RASAID will be allowed to choose the care packages that best suit their children's needs.
"Instead of families waiting for their child's placement in a group, RASAID will be able to determine the model of care their children want and shape it themselves," Mr Constance said.
"We want to give people with a disability and their families more control over their lives into the future."
Ryde MP Victor Dominello has thanked Minister Constance for his leadership and RASAID for their strong advocacy.
"For several years, the families from RASAID have been calling out for supported accommodation for their adult children," Mr Dominello said.
Down Syndrome NSW e-Update, June 2011
The June 2011 issue of our monthly information bulletin and listing of events, the Down Syndrome NSW e-Update is now available online.
Quarterly print publications (Voice and Down Syndrome NSW News and Update) are in the mail this week (really!) to members and subscribers.
Growing older with Down syndrome is a quarterly news sheet - an extract is included in the current issue of Down Syndrome NSW News and Update, or you can download the unabridged edition of Issue 4, Winter 2011, here. It is available in print upon request - please call Down Syndrome NSW on 9841 4407.
Wednesday, 1 June 2011
Christian on the front page!
12 yr old Christian Ridey is on the front page of the Northern District Times today, in a story about his participation in the local Little Athletics program, and his Dad, Marc's dedication as their coach.
Christian is this week’s Northern District Times Junior Sports Star, sponsored by Rebel Sport and Event Cinemas, and Lisa Ridey also nominated her husband for the Contribution to Sport Award.
Click here to read the full story.
Click here to read the full story.
Beyond Vision
One of our administrative staff, Nidhi Shekaran starred with other vision impaired actors The Window on Saturday May 29 at Fairfield. Deb Cameron did a terrific interview on ABC radio with one of the ensemble, Beyond Vision. You can read the story and hear the interview on this online here.
Good on you, Nidhi!
Good on you, Nidhi!
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