Address details


Down Syndrome NSW
Level 6/410 Church St, North Parramatta
9am-5pm Monday - Thursday
T: 9841 444


Monday, 15 April 2013

Online professional education

Open Future Learning is a specialist online educational facility for training professionals working with people with developmental or intellectual disability.  An impressive list of speakers/presenters (Dave Hingsburger's presence piqued our interest) provides multimedia content in modular formats covering a wide range of topics.

Access is via an organisational account, with fees structured around the number of staff needing access.

Kate Fulton has been appointed to support users and develop Open Future Learning in Australia. Australian customers can contact her via kate@openfuturelearning.org

(This post is for the information of readers, and does not necessarily represent an endorsement by Down Syndrome NSW) 


Saturday, 13 April 2013

Weekend reading and viewing 13th - 14th April 2013


Motivating your child with Down syndrome to talk,
Jennifer Bekins, Talk - Down Syndrome, 8th April 2013
Imagine you are a child with DS. You understand more than people think you do. You get frustrated because it is so difficult to let them know what, how, and why you are feeling a certain way.

Mom, I Hate Having Down syndrome
Valerie Strohl, Friendship Circle, 11th April 2013.
My 14-year old daughter told me this the other day. Honestly, I sat there for a minute because I didn’t know what to say. It wasn’t a big surprise to me because she had implied in the past that she wanted nothing to do with Down Syndrome.

Speech Pathology Australia - Fact Sheets
A series of  Fact Sheets on topics related to speech pathology, being released during April.

30 ideas for 30 days
Paula Kluth, paulakluth.com, April 2013
April is Autism Awareness month. We know that the incidence of autism among people with Down syndrome is higher than in the rest of the population, and the co-incidence usually causes significant additional challenges.  Those people and their families need information, support and resources about autism, as well as about Down syndrome.  Paula Kluth's blog during this month is an excellent contribution: For the fourth year in a row, I will be sharing 30 ideas in 30 days during April. I will share ideas from six different books and will feature photos, examples, and teacher-tested tips. I hope you will enjoy the ideas and be able to use them to better support your students and your children.

Three articles from this week's online offerings comment on aspects of the National Disability Insurance Scheme (DisabilityCare Australia) as the July launch approaches:

Why the NDIS is shifting the paradigm and the balance of power
Melissa Sweet, Croakey, 10th April 2013
Jackie Softly (DS Western Australia) says: A really excellent, easy to read and even humorous presentation about the NDIS. If everything else you've ever read about the new National Disability Scheme has left you even more confused, do yourself a favour and read this.

NDIS: rights-based paradigm shift or same old charity?
Heike Fabig, Ramp Up, 11th April 2013
Charities have a place in society, but Heike Fabig believes it's time they were taken out of the disability system.

Will charitable disability services become prey?
Daniel Leighton, Ramp Up, 10th April 2013
The introduction of the National Disability Insurance Scheme should mean growth in quality private sector services for people with disabilities. But Daniel Leighton wonders if a business model geared toward profit will look after some of the most vulnerable people in the community.

Friday, 12 April 2013

Supported Living webinar

Image: Pixabay
Are you thinking about the options for your son or daughter to establish a home of his or her own? Do you wonder how this can happen for people with low to very high support needs? Do you want to know more about how to create a typical home for your son or daughter? 

This Family Advocacy webinar aims to help families to learn about:
  • What we mean by supported living and how it can happen for people with very high support needs
  • Stories of Australians with diverse support needs who are living in their own homes
  • Options for housing and support
  • Taking the first steps toward supported living
Friday, 14th June 2013 
10am-12pm

Download the flyer for more information and registration details here.

Thursday, 11 April 2013

'link' disability magazine: now free online

The online edition of link magazine is now available free. Registration and details are here on the link website.  Here is how link describes itself:

link is Australia's leading national cross-disability magazine 

Featuring opinions and perspectives directly from people with a disability, link covers a diverse range of topics including news, issues, art, sport, breakthroughs, travel, health, advocacy, products and people in the disability sector.

Whether you are a person with a disability, carer, health professional, disability organisation, or policy maker, link offers information, advice and insights into life with a disability.

link prides itself on its accessibility with articles written in easy-to-read 'plain English' and printed in large clear font. link is also available on audio cassette

There are 5 editions of link each year, released in April, June, August, October and December.

link is created and published by Inprint Design - an Adelaide-based graphic design company that provides supported employment for people with a range of disabilities.

‘Improving the Mental Health Outcomes of People with Intellectual Disability’:$1M grant awarded to UNSW

Great news from Department of Developmental Disability Neuropsychiatry (3DN) at the University of NSW, yesterday:

The Federal Minister for Health, Hon Tanya Plibersek has announced the outcomes of the National Health & Medical Research Council (NHMRC) Partnerships for Better Health Second Call Grant Round 2012 in which UNSW has been successful.

The NHMRC have awarded the UNSW Department of Developmental Disability Neuropsychiatry (3DN) Partnership Project with funding to the value of $1,133,558 over four years for their project, ‘Improving the Mental Health Outcomes of People with Intellectual Disability’. The total value of the research package is $2,308,058 over the four years, with Partner contributions in-cash and in-kind making up the remainder. The NHMRC Partnerships for Better Health initiative provides funding and support to create new opportunities for researchers and policy makers to work together to define research questions and undertake research and also to interpret and implement the findings.

Wednesday, 10 April 2013

Getting Started: My Choice Matters workshops

My Choice Matters is the $5 million consumer development fund set up by the NSW Government to support people with disability (aged 0-65) and their families in NSW to get the most out of the changes towards self-directed supports and individualised budgets.
In a My Choice Matters workshop, people with disability and family members share how they got started, how they learned stuff from what went right and also sometimes what went wrong. 
You will hear from people who have been managing their supports themselves about how they have taken on more control and exercised more choice.
Workshop dates and venues, May and June 2013:

Coffs Harbour Thursday 2 May 2013
Dubbo Wednesday 8 May 2013
Liverpool Friday 10 May 2013
Goulburn Thursday 16 May 2013

Hornsby Thursday 6 June 2013
Newcastle Thursday 27 June 2013


For further information about the workshops and how to register, visit the My Choice Matters website


Tuesday, 9 April 2013

Calling on Australian Proloquo2Go users aged 6 - 12 yrs

AssistiveWare is looking for Australian families with children in the age range 6 to 12 that are great Proloquo2Go users and would be willing to share their success story with the media.
Selected kids will get access to a secret new version of Proloquo2Go that includes some cool new features specifically designed for this age group and that will not be publicly released until early May.

At this time there are already many stories out there on kids with autism so we thought we would see if we could find some families with kids with Down syndrome, cerebral palsy or other diagnosis so that their voice and that of their families can also be heard in the media.

If you would like to chat some more about this email me (Aileen Ryan) at a.ryan@assistiveware.com  -  send me your phone number and best time for you to chat and I can call you, as I am in Australia. Look forward to hearing from you.

'OUR TIME': 48th Annual ASID Conference

6 - 8 November 2013 
Sheraton on the Park

Sydney


Registration is now open for the 48th Annual Australian Society for Intellectual Disability (ASID) Conference, "OUR TIME"

Take advantage of the early bird discount and register now Early Bird Registrations close 9th August

Call for abstracts is now open - consider submitting an abstract(s) in theme areas outlined. Abstract submission is due by the 4th May
We encourage you to please distribute this call for abstracts as widely as possible.
Keynote speakers include:
  • Robert Strike: President, Self Advocacy Sydney and Director, NSW Council for Intellectual Disability.
  • Sarah Butler: Vice Treasurer, Self Advocacy Sydney.
  • Angela Novak Amado: PhD, University of Minnesota’s Institute on Community Integration.
  • Sue Read: PhD, Professor of Learning Disability Nursing, Head of Research, School of Nursing and Midwifery, Keele University.
  • Eric Emerson: PhD, Professor of Disability & Health Research at the Centre for Disability Research, Lancaster University, UK and Co-Director of the English specialist Public Health Observatory on intellectual disabilities. Professor of Disability Population Health at the Centre for Disability Research and Policy at the University of Sydney. 
  • Keith McVilly: PhD, Associate Professor, Principal Research Fellow, School of Psychology, Deakin University, Australia.
  • Trevor Parmenter: AM PhD, Professor Emeritus in Sydney Medical School, and Honorary Professor Faculty of Education & Social Work and Faculty of Health Sciences, University of Sydney. Adjunct Professor, School of Rural Medicine, University of New England.
  • Michael Wehmeyer PhD, Professor of Special Education; Director, Kansas University Center on Developmental Disabilities; and Associate Director, Beach Center on Disability with expertise in disability and education related issues
More information and links to online registration can be found at the 'Our Time' conference website.

Minister lauds cultural diversity reforms for ageing and disability services

NSW Ageing, Disability and Home Care, 8 April 2013:

The success of cultural diversity reforms implemented by Ageing, Disability and Home Care (ADHC) continues to make a real difference in the lives of people with disability, older people, their families and carers from a culturally and linguistically diverse background across the State, Minister for Ageing and Disability Services Andrew Constance said today.

Monday, 8 April 2013

Dancers captured for exhibition

Dominic Feain
Northern Rivers Echo, 4th April 2013

Alstonville dance group SPRUNG!! is holding a unique photographic exhibition of a recent workshop for dancers with disabilities.

photographer: Katrina Folkwell
In September last year, Alstonville Dance Studio's Susie Whiteman organised the inaugural Integrated Dance Theatre Holiday Workshop with Julie Barratt and Sarah-Vyne Vassallo of Accessible Arts NSW, and the Don't DIS my ABILITY campaign.

Photographed by Katrina Folkwell, with select photos by Sarah Kearney - a young photographer with a disability - the exhibition open(ed on) April 4, at the Ballina Northern Rivers Community Gallery and runs until April 28

... read more here.

Saturday, 6 April 2013

Weekend reading and viewing 6th - 7th April 2013


Scrapheap Adventure Ride 2013 - check out the photos!

Can we get married? 
On ABC iView until 15th April.
UK documentary following a young couple with Down syndrome as they begin planning their wedding. Made in 2012. 38m 48s

iPad Basics 101 – Out of the Box Tips for Successful Implementation.
Katie Lyon, Spectronics. Posted 3rd April 2013.
A very useful (free) webinar. Investigate it whether you are a rank beginner or a relative amateur, and even if you will never use your iPad in a classroom - you will learn something useful!

A dose for Down Syndrome: cough mixture research tackles cognitive function,
The World Today (ABC Radio), 26th March 2013.
A group of researchers at Monash University are investigating whether an ingredient used in cough syrup improves cognitive function ...  for people with Down Syndrome ... Interview with Prof Bob Davis, including comments from Catherine McAlpine, CEO of Down Syndrome Australia.

Does your child with Down syndrome need a sleep study?
Maureen Wallace, She Knows - Parenting, 13th March 2013 
Most parents know the mixed feeling of relief and dread as the first light of morning creeps between the blinds after a sleepless night.Having a child with special needs can be particularly challenging, and sleep issues that are prevalent in children with Down syndrome can be elusive.Knowing what to look for is key. Maybe you’ve already noticed your child sleeping in strange, folded-over positions. Did you chuckle? Post it to Facebook? Marvel at the phenomenon that is low muscle tone? I did. And then I heard a sleep specialist speak to my local Down syndrome association.

A better night's sleep for Down's Syndrome children
itv Player, 13 March 2013
Short UK news report about sleep research in children with Down syndrome - a good overview of  potential problems.

Rosa Monckton, (UK) Mail Online, 31st March 2013
My youngest daughter was being a little loud and over-excited on a commuter train recently. With the clatter of laptops and the annoying ‘tssst tssst’ of not-so-personal stereos filling the carriage, I’m surprised anyone noticed.But notice her someone did. A man got up from his seat, went over to Domenica and told her, quite loudly and aggressively, to be quiet as he was finding it impossible to work. 

Down Syndrome Education Conference videos now available
Videos of the Northeast Down Syndrome Education Conference, held in December2012, are now available online from the Massachusetts Down Syndrome Congress. More than 400 people from 25 states and 6 countries attended, to hear speakers from Down Syndrome Education International. Now, for a limited time, the complete recordings of the conference, including all 6 keynotes and 18 hour-long workshops are available to access online (for a fee).

Parents of disabled want more flexibility to hysterectomy ban,
Rachel Browne, Sydney Morning Herald, 28th March 2013. 
Parents of women with severe disabilities are being forced to take their daughters overseas for hysterectomies after their requests for the procedure were denied in Australia, a leading endocrinologist has told an inquiry into involuntary sterilisation ... The Australian Human Rights Commission recommends that sterilisation of children without their consent be criminalised along with the taking of a disabled child overseas with the intention of having them sterilised.

Friday, 5 April 2013

What is a Speech Pathologist?

First in a series of new Fact Sheets to be released by Speech Pathology AustraliaWhat is a Speech Pathologist?


SPA will release one new Fact Sheet each day, announced via their Facebook page.

Relationship Skills and Private Stuff: Awareness Course

This workshop will cover information through a variety of activities on dating, relationships, intimate affection, consent and safety. Going to a local coffee shop will be a fun activity to reinforce learning about organising and participating in social outings.

This course includes two sessions and is for adults with disability.

27th April and 4th May
Woodstock Community Centre,
Fitzroy St, Burwood NSW
Cost: $155 (Discounts available).

For more information: click here  or download this Registration form

Thursday, 4 April 2013

What an achievement!

In case you missed the link in last weekend's 'reading and viewing' post, here is another article and video interview about Eli Reimer's recent expedition to Mt Everest, that has been very popular online:

15-Year-Old Eli Reimer Becomes First Person with Down Syndrome to Reach Mt. Everest's Base Camp, Maggie Couchlan, (US) People magazine and HLN TV 03/31/2013

 

CDS workshop for professionals: PATH


Monday 22 and Tuesday 23 April 2013 (2 day workshop)
 West RydeContact: Margaret Carrick, Phone: (02) 9036 3600,  Fax: (02) 9036 3613
Email: margaret.carrick@sydney.edu.au

Wednesday, 3 April 2013

Dylan Hitchcock: regional NSW fire fighter

The weekend before Easter, one-hundred fire fighters from across the state battled it out in Tumut, for the regional NSW Fire and Rescue championships.

As this short Prime 7 News video shows, Dylan Hitchcock, an honorary member of his local Dorrigo fire brigade was right in there representing his community, and exercising his skills.

The Man Who Planted Trees: access performance at the Opera House

As part of Sydney Opera House’s commitment to improving disability access we are delighted to announce our program now includes a number of inclusive performances for young people with a disability. Our aim is to ensure that all young people and their families, carers and friends have an opportunity to experience the magic of live performances and creative play at Sydney Opera House.

The Man Who Planted Trees
Saturday 6 April, 11am

AUSLAN and Audio Described; recommended for children 7+
Pre-performance touch-tour at 10.30am

Tuesday, 2 April 2013

Scrapheap Adventure Ride 2013: the pictures

Visit the Scrapheap Adventure Ride 2013 Facebook page to see photos from the ride to the back o' Bourke this Easter ... lots of red dirt roads, spectacular colours of the outback, and of course, the bikes and their riders.  Look for more over the next few days.


Thank you the riders, support teams, donors and all supporters!

News from NSW Ageing, Disability and Home Care

11 March 2013
Minister for Ageing and Disability Services, Andrew Constance, today announced the appointment of Michael Woodhouse to the role of Executive Director, Carers, Ageing and Disability Inclusion.
“One of Michael’s many achievements as Executive Director of the Office for Ageing has been the launch of the NSW Ageing Strategy in July last year,” Mr Constance said.
“This new expanded role will see him lead the implementation of the strategy and also focus on greater inclusion for people with disability and carers.” 
Mr Woodhouse has 15 years experience in the health and human services sectors, working with State and Commonwealth Governments and the non-government sector.
He has a law degree and has worked in policy and management positions in NSW and the Northern Territory. 
“I am passionate about making a difference to people who are too often sidelined in our society because too little is understood about their needs and the supports which will help them live the life they want,” Mr Woodhouse said.
“I’m looking forward to working towards better outcomes for carers, people with disability and seniors who contribute so much to the community.” 
Full text of media release

Establishment of University Chair
22 March 2013
Minister for Disability Services Andrew Constance has announced $1.75 million for the establishment of the University Chair in Intellectual Disability and Behaviour Support at the University of NSW. 
The University Chair will lead research in the field of behaviour support and seek to increase the capacity of a wide range of disciplines that work with people with an intellectual disability who have complex needs and challenging behaviours. 
Practice in a broad range of disciplines such as special education, psychology, medicine, social work, health and law will benefit from the work of the University Chair. 
.... The Chair will initially be funded for three years and will work closely with the existing University Chair in Intellectual Disability/Mental Health, also based at the University of NSW and funded under Stronger Together. 
Full text of media release

First Living Life My Way ambassadors and champions announced
25 March 2013
Minister for Disability Services Andrew Constance has announced the first round of Living Life My Way (LLMW) Ambassadors and Champions, who will help raise community awareness about disability reform in NSW. 
"This is an extraordinary group of people, who have truly inspiring stories to share with others," Mr Constance said. 
"All 19 have first-hand experience of living with disability, and they all share the common desire to make a lasting and positive difference in the lives of others. 
Full text of media release

NDIS Practical Design Fund Project: 2 day workshops

 Future by Design has been funded by the NDIS Practical Design Fund Project to deliver a number of 2 day workshops designed for people with disability, families and support workers:


The workshop will provide an update on the NDIS, explore the NDIS as a living system 
and ways to influence and shape your own future within the system, and a process for 
turning good ideas into action.


Newcastle  9-10 April 2013 
Kogarah  11-12 April 2013
Wollongong  15-16 April 2013

Numbers are limited. so booking is essential no later than at least one week before your workshop