Friday, 30 October 2009
ADHC has published its revised protocols for allocating supported accommodation places in non-government services that are ADHC operated and funded. Read the new ADHC document here: Allocation of places in supported accommodation policy and procedures
These extracts briefly address the most common enquiries we receive from families, about availability and the process for accessing ADHC supported accommodation (of course the document includes a great deal more detail):
4.1 Guiding principles ..... (4) A person’s needs are more likely to be met effectively by making early contact with DADHC, before any crises occur. Carers may contact the regional Information, Referral and Intake teams at any time to discuss their circumstances and to explore the support options available to them.
5.1 Requesting a supported accommodation place ..... Where a person with a disability is eligible for and seeks supported accommodation, the case manager will confirm the person’s eligibility for supported accommodation and consider all other support options with the person and his or her family/support person/guardian. Once this has occurred, the case manager will submit a written request for a place on the Register of Requests for Supported Accommodation. The person with a disability will be notified in writing that his or her request has been added to the register.
5.1.1 Indication of future service need ..... A person may indicate to DADHC if they consider they will have a future need for supported accommodation. This information will be recorded by DADHC and may be used in future planning. When a client notifies DADHC that their indicated future need has become an immediate need services will be offered on the basis of assessed need, priority and available places.
5.7 Creating a shortlist [for a vacancy].....
(d) Priority and in order:
• homeless or effectively homeless, or
• at imminent risk of homelessness – the person’s support system has broken down, or
• the person’s own support needs have increased and the family is unable to continue to provide support in the family home, or
• the person’s primary carer is older than 65, or who has ageing related support needs, or
• the person is in receipt of emergency funded support and has applied for supported accommodation, or
• the person or placement is at risk, or
• a person requesting to move from one supported accommodation place funded by DADHC to another supported accommodation place funded by DADHC where the current place does not adequately support a person’s living arrangements or social connections, or
• a person exiting from the Integrated Services Project (ISP).
• A person whose current living arrangements are not likely to be sustainable or whose current placement is showing early signs of breaking down.
• For any other reason not mentioned above.
The continued roll out of new supported accommodation places under the Stronger Together initiative is announced in this Ministerial media release (8th October).
Thursday, 29 October 2009
Wednesday, 28 October 2009
Trends in Down’s syndrome live births and antenatal diagnoses in England and Wales from 1989 to 2008: analysis of data from the National Down Syndrome Cytogenetic Register
Joan K Morris, professor of medical statistics, Eva Alberman, emeritus professor,
Wolfson Institute of Preventive Medicine, Barts and the London School of Medicine and Dentistry, Queen Mary University of London, London
The media is well summarised, linked and collated in Patricia Bauer's commentary, Disability News (go to entries dated 28th October 2009).
Written and video questions are now being taken. Please take a moment to show your support by posting a question about the National Disability Insurance Scheme on the Q&A website.
The program will be available as a Vodcast following the broadcast.
Visit the National Disability Insurance Scheme website here.
Tuesday, 27 October 2009
Would you like to have a photograph taken with your boyfriend or girlfriend, partner or family?
At your home, in a local park or at a wedding or commitment ceremony?
Liz Dore, from Relationships and Private Stuff, is hoping to collect photos of a diverse range of couple, including those with intellectual disability. They would be used to create a set of A4 and A5 laminated cards to be used in relationships counselling and educational workshops. You would receive a photo enlargement and digital frames.
If you and your partner are interested, please contact Liz Dore, Relationships Counsellor and Educator: 0416 122 634 or email email@example.com
Friendship & Dating Skills Workshops
For people with intellectual disability, aged 25 – 50 years
3pm – 6pm 21st and 28th November
Woodstock Community Centre, 22 Church St, Burwood
Each group participates in two 3 hour sessions held over two consecutive Saturdays
Activities and DVD’s will be used for structured education sessions in a group. Informal activities to reinforce learning will include going out to a local café or pub.
The cost is $120 and includes the two 3 hour sessions.
BYO money for outing. (Discount $100 for pensioners & low income earners).
For enquiries contact Liz Dore 0416 122 634 or firstname.lastname@example.org
A practical approach to teenage private stuff - for parents
This workshop gives parents strategies for teenagers who have an intellectual disability or ASD and difficulties relating to others. It will include practical ideas to support them to have healthy relationships. Resources and discussion will focus on:
Puberty and self esteem
Relationship and communication skills
Appropriate and positive ways to sexual expression
Sex, consent and safe sex
10 AM – 1 PM Saturday 5th December 2009
Australian Technical College, Bridge St, Coniston (Wollongong)
Workshop cost $60 for one or $100 for couple.
To register send cheque and form to Liz Dore PO Box 1060 Burwood North 2134 before 30/11/09.
For enquiries ring 0416 122 634 or email email@example.com
Monday, 26 October 2009
Saturday, 24 October 2009
Friday, 23 October 2009
Professor Chris Jarrold from the Department of Experimental Psychology has been awarded a £12,000 grant from the Royal Society for his research into children with Down syndrome.
The main aim of the project is to analyse the extent to which individuals with Down syndrome are able to understand what they read. Individuals with Down syndrome often show relatively strong reading skills but their comprehension of what they read lags behind their ability to read words.
This will shed important light on the question of whether people with Down syndrome are just ‘good readers’ of words or are also able to ‘read for meaning’, the ultimate aim of literacy acquisition.
Thursday, 22 October 2009
And here is a much better shot of Greg Anderson, Australia's "Electric Cowboy", and Stardust - his performance stunned and delighted.
Wednesday, 21 October 2009
..... the first ever Auslan dictionary to include not only the sign image but also:
Descriptions of how to perform the sign;
Hints to help you remember and teach the sign to children;
A list of English words associated with the sign;
State usage information;
Context usage information.
For example, 'can' has two listings: one for 'I can...' and the other refers to the 'ring pull can'.
Each listing includes notes to help you understand the context under which it is appropriate to use that sign.
It includes over 1400 signs in alphabetical order and a thorough English word index. Being a 2009 edition, it contains many modern signs never before documented such as extreme sports and internet terms.
Please be aware that this is an dictionary for adults and does include adult words, including those of a sexual nature. These are important for sexual awareness education of children, and thus have been included.
This dictionary has already received glowing recommendations and reviews and is available at a special introductory price of only $50!
For further details and ordering, go to the Bilby website.
Tuesday, 20 October 2009
Cleland J, Wood S, Hardcastle W, Wishart J, Timmins C. , Relationship between speech, oromotor, language and cognitive abilities in children with Down's syndrome, International Journal of Language & Communication Disorders. (doi: 10.3109/13682820902745453)
Despite a lot of investigation into communication impairment amongst people with Down syndrome that has produced a good deal of information, much remains unknown. This study aims to clarify the contribution of cognitive factors to communication:
...... whether speech is delayed or disordered is a controversial topic. Most studies suggest a delay, but no studies explore the relationship between cognitive or language skills and intelligibility.
The researchers concluded:
Children with Down's syndrome present with speech disorders characterized by atypical, and often unusual, errors alongside many developmental errors. A lack of correlation between speech and cognition or language measures suggests that the speech disorder in Down's syndrome is not simply due to cognitive delay. Better differential diagnosis of speech disorders in Down's syndrome is required, allowing interventions to target the specific disorder in each individual.
The abstract is available online here, and while the full text can be purchased, the publisher's charge is $US86 for 24 hour access. Our librarian is investigating alternative access options.
The research was done at the Speech Science Research Centre, Musselburgh, UK.
The journal is published by the Royal College of Speech & Language Therapists.
Monday, 19 October 2009
"This site is dedicated to the thought that something as simple as fun is the easiest way to change people’s behaviour for the better. Be it for yourself, for the environment, or something entirely different, just so long as it’s change for the better."
Look, laugh and think about the principles that we could apply in everyday life - we don't always need such high tech responses (although these ones really are fun) ...... but we do sometimes need reminding of the principle.
Saturday, 17 October 2009
Walk starts: 10:00am (registration essential)
Walk Launch - Lord Mayor of Newcastle
For more information contact:
10.00am — 12.00pm
Followed by free luncheon
Irene Strong, St George Home Care
The forum is an informal regular gathering that will provide an opportunity for consumers of community services and their carers to meet and discuss issues relating to disability, ageing, and living in the community
For more information, please contact Raine Kornfeld
Phone: 9580 0688
Fax: 9580 4487
R.S.V.P. by 3/11/09
Pole Depot Community Centre Inc.
23 St Georges Road (PO Box 152), Penshurst 2222
Phone: 9580 0688 Fax: 9580 4487
Friday, 16 October 2009
Camp Willing and Able is a residential program suitable for people of all ages with a physical and/or intellectual disability.
The camps will provide children, teenagers and adults with the opportunity to participate in a variety of games and recreation activities. The emphasis during activities is on making friends and having fun.
Activities may include:
- bike activities
- indoor recreation
- beach games
Volunteer carers from previous camps, new community carers and students from Southern Cross University will be rostered on throughout the camp to care and provide support for all children.
It is intended to have one carer for every two participants attending the camp. Camp organisers will take into consideration the different needs of each participant and there may be times where it is necessary to allocate one to one supervision.
For participants who normally have a personal carer, a carer must attend the camp with the participant.
Age group: 9 to 17 years
Date/s: Saturday 21 and Sunday 22 November, 2009
Time: 9.30am Saturday to 3pm Sunday
Venue: Lake Ainsworth Sport and Recreation Centre, Pacific Parade, Lennox Head
Applications close one week prior to camp unless all vacancies have been filled.
How to enrol
Thursday, 15 October 2009
Family and Friends
are invited to attend a BYO picnic to celebrate
Down Syndrome Awareness Week
at Jetty Foreshores, Coffs Harbour
Sunday 18th October, 2009
Look for the yellow balloons!
Enquiries: email firstname.lastname@example.org
Wednesday, 14 October 2009
People with disability and their families get more choice and flexibility including the ability to direct their own support with a financial intermediary taking care of legal and financial obligations.
Tuesday 24th November 2009
10am sharp – 3.30pm (Registration from 9.30am)
Parliamentary Theatrette, NSW Parliament House,
Macquarie St, Sydney
RSVP: email@example.com or (02) 9869 0866 by 17 November
Cost: $30 for staff of services or organisational representatives; $10 for people with disability and families, GST included
Lunch will be provided.
Peter Shergold Chair, Centre for Social Impact, UNSW on the ethical and economic imperative for self directed support
Lisa Minchin Service Reorientation Unit, Community and Individual Support Branch of Victorian Dept of Human Services on new opportunities
Maureen McLeish Direct payment recipient on behalf of her daughter
Jim Burns CEO Melba Support Service on the impact of the transformation on a large non government service
Lara Friedman Person with disability using self managed package
Judy Harwood Director Reform & Development DADHC on initiatives in packaged support in NSW
A FREE group course for parents with children aged 3-8 years old with additional needs. Practical solutions to common parenting problems
Wednesday 4, 11,18 and 25 November (four-week program); 6–8pm
Waverley Council’s Family Day Care Centre
25 Ebley St, Bondi Junction 2022
RSVP by Monday 30 October
FACILITATORS Sunita Misra (Specialist psychologist- DADHC) and Paul Berchtold (Social Worker-DADHC), whose areas of expertise include working with children with additional needs and challenging behaviour.
Please note: There will be another day time group in March 2010.
The Triple P positive parenting program can help you find ways to deal with difficult behaviours and support your child.
Triple P is an evidence-based program (backed up by over 25 years proven clinical
research) so it works for most families.
Triple P can help you:
- create a stable, supportive, harmonious family environment
- teach your children skills to get along with others
- deal positively, consistently and decisively with problem behaviour
encourage behaviour you like
- develop realistic expectations of your children and yourself
take care of yourself as a parent.
Tuesday, 13 October 2009
We were so glad the weather was good and we all had a great day. We loved the blue t-shirts and hats and really enjoyed the sausage sizzle!
Jack has Down Syndrome and he is pictured in all of the photos along with members of his family (including his Nana & Pop)!
Thank you again to everyone who organised this wonderful day – it was a great success! I look forward to next year – and so do my family!
Monday, 12 October 2009
In the meantime, our grateful thanks to everyone who participated, the fabulous army of volunteers, Shannon and Tara who organised everything at the picnic site, Coates Hire for providing and erecting the marquees and fencing, Rotary Club of St George for providing the BBQ, Cafe2U who came at very short notice when the booked coffee van broke down, and to all of our generous sponsors and donors.
We'll have photos soon!
Saturday, 10 October 2009
Friday, 9 October 2009
Ride to: Wanaaring - 200k’s west of Bourke, NSW
- Have to buy a Bike for less than $1000
- Can be any road registered motorcycle
- You are allowed to spend additional sums on the bike to make it roadworthy, all machines participating must be registered
Award/trophy voted by the attendees for:
- Best bike
- Longest distance
- Hard Luck award
- Detailed flyer and online registration will be available shortly.
Thursday, 8 October 2009
It was taken at the Buddy Walk - Australia event in Sydney in 2007.
This year's Sydney Buddy Walk - Australia kicks off at 10.00 am sharp on Sunday (11th October). Click here for details.
Wednesday, 7 October 2009
Brothers and Sisters: Their role in the life of a person with a disability
Dr John Kramer - co-founder and leader of the Sibling Leadership Network (SLN) in the United States, a growing movement of brothers and sisters of people with disabilities, siblings with disabilities, and committed professionals interested in policy, services, and research related to siblings.
Assoc. Prof. Monica Cuskelly - Graduate School of Education (University of Queensland), her working experience had been primarily in the field of educational psychology with some forays into clinical areas. Her major research interests are family functioning in families with a child with a disability, the development of persons with Down syndrome, self-regulation and mastery and academic motivations.
9.30 am – 4.30 pm, Tuesday 17th November, 2009
This workshop will be of interest to: Families, Siblings, Persons with disability, Support Staff, and Policy Planners among others.
Charles Blunt Conference Room
Royal Rehabilitation Centre Sydney
59 Charles Street, Ryde, 2112
Further Information: Margaret on (02) 8878 0500; E-mail: firstname.lastname@example.org
Tuesday, 6 October 2009
Monday, 5 October 2009
Sunday, 4 October 2009
End the poverty of disability
Stephanie Peatling, Political Correspondent, Sun Herald, October 4, 2009
A national insurance scheme for people with disabilities is on the radar for the Rudd Government after persistent warnings the existing system is in crisis.
An expert panel established by the Government will recommend a feasibility study be commissioned to determine the cost.
''It's both economically rational and socially responsible,'' said Bruce Bonyhady, a member of the Disability Investment Group. He likened the introduction of such a scheme to the push for Medicare and superannuation. ''Despite our intention to minimise risk, stuff happens,'' Mr Bonyhady said.
.....The idea is being pushed by the parliamentary secretary for disabilities, Bill Shorten, who believes the existing system of care is inadequate and poorly targeted.
''There is a poverty of disability,'' Mr Shorten said. ''Disability has been seen as a welfare issue when it should be an economic one.''
National Disability Insurance Scheme website: www.natdis.com.au The NDIS news service reports that Dr Rhonda Galbally will be addressing the National Press Club this Wednesday (7th October) on the Shut Out report, and on the need for a National Disability Insurance Scheme.
In a post-modern way this project combines cinematic theatre, photography, art history, theology and computer technology in twelve photographs of 80 by 60 cm (7 signed copies), depicting seven biblical scenes from the New Testament which are "enacted" by people with Down's syndrome.
The project includes scenes depicting the Annunciation, the Nativity, the Epiphany, the Vigil in the Garden of Gethsemane, the betrayal by Judas, an Ecce Homo, and most famously, the Last Supper, all reflective of renaissance artworks, but highly original in Mamedov's realisation. The hands of the people with Down syndrome are particularly expressive.
Descriptions of the work on the website are available in Dutch, German and English.
Saturday, 3 October 2009
There are better ways than others to inform an expectant parent of a diagnosis of Down syndrome but to date, there have been no standard guidelines for physicians. Brian Skotko, Thrive
Some doctors have always delivered the diagnosis well, but many families have reported unnecessarily negative experiences. Previous guidelines have been written, but their distribution and uptake was often patchy at best.
Two papers are published online by medical journals this week, to guide physicians in the sensitive task of telling parents that their baby has Down syndrome. Paediatrician, researcher and co-author (with Dr George Capone and Dr Priya Kishnani, for the Down Syndrome Diagnosis Study Group) has published links to each of the papers, and background information into how they came about, on Thrive, the Children's Hospital of Boston's health and science blog.
Patricia Bauer says, " Advocates and physicians have been calling for guidance on delivering diagnoses ever since the American College of Obstetricians and Gynecologists (ACOG) recommended in 2007 that obstetricians offer prenatal screening and testing for Down syndrome to all pregnant women, regardless of age.
The 2007 ACOG recommendations were not accompanied by any assistance to doctors in delivering diagnoses, and many doctors have reported in survey research that they haven’t gotten professional training about individuals with intellectual disabilities, or about prenatal diagnosis or counseling expectant parents."
Professional bodies around the world have endorsed or are considering similar recommendation about prenatal testing, so the new guidelines are authoritative, welcome, and will be easy to disseminate.
Friday, 2 October 2009
Thursday, 1 October 2009
Visit The Scene for more information, or go directly to Livewire Siblings
Livewire is currently investigating ways to make Livewire more accessible for people with intellectual disabilities, and is including organisations such as Down Syndrome NSW in its discussions. We will get back to you with more information as developments occur.
Well worth a place on your Blogroll and we've just added it to our (in the right hand column).