Thursday, 30 April 2009
Wednesday, 29 April 2009
The program will commence:
5.30pm – 7.30pm
Tuesday, 28 April 2009
Behaviour labelled as "challenging" is often a reflection of health and communication impairments - requiring health and communication solutions.
This seminar will be relevant to professionals working to support people with Down syndrome in residential, respite, recreation, and employment services, and to anyone who works closely with people with Down syndrome, wishing to update their knowledge.
Monday, 27 April 2009
Bookings are now open for this year's Families' Weekend:
Sunday, 26 April 2009
- Number skills for infants with Down syndrome – 0-5 years [Open Access Full Text]
- Number skills for children with Down syndrome – 5-11 years [Open Access Full Text]
- Number skills for teenagers with Down syndrome – 11-16 years [Open Access Full Text]
Saturday, 25 April 2009
You will recall that our very own Travis has found a place in his rural NSW community through joining the local fire brigade, training with other adolescents.
Thursday, 23 April 2009
The other arrival, Victoria Goes to Brazil (by Maria de Fatima Campos, Frances Lincoln Children's Books, UK, 2009) is a picture book that tells another story of Victoria, a young girl with Down syndrome (seen in an earlier book, Victoria's Day - about her life at pre-school). She travels to Brazil to visit her mother's birthplace and family. Down syndrome is never mentioned except as a small note at the back of the book. It is a beautiful book about Brazil and meeting family. It would be great in school or public libraries (as well as for children with Down syndrome) as it portrays a person with Down syndrome doing just what any other child would do. Victoria's mother (the author) is a photographer and has a website that includes more about Victoria as well as a story, Victoria and Me, done for the Down's Syndrome Association in the UK about Victoria's first three years and about Down syndrome.
Despite the different focuses, both resources ultimately show people with Down syndrome doing the same things as other people and leading fulfilling lives.
If you want to borrow these or any other resources, email us.
(Note: Our copy of Praying for Lior is copyrighted for home use only--not for public showings.)
Monday, 20 April 2009
The guidelines are illustrated with photographs taken by Mathew Wiggins, from Byron Bay.
The guidelines are being distributed by Alzheimer’s Australia and by Down syndrome organisations in each State, including Down Syndrome NSW.
In NSW, phone 9683 4333, or email
Sunday, 19 April 2009
Saturday, 18 April 2009
Seven private TV stations broadcast the event, which was also covered by the English newspaper, The Jakarta Post.
The directory is very easy to use, and includes information on, for example, camps for people with disabilities, accommodation and specialist travel operators. Each entry includes some details and forward links to the service/facility being described.
A very welcome addition to disability information in NSW - we look forward to its future development too.
Friday, 17 April 2009
Chapter 11 is the Births Defects report for 2006. The page numbers below refer to the .pdf document page number (print document page number):
Table 146, p.141 (140): BIRTH DEFECTS AMONG STILLBIRTHS AND LIVE BIRTHS BY DIAGNOSTIC CATEGORY, NSW 2000 –2006
Table 151, p 145 (143): BIRTH DEFECTS AMONG SPONTANEOUS ABORTIONS, TERMINATIONS OF PREGNANCY AND UNKNOWN OUTCOME OF PREGNANCY BY DIAGNOSTIC CATEGORY, NSW 2000–2006
Table 152, p. 146 (144): SELECTED BIRTH DEFECT CASES BY YEAR, NSW 2000–2006
Health and communication are two of the major issues impacting on the quality of life that people with Down syndrome can enjoy. Behaviour labelled as "challenging" is often a reflection of health and communication impairments - requiring health and communication solutions.
This seminar will be relevant to professionals working to support people with Down syndrome in residential, respite, recreation, and employment services, and to anyone who works closely with people with Down syndrome, wishing to update their knowledge. It is scheduled for 2 venues in May 2009:
10.00 am - 3.00 pm
Friday 8th May, 2009
Quality Hotel Apollo International
290 Pacific Highway, Charlestown
10.00 am - 3.00 pm
Friday 15th May, 2009
Wollongong Golf Club,
Cnr Corrimal and Bank Streets, Wollongong
For both events:
Cost per person: $132 - non-members; $99 – DS NSW members
For other DS NSW information events scheduled for May and June 2009, click here.
Thursday, 16 April 2009
Materials in our library related to stories in this book:
Roadmap to Holland by Jennifer Graf Groneberg
Johnny the Bagger DVD
I Just Am by Bryan and Tom Lambke
If you'd like to borrow Windows into Heaven or any of the other books, please email us.
Wednesday, 15 April 2009
Line Dancing! and more ....
Where: Concord Community Centre
1A Gipps Street (Cnr of Gipps & Burwood Rd)
Concord NSW 2137
Off street Parking Available
Time: Arrive from 10am for a 10.30am start - session to finish at 12.30pm
Costs: Gold Coin Donation
It is essential to book in to join in!!!
Contact: Kathleen Collins– Inner West Sports Coordinator
Email: email@example.com (preferred contact)
Phone: 0405 100 753
Saturday 2nd May 2009
Social Enterprise Centre
RIDBC Auslan Tutor is a portable video-based Australian Sign Language (Auslan) teaching resource developed specifically for the iPhone and iPod touch.
It is designed for families of young deaf children to assist them to learn Auslan and promote early communication between parent and child. Over 500 signs are included. These signs were carefully chosen as those most needed by families in their interactions with, and teaching of, their young deaf children.
Each sign has five corresponding entries which can be viewed on demand as often as necessary. The five entries are:
- a photo of the handshape used to form the sign
- a video clip demonstrating the single sign
- a video clip of the sign used in a phrase
- a video clip of the phrase used in a sentence
- a text note about Auslan grammar that is pertinent to the sign, phrase, or sentence. These notes have been included to help the user gain a basic understanding of the grammatical structure of Auslan.
Tuesday, 14 April 2009
Brian Robins, Sydney Morning Herald, April 6, 2009
The NSW Opposition is proposing to overhaul the delivery of disability services, which may emerge as a template for its approach to social services in the state if it gains power in 2011.
It said its policy was to give disabled people money and the ability to choose the services they needed, rather than having this organised for them by government-provided caseworkers.
This approach has already been adopted in other states, such as Victoria and Queensland, but with only small pilot programs under way in NSW.
"The emphasis on quality of life outcomes for people with disability is central to the development of our plan," the Opposition spokesman on Disability Services, Andrew Constance, said. The Opposition released a discussion paper outlining its proposal as it seeks to win broader backing for the plan.
"It's going to require quite a rejig of the existing process," said Catherine Hogan, the director of Family Advocacy, a disability support group.
"At present, control resides with the Government. But until this is turned around, giving people with disability and their families the ability to choose what they need and where to get it, then people with disabilities will remain vulnerable.
"We have too many people abandoned by the system."
Mr Constance said: "We have to increasingly look at giving back choice and control. It needs to be done very carefully and cautiously, but we need to put a stake in the ground on this."
He said much discussion within the social services sector had focused on individualised funding packages.
Over a year PYT have been working with young people with and without a disability to develop HARD DAZE. PYT and Accessible Arts partnered to form the Mixed Abilities Ensemble in June 2008 where they took part in a 15 week training program consisting of voice, theatre making & movement workshops alongside professional artists. They then moved into the creative development stage of HARD DAZE with a showing of work in October 2008 & now are ready to reveal to all the major production.
Cost: Tickets are $10/15, with carers receiving free entry. Bookings through www.moshtix.com.au
Monday, 13 April 2009
A second Young has a run on the 'G
You might have seen this story about Hawthorn player Clinton Young and his brother Lachlan, in either Sydney's Sun-Herald or Melbourne's Sunday Age yesterday. Emma Quayle's article about these down-to-earth siblings begins:
Clinton Young was six when his brother Lachlan was born with Down syndrome. He and his other brothers - Gavin, Jarrod and Mitchell - understood that the new arrival would consume much of their parents' attention and that life would change a little. But brothers are brothers, and getting a new one was good.
The original article is on Fairfax's "Real Footy" website, here.
The Right to an Ordinary Life
The transcript of Parliamentary Secretary for Disability, Bill Shorten's speech to the National Press Club, delivered on 1st April is now posted to his website, here. It is entitled "The Right to an Ordinary Life".
Actors with Down syndrome bringing 'Grease' to the stage
How much do you think this group of US actors who have Down syndrome are enjoying their roles in a production of Grease? We are confident that they already knew most of the words and dance moves, before rehearsals began .... The photos are fabulous.
Hope you've had a good break over Easter. We'll catch up a bit more tomorrow.
Thursday, 9 April 2009
Monday, 6 April 2009
EMPLOYEES WITH DOWN SYNDROME? LET'S HIRE THEM!
The message at the end says:
"Were you able to pick out the workers with Down Syndrome? No, neither could we. Let's hire them!"
Sunday, 5 April 2009
The film-maker has also started a blog, Praying on the Road, to follow the film's, and Lior's progress.
Saturday, 4 April 2009
The key objectives of the Summit were to:
- Improve the lives of people with younger onset dementia and their families and carers.
- Identify consumer priorities for future improvements in services and resources for people with younger onset dementia.
- Bring to the Federal and State/Territory Governments’ attention the reality that services for people with dementia are not meeting the needs of people with younger onset dementia.
- Identify ways to improve social inclusion of people with younger onset dementia, their families and carers.
- Promote awareness of younger onset dementia in the community.
People with Down syndrome and their carers will benefit from implementation of most of the recommendations outlined in the Communique presented to the Australian Parliament. The papers from the Summit are now available online here, and the Communique is available in print from Alzheimer's Australia on request.
The Summit was organised by Alzheimers Australia, and included direct input from many people living with Young Onset Dementia, with a number of different causes. Their personal stories and participation gave the Summit a deep insight into their needs.
Friday, 3 April 2009
Thursday, 2 April 2009
Wednesday, 1 April 2009
PWD has posted an E-Bulletin for March2009, including news of its legal challenge to the redevelopment of large residential centres for people with intellectual disabilities in NSW.
A map of the DADHC regional boundaries would have been a useful inclusion. Worth book-marking as a reference.