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Showing posts with label World Down Syndrome Day. Show all posts
Showing posts with label World Down Syndrome Day. Show all posts

Tuesday, 16 May 2017

TOUCHDOWN 21


TOUCHDOWN21 is a research project.
A research project made by people with Down syndrome, about people with Down Syndrome. 
We collect information. 
We want to look at this topic from many different angles. 
And we want to bring together people who are thinking about this topic.
It started in Germany as a World Down Syndrome Day project, and is based there, but all the website pages are now available in English.

There are stories about people with Down syndrome from around the world, art projects, film, history, information and questions.

The idea of people with Down syndrome researching Down syndrome would have been revolutionary until very recently - TOUCHDOWN21 is worth watching to see where it takes us.

Wednesday, 22 March 2017

World Down Syndrome Day media

It is still World Down Syndrome Day in the western hemisphere ... here are some more examples of media attention to the 2017 campaign:

The Morning Show, 21 March 2017
UK photographer Oliver Hellowell aims to demonstrate that 
Down syndrome is something to be celebrated and valued, 
through his poster created for World Down Syndrome Day 2017

World Down Syndrome Day 2017 - #MyVoiceMyCommunity
Down Syndrome International presents a global video journey promoting inclusion of people with Down syndrome. "My Voice, My Community" features videos of people with Down syndrome, among their friends and peers. They talk about how it is important for their voices to be heard, as equal citizens of their countries and they encourage their governments to listen to their concerns.



This is Us - Down Syndrome Ireland, 2017


Tuesday, 21 March 2017

Today is World Down Syndrome Day 2017

World Down Syndrome Day, the 21 March, is an international awareness day to promote a better understanding of Down syndrome, the vital and active role that people with Down syndrome play in our communities and the actions needed to be taken to ensure that people with Down syndrome are able to realise their fundamental human rights. Down Syndrome Australia welcomes the opportunity to be part of this global celebration of people with Down syndrome and effort to combat stigma and misunderstanding about Down syndrome.

This year the theme for World Down Syndrome Day is “My Voice, My Community.” As part of our celebrations for this day, Down Syndrome Australia with the support of the Parliamentary Friends of Down Syndrome are hosting a World Down Syndrome Day morning tea at Parliament House on 22 March. This annual event is an opportunity to bring together politicians, key stakeholders and people with Down syndrome and their families to celebrate this important day.

This year, we are pleased that we have two people with Down syndrome, our South Australian Member Ambassadors, James White and Zoe Kyriazopoulos who will be speaking at the event. We will also be joined by Disability Discrimination Commissioner Alastair McEwin who will talk about the importance of community understanding of intellectual disabilities and the barriers to inclusion faced by people with Down Syndrome.

This event will also be an opportunity to showcase the latest international awareness film produced by CoorDown. This film uses humour to address serious issues around the use of the terminology “special needs” and highlights that the fundamental needs of people with Down syndrome are the same as everyone else- the need for education, employment, access to health care, and the community.

Down Syndrome Australia CEO, Dr Ellen Skladzien said “It is vitally important that we address the stigma and lack of community understanding about Down syndrome. A recent survey we conducted of more than 800 families of people with Down syndrome found that approximately a third of people with Down syndrome and their families had been discouraged from taking part in everyday community activities or education because of their disability.”

World Down Syndrome Day is an opportunity to dispel the myths that surround intellectual disability and to highlight the active potential of people with Down syndrome. As part of our countdown to World Down Syndrome Day, Down Syndrome Australia has profiled 21 people over 21 days to highlight the many different ways that people with Down syndrome are involved in their community. These stories can be found here. 

World Down Syndrome Day will be celebrated around the world, and it will be highlighted in media everywhere. Here a few early local and international examples:
March 21 is World Down Syndrome Awareness Day, Krystal Sellars, Cessnock Advertiser, 20 March 2017
Dear Community, NZ DSA, 21 March 2017 (video, 2m 22s)
I Cannot Do This Alone: Why Allies Matter to the Down Syndrome Community, Maxine Sinda Napal, Huffington Post, 18 March 2017

#World Down Syndrome Day 2017 – Day 21

This year Down Syndrome Australia is celebrating #MyVoiceMyCommunity with the international Down syndrome community. Join us as we count down to  21 March with 21 stories of inclusion and personal success.

... nine years on, I wish I could go back in time and talk to the terrified mummy I was. I would softly tell myself – it is going to be okay. There is nothing to be scared of. Your daughter will develop her milestones, she will talk and sing, she will have friends, she will love swimming, she will go to mainstream school and be involved in extra-curricular activities, she will have her own personality and talents, she will have a vivid imagination, she will learn independent life skills, and she will bring much joy to your family and others around you. You will love her ... read the whole story here.
Today is World Down Syndrome Day. We hope you have enjoyed the stories and photos we have been sharing as much as we have. Visit this page to see and share all 21 stories.

Monday, 20 March 2017

Want to join the #notspecialneeds campaign for World Down Syndrome Day 2017?

The CoorDown Italy collaborative video 'Not Special Needs' released late last week, has been enthusiastically received around the world, especially for its use of humour to make the point about universal human needs.

Do you have a favourite scene? The guy swaggering down the supermarket aisle in a full suit of armour is popular!

You can join in the #notspecialneeds social media campaign with Down Syndrome Australia, one of the international collaborators:
Write your poster, take a photo of you holding your poster and send it to the DSA Facebook page as a message to share on the Down syndrome Australia website, Facebook and Twitter. 
Here is what you put on your poster:
"I need ..........
Is that special? 
#notspecialneeds"
Visit the DSA Facebook page to see the posters already shared.

#notspecilaneeds ! World Down Syndrome Day video's important message
Starting with Julius
The 2017 World Down Syndrome Day (WDSD17) video campaign created by Publicis NY for CoorDown, Italy and with the participation of other Down syndrome organisations, including Down Syndrome Australia, is a powerful example of how inclusive and authentic representation of people with disability in mainstream media can help change cultural attitudes and assumptions to disability – even subconscious attitudes predicated on the well-meaning euphemism “special needs” ...

Maeriah Nicholl, Living with a Little Moxie, 17 March 2017
#NotSpecialNeeds just came out in time for World Down Syndrome Day and it is my favorite short of 2017.

... Main points from the #NotSpecialNeeds campaign are:
  • People with Down syndrome have human needs; not special
  • Accommodation for disability isn’t a “special need”
  • The words “special needs” segregates, excludes and stigmatizes; it’s not by and for people with disabilities (who largely consider “special needs” to be patronizing and condescending) ...

#World Down Syndrome Day 2017 – Day 20

This year Down Syndrome Australia is celebrating #MyVoiceMyCommunity with the international Down syndrome community. Join us as we count down to  21 March with 21 stories of inclusion and personal success.


This is Sean, our eight year old son. He is the youngest of our five children and has Down syndrome. He was diagnosed with Down syndrome when I was 20 weeks pregnant and I was scared and anxious about what the future would hold. But since the moment Sean was born he has brought such joy to our lives and I wouldn’t have it any other way ... read the whole story here.

Sunday, 19 March 2017

#World Down Syndrome Day 2017 – Day 19

This year Down Syndrome Australia is celebrating #MyVoiceMyCommunity with the international Down syndrome community. Join us as we count down to  21 March with 21 stories of inclusion and personal success.

‘A Night to Remember Gala Ball’ is an annual event for 150 young people with disability. They enjoy a night where they receive a three course meal, soft drinks, live band and a photo booth. 
The ball is an opportunity to catch up with friends, make new friends, dance and socialise in a fun environment supported by Down Syndrome South Australia staff and volunteers.

This photo is of Ashlea enjoying herself at the ball.

Saturday, 18 March 2017

#World Down Syndrome Day 2017 – Day 18

This year Down Syndrome Australia is celebrating #MyVoiceMyCommunity with the international Down syndrome community. Join us as we count down to  21 March with 21 stories of inclusion and personal success.

My name is Moya. I’m in grade three, going into grade four.

Last year we did a project with our fantastic resident writer, Caylie Jeffery ... It was so much fun coming up with ideas for our stories. I chose my favourite story, the one I dream about every night, ‘My Holiday Home’ ...
read the whole story here.

Friday, 17 March 2017

Weekend reading and viewing: 18 - 19 March 2017

CoorDown, Italy, Down Syndrome International, Down Syndrome Australia, Down's Syndrome Assocation (UK), Jérôme Lejeune Foundation​ (France), 16 March 2017

We’re proud to present Not Special Needs, the new CoorDown campaign for World Down Syndrome Day, 21 March. The video will be presented at the UN conference on 21 March.
What “special needs” does a person with Down syndrome really have? None.
People with Down syndrome, like everyone else, have basic human needs – to eat, drink, breathe and sleep – to be nurtured, loved, educated and sheltered – to move, communicate, contribute and work – and to share, love and live. 
Sure, people with Down syndrome may need extra assistance. Sometimes they even need significant assistance, and adjustments, to meet a particular need. But that doesn't make that common human need “special” ... see the video, read more on the campaign, the thinking behind it, and suggestions for taking an active part.
Visit the Not Special Needs website, and CoorDown Onlus on Instagram, and you will see some familiar Aussie faces!

You can also see and share  the video via You Tube:



'People make assumptions based on the way people look and act and do not always see the person behind the condition.' 
... 'Just because a person has a disability does not mean that they do not have dreams and hopes for the future,” (Ceridwen) Hughes said. “Many people with disabilities want to work and be valuable members of the community, and often they just need that opportunity' ...
4 March 2017

I’ve never been too fussed either way and have used ‘Down syndrome’ ... it’s the term everyone knows. When I write I don’t particularly want to preach to the choir. It’s no great achievement convincing other parents that our kids are pretty cool—we know that already. I try to reach people who know very little about Down syndrome and may have never met anyone with the condition. I want to show people how much Down syndrome has changed so they may be more understanding and willing to accept Wade–and others with the condition–into the schools they attend or the workplaces they share or any other paths they may cross in the future. It’s a bit hard to change people’s hearts and minds about a condition they’ve never heard of or if they think I am talking about a completely different condition all together ... But I think I’ve changed my mind ...
Leticia Keighley, Embracing Wade
13 March 2017

The University of Kentucky Human Development Institute (HDI) is expanding its photo library and creating an important resource to improve the broad representation of people with disabilities from diverse backgrounds. 
... To create this library of resources, photographers Justin and Andy Meredith will also contribute to this project by donating their time to engage in photo shoots coordinated with the Massachusetts Down Syndrome Congress, the Down Syndrome Association of Central Kentucky and other HDI programs with connections to individuals with disabilities who are interested in participating in the photo shoot ...


This will also be the first time an individual with Down syndrome will participate as one of the principal photographers in this kind of effort. His involvement will also be an important vision of future potential for the many families participating in this photo shoot whose young children have Down syndrome and other disabilities” ... 
Whitney Harder, UKNow 
13 March 2017

Down Syndrome International, 14 March 2017
Ahead of World Down Syndrome Day on Tuesday 21 March, Down Syndrome International (DSi) is delighted to announce the recipients of the 2017 World Down Syndrome Day Awards.

The World Down Syndrome Day Awards are presented to individuals or organisations whose voluntary, professional or scientific activities have strengthened and enriched the lives of people with Down syndrome, or contributed to scientific advancement related to Down syndrome.

Two awards were made to Australians:

For outstanding contribution towards scientific advancement related to Down syndrome:
Dr Pat Gunn (Australia) – Dr Gunn is now retired and in her eighties but she dedicated her entire working life to researching development in children with Down syndrome. Her research explored the psychological and environmental factors influencing how pre-school and school-aged children with Down syndrome acquire social and academic skills. The potential practical implications of this research were always at the forefront of her thinking and she was one of the first researchers in the field to look at development in Down syndrome through the lens of the wider family.
For outstanding contribution towards scientific advancement related to Down syndrome:
The University of Queensland Down Syndrome Research Program (Australia) - This award is for the Down Syndrome Research Program at The University of Queensland – the researchers, participants with Down syndrome, families and benefactors. The program has included a number of aspects; however, the centre piece is a longitudinal study which began with babies and their families in 1978. In 2018, the longitudinal study will celebrate 40 years of continuous research with these individuals and their families.
Read the full list of award winners and their profiles here.

All recipients are invited to a formal presentation of World Down Syndrome Day Awards taking place at the 13th World Down Syndrome Congress (WDSC) in Scotland, United Kingdom in July 2018.


#World Down Syndrome Day 2017 – Day 17

This year Down Syndrome Australia is celebrating #MyVoiceMyCommunity with the international Down syndrome community. Join us as we count down to  21 March with 21 stories of inclusion and personal success.

My name is Peita and I am 35 years old. I have been in the Down Syndrome NSW Up! Club since it started in 2001. It has been a great social outlet for many young people with Down syndrome. Over the years we have had many wonderful leaders who have organised outings for us such as movies, camps, dinners at the pub and cruise holidays. Next year our leader Flavio hopes to take us to the Melbourne Cup. How exciting that would be! 
Apart from the Up! Club I am involved in two local groups. I am also employed full time and leave home at 7.30 am and return home at 6.00 pm, so life is busy. I have been at my job for 16 years and enjoy it very much. I work with a wonderful group of people and am supported by Jobsupport NSW, so between my work and my social life with family and friends I am very busy ... you can also read Peita's story here.

Thursday, 16 March 2017

#World Down Syndrome Day 2017 – Day 16

This year Down Syndrome Australia is celebrating #MyVoiceMyCommunity with the international Down syndrome community. Join us as we count down to  21 March with 21 stories of inclusion and personal success.

Kingsley is a fun, kind and loving boy who gets along with everyone. He was lucky enough to meet the original Wiggles, who he has been the biggest fan of since he was a baby, on their last ever tour. More recently he has become a huge Minions fan! 
Kingsley has speech dyspraxia which he sees a speech pathologist regularly to work on, as he really struggles with verbal communication. The fact that the Minions don't say many actual words is one of the biggest reasons Kingsley is drawn to them and relates to them so much – that and his love of mischief! ... read the whole story here.

Wednesday, 15 March 2017

#World Down Syndrome Day 2017 – Day 15

This year Down Syndrome Australia is celebrating #MyVoiceMyCommunity with the international Down syndrome community. Join us as we count down to  21 March with 21 stories of inclusion and personal success.

When Sam was born, 18 years ago to be exact, I felt as if it was a complete disaster. That my life as I knew it had ended and it was going to be utter misery from now on. My family are all in England and I only knew one person here who had a child with a disability. I felt incredibly alone. 
... On the weekend we celebrated Sam’s 18th with a party of over 80 people. I was able to tell our friends and family that, yes, when Sam was born I was devastated. I wish that I had known then what I know now – happiness in spades. And I must admit there were lots of tears, surprise and laughter when I spoke about our journey with Sam which all started with him arriving in the back seat of the car! ... read the whole story here.

Tuesday, 14 March 2017

#World Down Syndrome Day 2017 – Day 14

This year Down Syndrome Australia is celebrating #MyVoiceMyCommunity with the international Down syndrome community. Join us as we count down to  21 March with 21 stories of inclusion and personal success.

Ruth is a 20 year old woman with Down syndrome who has always enjoyed spending time with children. For the past year she has been working part-time at a child care centre in Queensland. She loves playing with the children but also keeping the centre clean and tidy. One of her favourite jobs is changing nappies. Ruth is in open-employment and paid the award-rate ... read the whole story here.

Monday, 13 March 2017

#World Down Syndrome Day 2017 – Day 13

This year Down Syndrome Australia is celebrating #MyVoiceMyCommunity with the international Down syndrome community. Join us as we count down to  21 March with 21 stories of inclusion and personal success.

Andy is 21 years old and lives with his family. With the support of NDIS funding he has a very fulfilling life. His week is made up of various activities that he chooses himself and negotiates with his support workers. 
Andy’s family has set up a small business making and selling preserves at local farmer’s markets. His role includes counting and setting up the jars for sterilising, packing boxes for markets and helping pack and unpack the car and market stall.
His primary passion in life is basketball and his favourite job is volunteering at his local basketball association every Wednesday afternoon ... read the whole story here.

Sunday, 12 March 2017

#World Down Syndrome Day 2017 – Day 12

This year Down Syndrome Australia is celebrating #MyVoiceMyCommunity with the international Down syndrome community. Join us as we count down to  21 March with 21 stories of inclusion and personal success.

Josie is a 19 year old artist from Sydney. She left school at the end of 2013 to begin a Certificate in Basic Vocational Skills through TAFE NSW and take part in other courses through a local community college. 
Looking to fill up some extra hours, Josie also enrolled in a mainstream painting and drawing class at a local regional art gallery. She was hesitant about taking on this class as she hadn’t been very interested in painting or drawing in the past. When her tutor gave her a photo of a landscape to draw, she created a very good reproduction. Josie’s untapped talent was uncovered much to everyone’s surprise and delight ... read the whole story here.

Saturday, 11 March 2017

#World Down Syndrome Day 2017 – Day 11

This year Down Syndrome Australia is celebrating #MyVoiceMyCommunity with the international Down syndrome community. Join us as we count down to  21 March with 21 stories of inclusion and personal success.

Michael is Chair of NSW Council for Intellectual Disability, on the NDIA Intellectual Disability Reference Group, a member of an Australia wide advocacy group OUR VOICE, and has recently been appointed the University of New South Wales Ambassador for Healthy Aging. 
He is a staunch self-advocate, wonderfully articulate, an excellent role model and an ambassador for giving people with Down syndrome a voice.My work as a self-advocate

I am person with Down syndrome and a self-advocate. When I advocate for myself I am also advocating for others. When I am up there delivering my talk, I take a minute for a quick reflection – I think “I am not just here for myself” and then I go in to my talk ... read the whole story here.

Friday, 10 March 2017

#World Down Syndrome Day 2017 – Day 10

This year Down Syndrome Australia is celebrating #MyVoiceMyCommunity with the international Down syndrome community. Join us as we count down to  21 March with 21 stories of inclusion and personal success.

Although we have been through so many challenges with Jacob, our son with Down syndrome, he is always the light at the end of our tunnel. He is always the smile that keeps us singing through the hard times.

By the time he was one year old he had fought through life threatening infections, open heart surgery and even a dangerous medication overdose. When he was two and a half he learned to walk in the hospital corridors while his baby sister was being born ...  read the whole story here.

Thursday, 9 March 2017

Queensland teen headed to speak at UN


#MyVoiceMyCommunity -  6th World Down Syndrome Day Conference, New York
Location: Trusteeship Council Chamber, United Nations Headquarters, New York, USA 
Date: Tuesday 21 March 2017 - 10am-1pm and 3pm-6pm 
Theme: #MyVoiceMyCommunity - Enabling people with Down syndrome to speak up, be heard and influence government policy and action, to be fully included in the community 

A Redcliffe (Brisbane) teenager is on her way to New York after being invited to speak at the United Nations. Olivia Hargroder has Down syndrome and aims to encourage the global community to deliver better services for people like her ...
Rhea Abraham, 7News Sydney, 7 March 2017
  • Down Syndrome Queensland commented on Facebook: 'We are immensely proud of Olivia and will follow her journey! We know she will be a wonderful speaker and advocate'.
  • The first link in this post is to a 2016 article about Olivia.

#MyVoiceMyCommunity - Geneva eventDown Syndrome International is delighted to be organising an event at the United Nations, Geneva, Switzerland for the first time in 2017. 

#World Down Syndrome Day 2017 – Day 9

This year Down Syndrome Australia is celebrating #MyVoiceMyCommunity with the international Down syndrome community. Join us as we count down to  21 March with 21 stories of inclusion and personal success.
Jazmyn is 13 years old and loves anything to do with hairdressing and music. She has three siblings – her Brother Brodee, 16, her brother Jamieson, 10, and sister Gabrielle, 6. Her parents are Paul and Tina. 
Jazmyn took part in the ABC Radio Faces of Toowoomba Campaign. This is a photo of her at the modelling shoot.

Wednesday, 8 March 2017

#World Down Syndrome Day 2017 – Day 8

This year Down Syndrome Australia is celebrating #MyVoiceMyCommunity with the international Down syndrome community. Join us as we count down to  21 March with 21 stories of inclusion and personal success.

Flynn started day care when he was seven months old. He is now 16 months. When he started we said we wanted to have him included in everything and treated just like the other children. His day care has gone above and beyond our expectations to include him in all their activities, giving him some extra help when he needed it. 
He’s a very inquisitive boy who thrives on interaction with his friends and is already developing some beautiful friendships ... read the whole story here.