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Showing posts with label Media. Show all posts
Showing posts with label Media. Show all posts

Monday, 22 May 2017

Adult siblings: SBS 'Insight'

Siblings Australia posted on Facebook on 19 May about an opportunity for siblings to contribute to an episode of Insight on SBS TV:
SBS TV’s Insight program wants to know what’s it like growing up with a brother/sister with a disability and would love to hear from siblings. 
Please contact rose.hesp@sbs.com.au All conversations confidential. If you talk to Rose it doesn't mean you will be invited to be in the audience and you can also say you are willing to talk with her but NOT go on the show if you prefer. 
The program is currently scheduled to be pre-recorded on Tuesday, 20 June, 7pm – 9pm at the SBS TV studios in Artarmon, Sydney. It will be broadcast soon after on a date to be announced. 
For more background information, visit the Facebook post, or email Kate Strohm at Siblings Australia kate@siblingsaustralia.org.au

Tuesday, 9 May 2017

Representation in advertising and media

How to change the world through advertising
Geneieve Clay-Smith, Taste Creative, 5 May 2017
It might sound like a bold and idealistic statement, but when we represent diverse people in advertising campaigns and when we challenge gender roles, we’re having an impact on society ... Apart from being the right thing to do, it makes sense — people with disabilities need the same stuff as everyone else! They have money, they are consumers too, of course it’s a good idea to include people with disabilities in marketing — all brands should do it ...



Something to watch out for - this comic book launches in July 2017:


Comedian Rosie Jones wants disabled TV characters who are 'gritty and flawed'
BBC, 14 April 2017
Stand-up comic and writer Rosie Jones says we need to see disabled characters on TV "who are gritty, and flawed, and three-dimensional like every other person is". The comedian, who has cerebral palsy, says she's "angry at how disabled people are portrayed by the media" ...
Oscars diversity debate must include learning disability
The Guardian (Letters), 24 February 2017
Diversity has long been an issue at the Oscars, which are due to be awarded on Sunday. Last year’s #OscarsSoWhite campaign highlighted the lack of racial diversity. But disability has been overlooked in this debate, with even less of a voice for people with a learning disability ...

Hollywood's push for diversity is ignoring the largest minority community
Gregg Mozgala, America Magazine, 28 February 2017
At Sunday’s Oscar ceremony, five African Americans received Academy Awards, for acting, producing and screenwriting. This came one year after the Academy of Motion Picture Arts and Sciences was blasted from all sides for not being “diverse” enough. Today, the Academy is being hailed for its immense progress in the area of inclusivity.

But this is only one thread of progress. Authentic diversity would mean including a group of artists who gain almost no mention in the popular press ...

Where Were the Actors with Disabilities at the Oscars?
Easter Seals, 27 February 2017
The 2017 Academy Awards presentation was all about diversity. So where were the actors with disabilities?

A Los Angeles Times interview with Academy Award winning actress Marlee Matlin asks the same question. Matlin is deaf, and her Oscar for best actress in Children of a Lesser God marks the last time an actor with a disability won an Academy Award. The only other actor with a disability to ever win an Oscar was Harold Russell, a veteran who lost both hands during World War II. He earned two Oscars in 1947 for his role in 'The Best Years of Our Lives' ...

A recent study found only 4 per cent of TV show characters in Australia had a disability
Every Australian Counts, 14 February 2017
A recent piece of research by Screen Australia benchmarked the current diversity of Australian TV by analysing nearly 2000 main characters from 199 free-to-air Australian TV shows.

'Seeing Ourselves: Reflections on Diversity in TV Drama' found that only 4 per cent of TV show characters in Australia had an identifiable disability. In reality, just over 18 per cent of Australians have a disability.

This research also analysed who plays characters with disability, and what this means to stakeholders. It found that actors without disabilities are placed in 91 per cent of roles for characters with disability.

See the full article summarising the research on the Centre for Applied Disability Research here.

Friday, 5 May 2017

Disability sector news

New facility
Win News Sunshine Coast, 3 May 2017 (news video)
An Australian first college for young people with disabilities has opened its doors in Caloundra.

Dylan Alcott 2017 Patron for International Daw of People with Disability
Dylan Alcott is one of Australia’s most successful and well recognised Paralympians. Born with a tumour wrapped around his spinal cord, Dylan survived a three year battle to live and has been achieving ever since ...

NSW CID board member strikes again, this time at the UN
NSW Council for Intellectual Disability Board Member Robert Strike has been selected to attend high level talks on issues affecting people with disability at the United Nations in New York in June ...


Funding for community legal centres
While the NSW Government had already planned to implement a 'rescue package' of funding for community legal centres, such as the Intellectual Disability Rights Service,
... the federal government is to reverse its controversial funding cuts to Community Legal Centres (CLCs) in the upcoming budget – a move the community legal sector has described as a “huge relief” ... Government Reversal on Cuts to Community Legal Centres, Pro Bono Australia News, 29 April 2017
Clickability: new disability serices review site to go nationalSam Carroll, SBS, 9 March 2017
Two Melbourne-based social workers have developed a 'TripAdvisor-style' website allowing people with disabilities and their carers to rate and review support services on offer ...

Tuesday, 25 April 2017

People with Down syndrome


At Home With Calligrapher Kanazawa Shōko—Down Syndrome and Independence
Nippon.com, 13 April 2017
Kanazawa Shōko is an acclaimed calligraphy artist with Down syndrome. At the age of 30 she moved into an apartment to live alone—another feat that most people would consider impossible for someone with her disability. We take a peek at her daily life in a residential district of Tokyo ...
Brooke Bednarz, News Chanel 25, 9 April 2017
... Bobby Henry has worked at McLane Children's, previously King's Daughters, for 25 years. And while he makes everyone around him smile, he thinks his job is just to "pick up trash and laundry," Henry said.

But, he does so much more than that ...

... The couple, both 35, have lived together for 10 years, and say they have a relationship with all the normal ups and downs. Pemberton believed her personality was a more defining factor than her Down Syndrome ...

Wednesday, 12 April 2017

News and commentary on the NDIS (65)

Jessica Irvine, Sydney Morning Herald, 10 April 2017
Everyone knows the National Disability Insurance Scheme is a great idea, but hopelessly over budget – an expensive Labor extravagance – right? Don't buy the lie.

'National Disability Insurance Scheme Costs' review
More than 180 submissions have been received in response to the Productivity Commission's Issues Paper, National Disability Insurance Scheme Costs. Initial submissions were due by 24 March 2017. Opportunity for further comment will be sought upon release of the position paper in May 2017.

The study will examine issues including: the sustainability of scheme costs; jurisdictional capacity (including the complementary disability services provided by the States and Territories); cost pressures (including wage pressures); changes in the agreed escalation parameters; whether efficiencies have been achieved within the scheme; whether there has been any impact on mainstream services; and examine the most appropriate levers to manage any potential cost overruns.
A broad range of organisations and individuals have responded, including Down Syndrome Australia - background and summary of the DSA submission and a link to the paper

NSW Government privatisation plans leave people with disabilities in uncertainty
Alison Branley, ABC, 7 April 2017
Now the NSW Government has confirmed it has a long-term plan to sell off these homes as part of the move to a National Disability Insurance Scheme (NDIS).

NSW Disability Services Minister Ray Williams said in the medium term the properties would be leased to private community housing providers under five to 10-year agreements. But after that, they would be sold ...


Disability services sell-off in New South Wales being bungled, carers say
Alison Branley, ABC News, 31 March 2017
Carers of people with a disability have accused the NSW Government of bungling its sell-off of disability services.

The State Government currently runs about 300 group homes in NSW and now that service has been put out to tender under the shift to the National Disability Insurance Scheme (NDIS). This sell-off has left many residents and their families anxious and uncertain about their future.

Families of residents said they were angry the process had been structured so they have only one choice in many areas, and often it was a larger organisation ...


Siblings and the NDIS
Kate Stohm, Every Australian Counts, 8 March 2017
The NDIS is a new way of supporting people with disability. Whilst it aims to provide greater choice and control regarding services for participants it also recognises the important role of ‘informal supports’ ...

Disability Advocacy Funding Failure
Lena Cavena, Pro Bono News Australia, 9 March 2017
The future of many disability advocacy organisations is under threat with the expected loss of NSW government funding from July 2018 as the National Disability Insurance Scheme (NDIS) continues to roll out nationally. 

Under the terms of NSW’s NDIS deal with the federal government, the state will hand over all its disability budget to the Commonwealth from 1 July 2018.

The CEO of Disability Advocacy NSW, which is one of the largest disability advocacy services in the state, is Mark Grierson. He told Pro Bono News that the NDIS definition of disability support excluded advocacy and health-related services ...


Weekly Q and A 
NDIS, from 24 March 2017
We established this weekly Q and A forum because we are reading your comments, and want to answer the most commonly asked questions, including those with answers we think will be helpful to a wide range of people who visit our social media channels.

  • Q and A forums are located on the 'news' page, 7 April and 13 April now listed.


____________________________________

The official NDIS website provides access to documents, and up to date information about how the NDIS works, and NDIS events such as local workshops and webinars.


NDIS and Me
People with Down syndrome and/or their families and carers can join the closed Facebook Group, NDIS and Me, for discussion specifically about the NDIS and people with Down syndrome.


Disability Loop - a way to find out more about the National Disability Insurance Scheme (NDIS). Disability Loop is a project funded by the NDIS. It is run by, and for, people with disability and their allies.

Two other closed Facebook groups (only members can see the posts) that you might find useful for answering particular queries are:
  • NDIS Grassroots Discussion - a large group run for and by people with all kinds of disabilities, and welcoming of carers - the administrators are very experienced in managing discussions that can become robust at times, as criticism of the NDIS is raised
  • the newer and smaller I Love NDIS aims to promote discussion of individual's successes in putting their plans together and implementing them.

Wednesday, 5 April 2017

People with Down syndrome


Ben and Co’s inspiring story to fill gap in community
Gearja Ryan, The Daily Examiner, 27 March 2017
Ben Hunter beams as he bakes and sells an impressive range of muffins, biscuits and slices at local markets. The 20-year-old, who is non-verbal and has Down syndrome, develops his produce in his own commercial kitchen, with his NDIS support workers, Sarah and Nandi, and his mum, Carolyn ...

News Beat (BBC), 22 March 2017
A teenager with Down's syndrome has addressed the United Nations in Geneva to call for more equality. Kathleen Humberstone spoke out against discrimination during the event marking World Down's syndrome day ...
In My Own Words: Miles Evans
People with Down Syndrome, 8 March 2017
Miles Evans has won numerous awards for his photography, and has presented his work at shows. He also sells his framed photos and photocards. For Down Syndrome Awareness month this year, proceeds from his sales went to benefit the Adult Down Syndrome Center at Advocate Lutheran General Hospital and the National Association for Down Syndrome ...

Down's Syndrome woman to present weather on French TV after winning hearts
Oliver Gee, The Local, 3 March 2017
Mélanie's dream has always been to be a weather presenter on TV - and that dream is about to become a reality after her social media campaign went viral ...

Born With Down Syndrome, Shy Teen Competes In Bodybuilding
Joanne Kimberlin, The Virginian-Pilot/TNS, 27 February 2017
Life hasn’t been easy for Jon Atkins. Born with Down syndrome, he deals with a lot of just-can’t-dos. It took years to learn to count to 10. At 19, he’s able to read 30 or so words. Fine motor skills — buttoning a shirt — remain frustrating.

But Jon is no quitter, and he’s found something he’s pretty good at: bodybuilding ...


We have posted an earlier link to an article about Kaleigh William's half-marathon. It is good to see it featured in Runners' World as well:

Runner With Down Syndrome Dances Her Way Through Half Marathon Finish Line
Heather Mayer Irvine,  Runners' World, 24 February 2017
The course had been packed up for hours. Most spectators were long gone. Every single half marathoner had collected his or her race medal and headed to a celebratory brunch. All but one.

Kayleigh Williamson, 26, crossed the Austin Half Marathon Finish Line in 6:22:56, making her the first person with Down syndrome to complete the Texas race.

“I kept going,” Williamson told Runner’s World by phone. “[When] I hit the finish line I was proud of myself. My friend got me pretty nice flowers.

About Down's Syndrome : Daniel
Down's Syndrome Association (UK)
My name is Daniel. I want to tell you about my Duke of Edinburgh Silver award ...

We Can
Same but Different
A UK photography project that aims '... to promote greater awareness of the huge amounts that can be achieved by adults with learning difficulties and children with complex needs. In the “We can. ...” project we will use photography to capture powerful images, video’s and written pieces to tell their stories. 
Two people with Down syndrome are included so far:  Mark and Kate

Tuesday, 4 April 2017

Arts news and commentary

CREATEABILITY 2017 is a Screenworks initiative supported Screen NSW and the ABC that provides funded opportunities for professional filmmakers living in Regional NSW to profile artists with disability living and creating in their communities. 
The key objective of CREATEABILITY 2017 is to profile work produced by artists with disability through identified arts organisations and screen media.
Registrations for CREATEABILITY 2017 will close at midnight on Sunday 23rd April 2017
Sydney Opera House 2017 Access Program launched
Accessible Arts Newsletter, March 2017:
The Sydney Opera House has unveiled its 2017 Access Program, featuring more than 70 accessible performances, workshops and experiences to ensure the Opera House is open to all. 
Underpinned by the Sydney Opera House’s Access Strategic Plan 2016-18, the 2017 program is the Opera House’s biggest yet, increasing the number of accessible performances available to the community.  
Visit the Sydney Opera House official Media Release online here for the list of performances. 
Alongside its year-round Access Program, the Opera House is making significant progress with its plans to open up more of the building to the public and improve access around the site for those with mobility issues. These essential works, which form part of Stage 1 Renewal of the Opera House, include greater access to the Concert Hall and Joan Sutherland Theatre, wheelchair accessible seating positions and new Box Office and Foyer lifts and escalators. 
Sydney Opera House CEO Louise Herron AM said: “Accessibility is a major focus for us. As we renew the building for future generations we are looking at every possible opportunity to make the Opera House more accessible – from programming to the building itself."

It's not OK for actors to 'black up'; nor is it OK to act out disability
Carly Findlay, Sydney Morning Herald, 23 March 2017
The disability community – people with disability and parents alike – is excited about Speechless, now screening on Channel Eleven. It's one of the first TV shows that does not depict disability as a tragedy, burden or something to be ashamed of ...

Cara Liebowitz, NOS Magazine, 8 March 2017
I love ABC’s Speechless. It is one of my favorite shows currently on the air. As someone with cerebral palsy, I’m beyond thrilled that someone like me is finally being shown on TV as just a regular character, not a “special” guest to teach the non-disabled characters the meaning of kindness. Micah Fowler, who plays JJ, actually has cerebral palsy, a fact that excites me to no end.

Unfortunately,the show has a worrying trend of sort of sideways swiping a trope or stereotype about disability, but not directly subverting it. It’s like after the first few episodes, the show lost its nerve. And nowhere was that more obvious than the latest episode, O-S-Oscar P-A-Party ...


The Shows Shaking Up Disability Representation
David M. Perry, Pacific Standard, 8 March 2017
'Speechless' and 'Switched at Birth' deliver great jokes, soapy family drama, and a primer in contemporary issues facing the disability community ...

Oscars diversity debate must include learning disability
Letters, The Guardian, 25 February 2017
Diversity has long been an issue at the Oscars ... Last year’s #OscarsSoWhite campaign highlighted the lack of racial diversity. But disability has been overlooked in this debate, with even less of a voice for people with a learning disability ...

Tuesday, 28 March 2017

The Australian Federation of Disability Organisations joins calls for Royal Commission into abuse of people with disability

Following last night's harrowing episode of Four Corners, with its expose of abuse of people in care, Down Syndrome Australia once again reiterates its strong support for a Royal Commission into the abuse of people with disabilities.
  • The 4 Corners episode Fighting the System is available on ABC iView until 26 April 2017

AFDO media release 28 March 2017:

The Australian Federation of Disability Organisations (AFDO) today joined calls from across the disability sector for a Royal Commission into the violence, abuse and neglect experienced by Australians with disability.

Last night’s Four Corners investigative report exposed harrowing tales of the abuse and assault of people with disability living in specialist disability accommodation. The episode highlighted not only individual cases of violence and assault but also the woefully inadequate system responses when incidents came to light.

The Chief Executive Officer of AFDO, Mr Ross Joyce, said that while last night’s stories were heartbreaking, they were sadly not shocking for anyone familiar with the disability system.

Disability Groups Call For Royal Commission Into Violence Against People With Disability

  • The 4 Corners episode Fighting the System is available on ABC iView until 26 April 2017

Disabled People's Organisations Australia, 27 March 2017

Tonight’s ABC Four Corners report, ‘Fighting the System’ exposed more evidence of the appalling levels of violence and abuse against people with disability in Australia. This is only the tip of the iceberg. In light of the graphic and disturbing cases revealed this evening, Disabled People’s Organisations Australia (DPO Australia), calls on the Federal Government to reconsider its recent refusal to conduct a Royal Commission into violence and abuse of people with disability.

“Tonight, more evidence has come to light that supports the case for a Royal Commission. It is only a Royal Commission that has the weight, the investigative powers, the time and resources to open the doors to the many ‘closed’ institutions and residential environments, and expose Australia’s shameful secret,” said Therese Sands, Director, DPO Australia.

“People with disability are routinely denied access to justice, both at a civil and criminal level because of law, policy and practice barriers. A Royal Commission would give space and recognition to people with disability to tell their story, to be believed, and would enable some measure of accountability and justice,” said Ms Sands.

The 2015 Senate Committee Inquiry into violence and abuse against people with disability in institutional and residential settings found that violence and abuse was prolific and hidden. The central recommendation of the committee was the establishment of a Royal Commission.

The Federal Government ruled out a Royal Commission in its response to the Senate Inquiry earlier this month. The Government noted that it was addressing violence and abuse against people with disability by establishing the Quality and Safeguarding Framework for the National Disability Insurance Scheme (NDIS).

Sunday, 26 March 2017

4 Corners investigates supported accommodation

This confronting episode of 4 Corners screens tomorrow night:

Fighting the System, 4 Corners, ABC TV 1
8.30 pm Monday 27 March 
"I brought him into this world, and I love him. I do all I can to help him. I'm 88 soon. I'm still battling." Jean, mother. 
On Monday night Four Corners exposes what happens behind closed doors in some taxpayer funded group homes for the disabled and talks to the mothers and carers taking on the system ...
Fighting the System, reported by Linton Besser and presented by Sarah Ferguson
is replayed on Tuesday 28th March at 10.00am and Wednesday 29th at 11pm. It can also be seen on ABC News 24 on Saturday at 8.00pm AEST, ABC iview and at abc.net.au/4corners.

Wednesday, 22 March 2017

World Down Syndrome Day media

It is still World Down Syndrome Day in the western hemisphere ... here are some more examples of media attention to the 2017 campaign:

The Morning Show, 21 March 2017
UK photographer Oliver Hellowell aims to demonstrate that 
Down syndrome is something to be celebrated and valued, 
through his poster created for World Down Syndrome Day 2017

World Down Syndrome Day 2017 - #MyVoiceMyCommunity
Down Syndrome International presents a global video journey promoting inclusion of people with Down syndrome. "My Voice, My Community" features videos of people with Down syndrome, among their friends and peers. They talk about how it is important for their voices to be heard, as equal citizens of their countries and they encourage their governments to listen to their concerns.



This is Us - Down Syndrome Ireland, 2017


Tuesday, 21 March 2017

Today is World Down Syndrome Day 2017

World Down Syndrome Day, the 21 March, is an international awareness day to promote a better understanding of Down syndrome, the vital and active role that people with Down syndrome play in our communities and the actions needed to be taken to ensure that people with Down syndrome are able to realise their fundamental human rights. Down Syndrome Australia welcomes the opportunity to be part of this global celebration of people with Down syndrome and effort to combat stigma and misunderstanding about Down syndrome.

This year the theme for World Down Syndrome Day is “My Voice, My Community.” As part of our celebrations for this day, Down Syndrome Australia with the support of the Parliamentary Friends of Down Syndrome are hosting a World Down Syndrome Day morning tea at Parliament House on 22 March. This annual event is an opportunity to bring together politicians, key stakeholders and people with Down syndrome and their families to celebrate this important day.

This year, we are pleased that we have two people with Down syndrome, our South Australian Member Ambassadors, James White and Zoe Kyriazopoulos who will be speaking at the event. We will also be joined by Disability Discrimination Commissioner Alastair McEwin who will talk about the importance of community understanding of intellectual disabilities and the barriers to inclusion faced by people with Down Syndrome.

This event will also be an opportunity to showcase the latest international awareness film produced by CoorDown. This film uses humour to address serious issues around the use of the terminology “special needs” and highlights that the fundamental needs of people with Down syndrome are the same as everyone else- the need for education, employment, access to health care, and the community.

Down Syndrome Australia CEO, Dr Ellen Skladzien said “It is vitally important that we address the stigma and lack of community understanding about Down syndrome. A recent survey we conducted of more than 800 families of people with Down syndrome found that approximately a third of people with Down syndrome and their families had been discouraged from taking part in everyday community activities or education because of their disability.”

World Down Syndrome Day is an opportunity to dispel the myths that surround intellectual disability and to highlight the active potential of people with Down syndrome. As part of our countdown to World Down Syndrome Day, Down Syndrome Australia has profiled 21 people over 21 days to highlight the many different ways that people with Down syndrome are involved in their community. These stories can be found here. 

World Down Syndrome Day will be celebrated around the world, and it will be highlighted in media everywhere. Here a few early local and international examples:
March 21 is World Down Syndrome Awareness Day, Krystal Sellars, Cessnock Advertiser, 20 March 2017
Dear Community, NZ DSA, 21 March 2017 (video, 2m 22s)
I Cannot Do This Alone: Why Allies Matter to the Down Syndrome Community, Maxine Sinda Napal, Huffington Post, 18 March 2017

Monday, 20 March 2017

Want to join the #notspecialneeds campaign for World Down Syndrome Day 2017?

The CoorDown Italy collaborative video 'Not Special Needs' released late last week, has been enthusiastically received around the world, especially for its use of humour to make the point about universal human needs.

Do you have a favourite scene? The guy swaggering down the supermarket aisle in a full suit of armour is popular!

You can join in the #notspecialneeds social media campaign with Down Syndrome Australia, one of the international collaborators:
Write your poster, take a photo of you holding your poster and send it to the DSA Facebook page as a message to share on the Down syndrome Australia website, Facebook and Twitter. 
Here is what you put on your poster:
"I need ..........
Is that special? 
#notspecialneeds"
Visit the DSA Facebook page to see the posters already shared.

#notspecilaneeds ! World Down Syndrome Day video's important message
Starting with Julius
The 2017 World Down Syndrome Day (WDSD17) video campaign created by Publicis NY for CoorDown, Italy and with the participation of other Down syndrome organisations, including Down Syndrome Australia, is a powerful example of how inclusive and authentic representation of people with disability in mainstream media can help change cultural attitudes and assumptions to disability – even subconscious attitudes predicated on the well-meaning euphemism “special needs” ...

Maeriah Nicholl, Living with a Little Moxie, 17 March 2017
#NotSpecialNeeds just came out in time for World Down Syndrome Day and it is my favorite short of 2017.

... Main points from the #NotSpecialNeeds campaign are:
  • People with Down syndrome have human needs; not special
  • Accommodation for disability isn’t a “special need”
  • The words “special needs” segregates, excludes and stigmatizes; it’s not by and for people with disabilities (who largely consider “special needs” to be patronizing and condescending) ...

Tuesday, 21 February 2017

People with Down syndrome in the media



Student with Down Syndrome told she would never talk gives first public speaking address to hundreds
Emilie Ng, The Catholic Leader, 16 March 2016
Olivia Hargroder is a self-confessed “chatterbox”, but she was never expected to learn to speak.
Born with Down Syndrome, the 16-year-old underwent major heart surgery and was not expected to live ... Almost 16 years after the doctor’s original prognosis, Olivia took centre stage at at her first speaking engagement at a national education conference last week “to teach the teachers” about how to treat children with Down Syndrome.


Model with Down syndrome launches design label at New York Fashion Week
Patricia Reaney, Reuters, 13 February 2017
... The Australian-born model challenged fashion industry norms with her first catwalk appearance in 2015 and is credited with changing perceptions about people with Down syndrome. She hopes to do the same with her new label, 21 Reasons Why by Madeline Stuart ...

Kitchener yoga instructor with Down syndrome pursues her dreamsValerie Hill, Waterloo regional Record, 16 February 2017
If anyone can bust stereotypes about people with Down syndrome, it's Karen Lord.

The feisty 38-year-old lives in her own apartment, has a new boyfriend, works a couple of part-time jobs in the service industry and she has travelled to England on her own to visit a friend ...


Down syndrome won't keep me down: four friends open own pizza business!Zayaan Schroeder, Parent 24, 17 February 2017
In Argentina, four friends Mauri, Leandro, Franco and Mateo were just a little tired of the social and work-related discrimination that came along with having Down's syndrome ...

Runner hopes to be first woman with Down syndrome to finish Austin Marathon
Amanda Brandels, kxan.com, 15 February 2017
This weekend the Austin Marathon will test the strength and endurance of thousands of athletes. One of those runners is 26-year-old Kayleigh Williamson, who hopes to set a record of her own for the city. She has Down syndrome and was inspired to run long distances because of her mother. Williamson trains at RunLab Austin, working with specialists on her stability and technique ...
Pauline Garcia makes her own way
David Roza, The Elsworth American, 18 February 2017
Every Monday and Wednesday since 2015, 21-year-old Pauline Garcia has worked at the Down East Family YMCA’s Early Learning Center, where she looks after preschoolers as a teacher’s assistant.

She reads books to the kids, sets up stations where they can play, helps them put their winter clothes on and keeps them focused when the teacher is talking. Keeping an eye on 15 to 18 small children is an exhausting task for anybody, but Garcia has to work with an extra challenge. She has Down syndrome, which can make it harder for her to stay focused during an eight-hour work day ...

Thursday, 16 February 2017

News and commentary on the NDIS (63)

Developing and starting your first plan - NDIS webinar
2.00pm-3.00pm Tuesday 28 February 2017 (AEDT)
NDIA hosted webinar about your NDIS First Plan and how to put it into action.
It’s free to watch, and the live and online panel will be answering questions submitted by viewers on the day. 
If you have questions about the first plan process or want to hear about how you might best implement your plan, this is the webinar for you!
Probono Australia, 25th January 2017
The wellbeing of carers caring for an individual participating in the National Disability Insurance Scheme (NDIS) may not have improved compared to those not on the scheme, according to researchers who are embarking on stage three of a national investigation ...

NDIS Housing - 4 key questions
Luke Bosher and Libby Ellis, Disability Services Consulting, 5 February 2017
Literally tens of thousands of people with disability (and families) are thinking about how the NDIS will enable a move out of the family home and into a house of their own.

... Ultimately, participants and their families will need to decide for themselves where they live, who they live with and how they are supported ...


The Inclusion Hub is a new online tool to support Australian families, Early Childhood Intervention (ECI) practitioners and communities with the resources they need to navigate the National Disability Insurance Scheme (NDIS). 
The site has been developed by Early Childhood Intervention Australia (ECIA). Our ECI experts have selected all the best available resources to support families and children with disability and/or developmental delay. It is our goal to make it easy for families, early intervention providers, early childhood educators, medical professionals and the community to have available to them resources, ideas and stories all in one place. 
The Inclusion Hub encompasses a resource directory, a glossary of common terms, webinars, articles, newsletters, downloads and more.
Concerns NDIS Quality and Safety Framework Forgets Majority of People With DisabilityEllie Cooper, Pro Bono Australia, 7 February 2017
Disability advocates welcomed the release of the long-awaited NDIS quality and safety framework, but expressed concern about the significant number of people outside the scheme who won’t be protected ...

Every Australian Counts, 13 February 2017
Until now each state and territory has been responsible for ensuring the quality of NDIS services and protecting NDIS participants in their jurisdiction. But that’s set to change under the new national NDIS Quality and Safeguarding Framework ...

The Policy Problem: The NDIS and Implications for Access to Education
Pro Bono Australia, 7 February 2017
Despite the policy priority across OECD countries of increasing lifelong learning opportunities, fragmented NDIS policy in Australia prevents people with disability from achieving this ideal, write academics Ben Whitburn, Julianne Moss and Jo O’Mara from Deakin University ...

Hunter workers join Sydney disability services rally
Ian Kirkwood, Newcastle Herald, 14 February 2017
About 700 public sector disability workers braved pouring rain and NSW government threats of legal action to rally outside Parliament House against the privatisation of government disability services.


Additional responses to the Omnibus Bill proposal:

Architect of NDIS lashes Federal Government over funding for the scheme (audio 2m 48s)
Peta Donald, ABC AM, 16 February 2017
The man sometimes called 'the father' of the National Disability Insurance Scheme has criticised the Federal Government over the debate this week on how the scheme's to be paid for. The government wants the Senate crossbench to support cuts to family payments, in order to fund the NDIS.

Bruce Bonyhady, the inaugural chairman of the National Disability Insurance Agency, says linking the two is deeply unfair, and cruel to disabled Australians.


Political debate over future funding for the National Disability Insurance Scheme raises concerns (audio only) (audio 4m 45s)
Emily Bourke, ABC PM, 15 February 2017
Well, disability advocates say they're increasingly alarmed by the tone and substance of the political debate over the future funding for the National Disability Insurance Scheme (NDIS) ...

National Disability Insurance Scheme: Where will the cash come from?
Jane Norman, ABC News, 15 February 2017
A ferocious argument has erupted between the Federal Government and Opposition over the funding for the $22 billion National Disability Insurance Scheme (NDIS) ...
Hearing Morrison use disabled people as political pawns gave me the creeps
Michael Buckley, The Guardian, 14 February 2017
Tying the omnibus savings bill to NDIS funding was cynical. I wasn’t surprised – we disabled are used to being treated with contempt by this government.

Leaving aside the ethical question of harming one group of poor – the bill would push unemployed people under 25 from Newstart to Youth Allowance, as one example – to help another, there is something quite unsettling about the way Morrison is framing a refusal to vote for the omnibus as some kind of attack on the NDIS. It’s unsettling to see a bipartisan enterprise like the NDIS (remember that sense of hope when it was introduced) used as a wedge in this way ...


Agree to welfare cuts or forget funding for childcare and the NDIS? The government's ultimatum that failed
Georgina Dent, Women's Agenda, 14 February 2017
Yesterday the federal government ramped up the pressure on senators who might block its $4 billion omnibus of savings - comprising significant welfare cuts - by indicating that would put funding for childcare increases and the National Disability Insurance Scheme at risk ...

Here's a tip: don't pick on disabled people
Laura Tingle, Australian Financial Review, 13 February 2017
Christian Porter is often touted as a conservative contender for future prime minister. He's smart. He's personable. He's got the experience of being a state attorney-general and treasurer under his belt despite his relative youth.

What he hasn't got is any political touch. He rather showed that last year when he missed a huge opportunity to parade himself as an innovative policy maker with some interesting ideas - and create a new platform for debating welfare spending - when he instead sold the government's adoption of the New Zealand investment approach to social welfare as yet just another exercise in ways to save eleventy billion dollars in a hundred years time.

So here's a tip Christian: don't pick on disabled people ...
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The official NDIS website provides access to documents, and up to date information about how the NDIS works, and NDIS events such as local workshops and webinars.

NDIS and MePeople with Down syndrome and/or their families and carers can join the closed Facebook Group, NDIS and Me, for discussion specifically about the NDIS and people with Down syndrome.

Disability Loop - a way to find out more about the National Disability Insurance Scheme (NDIS). Disability Loop is a project funded by the NDIS. It is run by, and for, people with disability and their allies.

Two other closed Facebook groups (only members can see the posts) that you might find useful for answering particular queries are:
  • NDIS Grassroots Discussion - a large group run for and by people with all kinds of disabilities, and welcoming of carers - the administrators are very experienced in managing discussions that can become robust at times, as criticism of the NDIS is raised
  • the newer and smaller I Love NDIS aims to promote discussion of individual's successes in putting their plans together and implementing them.

Wednesday, 15 February 2017

Q and A on the NDIS next week (ABC TV)

People with Disability Australia has posted on their Facebook page today:

'ABC TV's program Q and A will be in Sydney next week, talking about the NDIS. Would you like to go along and ask a question?

On the panel will be:
Attorney General George Brandis
Deputy Opposition Leader Tanya Plibersek
Human rights advocate Julian Burnside
News Corp columnist and Editor Piers Akerman
CEO Roy Morgan Research Michele Levine
Register here to join the live studio audience.
In Q.13 (how did you hear about us) please write People with Disability Australia as a reference.

If your registration is successful someone from the Q and A team will be in touch.'

Tuesday, 14 February 2017

Representation of people with disability

Vogue’s “Diversity Cover” – The View from the First FloorCatia Malaquias, Starting with Julius, February 2017
The Vogue cover disappointingly reflects the narrow prism through which ‘high-fashion’, and much of the fashion and advertising worlds, continue to see and reflect ‘human diversity’, which seems increasingly at odds with what many consumers would like to see reflected even on the glossy pages of fashion magazines ...

#ShePersisted: She Has a Disability and She Persisted, TooMeriah Nichols, Meriahnichols.com, 9 February 2017
These are images of powerful, resilient, strong, fierce fighters of women’s rights, education, sexual and racial equality. But where are the disabled fighters in that image?

Do the disabled fighters exist?


On the ‘right’ way to be disabled
Paniz Khosroshahy, McGill Daily, 6 February 2017
... Currently the only examples we have in our media is either the promotion of elite sports for Paralympics, or representations where a disabled person is either a villain, or lonely, never a romantic interest, or they’re evil, or they want to end their life because that’s how bad having a disability is. They would rather not exist than have a disability. This type of media representation leads people to assume that [disabled people] can’t do anything so when you can make it into university or go grocery shopping they’re surprised that you can do normal everyday tasks ...

Tuesday, 31 January 2017

Down Syndrome NSW and Bus Stop Films - a little history

A little bit of Down Syndrome NSW history featured in a Sydney Morning Herald article yesterday,  in the Meet the Boss series. Bus Stop Films has grown into a strong, highly respected multi-award winning initiative under Genevieve Clay-Smith's leadership, providing arts, learning and employment opportunities for many adults with Down syndrome. We've written about  the involvement of people with Down syndrome in Bus Stop activities and achievement many times in our posts. 

We're pleased to have had a role in its development:
... answering an ad in the university newspaper set the then 19-year-old onto a far more intriguing path; one which, in 2015, led her to being awarded NSW Young Australian of the Year. 
"Down Syndrome NSW wanted a filmmaker to make a documentary. I spent two years with the six families in the film, and it changed my life," Clay-Smith says. 
When the project was finished one of the participants, a young man with Down syndrome, said that he wanted to be an actor. 
Clay-Smith got to work ...   
Sue White, Sydney Morning Herald 
30 January 2017 

Monday, 23 January 2017

Representation

Why The Publishing Industry Can’t Get Disability Right
By Alaina Leary, The Establishment, 17 November 2016
... there aren’t enough portrayals of disability in the stories we publish, the stories we read. We have one or two “typical” stories, usually steeped in pity, and people aren’t being exposed to anything else.

And it’s affecting all of us. It affected the way many of my abled classmates perceived my protagonist that afternoon, and it affected the way I, as a disabled writer, felt about including these stories in my work, and having the diversity of the disability experience validated ...


Catia Malaquias, Speech at National Disability Services WA, for International Day of People With Disability, 2 December 2016
... as a non-disabled person invited on this stage, I would like to acknowledge people with disability for allowing me to speak to their context and on this day ... 

... to really understand the mission of Starting with Julius, we need to look back longer, to a time long before Julius. A time when attitudes to people like my son, were largely driven by fear, ignorance and even superstition. When people with disability were routinely kept apart from the rest of society and denied the most fundamental human rights – including rights to family, education, work and community ...

Wednesday, 21 December 2016

People with Down syndrome

James is crashing barriers
Barossa Leader, 2 December 2016
“Life’s good,” says 25 year old James White. The Nuriootpa resident couldn’t be happier after being appointed a Member Ambassador for Down Syndrome SA, one of only two to be given the 12 month role.

“I’m very proud – very happy,” said James ...


Tom has a paid job at The Environment Agency’s National Laboratory Service

Down's Syndrome Association (UK), 8 November 2016
Tom has lots of work experience, including in catering, but had been looking for a more permanent work challenge for some time. Although Tom has plenty of transferable skills, he faced many barriers to the workplace ...

Doctors said he would never hold a job — now he's retiring after 35 years
Colleen Jones, CBC News, 15 December 2016

The energy he brings and surrounds himself with is contagious. After Andrew MacEachern was born with Down syndrome in 1960, medical experts told his father he would never learn to read or write, or ever hold down a job.

He proved them wrong. On Wednesday, after 35 years delivering supplies around the Victoria General hospital in Halifax, MacEachern was celebrated by his co-workers at a well-earned retirement party ...


How a man with Down syndrome achieved his dream of becoming a firefighter
Brian Brueggemann, Charlotte Observer, 16 December 2016
Jason Eagan is a firefighter in Sandoval, Illinois, and has Down syndrome. Lt. Matt Horn says Jason is a valued member of the volunteer department ...