Kathy Evans, (author of Tuesday's Child) writes about the availability of speech therapy in Victoria, in today's Age and Sydney Morning Herald - she could be talking about New South Wales.
I have my fingers crossed that The King's Speech, which swept the BAFTAs at the weekend, also claims most of the Oscars later this month, and in doing so catapults the importance of speech therapists to the upper echelons of a society inhabited these days by real estate agents and chief executives.
Access to speech therapy for school-age children is pretty hard to come by in Victoria, we are discovering. My partner and I have a seven-year-old daughter with Down syndrome who is wonderfully articulate, but not in a way that always makes sense.
... read the whole article online here.
Wednesday, 16 February 2011
Tuesday, 15 February 2011
Perry Gilsenan and his family appeared on the Kerri-Anne Show (Ch 9) this morning, talking about his daughter Grace, and his motivation to set up the Scrapheap Adventure Ride, to raise funds for Down Syndrome NSWMonday, 14 February 2011
Cut disabled pensions to pay for floods: Business Council of Australia
The Business Council says cuts to disability services and foreign aid should be considered as alternatives to the flood levy.
The Federal Government says the $1.8 billion tax is needed to help pay for flood and cyclone reconstruction in Queensland and Victoria.
But in its pre-budget submission, the Business Council, which represents Australia's top 100 companies, says the government should instead press ahead with returning the budget to surplus through short-term spending discipline.
Council president Graham Bradley says all current spending should be reviewed and disability pensions may not be the best use of government money.
"It is one of the large budget items," he told ABC Radio's AM. ... read the full ABC report here.
And an immediate rejoinder from Senior Australian of the Year and disability advocate, Prof Ron McCallum:
Pension cuts to pay for floods 'not an option'
Senior Australian of the Year and leading disability advocate Ron McCallum has vehemently rejected the Business Council of Australia's calls for disability pensions to be cut to help meet the nation's floods recovery bill.
... Professor McCallum, the first totally blind person appointed to a full professorship at an Australian university, says cutting pensions to pay for flood recovery is not an option.
"Persons with disabilities have the highest unemployment rate of any group in Australia, save for Indigenous Australians," he said.
"What government should be doing is establishing programs to assist we persons with disabilities in obtaining employment.
"The disability pension should not be arbitrarily cut simply because of the Queensland floods."
Professor McCallum says while he is open to any review of the guidelines for placing people on the disability pension, it is vital those who cannot work are properly supported.
"There is always a case for examining whether persons are appropriately placed upon the disability pension," he said.
"It may be that there may be a case for examining why there are so many people on the disabilities [pension]. There may be some people who should not be there.
"But for all of we Australians who have disabilities, it is important that where we are unable to obtain employment we are given sufficient funds on which to live and support ourselves and our families."
South Australian Dignity for Disability MP Kelly Vincent says the Business Council is wrong to criticise the disability pension.
Ms Vincent says people get a disability pension because of their inability to work.
"People are better off psychologically, physically and mentally being in the workforce, but if that is not an option for you and you then lose the only financial sort of income you have, how is that going to be good for your psychology?" she said.
And a clarification from the Business Council of Australia, received this afternoon:
Thank you for taking the time to contact the Business Council of Australia office today. We have received a number of calls and emails from members of the public understandably concerned by media reports suggesting that the BCA had called for a cut in disability pensions to fund the post-flood reconstruction.
The BCA has issued a clarifying statement to media and to a number of organisations representing people with disabilities.
The statement recognises that the Disability Support Pension forms a vital function in Australia’s welfare system for those who do not have, or have limited capacity, to participate in the paid workforce.
The BCA has not recommended that disability support pensions be cut or reduced to fund the flood reconstruction effort or as an alternative to the flood levy.
The approach to the reconstruction effort recommended in the BCA’s 2011-12 budget submission is that the federal government should focus on reducing or re-sequencing spending on programs that give least value for money.
Longer term, the BCA submission recommends that steps be taken to place the nation’s finances on a more secure footing for the future, including policies that provide opportunities for people who want to work and are capable of working to enter the paid workforce.
Please let me reassure you, and encourage you to reassure others, that the BCA has not suggested that the disability pension should be either cut or reduced. Our position has always been that people with disabilities who can and want to work should be supported in this endeavour, including through incentive structures.
Kind regards
Maria Tarrant
Acting Chief Executive
Business Council of Australia
The Federal Government says the $1.8 billion tax is needed to help pay for flood and cyclone reconstruction in Queensland and Victoria.
But in its pre-budget submission, the Business Council, which represents Australia's top 100 companies, says the government should instead press ahead with returning the budget to surplus through short-term spending discipline.
Council president Graham Bradley says all current spending should be reviewed and disability pensions may not be the best use of government money.
"It is one of the large budget items," he told ABC Radio's AM. ... read the full ABC report here.
And an immediate rejoinder from Senior Australian of the Year and disability advocate, Prof Ron McCallum:
Pension cuts to pay for floods 'not an option'
Senior Australian of the Year and leading disability advocate Ron McCallum has vehemently rejected the Business Council of Australia's calls for disability pensions to be cut to help meet the nation's floods recovery bill.
... Professor McCallum, the first totally blind person appointed to a full professorship at an Australian university, says cutting pensions to pay for flood recovery is not an option.
"Persons with disabilities have the highest unemployment rate of any group in Australia, save for Indigenous Australians," he said.
"What government should be doing is establishing programs to assist we persons with disabilities in obtaining employment.
"The disability pension should not be arbitrarily cut simply because of the Queensland floods."
Professor McCallum says while he is open to any review of the guidelines for placing people on the disability pension, it is vital those who cannot work are properly supported.
"There is always a case for examining whether persons are appropriately placed upon the disability pension," he said.
"It may be that there may be a case for examining why there are so many people on the disabilities [pension]. There may be some people who should not be there.
"But for all of we Australians who have disabilities, it is important that where we are unable to obtain employment we are given sufficient funds on which to live and support ourselves and our families."
South Australian Dignity for Disability MP Kelly Vincent says the Business Council is wrong to criticise the disability pension.
Ms Vincent says people get a disability pension because of their inability to work.
"People are better off psychologically, physically and mentally being in the workforce, but if that is not an option for you and you then lose the only financial sort of income you have, how is that going to be good for your psychology?" she said.
And a clarification from the Business Council of Australia, received this afternoon:
Thank you for taking the time to contact the Business Council of Australia office today. We have received a number of calls and emails from members of the public understandably concerned by media reports suggesting that the BCA had called for a cut in disability pensions to fund the post-flood reconstruction.
The BCA has issued a clarifying statement to media and to a number of organisations representing people with disabilities.
The statement recognises that the Disability Support Pension forms a vital function in Australia’s welfare system for those who do not have, or have limited capacity, to participate in the paid workforce.
The BCA has not recommended that disability support pensions be cut or reduced to fund the flood reconstruction effort or as an alternative to the flood levy.
The approach to the reconstruction effort recommended in the BCA’s 2011-12 budget submission is that the federal government should focus on reducing or re-sequencing spending on programs that give least value for money.
Longer term, the BCA submission recommends that steps be taken to place the nation’s finances on a more secure footing for the future, including policies that provide opportunities for people who want to work and are capable of working to enter the paid workforce.
Please let me reassure you, and encourage you to reassure others, that the BCA has not suggested that the disability pension should be either cut or reduced. Our position has always been that people with disabilities who can and want to work should be supported in this endeavour, including through incentive structures.
Kind regards
Maria Tarrant
Acting Chief Executive
Business Council of Australia
New research report: menopause as experienced by women with intellectual disabilities
A Scottish study published in January, investigated what a group of women with intellectual disabilities knew about menopause and asked them to describe their experiences of menopause. The group included women with Down syndrome.
Abstract
Background: Little is known about the menopause in women with intellectual disabilities (ID) save that its onset is earlier than in the general population, and earlier still in women with Down’s syndrome (DS). This study directly explored menopausal experiences in women with ID, both with and without DS, with the aim of identifying levels of knowledge of the menopause and of its health and reproductive implications. Methods Information was collected from 45 women with ID (17 DS, 28 non-DS; age 35–65 years) using a semi-structured interview.
Results: Menopausal experiences of the women with and without DS were very similar. Most of the women were unaware of menopause-associated changes in their body and few understood why they menstruated. Difficulties in disentangling behavioural consequences of menopausal symptoms from behaviours arising from other causes were evident. A need for better health education training and more accessible health resources was identified.
Conclusions: Promoting better awareness of menopause-related health issues in women with ID seems warranted. Appropriately-tailored health education materials need to be made more readily available.
The full text of the report is available online - click on the link below:
D. S. Willis, J. G. Wishart, W. J. Muir, Menopausal Experiences of Women with Intellectual Disabilities, Journal of Applied Research in Intellectual Disabilities, Vol 24, Issue 1, pp 74–85, January 2011
Abstract
Background: Little is known about the menopause in women with intellectual disabilities (ID) save that its onset is earlier than in the general population, and earlier still in women with Down’s syndrome (DS). This study directly explored menopausal experiences in women with ID, both with and without DS, with the aim of identifying levels of knowledge of the menopause and of its health and reproductive implications. Methods Information was collected from 45 women with ID (17 DS, 28 non-DS; age 35–65 years) using a semi-structured interview.
Results: Menopausal experiences of the women with and without DS were very similar. Most of the women were unaware of menopause-associated changes in their body and few understood why they menstruated. Difficulties in disentangling behavioural consequences of menopausal symptoms from behaviours arising from other causes were evident. A need for better health education training and more accessible health resources was identified.
Conclusions: Promoting better awareness of menopause-related health issues in women with ID seems warranted. Appropriately-tailored health education materials need to be made more readily available.
The full text of the report is available online - click on the link below:
D. S. Willis, J. G. Wishart, W. J. Muir, Menopausal Experiences of Women with Intellectual Disabilities, Journal of Applied Research in Intellectual Disabilities, Vol 24, Issue 1, pp 74–85, January 2011
Sunday, 13 February 2011
GLEE Club Australia - classes for people with special needs (Sydney)
We are often asked for information about dance classes open to people with Down syndrome. Kick Performance Group has asked us to pass on this information about their new GLEE Club Australia classes:
KICK Performance Group has been operating for 15 years in performing arts and for the past year have held GLEE Club Australia classes with a great amount of success. We are lucky enough to be the only school in Australia with the GLEE Club syllabus direct from the USA.
We now are looking to offer this all dancing, all singing class to students with special needs.
A little about the classes:
323 Glee Club 2 for Special Needs – years Kindergarten – Year 6
Fri 5.00pm-6.30pm
$215 per term
423 Glee Club 2 for Special Needs – High School and young adult (up to age 21)
Mon 6.00pm-7.30pm
$215 per term
GLEE is a phenomenon sweeping the world and exciting teenagers everywhere. This class is for students with mild- moderate intellectual or physical disabilities to learn basic movements and the joy of dance to fun music all whilst belting out a tune. Designed to build self confidence in a caring, safe environment, develop gross motor skills and understand beats and rhythm of music.
KICK Performance Group
The Australian Institute for Performing Arts
40 Merrenburn Ave Naremburn NSW 2065
P- (02) 9966 5013
F- (02) 9966 5014
kpg@aipa.com.au
www.kickperformancegroup.com.au
(All information supplied by Kick Performance Group)
KICK Performance Group has been operating for 15 years in performing arts and for the past year have held GLEE Club Australia classes with a great amount of success. We are lucky enough to be the only school in Australia with the GLEE Club syllabus direct from the USA.
We now are looking to offer this all dancing, all singing class to students with special needs.
A little about the classes:
323 Glee Club 2 for Special Needs – years Kindergarten – Year 6
Fri 5.00pm-6.30pm
$215 per term
423 Glee Club 2 for Special Needs – High School and young adult (up to age 21)
Mon 6.00pm-7.30pm
$215 per term
GLEE is a phenomenon sweeping the world and exciting teenagers everywhere. This class is for students with mild- moderate intellectual or physical disabilities to learn basic movements and the joy of dance to fun music all whilst belting out a tune. Designed to build self confidence in a caring, safe environment, develop gross motor skills and understand beats and rhythm of music.
KICK Performance Group
The Australian Institute for Performing Arts
40 Merrenburn Ave Naremburn NSW 2065
P- (02) 9966 5013
F- (02) 9966 5014
kpg@aipa.com.au
www.kickperformancegroup.com.au
(All information supplied by Kick Performance Group)
Saturday, 12 February 2011
carecareers blog link
People with intellectual disabilities working in the Australian Public Service
Media release, 10/2/2011 Senator the Hon Jan McLucas, Parliamentary Secretary for Disabilities and Carers
Graduation of FaHCSIA trainees with disability
Four trainees today celebrated their graduation from a pilot program for people with an intellectual disability in the Australian Public Service.
Parliamentary Secretary for Disabilities and Carers, Senator Jan McLucas, said the traineeship program is designed to provide people with intellectual disability with skills and practical work experience to help them gain future employment.
"All four trainees are now permanent staff members at the Department of Families, Housing Community Services and Indigenous Affairs (FaHCSIA), with three working in the National Office and one employed in FaHCSIA’s Perth office," Senator McLucas said.
"These graduates will be an asset to FaHCSIA. They have worked hard throughout the traineeship program, demonstrating their commitment and enthusiasm."
The Department of Families, Housing, Community Services and Indigenous Affairs (FaHCSIA) commenced the 18-month program in August 2009, providing participants with on-the-job training as well as support in completing a Certificate II in Business Administration with Registered Training Organisations
The Traineeship Program for People with Intellectual Disability pilot was developed and supported in partnership with a number of external organisations, such as the Australian Network on Disability, Capital Careers, and Disability Works Australia.
Disability Employment Service providers Advance Personnel, LEAD and EDGE Employment Solutions, and Registered Training Organisations, JCE Positive Outcomes in Canberra, and the Australian Medical Association (WA) in Perth were also involved.
"The traineeship program for people with an intellectual disability is the first of its kind in the Australian Public Service," Senator McLucas said.
"This program reaffirms the commitment of Australian Government and various business organisations to providing opportunities for people with disability who want to make a contribution to the workforce."
Senator McLucas joined Secretary of the Department of Families, Housing, Community Services and Indigenous Affairs, Dr Jeff Harmer, in presenting certificates to the graduates in a special ceremony.
www.janmclucas.fahcsia.gov.au/mediareleases/2011/Pages/graduation_trainee_10022011.aspx
Graduation of FaHCSIA trainees with disability
Four trainees today celebrated their graduation from a pilot program for people with an intellectual disability in the Australian Public Service.
Parliamentary Secretary for Disabilities and Carers, Senator Jan McLucas, said the traineeship program is designed to provide people with intellectual disability with skills and practical work experience to help them gain future employment.
"All four trainees are now permanent staff members at the Department of Families, Housing Community Services and Indigenous Affairs (FaHCSIA), with three working in the National Office and one employed in FaHCSIA’s Perth office," Senator McLucas said.
"These graduates will be an asset to FaHCSIA. They have worked hard throughout the traineeship program, demonstrating their commitment and enthusiasm."
The Department of Families, Housing, Community Services and Indigenous Affairs (FaHCSIA) commenced the 18-month program in August 2009, providing participants with on-the-job training as well as support in completing a Certificate II in Business Administration with Registered Training Organisations
The Traineeship Program for People with Intellectual Disability pilot was developed and supported in partnership with a number of external organisations, such as the Australian Network on Disability, Capital Careers, and Disability Works Australia.
Disability Employment Service providers Advance Personnel, LEAD and EDGE Employment Solutions, and Registered Training Organisations, JCE Positive Outcomes in Canberra, and the Australian Medical Association (WA) in Perth were also involved.
"The traineeship program for people with an intellectual disability is the first of its kind in the Australian Public Service," Senator McLucas said.
"This program reaffirms the commitment of Australian Government and various business organisations to providing opportunities for people with disability who want to make a contribution to the workforce."
Senator McLucas joined Secretary of the Department of Families, Housing, Community Services and Indigenous Affairs, Dr Jeff Harmer, in presenting certificates to the graduates in a special ceremony.
www.janmclucas.fahcsia.gov.au/mediareleases/2011/Pages/graduation_trainee_10022011.aspx
Teacher of the week
A local news service in South Carolina has featured a young woman with Down syndrome as their 'teacher of the week':
One local assistant teacher is living proof that with motivation and a positive attitude there is nothing that can't be accomplished.
"I always tried hard, and I always did my best," said Bryann Burgess, an assistant teacher with a school called Kindermusik.
From day one, the 22-year-old came into this world with an extra obstacle.
"I was born with down syndrome, on August 20th, 1988," Burgess said.
Video and a full transcript of the report are here.
Adult Down Syndrome Clinic's comments on opportunities for people with Down syndrome to teach others.
One local assistant teacher is living proof that with motivation and a positive attitude there is nothing that can't be accomplished.
"I always tried hard, and I always did my best," said Bryann Burgess, an assistant teacher with a school called Kindermusik.
From day one, the 22-year-old came into this world with an extra obstacle.
"I was born with down syndrome, on August 20th, 1988," Burgess said.
Video and a full transcript of the report are here.
Adult Down Syndrome Clinic's comments on opportunities for people with Down syndrome to teach others.
Friday, 11 February 2011
Special Olympics: Come and Try Days
Sydney Upper North Shore Region
Soccer, Athletics and Basketball
11:00 am, Sunday, 20th February 2011
Oakhill College, Old Northern Road, Castle Hill
Free BBQ Lunch at 1pm
Indoor facilities available in case of wet weather
Should you have any queries please contact Elissa Henshaw on 0403 497 517
Sydney West Region
Golf
Wednesday February 16th - come and try
Carnarvon Golf Club Nottinghill Road, Lidcombe
There will be no charge for the Come and Try Day
Regular time, Wednesdays: 4.30 – 5.30pm during daylight saving & school term
If you would like to participate please contact either Cheree Mills 9633 4675 or Denise Frost on 9636 6058 by February 11th
Bocce
7 pm Friday 25th February
Triglav Panthers Club, 80 – 84 Brisbane Rd, St John’s Park
No cost.
No previous experience is necessary.
Bocce is a great game for all ages.If there is enough interest, this will lead to setting up a regular Sydney West Bocce Program.
Bocce will only be played once a month on a Friday night and the cost will be $2.00
RSVP by 24th February to John Butler
9624 3068 or jaybee_au@yahoo.com.au
Soccer, Athletics and Basketball
11:00 am, Sunday, 20th February 2011
Oakhill College, Old Northern Road, Castle Hill
Free BBQ Lunch at 1pm
Indoor facilities available in case of wet weather
Should you have any queries please contact Elissa Henshaw on 0403 497 517
Sydney West Region
Golf
Wednesday February 16th - come and try
Carnarvon Golf Club Nottinghill Road, Lidcombe
There will be no charge for the Come and Try Day
Regular time, Wednesdays: 4.30 – 5.30pm during daylight saving & school term
If you would like to participate please contact either Cheree Mills 9633 4675 or Denise Frost on 9636 6058 by February 11th
Bocce
7 pm Friday 25th February
Triglav Panthers Club, 80 – 84 Brisbane Rd, St John’s Park
No cost.
No previous experience is necessary.
Bocce is a great game for all ages.If there is enough interest, this will lead to setting up a regular Sydney West Bocce Program.
Bocce will only be played once a month on a Friday night and the cost will be $2.00
RSVP by 24th February to John Butler
9624 3068 or jaybee_au@yahoo.com.au
New film: Just Like U
Trailer for the film Just Like U, starring Ty Belnap, shot in Queensland, and due for release in June 2011The film's official website has much more information: www.justlikeumovie.com, including a link to documentary about Ty Belnap.
Follow Just Like U on Facebook
Thursday, 10 February 2011
Library Thursday
A new addition to our collection for children
Publisher's description: This book introduces readers to what Down syndrome is, how it affects people, and what they can do to be a good friend to someone living with Down syndrome.
Reading age: 4 - 8 years
Would you like to borrow this book and provide a short review? You must be a member of Down Syndrome NSW to borrow from our library. Email library@dsansw.org.au to arrange a loan.
Ear, nose and throat health in children and adults with Down syndrome: a talk for parents
10.00 am - 12.00 md
Saturday 26th March 2011
Speakers:
Dr Phillip Chang: Common and uncommon ear, nose and throat issues in children and adults with Down syndrome
Dr. Phillip Chang is an ear and hearing implant surgeon at Sydney Children’s Hospital and St Vincent’s Hospital in Sydney. Dr Chang serves as the director of the Cochlear Implant programme at the Sydney Children’s Hospital.
Dr Harry Koumoukelis: Getting ready for surgery
Dr. Harry Koumoukelis is a paediatric anaesthetist at the Sydney Children’s and Prince of Wales Private Hospitals. He has anaesthetised over 800 children per year over the past decade and, in that time, has worked very closely with Dr Chang on major and minor ENT surgical conditions.
Lecture Room, Level 4 (escalators from main entrance, which is at Level 3)
St Vincents Hospital
Victoria Street, Darlinghurst
Click here to see parking and public transport options.
There is no charge for this event, but booking is essential. Childcare is not available.
To reserve a place, contact Down Syndrome NSW on 9841 4411 or email workshops@dsansw.org.au or book online here.
Download a flyer here.
Saturday 26th March 2011
Speakers:
Dr Phillip Chang: Common and uncommon ear, nose and throat issues in children and adults with Down syndrome
Dr. Phillip Chang is an ear and hearing implant surgeon at Sydney Children’s Hospital and St Vincent’s Hospital in Sydney. Dr Chang serves as the director of the Cochlear Implant programme at the Sydney Children’s Hospital.
Dr Harry Koumoukelis: Getting ready for surgery
Dr. Harry Koumoukelis is a paediatric anaesthetist at the Sydney Children’s and Prince of Wales Private Hospitals. He has anaesthetised over 800 children per year over the past decade and, in that time, has worked very closely with Dr Chang on major and minor ENT surgical conditions.
Lecture Room, Level 4 (escalators from main entrance, which is at Level 3)
St Vincents Hospital
Victoria Street, Darlinghurst
Click here to see parking and public transport options.
There is no charge for this event, but booking is essential. Childcare is not available.
To reserve a place, contact Down Syndrome NSW on 9841 4411 or email workshops@dsansw.org.au or book online here.
Wednesday, 9 February 2011
Bodylines: dance, movement and theatre for people with disabilities, Carlton (Sydney)
Bodylines is a movement and theatre workshop integrating young people with and without disabilities, run by Shopfront Contemporary Arts and Performance at Carlton, in Sydney's southern suburbs. Participants explore dance, drama, voice and storytelling to discover different forms of self-expression. Classes are suitable for young people with medium to low support needs, aged 15-25yrs.
Term 1
Workshops will run for 7 weeks on a Friday afternoon from 4:30 – 6:30pm commencing on Friday 11th Feb – 25th March. There will be a performance showing for friends and family as part of Shopfront’s End of Term performances on 26th and 27th March.
Online enrolment for Term 1
Further information, including links to online enrolment, and dates for Terms 2,3 and 4, visit theatre and performance making page of the Shopfront website.
Phone: (02) 9588 3948
Fax: (02) 9588 6545
E-mail: outreach@shopfront.org.au
88 Carlton Pde, Carlton NSW 2218
Workshops will run for 7 weeks on a Friday afternoon from 4:30 – 6:30pm commencing on Friday 11th Feb – 25th March. There will be a performance showing for friends and family as part of Shopfront’s End of Term performances on 26th and 27th March.
Online enrolment for Term 1
Further information, including links to online enrolment, and dates for Terms 2,3 and 4, visit theatre and performance making page of the Shopfront website.
Phone: (02) 9588 3948
Fax: (02) 9588 6545
E-mail: outreach@shopfront.org.au
88 Carlton Pde, Carlton NSW 2218
Healthier Lives in the Hunter Forum - 9th March 2011
NSW CID is holding a forum on strategies for improving the health of people with intellectual disability in Newcastle and Hunter Regions.
Date: Wednesday 9th March 2011
Time: 9am – 3pm
Venue: Newcastle City Hall
The day is for:
Date: Wednesday 9th March 2011
Time: 9am – 3pm
Venue: Newcastle City Hall
The day is for:
- family members and carers
- people with intellectual disability
- service providers
Easy English Courses 2011: February and May
IDEAS and NSW CID have invited Scope Communication and Resource Centre (Victoria) to offer a two day training course in NSW that will provide you with these valuable skills!
We are often told “too many words — not enough pictures” by members and users of our services!
Are you interested in learning how to produce Easy English documents for people you work with?
Details are on the IDEAS blog, (Monday 7th February 2011, under the heading Easy English Courses, 2011
We are often told “too many words — not enough pictures” by members and users of our services!
Are you interested in learning how to produce Easy English documents for people you work with?
Details are on the IDEAS blog, (Monday 7th February 2011, under the heading Easy English Courses, 2011
Tuesday, 8 February 2011
Stepping up for Down syndrome: Perry Gilsenan, Scrapheap Adventurer
Perry Gilsenan, founder of the Scrapheap Adventure Ride fund-raiser for Down Syndrome NSW spoke with Carol Duncan on ABC Radio Newcastle this afternoon, about the Ride, his love of motor bikes and the outback, about his daughter Grace, and about his own Life after losing both of his legs in a train accident at 12.You can hear the 8.30 minute interview here.
Get "on your bike" for Down syndrome - Scrapheap Adventure media release
Monday, 7 February 2011
New web addresses for Down Syndrome Education International and USA
Down Syndrome Education International has updated its web address (previouisly www.downsed.org).and the USA office is at www.dseusa.org
All of their excellent range of information and services are the same.
Sunday, 6 February 2011
Catching up with Dave .....
If you are a regular reader of this blog, you'll have seen many reference to Dave Hingburger's work, including his daily blog, Rolling Around in My Head. It's always worth reading, makes you think, sometimes makes you laugh, sometimes stirs you up, but in case you haven't been keeping up over the last few weeks (holidays, floods, cyclones, heat waves might have distracted you), here are four of the best from the last month. No real previews, but two of them are about people with Down syndrome, and two are not - but they are all relevant. If you like them, tell Dave via the comments page - he reads them all.
Friday, 4 February 2011
Good luck to James and Mark: Cole Classic, Sunday 6th February
James Caruso and Mark Owen are swimming in the Cole Classic ocean race at Manly this Sunday. They are raising funds for Down Syndrome NSW while they do it.
Links to their Everyday Hero pages are here.
Enjoy, good luck, and our very grateful thanks to you both.
Links to their Everyday Hero pages are here.
Enjoy, good luck, and our very grateful thanks to you both.
(Makaton) Key Word signing group: Wauchope NSW
All welcome, come along with no experience or lots of experience,
You will learn up to 30-40 words each get together - we sign and sing, Shop and Sign, sign and play games,
First meeting for 2011:
Wednesday 16th February 2011
5.30 pm to 7.00 pm
3 Enterprise Place Wauchope NSW (D & D pool shop)
Feel free to pass information on to friends, family, staff, teachers aides, grandparents, schools etc
Please email or text confirmation for numbers- please include your personal email address so you don't miss any communications.
Contact: Julie Langeveld on 0402 729 319 or 6585 3844 or julielangeveld@gmail.com
(note new email address)
You will learn up to 30-40 words each get together - we sign and sing, Shop and Sign, sign and play games,
First meeting for 2011:
Wednesday 16th February 2011
5.30 pm to 7.00 pm
3 Enterprise Place Wauchope NSW (D & D pool shop)
Feel free to pass information on to friends, family, staff, teachers aides, grandparents, schools etc
Please email or text confirmation for numbers- please include your personal email address so you don't miss any communications.
Contact: Julie Langeveld on 0402 729 319 or 6585 3844 or julielangeveld@gmail.com
(note new email address)
Thursday, 3 February 2011
Team MOG supporting Down Syndrome NSW through Tuff Truck Challenge, 2011
TEAM MOG* consisting of Geoff Thompson (Thommo) and Owen Griffis with assistance from staff members at Thompson (Taree) Motor Body Builders Pty. Ltd., friends and local businesses is once again entering Tuff Truck Challenge 2011 to be held at Milbrodale NSW on 8th/9th/10th April, 2011.
1. The crew at Thommo’s still love everything to do with trucks!
2. Any prize/sponsorship money will be donated to Down Syndrome NSW.
Thommo’s middle grandson, Flynn, was diagnosed with Down syndrome a few weeks a^er his birth in March, 2007. The support received from Down Syndrome NSW has been invaluable since then and Flynn’s family would like to assist them with their fundraising efforts in appreciation of this and to help ensure that other families are able to access that same support if and when needed.
One of the things Down Syndrome NSW do is to initiate or support sign language classes. In an effort to ease Flynn’s frustration due to delayed vocalisation he has been learning sign language and it is awe-inspiring to see his confidence in that medium.
All costs associated with participation by Team MOG in this event e.g. entry fee, fuel etc. will be totally covered by Team MOG themselves so that every cent raised through sponsorship will go straight to Down Syndrome NSW.
Every donation towards sponsorship $500.00 or over entitles that individual, family or business to free signage on the MOG cab for the duration of the competition.
BSB: 062 315 Account Number: 00901136 Account name: Down Syndrome Association of NSW
Can you please email bthompson@tsn.cc fax 6551 0823 or phone 6552 5856 your donation details so Team MOG can ensure that all sponsors receive your tax deductible receipts etc.
* Unimog – Acronym from the German full name UNIversal‐MOtor‐Gerat. The Unimog is widely regarded as one of the most capable 4WD vehicles ever produced. Due to their off road capabilities Unimogs can be found in Jungles,Mountains and Deserts as Military vehicles, fire fighting vehicles, agricultural use, expedition campers and even in Tuff Truck competitions or trials.
Wednesday, 2 February 2011
Behaviour and Down syndrome: parent talk online now
Dr David Stein, Devlopmental psychologist, Children's Hospital Boston talks to a parent audience about behaviour and children with Down syndrome, recorded as part of the Allan Crocker Speaker series in December 2010.
Playing to their strengths - at school: for teachers and school personnel
Playing to their strengths - at school is a workshop identifying the learning and communication strengths of people with Down syndrome, to provide appropriate support in school environments: classrooms, playground and activities. It is designed for teachers and school personnel.
Thursday 17th March 2011, 9.30 am - 3.00 pm
Rydges Hotel, Rosehill
$99 per person (DS NSW members); $132 per person (non-members)
Morning tea and lunch and GST are included
Prior registration is essential
Enquiries: Down Syndrome NSW on 9841 4401 or email workshops@dsansw.org.au
Registrations close 11th March 2011
is a workshop identifying the learning and communication strengths of people with Down syndrome, to provide appropriate support at home and in the community. It is designed for parents and family carers.
Saturday19th March 2011, 10.00 am - 3.00 pm
Rydges Hotel, Rosehill
$44 per person (adult siblings are welcome to attend at no charge)
Morning tea and lunch and GST are included
Prior registration is essential
Enquiries: Down Syndrome NSW on 9841 4401 or email workshops@dsansw.org.au
Registrations close 14th March 2011
This event is part funded by NSW Health under the NSW Carers Program
Sunday, 30 January 2011
Short and Sweet Theatre Festival, Sydney: you can support Gerard
Gerard O'Dwyer performed in the play Beautiful as part of Crash Test Drama, a script development competition. He and Ashley (the other actor) won their heat, picking up best script from both the judges and audience vote. They then went onto the Crash Test Drama Grand Final in early December. The play did not gain a place, however, it was invited to perform as part of the Short and Sweet Theatre Festival which is held annually in Sydney. It is known as the largest short play festival in the world!
It would be great if others can support Gerard by coming along to this play.
Click here for more information about Short and Sweet Theatre Festival.
For all tickets go this link. The play Gerard is in is called Beautiful, and is in Week 8, 23rd to 27th February.
Best wishes, Gerard.
It would be great if others can support Gerard by coming along to this play.
Click here for more information about Short and Sweet Theatre Festival.
For all tickets go this link. The play Gerard is in is called Beautiful, and is in Week 8, 23rd to 27th February.
Best wishes, Gerard.
Gerard and Maria back on TV: carecarers campaign
The carecareers TV campaign resumes today on various channels including SBS, Channel 9 and Channel 10 in metro NSW, and on Channel 7 and Channel 10 in regional NSW. The campaign will also have profile on those networks’ various digital offerings including Go! ONE, 7TWO, 7MATE and 11.
Watch out for sightings of Gerard O'Dwyer and Maria Short - the longer version of their story is featured here on the carecareers website.
A late update on Gerard and Maria (12/2/2011): the carecareers blog features a Gerard and Maria page!
Watch out for sightings of Gerard O'Dwyer and Maria Short - the longer version of their story is featured here on the carecareers website.
A late update on Gerard and Maria (12/2/2011): the carecareers blog features a Gerard and Maria page!
Saturday, 29 January 2011
Billy Schulz is "an old, old man" - he says
You can also follow Billy, his mother Dr Jane Schulz and Grown Man Now thoughts and happenings on Facebook.
Friday, 28 January 2011
You Tube: interview with Guy and Esme and family members
Some video of a recent interview newly married Guy and Esme gave on UK TV show This Morning can now be found linked from the post about their wedding.
A very timely blog about school and toilet training
As NSW students and their families prepare for the new school year, this blog post at Practical Wisdom: Phronesis could be very timely for those whose enrolment has been not all been about education and learning. The ever-practical Joan Medlen puts arguments about what toileting should mean to where a child goes to school firmly in their place: into the responsibility of those whose job it is to support the student.
If toilet training and school has not been an issue for you and your child, you don't need to read it. If it has, you might well find yourself applauding.
On the other hand, the wisdom of this post is in its generalisation to other discussions about accommodating needs.
If toilet training and school has not been an issue for you and your child, you don't need to read it. If it has, you might well find yourself applauding.
On the other hand, the wisdom of this post is in its generalisation to other discussions about accommodating needs.
Thursday, 27 January 2011
Interview with Simon McKeon, Australian of the Year
In 2011, Australians with disabilities have two very prominent advocates in the Australian of the Year, Simon McKeon and the Senior Australian of the Year, Prof Ron McCallum. We anticipate hearing much more from both of them.
ABC Radio interviewed Simon McKeon yesterday, to mark Australia Day. In a wide ranging discussion, he talked with Jon Faine about his role as primary carer for his older sister who has an intellectual disability, his activism for a National Disability Insurance Scheme, and how he might use his position this year as a platform to promote the interests of people with disabilities, among his other interests.
The interview is nearly 30 minutes (not all of it about disability), and the file is large - we recommend downloading the file to your computer before listening unless you have very fast broadband access.
The interview is nearly 30 minutes (not all of it about disability), and the file is large - we recommend downloading the file to your computer before listening unless you have very fast broadband access.
'Inspirational' couple's big wedding delights their families
Our Facebook editor has alerted us to this lovely story from the UK about the October 2010 wedding of Guy and Esme, a couple with Down Syndrome - look out for Esme's Dad's remarks in the comments section.
Apparently there is video online, but we have had difficulty with the links ... we'll keep trying, and if you can help, let us know.
27/01/2011 And here is some video of Guy and Esme being interviewed on UK TV show, This Morning, just a few days ago (thanks to DSA UK for the link):
27/01/2011 And here is some video of Guy and Esme being interviewed on UK TV show, This Morning, just a few days ago (thanks to DSA UK for the link):
Wednesday, 26 January 2011
Every Australian Counts: new NDIS campaign website launched
Our New Campaign Launch
Thank you very much for your previous support of the campaign for a National Disability Insurance Scheme. To launch the next phase of our campaign, we have created a new website - Every Australian Counts.
On the website five people with a disability have shared their stories about how an NDIS could change their lives. You can also find other information about the difference an NDIS would make in the lives of people with a disability, their families and carers in this country.
People like Robert and Mary, who hope that if we had a NDIS they would no longer have to beg for services and would have a better quality of life.
On our new site, you’ll find blogs from our State Campaign Co-ordinators telling you what’s happening in the campaign in each state, and listings for news and events taking place in your area.
To launch the new site we would like all our existing supporters to visit and take the first action and sign our on line petition Count Me In. We hope you will soon be joined by many others!
The time for change has come. We ask you to take action today and make every Australian count.
Thank you,
The NDIS team
Senior Australian of the Year - Prof Ron McCallum
From the Australian of the Year Awards - 2011 website:
"The Senior Australian of the Year 2011 is equal rights campaigner Professor Ron McCallum AO of Artarmon, NSW. Professor McCallum is the first totally blind person to have been appointed to a full professorship at an Australian university. Professor McCallum was the foundation Professor in Industrial Law at the University of Sydney, and from 2002, he served five years as Dean of Law. He has fervently pursued equal rights for working people across the globe and was the inaugural President of the Australian Labour Law Association from 2001 to 2009. He is currently Chair of Radio for the Print Handicapped of New South Wales Co-operative. The organisation operates radio 2RPH, which reads out newspapers and magazines over the air for blind and other print handicapped listeners. He is also one of two Deputy Chairs of Vision Australia, and one of 12 members of the first monitoring committee for the United Nations Convention on the Rights of Persons with Disabilities. He was appointed inaugural Rapporteur of this committee and is now the Chair. Ron has also recently been appointed to the Federal Government’s National People with Disabilities and Carers Council.
Ron is a leading light in the community for people with a disability, working for equality among all Australians."
Report of acceptance speech - Sydney Morning Herald
SBS World News Australia
"The Senior Australian of the Year 2011 is equal rights campaigner Professor Ron McCallum AO of Artarmon, NSW. Professor McCallum is the first totally blind person to have been appointed to a full professorship at an Australian university. Professor McCallum was the foundation Professor in Industrial Law at the University of Sydney, and from 2002, he served five years as Dean of Law. He has fervently pursued equal rights for working people across the globe and was the inaugural President of the Australian Labour Law Association from 2001 to 2009. He is currently Chair of Radio for the Print Handicapped of New South Wales Co-operative. The organisation operates radio 2RPH, which reads out newspapers and magazines over the air for blind and other print handicapped listeners. He is also one of two Deputy Chairs of Vision Australia, and one of 12 members of the first monitoring committee for the United Nations Convention on the Rights of Persons with Disabilities. He was appointed inaugural Rapporteur of this committee and is now the Chair. Ron has also recently been appointed to the Federal Government’s National People with Disabilities and Carers Council. Ron is a leading light in the community for people with a disability, working for equality among all Australians."
Report of acceptance speech - Sydney Morning Herald
SBS World News Australia
Tuesday, 25 January 2011
Rozelle Neighbourhood Centre: respite and recreation vacancies
The Rozelle Neighbourhood Centre's Weekend Respite and Recreation program has some vacancies in their Saturday Group.
Current vacancies are available for people with a mild to moderate intellectual disability who live in the Inner West, aged 14 – 28. The group usually which runs from 9.30 am to 4.00 pm on Saturdays.
Program participants currently engage in activities like bowling, karaoke, art, dance and drama workshops, lunching around Sydney and visiting places like galleries, museums and other activities that group members express interest in.
Enquiries, brochure and referrals: Sue Johnson, 9555 8988 extension 2
www.rozellecentre.org.au
Current vacancies are available for people with a mild to moderate intellectual disability who live in the Inner West, aged 14 – 28. The group usually which runs from 9.30 am to 4.00 pm on Saturdays.
Program participants currently engage in activities like bowling, karaoke, art, dance and drama workshops, lunching around Sydney and visiting places like galleries, museums and other activities that group members express interest in.
Enquiries, brochure and referrals: Sue Johnson, 9555 8988 extension 2
www.rozellecentre.org.au
Creative Classes with people with a disability in 2011: Rozelle Neighbourhood Centre
Classes starting 7th February 2011!
Rozelle Neighbourhood Centre runs a variety of creative leisure classes for people with intellectual disabilities.
The program is open to people with all levels of ability. All classes are tutored by arts professionals and assisted by a trained support worker.
Creative Arts
Colour, tactile experience, art, movement, sound and rhythm. Who: This class is open to people of all levels of ability. Ages 18+
Music
Drumming, singing, improvisation, directing music, group work and solo work. Our music class is popular with people of all levels of ability.
When: Monday night 7.30-8.45pm
Who: This class is open to people of all levels of ability. Ages 18+
Drama - Ever After Theatre Company
Drama skills, voice work, movement, character work, play building and performance making.
When: Tuesdays 5-6.30pm
Who: This group is suitable for people who have some experience with drama. Ages 15+
Drama – Leisure Options
Movement, voice, drama skills exercises, story building, character work and play-making. Absolute beginners to drama welcome.
When: Tuesdays 6.30-8pm
Who: Ages 18+
General information
When: Classes are run in 4 eight week terms per year.
Where: Rozelle Neighbourhood Centre, 665A Darling St, Rozelle.
Who: People with all levels of ability.
Contact: Sue Johnston on tel: (02) 9555 8988 or email: leisure@rnc.ngo.org.au
Access: Accessible venue
Cost per term:
1 x class $70
2 x classes $110
3 x classes $130
Note: access to classes is dependent on available space.
For more information, visit the website www.rozellecentre.org.au
Leisure Options is Funded by Ageing, Disability and Home Care, Department of Human Services NSW
Ever After is supported by Swiss Re, Community support and project specific sponsors.
Punky cartoon to air in Ireland
The Irish cartoon, Punky that we posted about last September is about to launch on TV. Aimee Richardson, who voices the child character who has Down syndrome was a guest on Ireland's prime time Saturday Show last weekend. Blogger Nick gives his response to the interview, and more information about both Aimee and Punky here.
It has been reported that the cartoon had attracted interest from Australia - we'll keep our ear to the ground, and if you see anything about it being broadcast here, please let us know.
It has been reported that the cartoon had attracted interest from Australia - we'll keep our ear to the ground, and if you see anything about it being broadcast here, please let us know.
Sunday, 23 January 2011
Nice story for a quiet summer Sunday
Here's a nice story about a man with Down syndrome who is a big Bon Jovi fan, a fortieth birthday, and the follow up that might see his dream to meet the band realised.
Saturday, 22 January 2011
Response to latest news on non-invasive prenatal diagnostic testing
Friday, 21 January 2011
Critical link found between Down syndrome and Alzheimer's disease
Researchers at the University of British Columbia and Vancouver Coastal Health Research Institute have discovered that the genetic mechanism which destroys brain cells is responsible for early development of Alzheimer's Disease in people with Down syndrome, and for development of Alzheimer's Disease in the general population – providing a potential new target for drugs that could forestall dementia in people with either condition.
The research, led by Dr. Weihong Song, Canada Research Chair in Alzheimer's Disease and a professor of psychiatry in the UBC Faculty of Medicine, found that excessive production of a protein, called Regulator of Calcineurin 1 (RCAN1), sets in motion a chain reaction that kills neurons in the hippocampus and cortex in people with Down Syndrome and Alzheimer's Disease. The findings were published online recently in the Journal of Biological Chemistry (the full text of the research paper is available online).
But now that the culprit gene and protein have been identified, "we can develop therapies that interfere with the gene's ability to produce that protein, and hopefully short-circuit the destruction of brain cells," Dr. Song says.
The research, led by Dr. Weihong Song, Canada Research Chair in Alzheimer's Disease and a professor of psychiatry in the UBC Faculty of Medicine, found that excessive production of a protein, called Regulator of Calcineurin 1 (RCAN1), sets in motion a chain reaction that kills neurons in the hippocampus and cortex in people with Down Syndrome and Alzheimer's Disease. The findings were published online recently in the Journal of Biological Chemistry (the full text of the research paper is available online).
But now that the culprit gene and protein have been identified, "we can develop therapies that interfere with the gene's ability to produce that protein, and hopefully short-circuit the destruction of brain cells," Dr. Song says.
Thursday, 20 January 2011
Library Thursday: invitation to review
Would you like to review the new Woodbine House publication, Kitchen Classroom, by Gabrielle Kaplan-Mayer ? - Kitchen Classroom 4 Kids blog
- New Woodbine House titles due for release in February 2011 are listed here.
Interested in international swimming competition?
The Down Syndrome Down Under Swimming Organisation will run a Down Syndrome Swimming National Meet in Noosa 24/25th September 2011.
Please put it it in your diary now, and start preparing!
For more information please contact the NSW Rep: Sarah Harvey 9440 1631 (bh) or see www.dsduso.org
Please put it it in your diary now, and start preparing!
For more information please contact the NSW Rep: Sarah Harvey 9440 1631 (bh) or see www.dsduso.org
Wednesday, 19 January 2011
Acceptance performance workshops with Tracie Sammut: start 5th February 2011
Acceptance is a series of performance workshops for people with and without mild intellectual disabilities led by tutor Tracie Sammut, at Australian Theatre for Young PeopleJoin tutor Tracie Sammut (GP, Home and Away) plus a variety of guest tutors who are all industry professionals for this mixed bag of drama goodies on offer in Semester 1.
In Term 1 we will explore unique dance styles (including modern ballet), theatresports, contact improvisation, storytelling and voice work. During Term 2 we will be devising a performance for inclusion with the end of semester performances. These workshops will be high energy and lots of fun, so bring it on.
When: Semester 1 starting 5 February - 2 July 2011, every Saturday at 12:30pm - 3:30pm.
Where: Australian Theatre for Young People, Studio 1, The Wharf Walsh Bay NSW 2000
Who: Young people 16-26 years old
Cost: $240 (Semester 1)
Contact: Australian Theatre for Young People: 02 9270 2400 atyp@atyp.com.au
Website: Acceptance performance workshops
Tuesday, 18 January 2011
Greater Expectations: pre-launch special offer on new book
Greater Expectations: living with Down syndrome in the 21st century is a new book by Perth historian, Jan Gothard. Jan is also the mother of a young woman with Down syndrome, and has been a prominent activist in debates about immigration and people with disabilities. Greater Expectations will be launched on World Down Syndrome Day, 21st March 2011.You can take advantage now of a pre-launch offer: $25 per book plus free postage Australia-wide, for orders placed before 20th March. Click here to download an order form for this offer (available to Australian residents only).
For more information about the book, and about Jan Gothard, visit the website of the publisher, Fremantle Press.
Monday, 17 January 2011
Australian early Intervention for children with disability initiative (Better Start)
On 28 July 2010, the Australian Government announced $122 million in funding over four years for eligible children up to fifteen years of age with disabilities that affect their development.
From 1 July 2011, eligible children diagnosed with a number of specific disabilities, including Down syndrome, will have access to funding and Medicare rebates under the Better Start Early Intervention for Children with Disability initiative.
More information is available from the FAHCSIA website, under these headings:
What are the components of this initiative?
Support for families with young children
Support for families with older children
When will funding be available?
Further information
From 1 July 2011, eligible children diagnosed with a number of specific disabilities, including Down syndrome, will have access to funding and Medicare rebates under the Better Start Early Intervention for Children with Disability initiative.
More information is available from the FAHCSIA website, under these headings:
What are the components of this initiative?
Support for families with young children
Support for families with older children
When will funding be available?
Further information
Saturday, 15 January 2011
Black Balloon: ABC TV 1 Sunday 16th January 8.30 pm
ABC TV 1 is screening the award winning 2008 Australian movie Black Balloon tomorrow, Sunday 16th January, at 8.30 pm. Family life is seen from the point of view of a teenage boy whose brother has autism.
Friday, 14 January 2011
A new report on non-invasive prenatal testing
A number of techniques are being investigated internationally to provide a non-invasive diagnostic prenatal test for fetal Down syndrome. News reports have appeared around the world over the last couple of days about a new study of a non-invasive diagnostic (maternal blood) test being developed by a collaboration between a London and Hong Kong based research team.
The focus of this paper is on the reduction of invasive tests (amniocentesis and chorionic villus sampling) and their associated risks that will result from reliable, readily available non-invasive testing. The researchers do not claim 100% accuracy in diagnosing Down syndrome with their technique yet (it is in the high 90s and will increase), and predict that clinical implementation is some years away.
The focus of this paper is on the reduction of invasive tests (amniocentesis and chorionic villus sampling) and their associated risks that will result from reliable, readily available non-invasive testing. The researchers do not claim 100% accuracy in diagnosing Down syndrome with their technique yet (it is in the high 90s and will increase), and predict that clinical implementation is some years away.
- British Medical Journal - the research report is available for free download
- Science Daily's news report
- Sydney Morning Herald news report (Agence-France Presse)
- BBC News report (UK)
- DSA UK statement in response
Thursday, 13 January 2011
Cole Classic: swimmers supporting Down Syndrome NSW
You might have noticed a few newspaper and magazine articles about the recent growth in popularity of ocean swimming races up and down the NSW coast. The Cole Classic has become one of the most popular events, and many competitors take the opportunity to raise funds for charities.
The 2011 Cole Classic is scheduled for Sunday 6th February, from Shelly to Manly Beach, and two generous swimmers are signing up sponsors for Down Syndrome NSW, through Everyday Hero pages:
- James Caruso (James's Everyday Hero page includes a photo with his sister, Philippa)
- Mark Owens
James and Mark
Library Thursdays: Getting started!!! Using Visual Systems to promote Play
Getting Started: Using visual systems to promote communication by Dolly Bhargava, produced by Carson Street School in Perth, is a great guide to using visuals with people with Down syndrome and other visual learners. We have blogged about it previously.
Bhargava has now produced a second title: Getting Started: Using visual systems to promote play. It discusses play skills, sensory integration, interacting while playing, the play environment, types of play (solitary, parallel, unoccupied, onlooker, associative, cooperative, imaginative) and how to encourage play. Examples, visual systems and suggested activities are included.
Both titles and the accompanying videos are now available online from the Carson Street
School website.
Link to Getting started 2 Booklet Video below.
Bhargava has now produced a second title: Getting Started: Using visual systems to promote play. It discusses play skills, sensory integration, interacting while playing, the play environment, types of play (solitary, parallel, unoccupied, onlooker, associative, cooperative, imaginative) and how to encourage play. Examples, visual systems and suggested activities are included.
Both titles and the accompanying videos are now available online from the Carson Street
School website.
Link to Getting started 2 Booklet Video below.
Link to Getting started 1. Video below.
These booklets can also be ordered in hardcopy from Carson Street School and will be available to borrow from the Down Syndrome NSW Library.
To borrow anything else from the library, just call or email.
Wednesday, 12 January 2011
Hanen Program information evening: February 2011, Inner West (Sydney)
Do you have a child with a language delay?
Do you have a child with Autism Spectrum Disorder?
Are you interested in learning more about the Hanen Parent Programs® – courses that help parents learn strategies to assist their child’s communication development.
A FREE Information Evening discussing 3 of the Hanen Parent Programs®
It Takes Two To Talk®
More Than Words®
TalkAbility®
is being held on Thursday 17th February 2011 in Concord at 7 p.m. – venue to be advised.
The evening is being hosted by Heather Craven Certified Hanen Speech Pathologist.Parents can come along and hear about the programs and register their interest in attending a program during 2011.
For more information about the work of the Hanen Centre and the programs go to www.hanen.org
For more information about Heather Craven go to www.heathercraven.com.au
To register your interest email: heathercraven@bigpond.com or call 0418 629 028
Call for immigration cases relating to people with disability applying for residence in Australia or refugee protection
From the National Ethnic Disability Alliance:
We need your help – deadline 31 January 2011. This call is distributed on behalf of the following organisations:
· Australian Federation of Disability Organisations AFDO
· Canberra Multicultural Community Forum
· Federation of Ethnic Community Councils of Australia FECCA
· National Ethnic Disability Alliance NEDA
· People with Disability Australia PWDA
· Settlement Council of Australia
The above organisations met with Minister for Immigration and Citizenship, Chris Bowen, in mid November 2010 to discuss the report and recommendations of the Joint Standing Committee on Migration Inquiry into migration with disability. The meeting demonstrated that there is a window of opportunity to convince the Government to change the current process and parameters for assessing people with disability when applying for migration to Australia or refugee protection.
We now need to present the Government with as many cases as possible – those that have been rejected on the basis of the applicant with disability and those with a member of the family with disability.
We also want to hear about the cases that you know about where the application has not yet been lodged, i.e. prior to rejection. All cases require consent from the applicant.
The information can be sent to office@neda.org.au where the information will be collated and passed on to the Minister’s office. This call is open until 31 January 2011. For any queries contact Sibylle on 0407 878 933
Source: NCOSS Ageing & Disability Update 5 January 2011
We need your help – deadline 31 January 2011. This call is distributed on behalf of the following organisations:
· Australian Federation of Disability Organisations AFDO
· Canberra Multicultural Community Forum
· Federation of Ethnic Community Councils of Australia FECCA
· National Ethnic Disability Alliance NEDA
· People with Disability Australia PWDA
· Settlement Council of Australia
The above organisations met with Minister for Immigration and Citizenship, Chris Bowen, in mid November 2010 to discuss the report and recommendations of the Joint Standing Committee on Migration Inquiry into migration with disability. The meeting demonstrated that there is a window of opportunity to convince the Government to change the current process and parameters for assessing people with disability when applying for migration to Australia or refugee protection.
We now need to present the Government with as many cases as possible – those that have been rejected on the basis of the applicant with disability and those with a member of the family with disability.
We also want to hear about the cases that you know about where the application has not yet been lodged, i.e. prior to rejection. All cases require consent from the applicant.
The information can be sent to office@neda.org.au where the information will be collated and passed on to the Minister’s office. This call is open until 31 January 2011. For any queries contact Sibylle on 0407 878 933
Source: NCOSS Ageing & Disability Update 5 January 2011
Tuesday, 11 January 2011
Beth's adventure
Beth Hull, from Sydney, had an unexpected adventure while on holiday in Perth a few days ago. Her friends will be pleased to know that she is okay, as reported by both newspapers and TV in Perth. This report appeared in the local press, describing her rescue while sea kayaking. We hope the rest of your holiday is a little less exciting.
Ty Belnap is a busy man
Here is a good story to start the year, from Queensland's Sunshine Coast, and a new movie, Just Like U, to look out for in March 2011. Ty Belnap, 32, is indeed a busy man.
Central Coast Community College: social and recreational courses for adults with a disability
Central Coast Community College is running social and recreational courses for adults with a disability at various locations across the Central Coast. Courses focus on enjoyment, increasing self confidence, discovering personal strengths and building friendships. Funding provides for courses over a two year pilot.
We are currently taking enrolments for the following courses for 2011:
Dance & Movement
Thursdays 6:00pm To 9:00pm At Peninsula Community Centre, Woy Woy
Cooking
Mondays 5:45pm to 8:45pm at Oasis Youth Centre, Wyong
Cooking
Thursdays 6:00pm to 9:00pm at Nth Gosford Learning Centre
Art & Craft
Saturdays 12:30pm to 4:30pm at Peninsula Community Centre, Woy Woy
Art & Craft
Saturdays 12:30pm to 4:30pm at Glenvale School Nth Entrance Campus
Music – course details currently being finalised
Sport & Healthy Living – course details currently being finalised
These free courses have eligibility criteria, and are funded for adults with a disability living in the Gosford or Wyong LGA who live in the community and have an unpaid carer. Unpaid carers include people who are receiving a carer’s allowance.
Students do not pay a course fee, however for courses with consumable ingredients/materials there is a minimal payment required to contribute to the cost of the materials.
Ongoing enrolments: enquiries and enrolment applications to Jean Ardley or Hazel Gibbons at Central Coast Community College – 4348 4300
We are currently taking enrolments for the following courses for 2011:
Dance & Movement
Thursdays 6:00pm To 9:00pm At Peninsula Community Centre, Woy Woy
Cooking
Mondays 5:45pm to 8:45pm at Oasis Youth Centre, Wyong
Cooking
Thursdays 6:00pm to 9:00pm at Nth Gosford Learning Centre
Art & Craft
Saturdays 12:30pm to 4:30pm at Peninsula Community Centre, Woy Woy
Art & Craft
Saturdays 12:30pm to 4:30pm at Glenvale School Nth Entrance Campus
Music – course details currently being finalised
Sport & Healthy Living – course details currently being finalised
These free courses have eligibility criteria, and are funded for adults with a disability living in the Gosford or Wyong LGA who live in the community and have an unpaid carer. Unpaid carers include people who are receiving a carer’s allowance.
Students do not pay a course fee, however for courses with consumable ingredients/materials there is a minimal payment required to contribute to the cost of the materials.
Ongoing enrolments: enquiries and enrolment applications to Jean Ardley or Hazel Gibbons at Central Coast Community College – 4348 4300
Monday, 10 January 2011
Happy New Year - welcome to a new year of blogging for information and support
Down Syndrome NSW is (mostly) back from holidays, and getting ready for a busy 2011.
If you are still on your summer break - enjoy it, and send us your photos and stories.
If you are affected by the recent and current flooding we hope you are drying out.
What's in the diary for 2011? Some well established, regular events, and some new ones, such as:
- details and fliers for our upcoming seminars and workshops will be posted this week - we'll be starting off with a new event for families and carers of older people with Down syndrome on 26th February. Events are planned for families and professionals, including teachers and support personnel early in the new school year
- the 2011Scrapheap Adventure Ride is scheduled to reach Cameron Corner on Easter Saturday, 23rd April. You can now follow along on Facebook, too (there's a permanent link in the right hand column)
- World Down Syndrome Day will be celebrated on 21st March 2011
Now to catch up with what's new, and back to regular blogging ....
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