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Showing posts with label News. Show all posts
Showing posts with label News. Show all posts

Wednesday, 10 May 2017

Federal Budget 2017: disability sector commentary

Disabled People’s Organisations Australia (DPO Australia) welcomes some big wins for people with disability in tonight’s Federal Government Budget, but is very concerned by the punitive approach to welfare support that will make life harder for those doing it tough, including people with disability.  “We are extremely pleased to hear that an increase in the Medicare levy will fully fund the National Disability Insurance Scheme and finally guarantee the support needs of people with disability”, said Ms Therese Sands, Director, DPO Australia. “The NDIS is a critical investment in our social infrastructure, an investment for all Australians, now and into the future” ... read the full media release here.
Every Australian Counts, 9 May 2017
Treasurer Scott Morrison tonight confirmed the government will fully fund the NDIS beyond 2019. 
In his Budget speech tonight, Mr Morrison announced the Commonwealth will increase the Medicare Levy from 2% to 2. from 2019 to help fund the NDIS. 
One fifth of the money raised by the Medicare levy, along with NDIS underspends and other savings will be channeled into the NDIS Savings Fund ... read the full media release here.

Federal Budget 2017: Down Syndrome Australia commentary

Budget Night 2017-2018
9 May 2017

Down Syndrome Australia's CEO, Dr Ellen Skladzien provides this useful summary of tonight's Federal Budget, on items most relevant to Australians with Down syndrome and their families:

The most positive news for the disability sector in the budget was the decision to provide full funding to National Disability Insurance Scheme (NDIS) through an increase in the Medicare Levy of 0.5 % from July 2019.  This will provide important funding for the Scheme going forward. It is likely to be controversial as it is basically a tax increase- but provides ongoing funding for NDIS and security for the scheme going forward.

One area of concern in the budget is a funding cut of $12 million to the Information, Linkages and Capacity building component of NDIS.  This is funding that supports organisations, like Down Syndrome organisations, that deliver information, referrals and peer support to people with disability. It is also the part of the scheme designed to assist people with disability who are not eligible for an individualised NDIS package of support. The Government has rationalised this by indicating it is due to WA not joining the national scheme.  However, given that the current level of ILC funding is extremely low compared to the required level of support required in the sector, it is disappointing to see this cut.

Other key budget measures for disability include:

  • $33 million dollar package to support aged care and disability workforce growth
  • $209 million to establish the Independent NDIS Quality and Safeguards commission
  • Investment in Disability Employment Services program over the next 4 years including funding to index payments, funding attached to individuals rather than service providers, and a trial to provide DES to children with a disability in their final years of schooling.
  • Changes to the residency requirements for the DSP and age pension.

There are also a range of health measures which will potentially have a positive impact on people with Down syndrome including:

  • Lifting the freeze on the indexation of the MBS and reversing the removal of bulk-billing for diagnostic imaging and the increase in PBS copayment and related charges
  • $165 million mental health package including $80 million for community psychosocial services
  • Investment in health research
  • Decision not to privatise Australian Hearing

There was also significant investment in education taking on the Gonski funding model.  This was announced in the lead up to the budget and has been somewhat controversial due to concerns about decreased funding to some private schools.

Overall there are some really positive outcomes; however, Down Syndrome Australia will continue to monitor the ILC situation- particularly if WA changes their approach to NDIS.

Friday, 5 May 2017

Disability sector news

New facility
Win News Sunshine Coast, 3 May 2017 (news video)
An Australian first college for young people with disabilities has opened its doors in Caloundra.

Dylan Alcott 2017 Patron for International Daw of People with Disability
Dylan Alcott is one of Australia’s most successful and well recognised Paralympians. Born with a tumour wrapped around his spinal cord, Dylan survived a three year battle to live and has been achieving ever since ...

NSW CID board member strikes again, this time at the UN
NSW Council for Intellectual Disability Board Member Robert Strike has been selected to attend high level talks on issues affecting people with disability at the United Nations in New York in June ...


Funding for community legal centres
While the NSW Government had already planned to implement a 'rescue package' of funding for community legal centres, such as the Intellectual Disability Rights Service,
... the federal government is to reverse its controversial funding cuts to Community Legal Centres (CLCs) in the upcoming budget – a move the community legal sector has described as a “huge relief” ... Government Reversal on Cuts to Community Legal Centres, Pro Bono Australia News, 29 April 2017
Clickability: new disability serices review site to go nationalSam Carroll, SBS, 9 March 2017
Two Melbourne-based social workers have developed a 'TripAdvisor-style' website allowing people with disabilities and their carers to rate and review support services on offer ...

Wednesday, 19 April 2017

Arts news

Sprung Integrated Dance Theatre nominated for national award
Sprung Integrated Dance Theatre, located in the Northern River region of NSW, has been long listed for an Australian Dance Award for outstanding contribution to community dance for the 2016 work, 'Encounters'.
This work came out of two years engagement with community groups including Byron Youth Theatre and Lady Cilento Children's Hospital, plus intense ensemble and skills development for our core dancers ... Sprung, on Facebook, 10 April 2017
The awards ceremony will be held in Melbourne on 24 September.

First-time playwright brings his experiences with Down syndrome to the stage
Mandy Marciniak, Kingston Heritage (Canada), 7 April 2017
For Jacob Ballantyne, the world can sometimes be a bit overwhelming and confusing. The 19-year-old Kingstonian is an aspiring playwright who also has Down syndrome, and this month he is sharing the story of his life and experiences in a unique way.

"This is the first time I have written a full play," he explained. "It is inspired by the movie Cheaper by the Dozen, and it is about living with Down syndrome in the mix of other disabilities and inspired by my own experiences" ...


ABC’s ‘Speechless’ Honored For Disability Storyline
Michelle Diament, Disability Scoop, 14 April 2017
... ABC’s “Speechless” is one of six shows that was named to the Television Academy Honors this week. The annual recognition from the Academy of Television Arts & Sciences highlights “programing that explores and confronts significant issues facing our society in a compelling and impactful way.”

“Speechless” was selected for exploring life with a disability and “the challenges and joys that come with it.” ...

The Who's Tommy review – bold retake on rock opera tackles disability rights

Lyn Gardner, The Guardian, 6 April 2017
Disabled and non-disabled actors, mixing in sign language and audio description, bring fresh dramatic insight to Ramps on the Moon’s pinball wizard musical ... Anyone with a lingering nostalgia for the 50s or 60s will have their eyes opened as the unresponsive Tommy is subjected to the arrogant blindness of medical science, the grasping greediness of quacks, and abuse much closer to home ...

Wednesday, 12 April 2017

News and commentary on the NDIS (65)

Jessica Irvine, Sydney Morning Herald, 10 April 2017
Everyone knows the National Disability Insurance Scheme is a great idea, but hopelessly over budget – an expensive Labor extravagance – right? Don't buy the lie.

'National Disability Insurance Scheme Costs' review
More than 180 submissions have been received in response to the Productivity Commission's Issues Paper, National Disability Insurance Scheme Costs. Initial submissions were due by 24 March 2017. Opportunity for further comment will be sought upon release of the position paper in May 2017.

The study will examine issues including: the sustainability of scheme costs; jurisdictional capacity (including the complementary disability services provided by the States and Territories); cost pressures (including wage pressures); changes in the agreed escalation parameters; whether efficiencies have been achieved within the scheme; whether there has been any impact on mainstream services; and examine the most appropriate levers to manage any potential cost overruns.
A broad range of organisations and individuals have responded, including Down Syndrome Australia - background and summary of the DSA submission and a link to the paper

NSW Government privatisation plans leave people with disabilities in uncertainty
Alison Branley, ABC, 7 April 2017
Now the NSW Government has confirmed it has a long-term plan to sell off these homes as part of the move to a National Disability Insurance Scheme (NDIS).

NSW Disability Services Minister Ray Williams said in the medium term the properties would be leased to private community housing providers under five to 10-year agreements. But after that, they would be sold ...


Disability services sell-off in New South Wales being bungled, carers say
Alison Branley, ABC News, 31 March 2017
Carers of people with a disability have accused the NSW Government of bungling its sell-off of disability services.

The State Government currently runs about 300 group homes in NSW and now that service has been put out to tender under the shift to the National Disability Insurance Scheme (NDIS). This sell-off has left many residents and their families anxious and uncertain about their future.

Families of residents said they were angry the process had been structured so they have only one choice in many areas, and often it was a larger organisation ...


Siblings and the NDIS
Kate Stohm, Every Australian Counts, 8 March 2017
The NDIS is a new way of supporting people with disability. Whilst it aims to provide greater choice and control regarding services for participants it also recognises the important role of ‘informal supports’ ...

Disability Advocacy Funding Failure
Lena Cavena, Pro Bono News Australia, 9 March 2017
The future of many disability advocacy organisations is under threat with the expected loss of NSW government funding from July 2018 as the National Disability Insurance Scheme (NDIS) continues to roll out nationally. 

Under the terms of NSW’s NDIS deal with the federal government, the state will hand over all its disability budget to the Commonwealth from 1 July 2018.

The CEO of Disability Advocacy NSW, which is one of the largest disability advocacy services in the state, is Mark Grierson. He told Pro Bono News that the NDIS definition of disability support excluded advocacy and health-related services ...


Weekly Q and A 
NDIS, from 24 March 2017
We established this weekly Q and A forum because we are reading your comments, and want to answer the most commonly asked questions, including those with answers we think will be helpful to a wide range of people who visit our social media channels.

  • Q and A forums are located on the 'news' page, 7 April and 13 April now listed.


____________________________________

The official NDIS website provides access to documents, and up to date information about how the NDIS works, and NDIS events such as local workshops and webinars.


NDIS and Me
People with Down syndrome and/or their families and carers can join the closed Facebook Group, NDIS and Me, for discussion specifically about the NDIS and people with Down syndrome.


Disability Loop - a way to find out more about the National Disability Insurance Scheme (NDIS). Disability Loop is a project funded by the NDIS. It is run by, and for, people with disability and their allies.

Two other closed Facebook groups (only members can see the posts) that you might find useful for answering particular queries are:
  • NDIS Grassroots Discussion - a large group run for and by people with all kinds of disabilities, and welcoming of carers - the administrators are very experienced in managing discussions that can become robust at times, as criticism of the NDIS is raised
  • the newer and smaller I Love NDIS aims to promote discussion of individual's successes in putting their plans together and implementing them.

Thursday, 6 April 2017

News and commentary about the broader disability community

Carly Findlay, Ravishly, 3 April 2017
When my husband suggested we see the 2017 remake of Beauty and The Beast, I told him we couldn't watch it because I'd be looking at it through appearance diversity lens. My disability pride and politics ruin everything!

But we went, and I tried to keep an open mind. I watched it, and I enjoyed it. There was a beautiful, diverse cast, filled with strong black women as lead characters — and a gay storyline, too! I liked the costumes and the songs. I especially liked the animated personifications of candlesticks, clock, duster, cup, saucer and furniture. They were charming. I still couldn't get past the idea of The Beast, though ...
Dave Hingsburger, Of Battered Aspect, 30 March 2017
Warning, I'm going to quote a conversation that I got pulled into with two people with intellectual disabilities. A boyfriend and a girlfriend were discussing who they were, not to each other, but to the world. I'm going to use the words they used as risk of offending every reader. But to be true to the story and to respect the language they chose to use, I am going to risk that ...

David Lohr, Huffington Post, 14 March 2017
A disturbing number of caregivers kill the people they're meant to be helping ...

National approach crucial to make Australians with disability equal before the law
Nance Haxton, ABC News, 20 March 2017
As an ABC journalist for almost two decades, one issue I have reported on that has rattled me more than any other is the discrimination against people with a disability in Australia's justice system ...

Tuesday, 4 April 2017

New quarterly newsletter from Down Syndrome Australia

'Welcome to Down Syndrome Australia’s first newsletter, bringing you key highlights from our work, information on upcoming events and opportunities to share your views and experiences. Down Syndrome Australia was established in 2011 as the peak body for people with Down syndrome in Australia. 
Our vision is an Australia where people living with Down syndrome are valued, reach their potential and enjoy social and economic inclusion. '
You can subscribe to receive the newsletter online via the Down Syndrome Australia website - scroll to the bottom of the page to enter your email address.


Arts news and commentary

CREATEABILITY 2017 is a Screenworks initiative supported Screen NSW and the ABC that provides funded opportunities for professional filmmakers living in Regional NSW to profile artists with disability living and creating in their communities. 
The key objective of CREATEABILITY 2017 is to profile work produced by artists with disability through identified arts organisations and screen media.
Registrations for CREATEABILITY 2017 will close at midnight on Sunday 23rd April 2017
Sydney Opera House 2017 Access Program launched
Accessible Arts Newsletter, March 2017:
The Sydney Opera House has unveiled its 2017 Access Program, featuring more than 70 accessible performances, workshops and experiences to ensure the Opera House is open to all. 
Underpinned by the Sydney Opera House’s Access Strategic Plan 2016-18, the 2017 program is the Opera House’s biggest yet, increasing the number of accessible performances available to the community.  
Visit the Sydney Opera House official Media Release online here for the list of performances. 
Alongside its year-round Access Program, the Opera House is making significant progress with its plans to open up more of the building to the public and improve access around the site for those with mobility issues. These essential works, which form part of Stage 1 Renewal of the Opera House, include greater access to the Concert Hall and Joan Sutherland Theatre, wheelchair accessible seating positions and new Box Office and Foyer lifts and escalators. 
Sydney Opera House CEO Louise Herron AM said: “Accessibility is a major focus for us. As we renew the building for future generations we are looking at every possible opportunity to make the Opera House more accessible – from programming to the building itself."

It's not OK for actors to 'black up'; nor is it OK to act out disability
Carly Findlay, Sydney Morning Herald, 23 March 2017
The disability community – people with disability and parents alike – is excited about Speechless, now screening on Channel Eleven. It's one of the first TV shows that does not depict disability as a tragedy, burden or something to be ashamed of ...

Cara Liebowitz, NOS Magazine, 8 March 2017
I love ABC’s Speechless. It is one of my favorite shows currently on the air. As someone with cerebral palsy, I’m beyond thrilled that someone like me is finally being shown on TV as just a regular character, not a “special” guest to teach the non-disabled characters the meaning of kindness. Micah Fowler, who plays JJ, actually has cerebral palsy, a fact that excites me to no end.

Unfortunately,the show has a worrying trend of sort of sideways swiping a trope or stereotype about disability, but not directly subverting it. It’s like after the first few episodes, the show lost its nerve. And nowhere was that more obvious than the latest episode, O-S-Oscar P-A-Party ...


The Shows Shaking Up Disability Representation
David M. Perry, Pacific Standard, 8 March 2017
'Speechless' and 'Switched at Birth' deliver great jokes, soapy family drama, and a primer in contemporary issues facing the disability community ...

Oscars diversity debate must include learning disability
Letters, The Guardian, 25 February 2017
Diversity has long been an issue at the Oscars ... Last year’s #OscarsSoWhite campaign highlighted the lack of racial diversity. But disability has been overlooked in this debate, with even less of a voice for people with a learning disability ...

Monday, 6 March 2017

NSW disability sector news

You don’t know what you’ve got till it’s gone…
NSW Council on Intellectual Disability, 6 March 2017
Did you know the NSW Government has no plans to fund state based advocacy services beyond the middle of 2018?

This includes services like IDRS, Disability Advocacy NSW and NSW CID.

An article published in the Sydney Morning Herald yesterday, has highlighted the risks people with intellectual disability will be faced with once advocacy services are no longer available ...

Benevolent Society to Take Over NSW Govt Disability Support Services
Lina Caneva, Probono Australia News, 2 March 2017
Australia’s oldest charity, The Benevolent Society, has been chosen to operate the NSW government’s specialist disability support services – described as Australia’s largest provider of clinical services for people with disability.

The major win for the charity will see the organisation double its workforce and operations.

The NSW Minister for Disability Services Ray Williams made the announcement of the new provider for disability clinical services (which are currently part of the NSW Department of Family and Community Services) on Thursday ...
... Clinical services comprises staff who are case managers, psychologists, behaviour support practitioners, speech pathologists, occupational therapists and physiotherapists working in multidisciplinary teams ...

Clickability
Clickability is an Australian disability service directory that features ratings and reviews from the people who actually use the services.It's expansion into NSW was announced on 1 March 2017.

The website includes a blog that aims to 'to encourage discussion and debate about important disability-related issues within the community.'

Thursday, 16 February 2017

News and commentary on the NDIS (63)

Developing and starting your first plan - NDIS webinar
2.00pm-3.00pm Tuesday 28 February 2017 (AEDT)
NDIA hosted webinar about your NDIS First Plan and how to put it into action.
It’s free to watch, and the live and online panel will be answering questions submitted by viewers on the day. 
If you have questions about the first plan process or want to hear about how you might best implement your plan, this is the webinar for you!
Probono Australia, 25th January 2017
The wellbeing of carers caring for an individual participating in the National Disability Insurance Scheme (NDIS) may not have improved compared to those not on the scheme, according to researchers who are embarking on stage three of a national investigation ...

NDIS Housing - 4 key questions
Luke Bosher and Libby Ellis, Disability Services Consulting, 5 February 2017
Literally tens of thousands of people with disability (and families) are thinking about how the NDIS will enable a move out of the family home and into a house of their own.

... Ultimately, participants and their families will need to decide for themselves where they live, who they live with and how they are supported ...


The Inclusion Hub is a new online tool to support Australian families, Early Childhood Intervention (ECI) practitioners and communities with the resources they need to navigate the National Disability Insurance Scheme (NDIS). 
The site has been developed by Early Childhood Intervention Australia (ECIA). Our ECI experts have selected all the best available resources to support families and children with disability and/or developmental delay. It is our goal to make it easy for families, early intervention providers, early childhood educators, medical professionals and the community to have available to them resources, ideas and stories all in one place. 
The Inclusion Hub encompasses a resource directory, a glossary of common terms, webinars, articles, newsletters, downloads and more.
Concerns NDIS Quality and Safety Framework Forgets Majority of People With DisabilityEllie Cooper, Pro Bono Australia, 7 February 2017
Disability advocates welcomed the release of the long-awaited NDIS quality and safety framework, but expressed concern about the significant number of people outside the scheme who won’t be protected ...

Every Australian Counts, 13 February 2017
Until now each state and territory has been responsible for ensuring the quality of NDIS services and protecting NDIS participants in their jurisdiction. But that’s set to change under the new national NDIS Quality and Safeguarding Framework ...

The Policy Problem: The NDIS and Implications for Access to Education
Pro Bono Australia, 7 February 2017
Despite the policy priority across OECD countries of increasing lifelong learning opportunities, fragmented NDIS policy in Australia prevents people with disability from achieving this ideal, write academics Ben Whitburn, Julianne Moss and Jo O’Mara from Deakin University ...

Hunter workers join Sydney disability services rally
Ian Kirkwood, Newcastle Herald, 14 February 2017
About 700 public sector disability workers braved pouring rain and NSW government threats of legal action to rally outside Parliament House against the privatisation of government disability services.


Additional responses to the Omnibus Bill proposal:

Architect of NDIS lashes Federal Government over funding for the scheme (audio 2m 48s)
Peta Donald, ABC AM, 16 February 2017
The man sometimes called 'the father' of the National Disability Insurance Scheme has criticised the Federal Government over the debate this week on how the scheme's to be paid for. The government wants the Senate crossbench to support cuts to family payments, in order to fund the NDIS.

Bruce Bonyhady, the inaugural chairman of the National Disability Insurance Agency, says linking the two is deeply unfair, and cruel to disabled Australians.


Political debate over future funding for the National Disability Insurance Scheme raises concerns (audio only) (audio 4m 45s)
Emily Bourke, ABC PM, 15 February 2017
Well, disability advocates say they're increasingly alarmed by the tone and substance of the political debate over the future funding for the National Disability Insurance Scheme (NDIS) ...

National Disability Insurance Scheme: Where will the cash come from?
Jane Norman, ABC News, 15 February 2017
A ferocious argument has erupted between the Federal Government and Opposition over the funding for the $22 billion National Disability Insurance Scheme (NDIS) ...
Hearing Morrison use disabled people as political pawns gave me the creeps
Michael Buckley, The Guardian, 14 February 2017
Tying the omnibus savings bill to NDIS funding was cynical. I wasn’t surprised – we disabled are used to being treated with contempt by this government.

Leaving aside the ethical question of harming one group of poor – the bill would push unemployed people under 25 from Newstart to Youth Allowance, as one example – to help another, there is something quite unsettling about the way Morrison is framing a refusal to vote for the omnibus as some kind of attack on the NDIS. It’s unsettling to see a bipartisan enterprise like the NDIS (remember that sense of hope when it was introduced) used as a wedge in this way ...


Agree to welfare cuts or forget funding for childcare and the NDIS? The government's ultimatum that failed
Georgina Dent, Women's Agenda, 14 February 2017
Yesterday the federal government ramped up the pressure on senators who might block its $4 billion omnibus of savings - comprising significant welfare cuts - by indicating that would put funding for childcare increases and the National Disability Insurance Scheme at risk ...

Here's a tip: don't pick on disabled people
Laura Tingle, Australian Financial Review, 13 February 2017
Christian Porter is often touted as a conservative contender for future prime minister. He's smart. He's personable. He's got the experience of being a state attorney-general and treasurer under his belt despite his relative youth.

What he hasn't got is any political touch. He rather showed that last year when he missed a huge opportunity to parade himself as an innovative policy maker with some interesting ideas - and create a new platform for debating welfare spending - when he instead sold the government's adoption of the New Zealand investment approach to social welfare as yet just another exercise in ways to save eleventy billion dollars in a hundred years time.

So here's a tip Christian: don't pick on disabled people ...
  • Access to this article might require payment.

________________________________________

The official NDIS website provides access to documents, and up to date information about how the NDIS works, and NDIS events such as local workshops and webinars.

NDIS and MePeople with Down syndrome and/or their families and carers can join the closed Facebook Group, NDIS and Me, for discussion specifically about the NDIS and people with Down syndrome.

Disability Loop - a way to find out more about the National Disability Insurance Scheme (NDIS). Disability Loop is a project funded by the NDIS. It is run by, and for, people with disability and their allies.

Two other closed Facebook groups (only members can see the posts) that you might find useful for answering particular queries are:
  • NDIS Grassroots Discussion - a large group run for and by people with all kinds of disabilities, and welcoming of carers - the administrators are very experienced in managing discussions that can become robust at times, as criticism of the NDIS is raised
  • the newer and smaller I Love NDIS aims to promote discussion of individual's successes in putting their plans together and implementing them.

Thursday, 2 February 2017

News and commentary on the NDIS (62)


Amid the gloom, something for Australians to feel proud of
Jessica Irvine, Sydney Morning Herald, 23 January 2017
... Behind the scenes, the wheels of Australian government are in feverish full swing to build one of the largest pieces of social and economic infrastructure this country has ever seen.

In terms of cost, it's on par with building the National Broadband Network – every year.

It's the National Disability Insurance Scheme (NDIS) of course, this nation's most ambitious attempt ever to deliver more money and better services to the most vulnerable people in our communities.

Australians should feel rightly proud of the scheme. But vigilance is also required ...


Where do I find ...

NDIS eNewsletter, 19 January 2016
Improvements have been made to the factsheets and publications page, if you’re looking for readily available (NDIS) information, it’s the place to start.

Each one is short and succinct, providing you with enough information to understand each topic. So if you’re ever in need of more specific and helpful information - all on one page - make sure you check it out!

The NDIS in 2017 – a year of promise but great challenges
Jim Simpson, NSW Council for Intellectual Disability, 16 January 2017
The NDIS legislation is about people with substantial disability having an enforceable right to “reasonable and necessary support” and having “choice and control” over how that support is provided and who provides it. It is a fundamental step forward in increasing the availability and individual focus of this support for people with disabilities in Australia.

In NSW, the disability support budget will increase greatly and the number of people receiving disability support should rise from 80,000 to 140,000. However, there are many major hurdles that must be overcome for this vision to become reality ...

'Don't cut uni research funding to help NDIS': UQ vice chancellor
Tony Moore, Sydney Morning Herald, 15 January 2016
It is a mistake to take research money from universities to fund gaps in the National Disabilities Insurance Scheme, the new chairman of Australia's high-profile Group of Eight (Go8) university body, Queenslander Professor Peter Hoj said this week.

"We absolutely agree the NDIS should be funded adequately ," Professor Hoj said ... "Damage research and you damage not only the medical advances that come from research, but indeed the economy which sustains many of the services we wish to have available in the long term" ...

  • The NDIS Must Not Be a Trade-OffWendy Williams, Probono News Australia, 16 January 2017 - The National Disability Insurance Scheme must not be funded from trade-offs the disability sector has argued, as tension mounts over federal government plans to transfer a $3.7 billion education fund into the initiative.

Empowered clients do well under NDIS but older, rural people struggle: review
Linda Belardi, Community Care Review, 19 January 2017
The majority of clients in the National Disability Insurance Scheme trial have enjoyed greater choice and control under the new program, but some have found themselves to be worse off under the scheme, an evaluation has found.

Some 15 to 17 per cent of participants reported having poorer outcomes in terms of their choice and control and were accessing fewer supports than they did prior to the NDIS trial ...


The role of funded services and support
Community Resources Unit, 2016
... As we move to a new era with more flexibility, we have the chance to rethink how formal support can be incorporated into a person’s life and what an ideal combination of supports would be. The gradual introduction of individualised funding over recent years has highlighted the potential for the formal to usurp or take over the informal and we see the cost of that in the loneliness and disconnection in many people’s lives ...
'Bringing together research and sporting excellence so all kids can play and dance'
A survey  to help build inclusive physical activity programs around Australia for all children, regardless of developmental challenges or disabilities - click here to go to the survey website for more information and to complete the survey.

The researchers are from the National Disability Insurance Agency and Deakin University.

$15.3 million to NDIS projects
Jane Prentice MP, Assistant Minister for Social Services and Disability Services, 25 January 2017
The Australian Government is providing a package of more than $15.3 million to help people prepare for the National Disability Insurance Scheme (NDIS), through the NDIS Sector Development Fund ...


NDIS: Federal Government announces independent review of National Disability Insurance Scheme
Henry Belot, ABC News, 20 January 2017
he Federal Government has announced an independent review of the National Disability Insurance Scheme (NDIS) to examine overall costs, value for money and its long-term sustainability.

Treasurer Scott Morrison announced the Productivity Commission review on Friday afternoon with a position paper to be released in May, followed by a report in September ...
________________________________________

The official NDIS website provides access to documents, and up to date information about how the NDIS works, and NDIS events such as local workshops and webinars.


NDIS and Me
People with Down syndrome and/or their families and carers can join the closed Facebook Group, NDIS and Me, for discussion specifically about the NDIS and people with Down syndrome.


Disability Loop - a way to find out more about the National Disability Insurance Scheme (NDIS). Disability Loop is a project funded by the NDIS. It is run by, and for, people with disability and their allies.

Two other closed Facebook groups (only members can see the posts) that you might find useful for answering particular queries are:
  • NDIS Grassroots Discussion - a large group run for and by people with all kinds of disabilities, and welcoming of carers - the administrators are very experienced in managing discussions that can become robust at times, as criticism of the NDIS is raised
  • the newer and smaller I Love NDIS aims to promote discussion of individual's successes in putting their plans together and implementing them.

Wednesday, 1 February 2017

News and commentary from the broader disability community

Image: Wikipedia Commons
5 Common Myths About Disability
Meriah Nicholls, 7 January 2017
I was late in joining the disability community (“island time” as they say in the Pacific), because in my family, the only “real” people with disabilities were people who use wheelchairs ...


Special needs, euphemisms, and disability
Morton Ann Gernsbacher, Biomed Central - On Health, 17 January 2017
A recently published study in 'Cognitive Research: Principles and Implications 'finds the term ‘special needs’ to be an ineffective euphemism. In this blog, lead author of the study, Morton Ann Gernsbacher, discusses the findings, the interesting study design involving a set of vignettes and the societal impact of the term ‘special needs’ ...

Happy Ed Roberts Day!
David Perry, How Did We Get Into This Mess? 23 January 2017
A celebration of  Ed Roberts, a renowned US disability advocate.

An archive of New York Times  columns - essays, art and opinion exploring the lives of people living with disabilities.

Want accurate data on people with disabilities? Ask them
Kim Bradford Smith and Dominic Haslam, The Guardian (UK), 26 January 2017
Globally, there is a staggering dearth of accurate and comparable data on disability. Censuses and other surveys have provided some general estimates, but the reality is that many governments and policymakers don’t have an accurate picture of how many people with disabilities live in their countries ...


Special needs, euphemisms, and disability
Morton Ann Gernsbacher , BioMed Central - On Health, 17 January 2017
A recently published study in Cognitive Research: Principles and Implications finds the term ‘special needs’ to be an ineffective euphemism. In this blog, lead author of the study, Morton Ann Gernsbacher, discusses the findings, the interesting study design involving a set of vignettes and the societal impact of the term ‘special needs’ ...

Wednesday, 11 January 2017

News and commentary on education

Catia Malaquias, Starting with Julius: IncludedEd, 18 December 2016
...  A long list of adverse results in comparison to the “average” learner without much more goes a long way to telling a parent and the student themselves that they do not belong in that learning environment ...


Thoman Hehir, Silvana and Christopher Pascucci and Abt Associates, for Instituto Alana, August 2016
... In this report we sought to identify research that demonstrates the benefits of inclusive education not only for students with disabilities, but especially for students without disabilities, since evidence of benefits for the former is already widely known. This report is the result of a systematic review of 280 studies from 25 countries. Eighty-nine of the studies provide relevant scientific evidence and were synthesized and summarized below. 

There is clear and consistent evidence that inclusive educational settings can confer substantial short- and long-term benefits for students with and without disabilities ...

How schools avoid enrolling children with disabilities
Linda J Graham, Helen Proctor, Roselyn Dixon, The Conversation, 28 January 28, 2016
Children with disabilities are frequently discriminated against in Australian schools. It has been an ongoing issue for years, with reports showing that little has improved since 2002.

Exclusion practices – dubbed “gatekeeping” – include: advising parents to send their child to another school that could better support them; allowing a child to attend a school only on the days that funding is available; and asking parents to pay more so the school can employ support staff or purchase equipment. Although this happens across all school types, it tends to be more prominent in, and easier for, non-government or private schools.

Matthew Knott, Sydney Morning Herald. 20 December 2016
Students with disabilities could miss out on hundreds of millions of dollars in extra funding because of serious concerns about the reliability of a landmark national audit into the number of school children with special needs ...
‘Naughty’ classes are wrong: here’s what the research says
Linda Graham, Australian Association for Research in Education, 31 October 2016
A primary school in Victoria made the news recently when it created a separate “naughty-naughty” class for children experiencing learning and behavioural difficulties. It is not the first school to have done this and it is unlikely to be the last ...

Finding support when you least expect it
Inclusive Education Canada, 8 November 2016
In October 2016, Gordon Porter, Director at Inclusive Education Canada, and Debbie met for the first time while Gordon was promoting inclusive education at a series of speaking events in Northern Ontario. Debbie told Gordon he had a significant impact on the course of her life despite having never met in person ...

Thursday, 5 January 2017

News and commentary from the broader disability community

B and T Magazine, 19 December 2016
The Attitude Foundation together with its principle partner ANZ, have selected award-winning production company Taste Creative to film a television series promoting the valuable contribution of people with disabilities within Australian communities.

This forms an important milestone for the Foundation which since being founded in 2014 by Graeme Innes, Australia’s former Disability Discrimination Commissioner, has worked to secure funding from industry and government for the production ...


The hidden story of sexual abuse
Ginger Gorman, Tierney Bonini, ABC Lateline, 30 November 2016
Jane Rosengrave has an intellectual disability and takes Lateline back to the institution in regional Victoria where she claims she was sexually abused by multiple perpetrators ...

Prison Is Not The Place For People With Disabilities
Rachel Siewert, Huffington Post, 30 November 2016
People in Australia are being detained simply because there is nowhere else for them to go ...

At least 100 Aussies with cognitive disability held in jail indefinitely
Shalailah Medhora, ABC Triple J, 11 December 2016
Swift action is needed to ensure that people with cognitive impairments and acquired brain injuries aren't held in jail indefinitely, a disability rights group says.

Earlier this month, a Senate inquiry into indefinite detention found there are at least 100 people who are in jail for an unspecified period of time because they did not have the mental capacity to plead to a crime. That includes people with personality disorders, foetal alcohol spectrum disorder, dementia and brain injuries resulting from assaults and car accidents ...

Punk and disability inclusion have more in common than you may think
Diana Hiscock, HelpAge, 2 December 2016
Attitude can influence our perception of events and even has the power to shape our behaviour - even in immensely challenging circumstances. Working as we do with older people, people with disabilities, and indeed older people with disabilities, understanding this link between attitudes and behaviour is pivotal in getting our job done ...
Josephine Maguire-Rosier, Sydney Morning Herald, 3 December 2016
... Sure, I could explain to you about ramps and lifts, about tactile signage, or easy English, closed captioning, or Auslan interpreting and, following that advice, would take you a lot further than where you are now. These are all things that you should do. However, providing people with nice, easy checklists glosses over one fundamental aspect of disability and, indeed, humanity – we are all different ...

Wednesday, 21 December 2016

People with Down syndrome

James is crashing barriers
Barossa Leader, 2 December 2016
“Life’s good,” says 25 year old James White. The Nuriootpa resident couldn’t be happier after being appointed a Member Ambassador for Down Syndrome SA, one of only two to be given the 12 month role.

“I’m very proud – very happy,” said James ...


Tom has a paid job at The Environment Agency’s National Laboratory Service

Down's Syndrome Association (UK), 8 November 2016
Tom has lots of work experience, including in catering, but had been looking for a more permanent work challenge for some time. Although Tom has plenty of transferable skills, he faced many barriers to the workplace ...

Doctors said he would never hold a job — now he's retiring after 35 years
Colleen Jones, CBC News, 15 December 2016

The energy he brings and surrounds himself with is contagious. After Andrew MacEachern was born with Down syndrome in 1960, medical experts told his father he would never learn to read or write, or ever hold down a job.

He proved them wrong. On Wednesday, after 35 years delivering supplies around the Victoria General hospital in Halifax, MacEachern was celebrated by his co-workers at a well-earned retirement party ...


How a man with Down syndrome achieved his dream of becoming a firefighter
Brian Brueggemann, Charlotte Observer, 16 December 2016
Jason Eagan is a firefighter in Sandoval, Illinois, and has Down syndrome. Lt. Matt Horn says Jason is a valued member of the volunteer department ...

Tuesday, 6 December 2016

News and commentary on the NDIS (60)

The official NDIS website provides access to documents, and up to date information about how the NDIS works, and NDIS events such as local workshops and webinars.


NDIS and Me
People with Down syndrome and/or their families and carers can join the closed Facebook Group, NDIS and Me, for discussion specifically about the NDIS and people with Down syndrome.


Disability Loop - a way to find out more about the National Disability Insurance Scheme (NDIS). Through Disability Loop you can:
  • Find a great selection of resources relating to the NDIS
  • Find out how the NDIS is working for other people
  • Have your say about the NDIS
  • Keep up to date with news and events about the NDIS
Disability Loop is a project funded by the NDIS. It is run by, and for, people with disability and their allies.
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ACCC releases guidance to consumers and businesses in the disability sector
Australian Competition and Consumer Commission, 2 December 2016
The Australian Competition and Consumer Commission has today released guidance to empower people with disability to use their consumer rights when buying goods and services under the new National Disability Insurance Scheme (NDIS) ...

National Disability Insurance Scheme: Western Australia adopts own model
Nicolas Perpitch, ABC News, 2 December 2016
Western Australia will operate a version of the National Disability Insurance Scheme (NDIS) unlike the rest of the country, after it came to an agreement with the Commonwealth over the adoption of a state-run model ...

Abigail Dawson, Mumbrella, 21 November 2016

The National Disability Insurance Scheme (NDIS) has recruited Loud to launch a state-wide campaign featuring NDIS customers.

Hiring workers, ensuring quality: responses from Hireup, Better Caring and My Supports
Libby Ellis, InCharge, 28 November 2016
In short: We’ve got a great conversation going about the ins and outs of new ways people can find support workers. Read on for our latest addition!

Geelong family takes National Disability Insurance Agency to court over NDIS deficiencies
Bethany Tyler, Geelong Advertiser, 1 December 2016
A Geelong family is taking on the National Disability Insurance Agency in a test case push for clearer funding policy ...

Peter Giblisico, On Line Opinion, 2 December 2016

The "movers and the shakers" in disability care, those who are stakeholders in the disability care industry, seek to find a solution that is cheap and safe, rather than one in which a flexible supporting regime can provide the resident with support that maintains the good things that have previously been a part of a life already constrained ...

Carers future uncertain under the NDIS says latest Anglicare report
Carers NSW, 2 December 2016
Launched today, Anglicare Sydney’s 'Carers: Doing it Tough, Doing it Well' report raises concerns about unmet needs of carers under the NDIS. It also indicates the need for more support programs for carers of people with a disability ...
National Disability Services (NDS), 5 December 2016
NDS has today released its State of the Disability Sector Report for 2016, launched in Melbourne as part of NDS’s CEO Meeting. The report paints the compelling picture that while the disability services sector remains committed to the National Disability Insurance Scheme (NDIS), many providers feel uncertain about the future.

Much of the report is based on results from the 2016 Business Confidence Survey (BCS) completed by almost 550 disability service providers. The survey, which focuses on the 2015-16 financial year, highlights the amount of change and growth required by the supply side to fulfil demand under the NDIS ...
  • Note: NDS is the professional organisation representing the interests of disability service providers.

Tuesday, 22 November 2016

News and commentary on the NDIS (59)

The official NDIS website provides access to documents, and up to date information about how the NDIS works, and NDIS events such as local workshops and webinars.


NDIS and Me
People with Down syndrome and/or their families and carers can join the closed Facebook Group, NDIS and Me, for discussion specifically about the NDIS and people with Down syndrome.


Disability Loop - a way to find out more about the National Disability Insurance Scheme (NDIS). Through Disability Loop you can:
  • Find a great selection of resources relating to the NDIS
  • Find out how the NDIS is working for other people
  • Have your say about the NDIS
  • Keep up to date with news and events about the NDIS
Disability Loop is a project funded by the NDIS. It is run by, and for, people with disability and their allies.

Two other closed Facebook groups (only members can see the posts) that you might find useful for answering particular queries are:

  • NDIS Grassroots Discussion - a large group run for and by people with all kinds of disabilities, and welcoming of carers - the administrators are very experienced in managing discussions that can become robust at times, as criticism of the NDIS is raised
  • the newer and smaller I Love NDIS started recently to promote discussion individual's successes in putting their plans together and implementing them. 
Counting what counts surveys 
Julia Farr Association
We have had a significant response to the first Counting What Counts survey but it's not too late to have your say.

If the NDIS is to be really helpful in people’s lives, it needs to be shaped in line with what people living with disability need to live a rich and meaningful life.

Currently, much of the NDIS development is focused on how service providers make the move to the NDIS. This creates a risk that the NDIS market will reflect what providers need, not what people and their families need.

Counting What Counts is a series of surveys to find out more about what people living with disability, their families and supporters, want. JFA Purple Orange will publish the survey results, so people can use the information to make sure the NDIS is implemented well.



2016 NDIS supporter survey
Every Australian CountsTell us what you think about the NDIS.

People with disability, their families and carers and the service provider sector must have an NDIS that’s the best it can be.

That means letting our decision makers know what’s working, what isn’t and what needs to be done to make it better.

We’ll be releasing our first Every Australian Counts Community Report Card in December and we need you to shape it.

This is your NDIS. Fill out this simple survey to make sure you have your say.
Information, linkages and capacity building
National Disability Insurance Scheme, 9 November 2016
The NDIS has released the Information, Linkages and Capacity Building Framework (ILC). The ILC includes:

Personal capacity building – this is about making sure people with disability and their families have the skills, resources and confidence they need to participate in the community or access the same kind of opportunities or services as other people. 
Community capacity building – this is about making sure mainstream services or community organisations become more inclusive of people with disability ...
The ILC Toolkit is designed to help organisations get ready for ILC - it was released on 21 November 2016.

The National Disability Insurance Scheme: a quick guide
Luke Buckmaster,  Parliamentary Library (Australia), 1 September 2016
This five page 'Quick Guide' from the parliamentary Library could be a useful for those who are hearing about the NDIS for the first time, either as participants, family members, carers or potential service providers or support workers.
Community Disability Alliance Hunter (CDAH), 11 November 2016
A video about the NDIS and the importance of peer support. Made by people with intellectual disability for people with intellectual disability. 9 m 30s

National Disability Insurance Scheme struggling to meet enrolment targets, report shows
Norman Hermant, ABC News, 14 November 2016
The first quarterly report from the National Disability Insurance Scheme (NDIS) transition phase shows the scheme came nowhere near to hitting its original estimates for enrolees ...
Every Australian Counts, 16 November 2016
The first quarterly report covering the NDIS transition phase has been released. Here’s what you need to know.

Wednesday, 9 November 2016

News and commentary on the NDIS (58)

The official NDIS website provides access to documents, and up to date information about how the NDIS works, and NDIS events such as local workshops and webinars.


NDIS and Me
People with Down syndrome and/or their families and carers can join the closed Facebook Group, NDIS and Me, for discussion specifically about the NDIS and people with Down syndrome.


Disability Loop - a way to find out more about the National Disability Insurance Scheme (NDIS). Through Disability Loop you can:
  • Find a great selection of resources relating to the NDIS
  • Find out how the NDIS is working for other people
  • Have your say about the NDIS
  • Keep up to date with news and events about the NDIS
Disability Loop is a project funded by the NDIS. It is run by, and for, people with disability and their allies.
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NDIS Champions: emerging grassroots leaders
Disability Loop, October 2016
Would your business, organisation or community group benefit from a free information session on the National Disability Insurance Scheme (NDIS), delivered by a person with disability in your local area?

Do you want to know more about the National Disability Insurance Scheme (NDIS)? Do you want to understand what it will mean for people with disability?

The Australian Federation of Disability Organisations (AFDO) has recently employed and trained 30 people with disabilities from all over Australia to become NDIS Champions - to deliver reliable, fact-checked information about the NDIS in their local communities ...


NSW: How Siobahn Daley became the public face of the NDIS
Rachel Brown, The Sydney Morning Herald, 7 November 2016
Siobahn Daley knows first-hand how the National Disability Insurance Scheme can change lives but new research shows she's much better informed than most.

Creating Capacity: Support for Adult Siblings Project
Siblings Australia, October 2016
Siblings usually have the longest relationship of any with a person living with disability. Support for siblings is important for their own wellbeing and for the benefits that a strong sibling relationship has for the person with disability. Siblings Australia has been funded by the DSS Sector Development Fund to develop more supports for adult siblings of people with disability. The aim of the project is to build the capacity of siblings to understand the role of the NDIS and support their brother or sister’s transition to the NDIS ...

CripCroakey NDIS Part 1: Scandals, blunders and how change will only come when disability rights are front and centre
El Gibbs, Croakey, 4 November 2016
... disability is not something that happens to some other people, but something that is part of normal, ordinary life. It is often said in disability circles that people are just temporarily able bodied – the idea that a ‘normal’ body is not a disabled body is a fantasy.

"The NDIS was not to be a system that works for those disabled people “over there” – it is intended to become part of our essential social infrastructure, available to all Australians, which will ensure that having a disability will no longer mean poverty or a denial of basic human rights" ...

"It's like a five-year-old wrote it": disability advocates slam NDIS care plansMiki Perkins, The Age, 29 October 2016
Disability advocates – who all emphasised their strong support for the NDIS – said the agency managing the scheme was under enormous pressure to sign up participants in an unrealistic timeframe, and with inadequate federal funding ...

Greater Expectations and the NDIS
Sally Coddington Disability Services Consulting, 17 October 2016
When I read that the idea of people with disability being supported to live an ordinary life is central to the work of the NDIS I feel an overwhelming sense of sadness at the mediocrity of it. I see it as a perpetuation of the “soft bigotry of low expectations”. I read recently “low expectations are one of the most subtle yet devastatingly effective forms of sabotage we can do to others and ourselves. Low expectations often masquerade as kindness yet they are the cruelest cuts because they deny an individual their opportunity for greatness.” Did we fight all these years for individualized funding and self-direction so that people with a disability could aspire to an ordinary life? Or did we hope that NDIS might provide the safety net of ordinariness so that people could aspire to greatness?

Yes we want to hire workers more easily. But let’s also talk safeguards and support
Ellen Fraser-Barbour, InCharge, 26 October 2016
... I have been wondering, however, about how these new types of self management models safeguard. Yes they, alongside all service providers, have policies in place to ensure safety, security and support for individuals, families and workers and these policies are vitally important but I can think of many examples where traditional large agencies are up to the hilt in policy but do necessarily invest in developing an active organisational culture or practice that truly embraces a human rights approach at base level. Policies are there, but putting this into practice seems to be easier said, than done. This has been highlighted in recent inquiries into abuse in disability services ...

NDIA Annual Report 2015 - 16
The NDIA Annual Reports outline what the agency has accomplished during the year. The reports show how we managed our resources to improve the lives of people living with disability.

The NDIA 2015-16 Annual Report was tabled on 28 October 2016. You can download an accessible version here. An online (HTML) version, Plain English and Easy English versions will be available soon.

Tuesday, 18 October 2016

Editorial published in The Age today

... following a weekend news report:

Federal Government's welfare reviews must put vulnerable first
The Age, 18 October 2016
... A report in The Age at the weekend that a severely disabled man who has been in state care since 1999 was ordered by Centrelink to prove his eligibility for a pension was distressing for all who read it, but of course so much more traumatic for this man and his family ...

Tuesday, 11 October 2016

News and commentary on the NDIS (57)

The official NDIS website provides access to documents, and up to date information about how the NDIS works, and NDIS events such as local workshops and webinars.


NDIS and Me
People with Down syndrome and/or their families and carers can join the closed Facebook Group, NDIS and Me, for discussion specifically about the NDIS and people with Down syndrome.


Disability Loop - a way to find out more about the National Disability Insurance Scheme (NDIS). Through Disability Loop you can:
  • Find a great selection of resources relating to the NDIS
  • Find out how the NDIS is working for other people
  • Have your say about the NDIS
  • Keep up to date with news and events about the NDIS
Disability Loop is a project funded by the NDIS. It is run by, and for, people with disability and their allies.

NDIS verdict: daunting but worth it
Rachel Browne, Sydney Morning Herald, 2 October 2016
In most ways, Jordanne Taylor is a typical year 9 student. The 15-year-old loves dancing, cooking and spending time with girls her own age, watching movies and just hanging out. Until recently, these simple activities were not always easy to organise for Jordanne, who has a mild intellectual disability and is on the autism disorder spectrum. So when the National Disability Insurance Scheme became available, Jordanne's mother Debra Taylor immediately realised the potential it could unlock for her daughter ...
Libby Ellis, InCharge, 4 Ocotber 2016
This is the fourth post in our confusion-clearing and myth-busting series about the NDIS. Thank you to everyone who’s provided feedback so far – keep it coming!

Here is another myth that has come through to us: People are being told that, if they choose self-management, they have to employ all their workers. Comments are also being made to people that make self-management seem the same as becoming an employer. Again, the implication here is that self-management is really hard work .

This is wrong advice ...

Provider portal updates
NDIS Provider Portal Update 16 September 2016
Starting this week the Agency is generating weekly reports on provider and participant claim analysis. The first of these reports, for the week of 5 to 11 September 2016, can be accessed on the information, publication and reports webpage.

The Agency will aim to publish a new Weekly Payment Report Summary on the Agency website each Tuesday under the 'About Us' item on the NDIS website homepage. To access the report you will need to click on the 'Information, publications and reports' section, and locate the heading titled 'myplace portal weekly reports' ...

National Disability Insurance Scheme: Half signed getting disability support for first time
Miki Perkins, The Age, 19 September 2016
Glance once at Teisha Rose; you'll see a dark-haired woman walking alongside the glossy, silvered expanse of the bay, a little terrier on a lead.

NDIS is having a powerful impact
Alastair McEwin, Brisbane Times, 4 October 2016
Getting a morning coffee on the way to work is a ritual many of us take for granted. Not Jeremy, who is a young man with a communication disability ...

Five minutes with… espyconnect brings real stories and information from the NDIS frontline
espyconnect, 4 October 2016
Starting Monday 11th October – espyconnect will be bringing you short and snappy interviews with people who are really living with NDIS ...

We promise to only present real information and stories, warts and rainbows ...

‘Five minutes with ‘ will be posted on our Facebook page with one question and an around about one minute answer each weekday. We invite you to post any questions that you might have underneath the post and we will endeavour to get those questions answered ...


October 2016 Information update around the National Disability Insurance Scheme
Family Advocacy, October 2016
Family Advocacy has conducted a survey with families around their experiences accessing and using the NDIS. We will continue to ensure real family experiences inform our systemic work ...