New to the library is a book created with people with autism in mind, but it can also be useful for people with Down syndrome learning new skills. Seeing is Believing: Video self-modelling for people with autism and other developmental disabilities by Tom Buggey (Woodbine House, 2009) describes how to film and edit videos using the latest techniques in order to teach and reinforce skills and behaviours. He gives step by step help for people who have little experience and makes it possible to create the videos you want. He discusses why these videos help and the research done on this method. He discusses what type of skills can be targeted (language skills, academic skillls, behaviour) and how to shoot the film to achieve this. He gives case studies that show examples of what can be done. These include: getting ready for school, responding to questions, eating lunch, tantrums, interview techniques, interacting with friends, shopping, and expressive language. The expressive language example involved 2 boys with Down syndrome. One learned to extend his language from one word utterances to 4-word sentences. The other learned to respond to questions and to initiate speech. Editing together things the boys had said allowed them to see themselves using sentences and answering questions. Address details
Thursday, 15 October 2009
Library Thursdays: Seeing is believing:Video self-modeling
New to the library is a book created with people with autism in mind, but it can also be useful for people with Down syndrome learning new skills. Seeing is Believing: Video self-modelling for people with autism and other developmental disabilities by Tom Buggey (Woodbine House, 2009) describes how to film and edit videos using the latest techniques in order to teach and reinforce skills and behaviours. He gives step by step help for people who have little experience and makes it possible to create the videos you want. He discusses why these videos help and the research done on this method. He discusses what type of skills can be targeted (language skills, academic skillls, behaviour) and how to shoot the film to achieve this. He gives case studies that show examples of what can be done. These include: getting ready for school, responding to questions, eating lunch, tantrums, interview techniques, interacting with friends, shopping, and expressive language. The expressive language example involved 2 boys with Down syndrome. One learned to extend his language from one word utterances to 4-word sentences. The other learned to respond to questions and to initiate speech. Editing together things the boys had said allowed them to see themselves using sentences and answering questions. Wednesday, 14 October 2009
In Control Australia forum: How can Self Directed Support work in practice?
People with disability and their families get more choice and flexibility including the ability to direct their own support with a financial intermediary taking care of legal and financial obligations.
Tuesday 24th November 2009
10am sharp – 3.30pm (Registration from 9.30am)
Parliamentary Theatrette, NSW Parliament House,
Macquarie St, Sydney
RSVP: philippa@family-advocacy.com or (02) 9869 0866 by 17 November
Cost: $30 for staff of services or organisational representatives; $10 for people with disability and families, GST included
Lunch will be provided.
Speakers:
Peter Shergold Chair, Centre for Social Impact, UNSW on the ethical and economic imperative for self directed support
Lisa Minchin Service Reorientation Unit, Community and Individual Support Branch of Victorian Dept of Human Services on new opportunities
Maureen McLeish Direct payment recipient on behalf of her daughter
Jim Burns CEO Melba Support Service on the impact of the transformation on a large non government service
Lara Friedman Person with disability using self managed package
Judy Harwood Director Reform & Development DADHC on initiatives in packaged support in NSW
Triple P: Positive Parenting Program - Bondi, November
A FREE group course for parents with children aged 3-8 years old with additional needs. Practical solutions to common parenting problems
Wednesday 4, 11,18 and 25 November (four-week program); 6–8pm
Waverley Council’s Family Day Care Centre
25 Ebley St, Bondi Junction 2022
RSVP by Monday 30 October
CONTACT: Paul Berchtold
PHONE: 9310 6300
EMAIL: paul.berchtold@dadhc.nsw.gov.au or Sunita.Misra@dadhc.nsw.gov.au
FACILITATORS Sunita Misra (Specialist psychologist- DADHC) and Paul Berchtold (Social Worker-DADHC), whose areas of expertise include working with children with additional needs and challenging behaviour.
Please note: There will be another day time group in March 2010.
The Triple P positive parenting program can help you find ways to deal with difficult behaviours and support your child.
Triple P is an evidence-based program (backed up by over 25 years proven clinical
research) so it works for most families.
Triple P can help you:
- create a stable, supportive, harmonious family environment
- teach your children skills to get along with others
- deal positively, consistently and decisively with problem behaviour
encourage behaviour you like
- develop realistic expectations of your children and yourself
take care of yourself as a parent.
Tuesday, 13 October 2009
We loved Buddy Walk!
We were so glad the weather was good and we all had a great day. We loved the blue t-shirts and hats and really enjoyed the sausage sizzle!
Jack has Down Syndrome and he is pictured in all of the photos along with members of his family (including his Nana & Pop)!
Thank you again to everyone who organised this wonderful day – it was a great success! I look forward to next year – and so do my family!
Monday, 12 October 2009
Buddy Walk - Australia, Sydney ....
In the meantime, our grateful thanks to everyone who participated, the fabulous army of volunteers, Shannon and Tara who organised everything at the picnic site, Coates Hire for providing and erecting the marquees and fencing, Rotary Club of St George for providing the BBQ, Cafe2U who came at very short notice when the booked coffee van broke down, and to all of our generous sponsors and donors.
We'll have photos soon!
Saturday, 10 October 2009
Karen Gaffney swims Boston Harbour to raise awareness

Friday, 9 October 2009
Scrapheap Adventure: Easter 2010





Ride to: Wanaaring - 200k’s west of Bourke, NSW
Rules:
- Have to buy a Bike for less than $1000
- Can be any road registered motorcycle
- You are allowed to spend additional sums on the bike to make it roadworthy, all machines participating must be registered
Award/trophy voted by the attendees for:
- Best bike
- Longest distance
- Hard Luck award
- Detailed flyer and online registration will be available shortly.

EarlyEd 30th Anniversary celebration postponed
Thursday, 8 October 2009
Sydney kids in New York
Sydney kids, Luke and his sister Caitlin featured in the 15th annual Down Syndrome Awareness video in Times Square, New York on 26th September, after their mum sent off this very Sydney photo and it was accepted by the National Down Syndrome Society for inclusion.It was taken at the Buddy Walk - Australia event in Sydney in 2007.
This year's Sydney Buddy Walk - Australia kicks off at 10.00 am sharp on Sunday (11th October). Click here for details.
Library Thursdays: Libby Kumin online mini workshop plus Mental Wellness authors
authors of one of our most popular books, Mental Wellness in Adults with Down syndrome. Dennis McGuire and Brian Chicoine answer questions about behaviours of concern Wednesday, 7 October 2009
Conference on siblings - Sydney, November
Brothers and Sisters: Their role in the life of a person with a disability
Keynote Speakers:
Dr John Kramer - co-founder and leader of the Sibling Leadership Network (SLN) in the United States, a growing movement of brothers and sisters of people with disabilities, siblings with disabilities, and committed professionals interested in policy, services, and research related to siblings.
Assoc. Prof. Monica Cuskelly - Graduate School of Education (University of Queensland), her working experience had been primarily in the field of educational psychology with some forays into clinical areas. Her major research interests are family functioning in families with a child with a disability, the development of persons with Down syndrome, self-regulation and mastery and academic motivations.
9.30 am – 4.30 pm, Tuesday 17th November, 2009
This workshop will be of interest to: Families, Siblings, Persons with disability, Support Staff, and Policy Planners among others.
Charles Blunt Conference Room
Royal Rehabilitation Centre Sydney
59 Charles Street, Ryde, 2112
Further Information: Margaret on (02) 8878 0500; E-mail: cdds@med.usyd.edu.au
Tuesday, 6 October 2009
Down Syndrome and dementia: information now online
Down Syndrome Victoria has made two important documents on Down syndrome and dementia available online through its revised website: Monday, 5 October 2009
Their merry dance still opens doors and warms hearts
Sue WilliamsSunday, 4 October 2009
Support for National Disability Insurance Scheme
End the poverty of disability
Stephanie Peatling, Political Correspondent, Sun Herald, October 4, 2009
A national insurance scheme for people with disabilities is on the radar for the Rudd Government after persistent warnings the existing system is in crisis.
An expert panel established by the Government will recommend a feasibility study be commissioned to determine the cost.
''It's both economically rational and socially responsible,'' said Bruce Bonyhady, a member of the Disability Investment Group. He likened the introduction of such a scheme to the push for Medicare and superannuation. ''Despite our intention to minimise risk, stuff happens,'' Mr Bonyhady said.
.....The idea is being pushed by the parliamentary secretary for disabilities, Bill Shorten, who believes the existing system of care is inadequate and poorly targeted.
''There is a poverty of disability,'' Mr Shorten said. ''Disability has been seen as a welfare issue when it should be an economic one.''
Read the full report online here, and previous posts about he National Disability Insurance Scheme here.
National Disability Insurance Scheme website: www.natdis.com.au The NDIS news service reports that Dr Rhonda Galbally will be addressing the National Press Club this Wednesday (7th October) on the Shut Out report, and on the need for a National Disability Insurance Scheme.
Raoef Mamedov photographic works
In a post-modern way this project combines cinematic theatre, photography, art history, theology and computer technology in twelve photographs of 80 by 60 cm (7 signed copies), depicting seven biblical scenes from the New Testament which are "enacted" by people with Down's syndrome.
The project includes scenes depicting the Annunciation, the Nativity, the Epiphany, the Vigil in the Garden of Gethsemane, the betrayal by Judas, an Ecce Homo, and most famously, the Last Supper, all reflective of renaissance artworks, but highly original in Mamedov's realisation. The hands of the people with Down syndrome are particularly expressive.
Descriptions of the work on the website are available in Dutch, German and English.
Saturday, 3 October 2009
New guidelines for physicians: How to give a diagnosis of Down syndrome
There are better ways than others to inform an expectant parent of a diagnosis of Down syndrome but to date, there have been no standard guidelines for physicians. Brian Skotko, Thrive
Some doctors have always delivered the diagnosis well, but many families have reported unnecessarily negative experiences. Previous guidelines have been written, but their distribution and uptake was often patchy at best.
Two papers are published online by medical journals this week, to guide physicians in the sensitive task of telling parents that their baby has Down syndrome. Paediatrician, researcher and co-author (with Dr George Capone and Dr Priya Kishnani, for the Down Syndrome Diagnosis Study Group) has published links to each of the papers, and background information into how they came about, on Thrive, the Children's Hospital of Boston's health and science blog.
Patricia Bauer says, " Advocates and physicians have been calling for guidance on delivering diagnoses ever since the American College of Obstetricians and Gynecologists (ACOG) recommended in 2007 that obstetricians offer prenatal screening and testing for Down syndrome to all pregnant women, regardless of age.
The 2007 ACOG recommendations were not accompanied by any assistance to doctors in delivering diagnoses, and many doctors have reported in survey research that they haven’t gotten professional training about individuals with intellectual disabilities, or about prenatal diagnosis or counseling expectant parents."
Professional bodies around the world have endorsed or are considering similar recommendation about prenatal testing, so the new guidelines are authoritative, welcome, and will be easy to disseminate.
Friday, 2 October 2009
Attitude TV
Attitude is an upbeat television magazine series from New Zealand, designed to reflect the lifestyle, issues and interests of people either living with a disability or caring for a person with a disability. Thursday, 1 October 2009
Library Thursdays: Kathy Conour from Diana & Kathy: Heart & Soul, dies
Last year, the library purchased an interesting documentary, Diana & Kathy: Heart & Soul, about two women who solved their living difficulties by sharing a house. Kathy Conour, who had cerebral palsy had physical limitations and was cared for by Diana Braun, who has Down syndrome and found other things challenging so she was in turn supported by Kathy. They were pleased with their ability to live independently and went around the US to help others advocate for themselves. This week Kathy died just before the documentary was due to be broadcast on US TV (PBS) nationwide. Kathy was an amazing woman and Diana is determined to continue their advocacy. If you haven't viewed the DVD yet, please borrow it from the library.Livewire Siblings
Visit The Scene for more information, or go directly to Livewire Siblings
Livewire is currently investigating ways to make Livewire more accessible for people with intellectual disabilities, and is including organisations such as Down Syndrome NSW in its discussions. We will get back to you with more information as developments occur.
The Scene
Well worth a place on your Blogroll and we've just added it to our (in the right hand column).
