The Down's Syndrome Association in London has recently redesigned and relaunched its website: www.downs-syndrome.org.uk
The new site provides easier navigation and more news. The information and resources sections of this website provide a wealth of downloads on a range of topics. Most, apart from information about social security benefits are applicable and/or adaptable internationally. Fabulous photos.
The National Down Syndrome Society, located in New York has also recently re-launched an updated its website: www.ndss.org
Again, there is some information that is only relevant to the USA, and a good deal that is universally useful. Includes good pages on research, including descriptions of the features of clinical trials.