Research Project on Service and Support Requirements for People with Younger Onset Dementia and their Families
Are you or your family member living with a diagnosis of younger onset dementia?Would you like to participate in a valuable research project?
Alzheimer’s Australia NSW (AlzNSW) is conducting research with the Social Policy Research Centre at the University of NSW and UnitingCare Ageing for the NSW Government.
The research is about the experiences and needs of people with younger onset dementia and their families and understanding how these are different or unique compared to those of people with dementia at later ages.
'Younger onset dementia' is dementia which occurs before the age of 65 years.
• Your experiences of accessing services and supports
• What your service and support needs are
• How services and supports can best meet those needs
How can you help?
We are looking for people with younger onset dementia and their family members/carers to interview.
We will ask you about:
• Diagnosis and living with younger onset dementia
• Your experiences with dementia services
• The types of support and assistance you need and would like to receive
Interviews will take no more than one hour and at a location convenient for you.
Participation in this research project is voluntary. Your decision to participate or not will not affect your relationship with Alzheimer’s Australia NSW or any other services.
All participants will be given a gift voucher to thank them for their time.
Your views are valuable and will be used to inform recommendations to government and service providers about improving younger onset dementia services and supports.
If you would like to participate or want to know more, please contact the Alzheimer’s Australia NSW researchers:
Jo-Ann Brown - Email firstname.lastname@example.org or 02 8875 4636
Kylie Sait - Email email@example.com or 02 8875 4641
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Alzheimer's Australia offers support, information, education and counselling. Contact the National Dementia Helpline on 1800 100 500.