Address details

Down Syndrome NSW
Level 6/410 Church St, North Parramatta
9am-5pm Monday - Thursday
T: 9841 444

Wednesday, 29 August 2012

Online research survey: parents and caregivers

Researchers from an international collaboration, including the University of Newcastle, are "... interested in your experiences regarding the diagnosis of your child, including your emotional reaction and psychological well-being.

We are also looking at how you told your child/ren about their genetic condition and how they reacted. If you have not yet told your child, we are interested in what your concerns are around telling them about the syndrome.

This is a 20-30 minute questionnaire, conducted as a collaboration among the University of Newcastle, Australia; University of Tel Aviv, Israel; Duke University, USA; and the Children’s Hospital of Philadelphia, USA."

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