Friday, 20 May 2016

Weekend reading and viewing: 21 - 22 May 2016


I finally understand how inspiration porn hurts kids like mine
Maureen Wallace, She Knows, 18 April 2016
My journey as a parent of a child with a disability has been a series of blessings, mistakes and good intentions. I’d say the same about my experience as a writer focused on parenting a child with a disability. I’ve learned much in these brief six years; above all, I’ve learned there’s much more to learn.

I’ve also learned a little about grace and allowing myself time to learn. Life doesn’t offer a six-week night course in disability 101. Until I had someone in my life with a disability, until the experience became as personal as motherhood can be, I just bopped through life hoping to get it right, hoping not to offend anyone in general ...

Baseball and Brothers - Good Journalism on a Celebrity and a Disabled Sibling
David M Perry, How Did We Get Into This Mess? 16 May 2016
The celebrity with disabled sibling genre of story tend to be pretty awful ... Adam Newman, however, directed me to this story about a young player for the Dodgers and his older brother, Champ, who has Down syndrome ...

When professionals assume that parents of disabled kids see ghostsSocial Skills for Autonomous PeopleIn the special needs service provision community, there is a strongly held narrative about what happens when a kid turns out to be disabled. This narrative causes a lot of problems ...

Raising a Child with Down Syndrome Isn't as Hard as I Feared
Amy Julia Becker, Parenting, 14 November 2015
I'm not working harder to be a good mom for my child with Down syndrome than I am to be a good mom to my other two kids ...

Whose Story Is It?
Dave Hingsburger, Of Battered Aspect, 18 May 2016
... I finally asked the fellow for permission to speak to his staff. She was a little shocked at the idea that he had permission giving power, but smiled benignly, a skill we all learn within weeks of employ. I said to her, "He really needs your help to get this story out. He needs your silence. Every time you interrupt to help, he has to clarify what he was saying as different from what you are saying. It's his story, let him tell it." ...

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