Friday, 16 December 2016

Weekend reading and viewing: 17 - 18 December 2016


Michael Berube: The Value and the Virtue of Raising a Child with Down Syndrome, (Audio 33m)
Lindsay Beyerstein, Point of Inquiry, 5 December 2016
... Berube tackles the misconceptions about intellectual disability from the perspectives of both a scholar of disabilities and that of a father. He challenges the misconception that intellectual disability detracts from the value of a life, as exemplified by his son Jamie, who Berube describes as witty, inquisitive, and full of a love for life. Berube asserts that like most children, when given ample amounts of love and attention, kids with Down syndrome have the best fighting chance at meeting their full potential and living a successful, happy life. Berube calls upon bioethicists, politicians, philosophers, and all of us to rethink how we approach disability, and advocates for changes that will move us towards a more inclusive society ...

Julius a model example of celebrated diversity
Amanda Keenan, The West Australian, 13 December 2016
A few episodes of Sesame Street and a benign blue box of nappies. That wasn’t everything but it was the beginning of something.

Catia Malaquias was at home with her baby boy Julius and eldest daughter Laura. What Sesame Street had that the nappy box didn’t was suddenly glaringly, infuriatingly apparent. The cheerful kid with Down syndrome reciting his ABCs in the brownstone-lined land of Sesame Street resonated with Catia in a way that the toddler on the nappy box — the child on the baby food jar, the family in the cereal ad — couldn’t possibly ...


Bonding In A Checkout Line
Erika Lantz, WBUR-FM Boston NPR 6 December 2016
... Right away, Sydney said, “She has Down syndrome. She has a big heart, like I do.” Suzie pushed the cart toward Sydney, and Sydney wrapped her in a hug. Then Sydney asked if Carly knew any sign language, and before long they were swapping different signs ...
Holly O'Flinn, Lincolnshire Live, 8 December 2016
A woman with Down's syndrome from Mablethorpe, who has just celebrate her 81st birthday, has defied all the odds - because doctors said she wouldn't live beyond 20.

Julia Pittaway, who was born in 1935, is believed to be the oldest woman in the world with Down's syndrome as she hits the grand age of 81 ...

Recreating Down Syndrome in Mice (audio: 12m 16 s)
Witness, BBC World Service, 9 December 2016
In 2005 British scientist Elizabeth Fisher and a colleague successfully transplanted a human chromosome into a mouse for the first time. It transformed medical research into the genetic condition Down Syndromethat affects millions of people worldwide. Professor Fisher tells Louise Hidalgo about the challenges researchers faced and their thirteen-year struggle to create the first Down Syndrome mouse ...

Kat Abianac, Parker Myles, 8 December 2016
6 years ago, Tyler Klefot’s brother entered the world in Louisville, Kentucky. He discovered he was a life-changing little guy. And the more he thought about it, the more he wanted people to know what he now knows. Then this big brother decided to share his thoughts about the last 6 years, on his Facebook page. Tyler wanted others to know that the more time he spent with Jonah, he discovered a secret ... His brother is his teacher. And he explains here exactly why ...

Anne Suslak, Buzz Feed, 8 December 2016
We may have missed out on a traditional sibling relationship, but my twin brother’s cerebral palsy, hydrocephalus, and epilepsy has far from ruined our lives ...

A World that Wants Me In It': The Case for Conserving Disability
Rosemarie Garland-Thomson, ABC Religion and Ethics, 1 December 2016
... Arendt's and Hubbard's ethical assertions address the central question of my current scholarly project: why disabled people should be in the world ...

Worlds are spaces, complex material environments made up of people, the material artefacts we make and use, the geological habitat and other living things ranging from forests to viruses. Our lives occur in these spaces; how we think and what we do shapes them.Disability offers a good case study for investigating current and future world building. Modern cultures are now undertaking two contradictory world-building initiatives that are expressed in social, legislative, material, cultural and attitudinal practices ...

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