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Down Syndrome NSW
Level 6/410 Church St, North Parramatta
9am-5pm Monday - Thursday
T: 9841 444


Showing posts sorted by relevance for query Berube. Sort by date Show all posts
Showing posts sorted by relevance for query Berube. Sort by date Show all posts

Friday, 16 December 2016

Weekend reading and viewing: 17 - 18 December 2016


Michael Berube: The Value and the Virtue of Raising a Child with Down Syndrome, (Audio 33m)
Lindsay Beyerstein, Point of Inquiry, 5 December 2016
... Berube tackles the misconceptions about intellectual disability from the perspectives of both a scholar of disabilities and that of a father. He challenges the misconception that intellectual disability detracts from the value of a life, as exemplified by his son Jamie, who Berube describes as witty, inquisitive, and full of a love for life. Berube asserts that like most children, when given ample amounts of love and attention, kids with Down syndrome have the best fighting chance at meeting their full potential and living a successful, happy life. Berube calls upon bioethicists, politicians, philosophers, and all of us to rethink how we approach disability, and advocates for changes that will move us towards a more inclusive society ...

Julius a model example of celebrated diversity
Amanda Keenan, The West Australian, 13 December 2016
A few episodes of Sesame Street and a benign blue box of nappies. That wasn’t everything but it was the beginning of something.

Catia Malaquias was at home with her baby boy Julius and eldest daughter Laura. What Sesame Street had that the nappy box didn’t was suddenly glaringly, infuriatingly apparent. The cheerful kid with Down syndrome reciting his ABCs in the brownstone-lined land of Sesame Street resonated with Catia in a way that the toddler on the nappy box — the child on the baby food jar, the family in the cereal ad — couldn’t possibly ...


Bonding In A Checkout Line
Erika Lantz, WBUR-FM Boston NPR 6 December 2016
... Right away, Sydney said, “She has Down syndrome. She has a big heart, like I do.” Suzie pushed the cart toward Sydney, and Sydney wrapped her in a hug. Then Sydney asked if Carly knew any sign language, and before long they were swapping different signs ...
Holly O'Flinn, Lincolnshire Live, 8 December 2016
A woman with Down's syndrome from Mablethorpe, who has just celebrate her 81st birthday, has defied all the odds - because doctors said she wouldn't live beyond 20.

Julia Pittaway, who was born in 1935, is believed to be the oldest woman in the world with Down's syndrome as she hits the grand age of 81 ...

Recreating Down Syndrome in Mice (audio: 12m 16 s)
Witness, BBC World Service, 9 December 2016
In 2005 British scientist Elizabeth Fisher and a colleague successfully transplanted a human chromosome into a mouse for the first time. It transformed medical research into the genetic condition Down Syndromethat affects millions of people worldwide. Professor Fisher tells Louise Hidalgo about the challenges researchers faced and their thirteen-year struggle to create the first Down Syndrome mouse ...

Kat Abianac, Parker Myles, 8 December 2016
6 years ago, Tyler Klefot’s brother entered the world in Louisville, Kentucky. He discovered he was a life-changing little guy. And the more he thought about it, the more he wanted people to know what he now knows. Then this big brother decided to share his thoughts about the last 6 years, on his Facebook page. Tyler wanted others to know that the more time he spent with Jonah, he discovered a secret ... His brother is his teacher. And he explains here exactly why ...

Anne Suslak, Buzz Feed, 8 December 2016
We may have missed out on a traditional sibling relationship, but my twin brother’s cerebral palsy, hydrocephalus, and epilepsy has far from ruined our lives ...

A World that Wants Me In It': The Case for Conserving Disability
Rosemarie Garland-Thomson, ABC Religion and Ethics, 1 December 2016
... Arendt's and Hubbard's ethical assertions address the central question of my current scholarly project: why disabled people should be in the world ...

Worlds are spaces, complex material environments made up of people, the material artefacts we make and use, the geological habitat and other living things ranging from forests to viruses. Our lives occur in these spaces; how we think and what we do shapes them.Disability offers a good case study for investigating current and future world building. Modern cultures are now undertaking two contradictory world-building initiatives that are expressed in social, legislative, material, cultural and attitudinal practices ...

Thursday, 29 January 2009

Library Thursdays: Love you to pieces

New to the library this week is a book not strictly specific to Down syndrome, but definitely of interest. Love You to Pieces, edited by Suzanne Kamata, published by Beacon Press, Boston, 2008, is a collection of stories written by writers about caring for their children with special needs.
Michael Berube (who wrote Life as We Know It ) contributes 3 stories in "Great Expectations" about his son, Jamie, who has Down syndrome, and the assumptions, expectations and realities of his academic abilities and thought processes. Although Berube's is the only contribution about a person with Down syndrome, all the pieces are well written and most involve experiences to which a parent of a child with Down syndrome can strongly relate, be it communication difficulties, views of others, friends' attitudes, dealings with social workers or therapy sessions.
The writing is nice to read and being a collection of stories, it is easy to just dip into when you have a moment to read.
To borrow this book or anything else from the library, click here.

By the way, Michael Berube has a blog which occasionally talks about Jamie amongst other things. One interesting blog was about Peter Singer and had a follow up to this here.








Wednesday, 20 March 2019

Library Shelf

The Essential Guide to Safe travel-training for Children with Autism and Intellectual Disabilities
by Desiree Gallimore
Published by Jessica Kingsley Publishers

Travel-training, as a topic, can often bring on a weary sigh amongst parents and is not usually high on everyone's reading list. This one, though, is a travel-training book with a difference. Whether you are looking into travel-training for the first time or need to reignite some enthusiasm for the project, this is the book for you. It provides a clear outline of what a good travel training program (as distinct from assisted travel) should, and can, be like.


"For those growing up with an intellectual disability or autism, comfortable, safe and independent travel will prove an invaluable life skill. The key to pursuing fulfilling work and leisure activities and developing as an individual, it also brings a liberating level of self-sufficiency and reassurance of equality within society."


Dr Desiree Gallimore is a well-credentialed Sydney-based psychologist and mobility specialist. Dr Gallimore's website traveltrainingsolutions here







Life as Jamie Knows It: An Exceptional Child Grows Up
By Michael Berube
Published by Beacon Press

Those of you with children 20 and over will probably remember reading Life as we Know It back in 1996, a book chronicling the early years of Jamie's life. Jamie is now in his mid twenties and this book, as did the first, blends personal narrative with observations about social inclusion, health, advocacy and public policy.

Jamie's Investigations: The Art of a Young Man with Down Syndrome by William Benzon can be read on Academia










Contact: library@dsansw.org.au or phone the office 9841 4444

Thursday, 23 June 2011

Library Thursday: 12 years of family research from Western Australia, and social politics

(Google's Blogger program is taking an unexpected rest from posting photos at the moment - book cover images might appear later ...)

Understanding Down Syndrome - capturing family experiences through research is compiled from a number of research initiatives undertaken with Western Australian families over the last 12 years.  

Also from Western Australia this year:
Greater Expectations, by Jan Goddard represents a distillation of interviews with families over a ten year period. Available for members to borrow from our library.

Together these publications provide a very substantial body of work coming out of a single State.

The Politics of Down Syndrome, by Keiron Smith is another much anticipated title that will compliment Greater Expectations.  It will be released in the UK in September, and is available now on pre-order from The Book Depositry which offers free shipping world-wide.  A copy will be in the Down Syndrome NSW library as soon as we can get it.  In the meantime, it is worth checking out the book's Facebook page to trace its genesis, and to catch early reviews - the first of which has just been posted.  All royalties from the book will be donated to Down Syndrome Education International.

A well established title in a similar genre is Michael Berube's Life as We Know It, published in 1996 can also be borrowed by members from our library.