Penny Green is the Director of the Down's Heart Group, a UK organisation supporting families of people with Down syndrome who also have heart conditions. Just last month, Penny started a blog, Life itself changes the 'Meaning of Life'. Her stories are not always easy reading - some fo the families DHG supports have dealth with very complex and difficult health concerns.
At the moment, she is introducing people with Down syndrome, one a day, over the twelve days of Christmas. Tuesday 29th December's (the 4th Day of Christmas) entry is about Hannah Carty, who is the second person with DS to have had a heart transplant in the UK.
The Down's Heart Group website is a valuable source of information about the common cardiac conditions that people with Down syndrome encounter, and their management.
We've placed a permanent link to both the blog and the website in the right hand column of this blog.