If you care for a person with Down syndrome who is over 40, you might be interested in participating in this study, currently being conducted by the Department of Developmental Disability Neuropsychiatry at the University of NSW, in collaboration with other centres:
The Successful Ageing in Intellectual Disability (SAge-ID) Study is looking at what it’s like for people with intellectual disability as they get older. People can be in the study if they:
• Have an intellectual disability, and
• are over 40 years old, and
• live in or near the NSW regions of Randwick, Botany, Rockdale, Illawarra, or Shoalhaven, or
• live in or near the VIC regions of Bendigo, Shepparton, Loddon, Swan Hill, Mildura or Macedon Ranges.
Being in the study means that a person who knows you well will tell us some things about your health and activities. The person could be a family member or someone who helps care for you.
Please visit our website if you would like some more information about the study! We have recently uploaded the study “information packs”. These information packs are written in English, Mandarin and Greek, you just need to click on the language that you speak best. These sheets include a study brochure, the study invitation letter and the expression of interest form. All the sheets are easy to download and include study information like why we are doing the study and what happens in the study.
(Extract from the 'About' page of the SAge-ID Facebook page)
Edit 26th February 2013:
The Successful Ageing in Intellectual Disability Study on Facebook today:
We are excited to announce that we have expanded the SAge-ID Study to include all suburbs in the Metro South Region of Sydney. If you or someone you know might be interested, please contact the NSW team, details below.
Further Information is also available from project staff:
Phone: 02 9931 9155 or 02 9385 3994
SAge-ID Facebook page
For information about the broader range of projects of 3DN, visit the departmental website: