The NSW Aboriginal Community Care Gathering Committee is a group of representative Aboriginal Community Care and disability workers and community members who meet to improve community care and disability services for Aboriginal and Torres Strait Islander people in NSW. The work of the Gathering involves policy development, conferences, responses to Government initiatives and regional and state networking.
Nominations from Aboriginal and Torres Strait Islander people with experience in community care and related services are now open for the next term. Gathering Committee meetings are held in Sydney, 3 – 5 times per year usually over 2 days. The Terms of Reference give more detail about how the Committee operates.
Deadline for return of nominations is 9 June 2011.
Click here for selection and committee information
Click here for Election Nomination forms
Source: NCOSS
Monday, 18 April 2011
Sunday, 17 April 2011
It's normal to be different: awareness TV campaign in Brazil
A new ad in the campaign 'It's Normal to be Different', by Instituto MetaSocial, is being aired on national Brazilian TV networks: http://youtu.be/_29acQ8GKEU
English Translation:
I love music. Like any girl my age. I love the internet. I love parties. But I am not like girls my age in everyhing. In one thing I am very different ... I play the drums.
English Translation:
I love music. Like any girl my age. I love the internet. I love parties. But I am not like girls my age in everyhing. In one thing I am very different ... I play the drums.
Beyond ABBA - A Workshop Program for People with a Disability
Can you sing along to ABBA? Wave fabric? Make a macaroni necklace? Yes? Well, good work! But let’s see what else is out there….is there life beyond ABBA?
Beyond ABBA (formally known as WAPD) is Riverside Theatres’ ongoing workshop program that aims to challenge the predictable arts meal that is served up to people with a disability and instead provides an alternative diet of creativity, self expression & innovation.
Working alongside professional arts workers people with a disability can participate in a drama and movement workshop program designed to build self confidence, promote well being, increase skills in performing and self expression.
Beyond ABBA will focus on the theme Invisibility which was inspired by a piece of writing, from writer, actress and International Day for People with a Disability ambassador, Audrey O’Connor.
Using film, movement and theatre participants will explore what it means to feel invisible, to be not seen or heard and have no voice or say. Also explored will be the alternative, so what it’s like to be in the spotlight, the public eye, the notion of celebrity and how that is something to behold in our society.
2011 dates
Term 2 - Wednesday April 27th- Friday July 1st (10 weeks)
Term 3 - Wednesday July 20th - Friday Sept 23rd (10 weeks)
Term 4 – Wednesday October 12th- Friday Dec 9th (9 weeks)
Performance date
Wednesday November 23rd
Workshop times
Wednesdays 10-11:30am & 12-1:30pm
Thursdays 10-11:30am & 12-1:30pm
Fridays 10-11:30am & 12-1:30pm
Cost $140/term. Term 4 $126. Paid upfront prior to workshops commencing.
All workshops take place At Granville Youth & Community Centres, 3A Memorial Drive, Granville.
Places are strictly limited. To enrol call Alison Richardson on 8839 3359 or email wapd_riverside@parracity.nsw.gov.au
Beyond ABBA (formally known as WAPD) is Riverside Theatres’ ongoing workshop program that aims to challenge the predictable arts meal that is served up to people with a disability and instead provides an alternative diet of creativity, self expression & innovation.
Working alongside professional arts workers people with a disability can participate in a drama and movement workshop program designed to build self confidence, promote well being, increase skills in performing and self expression.
Beyond ABBA will focus on the theme Invisibility which was inspired by a piece of writing, from writer, actress and International Day for People with a Disability ambassador, Audrey O’Connor.
Using film, movement and theatre participants will explore what it means to feel invisible, to be not seen or heard and have no voice or say. Also explored will be the alternative, so what it’s like to be in the spotlight, the public eye, the notion of celebrity and how that is something to behold in our society.
2011 dates
Term 2 - Wednesday April 27th- Friday July 1st (10 weeks)
Term 3 - Wednesday July 20th - Friday Sept 23rd (10 weeks)
Term 4 – Wednesday October 12th- Friday Dec 9th (9 weeks)
Performance date
Wednesday November 23rd
Workshop times
Wednesdays 10-11:30am & 12-1:30pm
Thursdays 10-11:30am & 12-1:30pm
Fridays 10-11:30am & 12-1:30pm
Cost $140/term. Term 4 $126. Paid upfront prior to workshops commencing.
All workshops take place At Granville Youth & Community Centres, 3A Memorial Drive, Granville.
Places are strictly limited. To enrol call Alison Richardson on 8839 3359 or email wapd_riverside@parracity.nsw.gov.au
Friday, 15 April 2011
6.30 pm, Channel Ten tonight - story on Ty Belnap
Thursday, 14 April 2011
Intellectual disability and dementia training
Alzheimers Australia (NSW)
Intellectual disability and dementia
(recommended for disability service workers or community care workers caring for a person with an intellectual disability and dementia)
Part 1 focuses on recognising signs and symptoms of dementia in persons with an intellectual disability, understanding dementia from normal ageing, and differentiating from other causes of confusion.
Part 2 investigates the causes of cognitive change and decline in people with an intellectual disability and dementia, and build strategies for positive care practice.
9.30am -4.30pm Wednesday 20 April 2011
COST: $75
REGISTRATION INFORMATION
Fee includes workshop handouts, certificate of attendance, morning tea & lunch
Phone 8875 4640 for more information and a registration form
VENUE
Alzheimer’s Australia NSW
Dementia & Memory Community Centre
Macquarie Hospital Campus, Corner Cox’s & Norton Roads, North Ryde, 2113
(free parking available)
__________________________________________________
Macarthur Disability Services/ Alzheimers Australia/Macarthur and South West Sydney HACC Training
Intellectual Disability and Dementia Workshop
This session will cover generalised information about dementia as well as information specific to those with an intellectual disability who develop dementia. The reasons for an increased vulnerability to dementia for those with Down Syndrome will also be discussed.
9am – 4.00pm Tuesday 24th May, 2011
Brian Wunsch Centre, 126 Avoca Rd
Wakely
Trainer: Mary Bills, Dementia Educator, Alzheimer’s Australia NSW
Cost: $25.00 for HACC services in Liverpool, Fairfield, Bankstown, Macarthur, Wollondilly and Wingecarribee local government areas. $50.00 for Non HACC funded services or out of area HACC services
Click here to download the flyer
Contact: Anita Mulally / Karen Simpson, Macarthur Disability Services, Phone: 4621 8400 Fax: 4628 4006, Email: hactrain@mdservices.com.au
Intellectual disability and dementia
(recommended for disability service workers or community care workers caring for a person with an intellectual disability and dementia)
Part 1 focuses on recognising signs and symptoms of dementia in persons with an intellectual disability, understanding dementia from normal ageing, and differentiating from other causes of confusion.
Part 2 investigates the causes of cognitive change and decline in people with an intellectual disability and dementia, and build strategies for positive care practice.
9.30am -4.30pm Wednesday 20 April 2011
COST: $75
REGISTRATION INFORMATION
Fee includes workshop handouts, certificate of attendance, morning tea & lunch
Phone 8875 4640 for more information and a registration form
VENUE
Alzheimer’s Australia NSW
Dementia & Memory Community Centre
Macquarie Hospital Campus, Corner Cox’s & Norton Roads, North Ryde, 2113
(free parking available)
__________________________________________________
Macarthur Disability Services/ Alzheimers Australia/Macarthur and South West Sydney HACC Training
Intellectual Disability and Dementia Workshop
This session will cover generalised information about dementia as well as information specific to those with an intellectual disability who develop dementia. The reasons for an increased vulnerability to dementia for those with Down Syndrome will also be discussed.
9am – 4.00pm Tuesday 24th May, 2011
Brian Wunsch Centre, 126 Avoca Rd
Wakely
Trainer: Mary Bills, Dementia Educator, Alzheimer’s Australia NSW
Cost: $25.00 for HACC services in Liverpool, Fairfield, Bankstown, Macarthur, Wollondilly and Wingecarribee local government areas. $50.00 for Non HACC funded services or out of area HACC services
Click here to download the flyer
Contact: Anita Mulally / Karen Simpson, Macarthur Disability Services, Phone: 4621 8400 Fax: 4628 4006, Email: hactrain@mdservices.com.au
Wednesday, 13 April 2011
'See and Learn' update - links to presentation
Whether you have participated in the current round of online presentations about the Down Syndrome Education International See and Learn program, you can now access the outline of the presentation from this page, along with further information about the program's development.
New research and clinical centre in San Diego
If you have followed Prof Bill Mobley's work on the neurophysiology of Down syndrome at Stanford University, you will be interested in this report of the launch of UC San Diego Down Syndrome Center for Research and Treatment following appointment to the University of California in San Diego last year. The Center will focus on the study and clinical care of adults with Down syndrome.
Tuesday, 12 April 2011
Independent Support Brokerage - Two day Introduction Course
People with Disability is offering a substantial course on Independent Support Brokerage:
27 April–28 April 2011
9:30am–4:30pm
Cost: $250
Venue: Offices of Gilbert & Tobin, Level 37, 2 Park Street, Sydney
Stronger Together 2 has made a commitment to person-centred approaches, with people with disability given the option to use individualised funding to control the supports they receive. This policy recognises the role that Support Brokers will play in assisting people with disability, and their families and carers, to manage these individualised supports.
Join international experts Alison Short and Steve Dowson for this two-day course, as they provide you with a clear explanation of the international history of individualised funding, its principles and benefits, and the role of the support broker.
Places are limited so you will need to register quickly. For more information, visit the PWD website Alternatively, phone PWD on 02 9370 3100 or Toll Free: 1800 422 015.
For more information/registration: click here to download the flyer and registration form (Word 268kb)
Enquiries: Emmie emmieh@pwd.org.au
27 April–28 April 2011
9:30am–4:30pm
Cost: $250
Venue: Offices of Gilbert & Tobin, Level 37, 2 Park Street, Sydney
Stronger Together 2 has made a commitment to person-centred approaches, with people with disability given the option to use individualised funding to control the supports they receive. This policy recognises the role that Support Brokers will play in assisting people with disability, and their families and carers, to manage these individualised supports.
Join international experts Alison Short and Steve Dowson for this two-day course, as they provide you with a clear explanation of the international history of individualised funding, its principles and benefits, and the role of the support broker.
Places are limited so you will need to register quickly. For more information, visit the PWD website Alternatively, phone PWD on 02 9370 3100 or Toll Free: 1800 422 015.
For more information/registration: click here to download the flyer and registration form (Word 268kb)
Enquiries: Emmie emmieh@pwd.org.au
Free online 'See and Learn' seminars 12th and 13th April (London time)
A new See and Learn Speech program is due for release in June 2011, and See and Learn Numbers is in development.
Monday, 11 April 2011
Pilot Air donates $5000 to Scrapheap Adventure 2011 !
Perry Gilsenan accepted a $5000 sponsorship cheque for the 2011 Scrapheap Adventure from Martin Wyllie at Pilot Air on Monday 4th April.
What a great boost to this fun fundraising adventure!
Thank you, Pilot Air.
Challenging behaviour worksops: 8 week course for parents, Macarthur
Dr. Steven Walker (Brief Therapy Solutions) in partnership with Community Links Wollondilly, presents
Managing Challenging Behaviours Collaboratively
8 Session Parent Workshop (please note - these workshops are not for service providers)
10:00 am—12:00md
5th May and every Thursday morning until 23 June 2011
Cost: free
What will you learn?
● Child development and the relationship to seriously challenging behaviours
● You will consider the influence of the child, parent and the environment in the development of challenging behaviours over time.
● Looking for and identifying lost skills in AD/HD, ODD and CD. What’s behind the behaviour.
● Parents can be partners in managing a child’s challenging behaviour.
● Strategies to reduce outbursts and to teach new skills to your child.
● You will have the opportunity to think about your challenging child in a different light.
● You will find out that you’re not alone.
Business Development Centre Macarthur
70 Topham Road,
Smeaton Grange
To register, contact Wollondilly Community Links: Ph. 4683 2776
Managing Challenging Behaviours Collaboratively
8 Session Parent Workshop (please note - these workshops are not for service providers)
10:00 am—12:00md
5th May and every Thursday morning until 23 June 2011
Cost: free
What will you learn?
● Child development and the relationship to seriously challenging behaviours
● You will consider the influence of the child, parent and the environment in the development of challenging behaviours over time.
● Looking for and identifying lost skills in AD/HD, ODD and CD. What’s behind the behaviour.
● Parents can be partners in managing a child’s challenging behaviour.
● Strategies to reduce outbursts and to teach new skills to your child.
● You will have the opportunity to think about your challenging child in a different light.
● You will find out that you’re not alone.
Business Development Centre Macarthur
70 Topham Road,
Smeaton Grange
To register, contact Wollondilly Community Links: Ph. 4683 2776
Shape the future with Accessible Arts
Maryanne Ireland, Chairperson of Accessible Arts has issued this invitation:
Accessible Arts is about to embark on the development of its strategic plan for 2012-2014.
We have devised a short survey and invite you to participate in our planning process by completing the survey.
Your answers will help shape the direction that our organisation takes over the next three year period.
The survey will take approximately 15 to 20 minutes.
The questions have been written so that they can be answered by a variety of stakeholders eg an artist with disability,an audience member or a disability sector employee.
We value the contribution of all our stakeholders and remind you that this is your chance to put forward your ideas.
Accessible Arts is the peak arts and disability organisation across New South Wales. Our vision is a society in which people with disability fully experience and participate in the arts and cultural life. Our mission is to promote full inclusion, access and cultural opportunities in the arts for people with disability through advocacy, education and information.
Accessible Arts on Facebook - lots of event information here.
Accessible Arts is about to embark on the development of its strategic plan for 2012-2014.
We have devised a short survey and invite you to participate in our planning process by completing the survey.
Your answers will help shape the direction that our organisation takes over the next three year period.
The survey will take approximately 15 to 20 minutes.
The questions have been written so that they can be answered by a variety of stakeholders eg an artist with disability,an audience member or a disability sector employee.
We value the contribution of all our stakeholders and remind you that this is your chance to put forward your ideas.
Accessible Arts is the peak arts and disability organisation across New South Wales. Our vision is a society in which people with disability fully experience and participate in the arts and cultural life. Our mission is to promote full inclusion, access and cultural opportunities in the arts for people with disability through advocacy, education and information.
Accessible Arts on Facebook - lots of event information here.
Saturday, 9 April 2011
NSW Shadow Cabinet
The NSW Labor opposition has announced the new Shadow Cabinet, including:
John Robertson - Opposition Leader
Carmel Tebbutt - Education and Training
Andrew McDonald - Health; Medical Research
Barbara Perry - Family and Community Services; Aboriginal Affairs; Ageing; Disability Services
Cherie Burton - Healthy Lifestyles
Robert Furolo - Mental Health
Contact details for all members of the NSW Parliament are available here.
John Robertson - Opposition Leader
Carmel Tebbutt - Education and Training
Andrew McDonald - Health; Medical Research
Barbara Perry - Family and Community Services; Aboriginal Affairs; Ageing; Disability Services
Cherie Burton - Healthy Lifestyles
Robert Furolo - Mental Health
Contact details for all members of the NSW Parliament are available here.
Mothers' Weekend 2011
We've been away working with families ad professionals on the far north coast of NSW for a few days - so no blog posts since Tuesday. We have some catching up to do! here's a start, with the announcement of a very popular Down Syndrome NSW event:
Edit (12/4/2011): this event is now fully booked. You can place your name on a waiting list in case a cancellation becomes available, via the contacts below.
Solar Springs Health Retreat
Solar Springs Health Retreat
96 Osborne Ave, Bundanoon
3rd -5th June 2011
Cost: $250.00
Friday from 12:00 noon. Room access from 2:30pm
Sunday lunch and access to programs until 4:00pm
Weekend Inclusions
2 nights’ accommodation.
All rooms access a shared bathroom.
All meals including Friday and Sunday lunches.
Access to gym and aquatic centre (including pool, spa, sauna, steam room)
Access to daily supervised fitness programs and bush walks in the National Park
Weekend Program – Caring for the Carer
Friday Night Workshop, DS NSW
Saturday – Staying Healthy Body and Mind
Sunday – Carer Networking
Optional activities
Body Care and Pampering (at your own expense)
See website www.solarsprings.com.au for options including prices.These must be pre-booked
Places are strictly limited.
Bookings and payments must be finalised by 2nd May 2011.
Please note that this event is subsidised.
Please contact Judy Davidson or Lynn Bailey on 02 9841 4401 for information and/or registration
Click here to download a flyer you can print
Click here to download a flyer you can print
Tuesday, 5 April 2011
NSW Ministry listed online
A full listing of the newly appointed NSW Ministry, with contact details is available here.
While all portfolios are relevant to people with Down syndrome and their families, these Ministers have responsibilities that might be more directly relevant than others:
Andrew Constance, Minister for Ageing, Disability and Home Care
Jillian Skinner, Minister for Health
Adrian Piccoli, Minister for Education
Kevin Humphries, Minister for Mental Health, Minister for Healthy Lifestyles
While all portfolios are relevant to people with Down syndrome and their families, these Ministers have responsibilities that might be more directly relevant than others:
Andrew Constance, Minister for Ageing, Disability and Home Care
Jillian Skinner, Minister for Health
Adrian Piccoli, Minister for Education
Kevin Humphries, Minister for Mental Health, Minister for Healthy Lifestyles
DNA techology and IVF
Technology newly applied in IVF, described in this news article is similar to that being developed as non-invasive diagnostic prenatal testing for Down syndrome and other conditions, where foetal DNA will be sampled from the mothers blood.
Monday, 4 April 2011
CHW School-Link Conference on mental health and intellectual disability: 27th May 2011
Learning and Growing Together
27 May 2011
Liverpool, NSW
Registrations close: 13 May 2011
Registrations are now open, and we encourage you to register early to secure your place.
The program and registration forms can be found on the conference website.
Children's Hospital Westmead School-Link is a program supporting the mental health of children and adolescents with an intellectual disability. The online newsletter is an excellent source of information.
27 May 2011
Liverpool, NSW
Registrations close: 13 May 2011
Registrations are now open, and we encourage you to register early to secure your place.
The program and registration forms can be found on the conference website.
Children's Hospital Westmead School-Link is a program supporting the mental health of children and adolescents with an intellectual disability. The online newsletter is an excellent source of information.
Sunday, 3 April 2011
T4321 at All Hallows, Five Dock - lots of happy faces!
Kathleen, John and Emily Collins have celebrated World Down Syndrome Day with a T4321 event at their local parish church, All Hallows at Five Dock, every year since T4321 began in 2007.
Kathleen says of last Sunday's event:
It was great morning - about 100 people attended, some new families to the parish who have children with Down syndrome, which was nice.John spoke about treating people with respect regardless of ability and Gerard O’Dwyer spoke about how it made him feel to have support in his life.
- We had biscuits and cakes donated from Trovatinos
- Antipasto Platters from Deli Azzurri
- Cupcakes from Cupcake Lane
It is a great event in our parish community.
We raised $1330 !
Saturday, 2 April 2011
BUY A BOOK TO BUY A BOOK - support the DS NSW library by buying the Entertainment Book 2011 - 2012.
The Entertainment Book is a restaurant and activity guide that provides special 25-50% discounts and 2-for-1 incentives from many of the best restaurants, hotels and attractions. It represents great value for family entertainment. The featured restaurants and other businesses do not pay to be included, they are selected based on awards, reviews and personal recommendations. See the Entertainment Book web site for more information.
You can order localised editions, including North Sydney, Sydney, Sydney Greater West, Canberra, Central Coast/Newcastle/The Hunter, and there are interstate and New Zealand editions that would make great gifts.or
Click here to download the Entertainment Book 2011-2012 order form
or contact Angela Adams or Sue Drummond at the DS NSW office on (02) 9841 4409 or email admin@dsansw.org.au for an order form.
or contact Angela Adams or Sue Drummond at the DS NSW office on (02) 9841 4409 or email admin@dsansw.org.au for an order form.
Friday, 1 April 2011
Joining the Dots: Illawarra
A Speed Networking Event
The day will focus on Information and Referral Pathways, Community Care Support Services for Older People, People with a Disability and their Carers and a resource table will be provided for services to display their information and brochures on.
Attendees will be able to: Engage in a quick paced and fun speed way, in the style of “Speed Dating”. Participants will spend 3-4 minutes with a range of service providers and receive a brief outline of the services and programs they provide. You will also have free time to re-visit service providers to collect further information on particular areas of interest.
Take part in a discussion and question time with NCOSS representative Christine Regan on the latest in the COAG reform.
Attendees may choose to register as either an Attendee or an Exhibitor
9.00am to 4.00pm Thursday, 5th May 2011
Shellharbour Workers Club
Corner Wattle & Shellharbour Roads
Cost: Free for both Attendees and Exhibitors
Lunch and morning tea will be provided
For more information contact PAUL DOPPER
Illawarra Commonwealth Respite and Carelink Centre
Office: (02) 4295 - 5532 pdopper@scgcommunity.org.au
The day will focus on Information and Referral Pathways, Community Care Support Services for Older People, People with a Disability and their Carers and a resource table will be provided for services to display their information and brochures on.
Attendees will be able to: Engage in a quick paced and fun speed way, in the style of “Speed Dating”. Participants will spend 3-4 minutes with a range of service providers and receive a brief outline of the services and programs they provide. You will also have free time to re-visit service providers to collect further information on particular areas of interest.
Take part in a discussion and question time with NCOSS representative Christine Regan on the latest in the COAG reform.
Attendees may choose to register as either an Attendee or an Exhibitor
9.00am to 4.00pm Thursday, 5th May 2011
Shellharbour Workers Club
Corner Wattle & Shellharbour Roads
Cost: Free for both Attendees and Exhibitors
Lunch and morning tea will be provided
For more information contact PAUL DOPPER
Illawarra Commonwealth Respite and Carelink Centre
Office: (02) 4295 - 5532 pdopper@scgcommunity.org.au
Thursday, 31 March 2011
Two-wheeled adventure
A man, his bike, 40 years of daily motor cycling and a charity ... here's a nice introduction to one of the many 2011 Scrapheap Adventurers, Dr Bruce Campbell, from the Blacktown Sun.
Three little stories ... three big ideas
If you are a regular reader of this blog, you know that we like Dave Hingsburger's work very much. Today's post at Rolling Around in my Head is a little beauty - three short vignettes about telling moments from lives lived well. A mother is described as having "the knowing" - if this is you, it could make your day.
Wednesday, 30 March 2011
Workshop for Parents/Carers: Parenting Siblings of Children with a Disability
“What is Normal?”
GUEST SPEAKERS:
Ann Fletcher – Cerebral Palsy Alliance
Frances Jackson – ADHC
Anastasia Dunstan – Northcott Disability Services
Jackie Currey – Strengthening Families
Kathy Jones – Facilitator - EDuCARE
TOPICS INCLUDE:
Tuesday 3 May 2011
9.30am – 1.00pm (Registration from 9.10am)
Cardiff RSL 45 Macquarie Road, Cardiff
Respite: Respite Care available if required (Contact Commonwealth Respite & Carelink Centre 1800 052 222)
RSVP to: EDuCARE on 4921 4895 or Email: Educare-Admin@hnehealth.nsw.gov.au
GUEST SPEAKERS:
Ann Fletcher – Cerebral Palsy Alliance
Frances Jackson – ADHC
Anastasia Dunstan – Northcott Disability Services
Jackie Currey – Strengthening Families
Kathy Jones – Facilitator - EDuCARE
TOPICS INCLUDE:
- Child Development
- Sibling Rivalry
- Copying Behaviours
- Mini Expo of Service Providers & Free Carer Resource Material
- Networking with other Carers
- Morning Tea
Tuesday 3 May 2011
9.30am – 1.00pm (Registration from 9.10am)
Cardiff RSL 45 Macquarie Road, Cardiff
Cost: Free - Includes Morning Tea
Respite: Respite Care available if required (Contact Commonwealth Respite & Carelink Centre 1800 052 222)
RSVP to: EDuCARE on 4921 4895 or Email: Educare-Admin@hnehealth.nsw.gov.au
Disability Rights: know them and how to protect them
The Disability Discrimination Legal Centre and City of Sydney are pleased to announce a series of free information sessions for people with disability. The sessions will be held at community centres throughout the City of Sydney and will focus specifically on disability and employment and Aboriginal disability.
The information sessions are aimed at increasing awareness of disability rights and people will be given the opportunity to arrange follow-up one on one interview to provide legal assistance to protect those rights.
MILLERS POINT
Aboriginal Disability information sessions
Abraham Mott Hall, 17 Argyle Place
Thursday 7 April , 10.00 am — 12.00 pm
Employment & Disability information sessions
1.00 pm — 3.00 pm
ZETLAND
Employment & Disability information sessions
Green Square Community Hall, 3 Joynton Avenue
Tuesday 3 May, 10.00 am — 12.00 pm
Aboriginal Disability information sessions
1.00pm — 3.00 pm
KINGS CROSS
Employment & Disability information session
The Rex Centre, 58A Macleay Street (via Baroda Street)
Wednesday 1 June, 10.00 am — 12.00 pm
Aboriginal Disability information session
Wednesday 15 June, 10.00 am — 12.00 pm
ERSKINEVILLE
Employment & Disability information session
Erskineville Town Hall, 104 Erskineville Road
Wednesday 6 July, 5.30 pm — 7.30 pm
ULTIMO
Employment & Disability information session
Ultimo Community Centre, 40 William Henry Street (Cnr Harris Street)
Friday 29 July, 9.30am — 11.30am
If you have any questions contact Rachel at the DDLC on 8014 7000 or 1800 800 708
http://www.ddlcnsw.org.au/
The information sessions are aimed at increasing awareness of disability rights and people will be given the opportunity to arrange follow-up one on one interview to provide legal assistance to protect those rights.
MILLERS POINT
Aboriginal Disability information sessions
Abraham Mott Hall, 17 Argyle Place
Thursday 7 April , 10.00 am — 12.00 pm
Employment & Disability information sessions
1.00 pm — 3.00 pm
ZETLAND
Employment & Disability information sessions
Green Square Community Hall, 3 Joynton Avenue
Tuesday 3 May, 10.00 am — 12.00 pm
Aboriginal Disability information sessions
1.00pm — 3.00 pm
KINGS CROSS
Employment & Disability information session
The Rex Centre, 58A Macleay Street (via Baroda Street)
Wednesday 1 June, 10.00 am — 12.00 pm
Aboriginal Disability information session
Wednesday 15 June, 10.00 am — 12.00 pm
ERSKINEVILLE
Employment & Disability information session
Erskineville Town Hall, 104 Erskineville Road
Wednesday 6 July, 5.30 pm — 7.30 pm
ULTIMO
Employment & Disability information session
Ultimo Community Centre, 40 William Henry Street (Cnr Harris Street)
Friday 29 July, 9.30am — 11.30am
If you have any questions contact Rachel at the DDLC on 8014 7000 or 1800 800 708
http://www.ddlcnsw.org.au/
Tuesday, 29 March 2011
Celebrating World Down Syndrome Day in Bali
World Down Syndrome Day was celebrated for the first time in Bali this year:
In less than a week, a committee of four mothers of children with Down syndrome (Eveleen, Arie, Pia (formerly from Sydney) and Rinda) pulled together an event for families and professionals in Bali.
In less than a week, a committee of four mothers of children with Down syndrome (Eveleen, Arie, Pia (formerly from Sydney) and Rinda) pulled together an event for families and professionals in Bali.Two short films were screened, one about Special Olympics Indonesia (SOIna - Indonesian Special Olympics) and the other about a young girl with Down syndrome in a small village in Kupang. A 'Q and A' session followed with a Minikino representative about the films. The screening was courtesy of Minikino and In-Docs Jakarta, who produced and holds rights of the films’ public screening. 
Information sessions followed lunch.A young and resourceful Balinese physiotherapist, Gede Rai provided valuable information for families. The second session was on the immune system in children with Down syndrome and how it might be improved.
Around 60 adults and children (with or without Down syndrome) attended the event. Children were entertained with activities and educational toys throughout the event. We also had the pleasure of welcoming members (volunteers, educators, parents and students) of Sjakitarius, a Dutch initiative “Yayasan” (non-profit organisation) in Ubud Bali - almost 90% of their students have Down syndrome.
All in all, it was a glorious and happy day for us all in sunny Bali. We look forward to our next gathering!
POTADS (Persatuan Orang Tua Anak dendan Down Syndrome) is a Bali based Down syndrome support organisation.
Monday, 28 March 2011
Key Word Sign Group Workshop: Wauchope NSW
5.30pm to 7pm Wednesday 6th April and 18th May
3 Enterprise Place, Wauchope
off Bago Road industrial area
Everyone is welcome and please feel free to pass on information. We have lots of fun, it is easy to learn – we play games, speak and sign, sign and play - and it doesn’t matter if you know 1 sign or 30 or 100 you will learn about 20 – 30 new words every meeting or get to practise some forgotten signs.
Please email/ phone/ Text Julie Langeveld if you are interested in coming along to our meetings and RSVP for numbers. All materials supplied.
Contact: Julielangeveld@gmail.com or 0402 729 319
Joining the Dots: Inner West
Discover the range of disability services available in Sydney’s Inner West
The Inner West Disability Network is pleased to invite people with a disability,families, carers, and community members to attend a FREE exhibition of disability service providers.
1pm - 4pm, Wednesday April 6, 2011
Where: Burwood RSL, 96 Shaftsbury Rd, Burwood
[A shuttle bus will run between Burwood Station and Burwood RSLthroughout the afternoon].
Disability service organisations will be available to discuss their service options with you and your family member/s.
Exhibitors will include:
Community services, government departments, education and training providers, open and supported employment service providers, accommodation and respite services, post-school and day programs providers, and equipment suppliers.
Translating services will be available for a selection of community languages thanks to the support of Anglicare. Please contact Debi Toman with any questions or special requirements: tel: 02 9685 9315, email: d.toman@uws.edu.au
Sunday, 27 March 2011
Older Parent Carer project: a Sydney example
An Older Parent Carer Project operating in Sydney's north was highlighted in this month's Working Carers' Gateway Newsletter.
... The project offers holistic case management for carers over the age of 60, or 45 for Aboriginal and Torres Strait Islander carers who are caring for their adult son or daughter with a disability. The OPC assists and supports these carers to maintain their caring role for as long as possible and where needed, can refer and link to relevant community support services to help achieve this.
One of the major aims of the project is developing a futures plan for the family. Families do NOT have to be in current crisis in order to be referred! Anyone can refer, including carers themselves.
The OPC can provide older parent carers with information about supported accommodation services (both traditional options as well as possible alternative housing arrangements), health care information, and information on legal issues such as wills, trusts, powers of attorney and guardianship to enable them to make decisions regarding future care for their son or daughter with a disability ... read on for more about this Older Parent Carer Project
The project's own website is here: Community Care Northern Beaches Older parent Carer Project
Further information about help for Older Parent Carers across NSW is available from Carers NSW - type 'older parent carers' into the search box under the menus at the left of the screen.
... The project offers holistic case management for carers over the age of 60, or 45 for Aboriginal and Torres Strait Islander carers who are caring for their adult son or daughter with a disability. The OPC assists and supports these carers to maintain their caring role for as long as possible and where needed, can refer and link to relevant community support services to help achieve this.
One of the major aims of the project is developing a futures plan for the family. Families do NOT have to be in current crisis in order to be referred! Anyone can refer, including carers themselves.
The OPC can provide older parent carers with information about supported accommodation services (both traditional options as well as possible alternative housing arrangements), health care information, and information on legal issues such as wills, trusts, powers of attorney and guardianship to enable them to make decisions regarding future care for their son or daughter with a disability ... read on for more about this Older Parent Carer Project
The project's own website is here: Community Care Northern Beaches Older parent Carer Project
Further information about help for Older Parent Carers across NSW is available from Carers NSW - type 'older parent carers' into the search box under the menus at the left of the screen.
Saturday, 26 March 2011
Megan's World Down Syndrome Day
Megan Nay (9) was a busy woman on World Down Syndrome Day (21st March) - she represented her school at an inter-schools swimming carnival at Homebush, and won a swag of medals. She will now be back to do it all again at the State PSSA Carnival. Sydney Half Marathon - Michelle is running for Down Syndrome NSW and ACT DSA
Michelle Stuckey-Paini is running the Sydney Half Marathon on 15th May 2011, and raising funds for Down Syndrome NSW and ACT DSA, in honour of her daughter Chloe who
You can support her via her Everyday Hero page: www.everydayhero.com.au/michelle_stuckey_paini
“... has taught us life is for living and loving, and that a person’s real ‘value’ is in the love in their heart, the joy in their soul, and their true self.”
You can support her via her Everyday Hero page: www.everydayhero.com.au/michelle_stuckey_paini
Friday, 25 March 2011
The BIG EVENT 2011
The NSW Chapter of In Control Australia proudly presents:Self-directed Support: Making it Happen
10th and 11th May 2011, West Ryde
This two-day event will bring together Steve Dowson (UK), speakers from across Australia, people with disability, families, carers, advocates, policy makers, support services, government & administrators to
explore self-directed support in NSW.
Please register your interest by emailing Michael Bleasdale: michaelb@pwd.org.au
Information about In Control Australia is available from the website: www.incontrol.org.au
Family Advocacy event for parents of students transitioning to secondary school
Why stop now: Inclusive education at High School
4th May 2011, West Ryde
• Would you like to learn about how inclusion can work for students with disability in a mainstream High School setting?
• Are you interested in curriculum adjustments that work?
• Would you like information about the transition to High School for students with disability?
Contact Family Advocacy to register your interest or for more information:
Telephone (02) 9869 0866 or free call 1800 620 588 (NSW only)
www.family-advocacy.com
Email: workshops@family-advocacy.com
4th May 2011, West Ryde
• Would you like to learn about how inclusion can work for students with disability in a mainstream High School setting?
• Are you interested in curriculum adjustments that work?
• Would you like information about the transition to High School for students with disability?
Contact Family Advocacy to register your interest or for more information:
Telephone (02) 9869 0866 or free call 1800 620 588 (NSW only)
www.family-advocacy.com
Email: workshops@family-advocacy.com
Thursday, 24 March 2011
Kayte Brimacombe photography exhibition One in Ten
From the Guardian.co.uk:
As many as one in ten people with Down's syndrome have the additional diagnosis of autism. Here we present Kayte Brimacombe's photographs of ten children and adults with the dual diagnosis, while their carers discuss daily life. Brimacombe's exhibition, One in Ten, is at the Oxo Gallery, London, until 27 March as part of a group exhibition, Shifting Perspectives, to coincide with Down's syndrome awareness week (in the UK)
As many as one in ten people with Down's syndrome have the additional diagnosis of autism. Here we present Kayte Brimacombe's photographs of ten children and adults with the dual diagnosis, while their carers discuss daily life. Brimacombe's exhibition, One in Ten, is at the Oxo Gallery, London, until 27 March as part of a group exhibition, Shifting Perspectives, to coincide with Down's syndrome awareness week (in the UK)
Family Advocacy extracts 'a final word from NSW politicians'
In the run-up to Saturday's NSW election, responses from NSW politicians of three persuasions have been posted on its website by Family Advocacy. Each party was asked to state its position on Family Advocacy's campaign priorities in the light of Stronger Together 2 document released by the NSW Government late in 2010.
From Family Advocacy's home page, the links are on the right of the screen, under the 'Hot issues' tab.
From Family Advocacy's home page, the links are on the right of the screen, under the 'Hot issues' tab.
Aiming High Futsal (5 a-side-soccer) - eastern suburbs
A new opportunity - for men and women aged 16 years and over, with a disability
Randwick City Football Club
Competition to run for 8 weeks during winter. Season starts April.
Games played Saturday mornings 11.30am-12:30pm
Free coaching and instruction
Maroubra Memorial Bowling Club
Corner of Malabar Rd and Mons Ave
Cost - $20 – $30 depending on age
Email Ben Folino to register: bfolino@bigpond.com or 0419 973 631
Invitations to participate in research studies
From time to time, Down Syndrome NSW is able to put researchers in touch with people with Down syndrome and their families to help with recruitment of participants for their studies. Two Sydney studies are currently recruiting:
Expression of emotions study - Macquarie University (March 2011)
Participants with Down syndrome over 6 years of age are being sought by a psychology honours student. Further information about the project is available here.
This research project has been approved by the Macquarie University Human Ethics Committee.
Memory development in preschoolers and adults with Down syndrome - University of NSW (throughout 2011)
We are currently looking for participants aged 3-5 years old with Down syndrome for a study at the University of New South Wales.
The study would involve your child playing a series of memory games with pictures and toys. Your child will also participate in a standardized task to measure cognitive and communication skills.
The study is on-campus and $20 petrol costs and paid-parking will be reimbursed. Your child will also get to choose a small toy to take home at the end of the session.
From March 2011, a second stage of this project will be implemented, with adult subjects:
We are currently looking for participants aged 20-50 years old with Down Syndrome for a study at the University of New South Wales.
The study will involve participating in a series of memory tasks with pictures and objects and a standardized task to measure cognitive and communication skills.
If you’re interested in further information about either part of the study, or would like to participate, please contact Lynette Roberts on 0405 721 076 or at lynette.roberts@unsw.edu.au
Expression of emotions study - Macquarie University (March 2011)
Participants with Down syndrome over 6 years of age are being sought by a psychology honours student. Further information about the project is available here.
This research project has been approved by the Macquarie University Human Ethics Committee.
Memory development in preschoolers and adults with Down syndrome - University of NSW (throughout 2011)
We are currently looking for participants aged 3-5 years old with Down syndrome for a study at the University of New South Wales.
The study would involve your child playing a series of memory games with pictures and toys. Your child will also participate in a standardized task to measure cognitive and communication skills.
The study is on-campus and $20 petrol costs and paid-parking will be reimbursed. Your child will also get to choose a small toy to take home at the end of the session.
From March 2011, a second stage of this project will be implemented, with adult subjects:
We are currently looking for participants aged 20-50 years old with Down Syndrome for a study at the University of New South Wales.
The study will involve participating in a series of memory tasks with pictures and objects and a standardized task to measure cognitive and communication skills.
If you’re interested in further information about either part of the study, or would like to participate, please contact Lynette Roberts on 0405 721 076 or at lynette.roberts@unsw.edu.au
Wednesday, 23 March 2011
T4321 Bourke, NSW 2011
Cruz Ryan is well known and loved in his home town of Bourke,
in far north western NSW.
His mum, Lynette Gooch organised a T4321 event with her colleagues at
Bourke Shire Council ...
... with a little help from Cruz ...
..... and the wonderful support of local businesses.....
... who helped to raise close to $600 towards the work of Down Syndrome NSW,
while they celebrated World Down Syndrome Day 2011
Business participating included:
Willoughby’s Butchery
Essential Energy
Darling River Medical Centre
Bourke Shire Council
Indigo hair
Culhanes Clothing Store
Our thanks to Lynette, Cruz, donors and the generous community of Bourke.
Monday, 21 March 2011
World Down Syndrome Day Statement from Parliamentary Secretary for Disabilities and Carers
SENATOR JAN McLUCAS
Parliamentary Secretary for Disabilities and Carers
21 March 2011
World Down Syndrome Day
Today marks the sixth anniversary of World Down Syndrome Day, an opportunity to learn more about Down syndrome and to recognise the important role that people with this condition play in our society.
Parliamentary Secretary for Disability and Carers, Senator Jan McLucas, said that today was a great opportunity for people across Australia and beyond to take the time to become more aware about Down syndrome.
“It is important that we work to create a more inclusive community that more fully embraces people with Down syndrome and welcomes their participation in society,” Senator McLucas said.
According to the Australian Institute of Health and Welfare, the rate of Down syndrome among infants in Australia is 11 per 10,000 births.
Senator McLucas said the Australian Government has committed $122 million to providing better services to children with disability, including those with Down syndrome, through the Better Start for Children with Disability initiative.
“Under this program, from 1 July this year, eligible children aged under six diagnosed with Down syndrome, cerebral palsy, Fragile X syndrome, and sight and hearing impairments, will have access to up to $12,000 in funding to pay for early intervention services,” Senator McLucas said.
“The funding will provide more affordable access for families and carers to early intervention services such as speech pathology, occupational therapy, orthoptics, physiotherapy, audiology and psychology.
New Medicare items will also be available for children up to 15 years, including up to 20 treatment items for each eligible child.
Executive Officer of Down Syndrome Victoria, and mother of a child with Down syndrome, Catherine McAlpine, said the Better Start program is a much welcome investment that would help children with disabilities and their families.
“The importance of early intervention in the development of children with Down syndrome s paramount.”
“I look forward to the commencement of the Better Start program and the benefits it will bring many children with not just Down syndrome, but a range of other disabilities, and their families.”
Senator McLucas said the Australian Government’s Better Start program would help address the need for greater support for children with disability.
“Our initiative will help to relieve some of the financial pressure faced by families by making early intervention services much more affordable and accessible. “
“Evidence shows that young children diagnosed with disabilities that affect their evelopment benefit from early intervention to give them the best possible start in life.”
“Access to high quality services early in childhood is critical for helping these children to better participate in everyday life and attend school.
“This package is just one part of our Government’s commitment to providing better support for people with disability.”
Parliamentary Secretary for Disabilities and Carers
21 March 2011
World Down Syndrome Day
Today marks the sixth anniversary of World Down Syndrome Day, an opportunity to learn more about Down syndrome and to recognise the important role that people with this condition play in our society.
Parliamentary Secretary for Disability and Carers, Senator Jan McLucas, said that today was a great opportunity for people across Australia and beyond to take the time to become more aware about Down syndrome.
“It is important that we work to create a more inclusive community that more fully embraces people with Down syndrome and welcomes their participation in society,” Senator McLucas said.
According to the Australian Institute of Health and Welfare, the rate of Down syndrome among infants in Australia is 11 per 10,000 births.
Senator McLucas said the Australian Government has committed $122 million to providing better services to children with disability, including those with Down syndrome, through the Better Start for Children with Disability initiative.
“Under this program, from 1 July this year, eligible children aged under six diagnosed with Down syndrome, cerebral palsy, Fragile X syndrome, and sight and hearing impairments, will have access to up to $12,000 in funding to pay for early intervention services,” Senator McLucas said.
“The funding will provide more affordable access for families and carers to early intervention services such as speech pathology, occupational therapy, orthoptics, physiotherapy, audiology and psychology.
New Medicare items will also be available for children up to 15 years, including up to 20 treatment items for each eligible child.
Executive Officer of Down Syndrome Victoria, and mother of a child with Down syndrome, Catherine McAlpine, said the Better Start program is a much welcome investment that would help children with disabilities and their families.
“The importance of early intervention in the development of children with Down syndrome s paramount.”
“I look forward to the commencement of the Better Start program and the benefits it will bring many children with not just Down syndrome, but a range of other disabilities, and their families.”
Senator McLucas said the Australian Government’s Better Start program would help address the need for greater support for children with disability.
“Our initiative will help to relieve some of the financial pressure faced by families by making early intervention services much more affordable and accessible. “
“Evidence shows that young children diagnosed with disabilities that affect their evelopment benefit from early intervention to give them the best possible start in life.”
“Access to high quality services early in childhood is critical for helping these children to better participate in everyday life and attend school.
“This package is just one part of our Government’s commitment to providing better support for people with disability.”
2011 World Down Syndrome Day Awards: Down Syndrome International
On Monday 21 March 2011, World Down Syndrome Day, Down Syndrome International (DSi) is delighted to announce the recipients of the 2011 World Down Syndrome Day Awards.
2011 is the second year of the World Down Syndrome Day Awards, presented to individuals or organisations whose voluntary, professional or scientific activities have strengthened and enriched the lives of people with Down syndrome, or contributed to scientific advancement related to Down syndrome.
This year’s recipients are as follows:
Voluntary and Professional Awards
4 individuals with Down syndrome receive awards for outstanding self-advocacy:
Ty Belnap (Australia) – Record breaking swimmer, surf lifeguard and stage and movie actor.
Mia Farah (Lebanon) – Self-advocate and international disability rights campaigner.
Malgorzata Jablonska (Poland) – Stage and movie actress, performing in many European countries.
Sujeet Desai (USA) – Accomplished musician and self-advocate with worldwide reputation.
3 individuals receive awards for outstanding professional activities:
Dr Branka Butorac (Croatia) – Headmaster of Down Syndrom Centar Pula, Croatia.
Driton Bajraktari (Kosovo) – Co-Founder and Executive Director of Down Syndrome Kosova, Kosovo.
Pauline L`vovna Zhiyanova (Russia) – Special Education Teacher, Downside Up, Russia.
4 organisations receive awards for outstanding professional activities:
Ikatan Sindroma Down Indonesia (ISDI) (Indonesia) – Down syndrome support and advocacy group.
Yaldei Tismonet Down (YATED) (Israel) – Down syndrome parent support organisation.
Down Syndrome Foundation Nigeria (Nigeria) – Centre for children and adults with Down syndrome.
Robert Owen Communities (UK) – Charity supporting over 350 adults with learning disabilities.
2 individuals receive awards for outstanding volunteer activities:
Agnieszka Tucholska and Zofia Aleksandra Tucholska (Poland) – Young sisters with volunteering experience assisting people with Down syndrome and other learning disabilities.
1 individual receives an award for an outstanding contribution to raising awareness of Down syndrome:
Casper Lja (Canada) – 23 year old man who cycled 7,444 kilometres across Canada to raise awareness and money for Down syndrome advocacy.
Scientific Awards
1 individual receives an award for outstanding contribution as a medical professional in the field of Down syndrome:
Dr S Suresh (India) – Co-Founder and Chief Medical Director, MediScan Systems, Chennai, India.
President’s Special Recognition Award
2 individuals receive special awards for lifetime achievement in Down syndrome advocacy:
Penny Robertson OAM (Australia) – Pioneer of Down syndrome advocacy in Australia, Founder of Australian International School, Indonesia and Co-Founder of Down Syndrome International.
Dr Balbir Singh PBM (Singapore) – Founding Chairman of Down Syndrome Association Singapore, pioneer of World Down Syndrome Day programme and Social Service and Disability sector advocate.
All recipients are invited to a formal presentation of World Down Syndrome Day Awards for the years 2010-2012 taking place at the 11th World Down Syndrome Congress (WDSC) in Cape Town, South Africa from 15-17 August 2012.
2011 is the second year of the World Down Syndrome Day Awards, presented to individuals or organisations whose voluntary, professional or scientific activities have strengthened and enriched the lives of people with Down syndrome, or contributed to scientific advancement related to Down syndrome.
This year’s recipients are as follows:
Voluntary and Professional Awards
4 individuals with Down syndrome receive awards for outstanding self-advocacy:
Ty Belnap (Australia) – Record breaking swimmer, surf lifeguard and stage and movie actor.
Mia Farah (Lebanon) – Self-advocate and international disability rights campaigner.
Malgorzata Jablonska (Poland) – Stage and movie actress, performing in many European countries.
Sujeet Desai (USA) – Accomplished musician and self-advocate with worldwide reputation.
3 individuals receive awards for outstanding professional activities:
Dr Branka Butorac (Croatia) – Headmaster of Down Syndrom Centar Pula, Croatia.
Driton Bajraktari (Kosovo) – Co-Founder and Executive Director of Down Syndrome Kosova, Kosovo.
Pauline L`vovna Zhiyanova (Russia) – Special Education Teacher, Downside Up, Russia.
4 organisations receive awards for outstanding professional activities:
Ikatan Sindroma Down Indonesia (ISDI) (Indonesia) – Down syndrome support and advocacy group.
Yaldei Tismonet Down (YATED) (Israel) – Down syndrome parent support organisation.
Down Syndrome Foundation Nigeria (Nigeria) – Centre for children and adults with Down syndrome.
Robert Owen Communities (UK) – Charity supporting over 350 adults with learning disabilities.
2 individuals receive awards for outstanding volunteer activities:
Agnieszka Tucholska and Zofia Aleksandra Tucholska (Poland) – Young sisters with volunteering experience assisting people with Down syndrome and other learning disabilities.
1 individual receives an award for an outstanding contribution to raising awareness of Down syndrome:
Casper Lja (Canada) – 23 year old man who cycled 7,444 kilometres across Canada to raise awareness and money for Down syndrome advocacy.
Scientific Awards
1 individual receives an award for outstanding contribution as a medical professional in the field of Down syndrome:
Dr S Suresh (India) – Co-Founder and Chief Medical Director, MediScan Systems, Chennai, India.
President’s Special Recognition Award
2 individuals receive special awards for lifetime achievement in Down syndrome advocacy:
Penny Robertson OAM (Australia) – Pioneer of Down syndrome advocacy in Australia, Founder of Australian International School, Indonesia and Co-Founder of Down Syndrome International.
Dr Balbir Singh PBM (Singapore) – Founding Chairman of Down Syndrome Association Singapore, pioneer of World Down Syndrome Day programme and Social Service and Disability sector advocate.
All recipients are invited to a formal presentation of World Down Syndrome Day Awards for the years 2010-2012 taking place at the 11th World Down Syndrome Congress (WDSC) in Cape Town, South Africa from 15-17 August 2012.
A selection of World Down Syndrome Day media
Channel 10's The Circle featured an interview with Dr Jan Gothard and Justin Marshall, about Greater expectations, published today, to celebrate World Down Syndrome Day here in Australia.
A new photo montage from the UK to mark World Down Syndrome Day 2011, was compiled by Penny Green, Director of the Down's Heart Group
Julia Hassell and Keira Maher's love of dance is highlighted in this report from the Hills News
Not really about World Down Syndrome Day, but nice timing in the publication of this story and photo of Prince William meeting a young woman with Down syndrome in Grantham, Qld, from today's Courier Mail
So little and so huge - a blog post for World Down Syndrome Day, giving one grandmother's perspective on what a grandchild with Down syndrome has brought to her life.
And in case you haven't seen it, here is the link again to the Down Syndrome International video, Let Us In
A new photo montage from the UK to mark World Down Syndrome Day 2011, was compiled by Penny Green, Director of the Down's Heart Group
Julia Hassell and Keira Maher's love of dance is highlighted in this report from the Hills News
Not really about World Down Syndrome Day, but nice timing in the publication of this story and photo of Prince William meeting a young woman with Down syndrome in Grantham, Qld, from today's Courier Mail
So little and so huge - a blog post for World Down Syndrome Day, giving one grandmother's perspective on what a grandchild with Down syndrome has brought to her life.
And in case you haven't seen it, here is the link again to the Down Syndrome International video, Let Us In
‘T4321’ World Down Syndrome Day events today
Down Syndrome NSW would like to thank all the schools, childcare centres and workplaces holding ‘T4321’ World Down Syndrome Day events today including ....
Tweed Heads Centrelink Call Centre
Commonwealth Bank Cessnock Branch
St Joseph the Worker School (Auburn)
St Benedicts Catholic Primary School (Yeppoon, QLD)
Garfield Street Children’s Centre (Five Dock)
Life, Marriage and Family Centre (Catholic Archdiocese of Sydney)
Shore Prep
Burraneer Public School
Teddy Bears Educational Child Care Centre
Wellington Public School
Bourke Shire Council
Bourke Shire Council
... and everyone who is celebrating today ... in whatever way.
We wish you all a wonderful World Down Syndrome Day.
Sunday, 20 March 2011
New Prenatal Testing: Are You Ready?
We at DownSyndromePregnancy.org challenge you to make a personal action plan so that the day the new test will launch expectant parents across the nation will have the support and information they need to truly understand Down syndrome.
Learn more about this well developed and practical action plan here.
Learn more about this well developed and practical action plan here.
Saturday, 19 March 2011
Gluten sensitivity? Adult Down Syndrome Clinic post
Some thought provoking ideas on gluten sensitivity from the Adult Down Syndrome Clinic's Facebook page today. It is well established that coeliac disease is more common in people with Down syndrome, but we do hear about people with Down syndrome who test negative for coeliac disease, but who respond well to a gluten free diet.
The Adult Down Syndrome Clinic is in Chicago, and is known world-wide. Drs Brian Chicoine and Dennis McGuire are the authors of the highly regarded Mental Wellness in Adults with Down Syndrome and The Guide to Good Health (for Teens and Adults with Down Syndrome) - both books can be borrowed by Down Syndrome NSW members from our library.
The Adult Down Syndrome Clinic is in Chicago, and is known world-wide. Drs Brian Chicoine and Dennis McGuire are the authors of the highly regarded Mental Wellness in Adults with Down Syndrome and The Guide to Good Health (for Teens and Adults with Down Syndrome) - both books can be borrowed by Down Syndrome NSW members from our library.
People with Down syndrome in the news
Man with Down syndrome uses CPR skills to save friend
A man with Down’s Syndrome saved the life of his best friend – after learning resuscitation techniques by watching TV’s Casualty.
Gerard McKenna was walking with Stephen Chard to their favourite takeaway when Stephen suffered chest pains and collapsed. Gerard, who is only 5’, caught 6’1” Stephen and lowered him to the ground, before putting him into the recovery position and giving him chest compressions. Read the whole story from the Manchester Evening News here.
First person with Down syndrome in Ireland to pass driving test
One very happy young man is in the BBC news for being the first person with Down syndrome to have a full driving licence in Ireland.
A man with Down’s Syndrome saved the life of his best friend – after learning resuscitation techniques by watching TV’s Casualty.
Gerard McKenna was walking with Stephen Chard to their favourite takeaway when Stephen suffered chest pains and collapsed. Gerard, who is only 5’, caught 6’1” Stephen and lowered him to the ground, before putting him into the recovery position and giving him chest compressions. Read the whole story from the Manchester Evening News here.
First person with Down syndrome in Ireland to pass driving test
One very happy young man is in the BBC news for being the first person with Down syndrome to have a full driving licence in Ireland.
Friday, 18 March 2011
Let us in!
Down Syndrome International presents the global video event Let us in! in partnership with 45 countries for World Down Syndrome Day 2011.You will catch a glimpse of our contribution very early in the video.
Please watch this video and help us create a single global voice for advocating for the rights, inclusion and well being of people with Down syndrome on Monday 21 March.
Thursday, 17 March 2011
Diana and Alice in Uzbekistan
If you have enjoyed the film Body and Soul, you might like to catch up with Diana on her adventures in Uzbekistan with Alice, bringing it to a whole new audience:
Alice and Diana's Awesome Adventure in Uzbekistan (blog) or follow them on Facebook
Down Syndrome NSW members can borrow Body and Soul on DVD from our library.
World Down Syndrome Day dinner at Warners on the Bay ...
The Down Syndrome Hunter group kicked off celebrations of World Down Syndrome Day 2011 with a dinner for families, carers and friends and friends at Warners on the Bay on Satuyrday 12th ......
"We laughed, we ate, we drank (soft drink of course!), we talked ourselves silly, and we met new friends and enjoyed catching up with old.
We celebrated being proud parents of our beautiful children with Down syndrome and their incredible siblings. We especially loved welcoming baby Christian who brought his mum and dad along to meet us all and join the fun. It was a special night to share with wonderful people and to welcome a brand new family to DS NSW and our own Hunter group - thank you baby Christian for keeping us focused on why we were celebrating as your beautiful smiles melted our hearts all over again.
Meg did a great job bringing us all together from five different local government areas in the Hunter."
And so much fun was being had, that everyone forgot to take pictures!
"We laughed, we ate, we drank (soft drink of course!), we talked ourselves silly, and we met new friends and enjoyed catching up with old.
We celebrated being proud parents of our beautiful children with Down syndrome and their incredible siblings. We especially loved welcoming baby Christian who brought his mum and dad along to meet us all and join the fun. It was a special night to share with wonderful people and to welcome a brand new family to DS NSW and our own Hunter group - thank you baby Christian for keeping us focused on why we were celebrating as your beautiful smiles melted our hearts all over again.
Meg did a great job bringing us all together from five different local government areas in the Hunter."
And so much fun was being had, that everyone forgot to take pictures!
Wednesday, 16 March 2011
T4321... BLAST OFF!!
Put on Your Kettle for World Down Syndrome Day, 21st March 2011!
People with Down syndrome (also known as Trisomy 21), like Gerard, are now living more confident, happy independent lives than ever dreamed possible.
To celebrate that fact and to foster greater community acceptance and understanding, the first World Down Syndrome Day was declared on March 21st, 2006.
Now in its 6th year, hundreds of organisations around the world have joined in the celebrations with a variety of events. In NSW alone, Tea for 321 (T4321) was launched with over 60 events and over 1000 people taking part across NSW!
We are encouraging one and all to join in on the festivities on March 21st, 2011 by holding a morning or afternoon tea at your home, school, workplace, club, church, Local Park, Cafe or wherever you please! Grab your family, friends, colleagues, fellow club members, or even your local MP and tell them you’re putting on the kettle for a great cause. All you need to do after that is crack open the Tim Tams, bake some scones, order some lammies - and enjoy yourself!
To get your hands on the essential fundraising kit, please contact Priscilla@dsansw.org.au or call 02 9841 4404.
All donations raised from the T4321 morning tea will go to Down Syndrome NSW, an independent charity supporting people with Down syndrome and their families.
Donations over $2 are tax deductible and can also be made at http://www.dsansw.org.au.
*Gerard O’Dwyer pictured with Genevieve Kelly, Tropfest winner for “Be My Brother”, starring Gerard, in 2009
FOR MEDIA ENQUIRIES PLEASE CONTACT:
JESS CHALKER on 0434 840 212 / e: jesschalker@gmail.com
Interviews with Jan Gothard and Justin Marshall: ABC Radio National and Channel 10
Jan Gothard, author of Greater expectations: living with Down syndrome in the 21st century, and Justin Marshall who wrote the "welcome" to the book, was interviewed by Richard Aedy, on Life Matters (ABC Radio National) this morning. You can hear and/or download this excellent interview here.
Comments on the interview will be posted here on the Life Matters web page.
There are just three days remaining to order a copy at a special World Down Syndrome Day discount - click here for details of the discount and an order form.
There are just three days remaining to order a copy at a special World Down Syndrome Day discount - click here for details of the discount and an order form.
Reminder: ENT health for people with Down syndrome - Saturday 26th March
Please register as soon as possible if you wish to attend the talk by Df Phillip Chang and Dr harry Koumoukelis about Ear, nose and throat health for people with Down syndrome at St Vincents Hospital on Saturday 26th March. Register online here, or phone 9841 4411 or email workshops@dsansw.org.au A detailed flyer is available here.
Monday, 14 March 2011
Down Syndrome NSW Calendar 2012
2012 Calendar
It's time to select your photos for next year's calendar and send them in.
All members are invited to submit photos for inclusion in the 2012 Down Syndrome NSW calendar.
Digital photos are preferred - please send your photos as attachments, in .jpg format at the highest resolution you have available (file size up to a total of 2 Mb per email message). Email your photos and details to Angela, at admin@dsansw.org.au with '2010 DS NSW calendar photos + your family name' in the subject line.
Prints may be submitted if you do not have access to digital photos - please include a return address if you need your prints returned. Please do not send in your only print copy of a precious photo!
We would like to have images of people of all ages with Down syndrome, babies to elders - doing whatever interests them, in family groups, with siblings, friends, at work, play, serious or smiling. You can submit more than one photo, but we cannot guarantee to have space for multiple photos from each family! Please tell us who everyone is in each photo. We need to receive permission from each person appearing in a photo, for it to be used by Down Syndrome NSW. Please acknowledge that photos submitted for the calendar may be used for other promotional purposes.
Photo submission will close on 31st May 2011.
Thursday, 10 March 2011
Growing older with Down syndrome: Ballina, 6th and 7th April 2011
Two regional NSW events for families and carers of older people with Down syndrome
1. Growing older with Down syndrome
- information and discussion for parents and family carers of people with Down syndrome aged in their 30s and older ~ adult siblings are welcome
How might growing older impact on our son or daughter?
What do we need to know?
What supports might we need, and where will we find them?
Just how common is dementia?
What should we look for?
9.45 am - 2.00 pm
Wednesday 6th April 2011
Ballina RSL Club
240 River Street Ballina, NSW
There is no charge for this event, but booking is essential for catering.
Morning tea and a buffet lunch will be provided.
Contact Down Syndrome NSW on 9841 4411 or 9841 4407, or email info@dsansw.org.au
to reserve a place.
Click here for a flyer
2. Caring for older people with Down syndrome
- information and resources for people working to support people with Down syndrome aged in their 30s and over, and their families
How might growing older impact on men and women with Down syndrome
What do we need to know?
What supports might they need, and where will we find them?
Just how common is dementia?
What should we look for?
How should we care for people with dementia and Down syndrome?
9.30 am - 2.30 pm
Thursday 7th April 2011
Ballina RSL Club
240 River Street Ballina, NSW
Cost: $55 per head; $110 for three participants from one organisation (inc. GST)
Booking is essential
Morning tea and a buffet lunch will be provided
Click here to download a registration form to book your place.
Enquiries for both events: phone Miriam at Down Syndrome NSW on 9841 4407, or email info@dsansw.org.au
- information and discussion for parents and family carers of people with Down syndrome aged in their 30s and older ~ adult siblings are welcome
How might growing older impact on our son or daughter?
What do we need to know?
What supports might we need, and where will we find them?
Just how common is dementia?
What should we look for?
9.45 am - 2.00 pm
Wednesday 6th April 2011
Ballina RSL Club
240 River Street Ballina, NSW
There is no charge for this event, but booking is essential for catering.
Morning tea and a buffet lunch will be provided.
Contact Down Syndrome NSW on 9841 4411 or 9841 4407, or email info@dsansw.org.au
to reserve a place.
Click here for a flyer
- information and resources for people working to support people with Down syndrome aged in their 30s and over, and their families
How might growing older impact on men and women with Down syndrome
What do we need to know?
What supports might they need, and where will we find them?
Just how common is dementia?
What should we look for?
How should we care for people with dementia and Down syndrome?
9.30 am - 2.30 pm
Thursday 7th April 2011
Ballina RSL Club
240 River Street Ballina, NSW
Cost: $55 per head; $110 for three participants from one organisation (inc. GST)
Booking is essential
Morning tea and a buffet lunch will be provided
Click here to download a registration form to book your place.
Enquiries for both events: phone Miriam at Down Syndrome NSW on 9841 4407, or email info@dsansw.org.au
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