Happy New Year!

Best wishes to all our members and supporters for the New Year

Greg Simmons

President, Down Syndrome NSW

Seasons greetings ...

The Board, Management and staff of Down Syndrome NSW would like to extend 

to you our seasons greetings and wishes for a prosperous New Year.

Please note our office will be closed from Friday 18th December 2015

and will reopen on Tuesday 12th January 2016.

New baby referrals will be responded to with 24 hours Monday - Friday.

Thank you for your support this year and we look forward
to our continued association in 2016.

Regular blog posts will resume on  4th January 2016

People with Down syndrome

The Media - And What It Is Like to Be Someone With a Learning Disability in It

Sarah Gordy, Huffington Post (UK), 8th December 2015
I am an actress and I happen to have a learning disability. I had a young employee in a supermarket come up to me the other day. He has a learning disability. He said; "Sarah you were brilliant yesterday, but you are not doing us any favours, your characters are always helpless and sad. Please play a character with a job, a life and giggles."

What could I say; I don't rule the world. But I agree. I think the media needs to change. I think it needs to do more to include people with a learning disability. I think it needs to stop seeing the disability and begin to see people ...

• Sarah Gordy delivered the Brian Rix Lecture on 1st December 2015, addressing the same issues.

Young Australian artist's New York triumph
Sheila Pham, Australia Plus, 7th December 2015
We first met young Australian artist Josie Webster when she was hoping to travel to New York for the opening of an international exhibition featuring her work. Thanks to crowdfunding she's been to the Big Apple and had the time of her life ...

Intellectual disability doesn’t stop Westmeadows man landing job with Victoria Police

Natalie Savino, North West Leader (Melbourne), 12th December 2015
The past 10 months have been a dream come true for Calvin Lui, who hasn’t let an intellectual disability get in the way of landing an important job with Victoria Police. Now his recruitment is opening doors for others to do the same ...

Actress and Activist Jamie Brewer

Daytime, 7th December 2015

Jamie Brewer is an American actress. She is best known for her roles in the FX horror anthology television series American Horror Story. In its first season, American Horror Story: Murder House, she portrayed Adelaide “Addie” Langdon, the daughter of the main antagonist, Constance Langdon; in the third season, American Horror Story: Coven, she portrayed Nan, an enigmatic and clairvoyant witch, and in American Horror Story: Freak Show, she portrayed Chester Creb’s vision of his doll, Marjorie ...

Down's Syndrome martial artist Jacob Phelps earns black belt
Leicester Mercury, 22nd December 2015
Fifteen years after taking up ju-jitsu, Jacob Phelps, who has Down's Syndrome, has earned his black belt ...

News and opinion from the broader disability community

Local Pathways to Disability-Inclusive Governance in Indonesia

Natalia Warat, Asia Foundation, 16th December 2015

“Nothing About Us Without Us” has become a familiar slogan used by the international disability movement and relies on the principle of full participation for all. However, in Indonesia, where people with disabilities (PWDs) still face enormous barriers, we’re just recently starting to see this slogan being put into practice.

How School Systems Create *That* Parent for Children in Special Education

Laurie Levy, Huffington Post Australia, 16th December 2015

Demanding. Annoying. Angry. Unrealistic. Unreasonable. Every teacher, principal, and school district administrator knows *that* parent. In special education, there are much greater numbers of *that* parent, and I'm sure school systems feel irritated and challenged by the threats of law suits and seemingly endless fights over Individualized Education Plan (IEP) goals. But do they realize their role in creating *that* parent? ...

Featured Philosop-her: Elizabeth Barnes
Meena Krishnamurthy, Philosop-her, 15th May 2015

... I have sat in philosophy seminars where it was asserted that I should be left to die on a desert island if the choice was between saving me and saving an arbitrary non-disabled person. I have been told it would be wrong for me to have my biological children because of my disability. I have been told that, while it isn’t bad for me to exist, it would’ve been better if my mother could’ve had a non-disabled child instead. I’ve even been told that it would’ve been better, had she known, for my mother to have an abortion and try again in hopes of conceiving a non-disabled child. I have been told that it is obvious that my life is less valuable when compared to the lives of arbitrary non-disabled people. And these things weren’t said as the conclusions of careful, extended argument. They were casual assertions. They were the kind of thing you skip over without pause because it’s the uncontroversial part of your talk ...

Government to pay disabled workers 70% of back wages as class action ends

Helen Davidson, The Guardian, 18th December 2015

A long-running legal battle over a disability employment scheme which paid some people as little as $1 an hour has come to an end after the federal government agreed to back pay 70% of the wages owed ...

News and commentary on the NDIS (42)

Our last compilation of news, commentary and opinion on the NDIS for 2015. In 2016, expect much more, as the full rollout begins from June:

Disability Loop eNews #11, 23rd December 2015

NDIS December 2015 eNewsletter

2016 To Do List: Making the NDIS the best it can be

Every Australian Counts, 21st December 2015

2015 has been a huge year for the NDIS. A new report looks at the year in review and what needs to be done in 2016.

The NDIS will transform the lives of people with disability, giving them the power to choose the supports they need to live the life they want. It will also transform communities, helping people with disability realise their dreams of jobs, independent living and a place in their local community ...

Latest NDIS progress report

Every Australian Counts, 18th December 2015

The latest report on the progress of the NDIS roll out is full of good news: it shows that the number of people with individual plans is steadily rising, the cost of the scheme remains within budget and participants are generally happy with the experience ...

People with disability organisations critical to an NDIS future
Australian Federation of Disability Organisations, 3rd December 2015

Disability Australia welcomes the announcement today by the Australian Labor Party on International Day of People with Disability to re-fund people with disability organisations that represent over 200,000 people with disability across Australia.

“We welcome today’s announcement and call for bi-partisan support for long-term stability and funding for people with disability organisations that were critical in achieving the NDIS”, said Matthew Wright, CEO of the Australian Federation of Disability Organisations, and spokesperson for Disability Australia ...

Open letter to SMH - 'Primary disability sector supports NDIS, point blank'

Disability Loop, 7th december 2015
Disability advocate Tricia Malowney wrote an open letter to Rachel Browne, journalist at the Sydney Morning Herald - in response to a December 7 article called 'Disability sector has grave concerns about NDIS roll out' - explaining that people with disability and their families are the primary part of the ‘disability sector’ ...

Sorry, not my department – why the NDIS and health systems need to collaborate
Libby Callaway and Mark Brown, The Conversation, 8th December 2015

... Our research, released today, shows people with the highest physical and medical support needs risk being shunted between the heath and disability sectors, and missing out on timely, well-coordinated care.

To date, people with significant disability have reported some of the most unmet needs in the sector. They often rely on high levels of family support, spend prolonged periods in acute hospital beds, or enter residential aged care facilities because there are no other options available to them ...

8 NDIS Lessons from 2015

Roland Naufal, Disability Services Consulting, 21st December 2015

... It has been a year when we have started to see the fundamental change a market driven disability system will bring. Expect the change next year to be much bigger and much more challenging.

Love My Shape: book release

You might recall that Nerida Lamprill presented a workshop for Down Syndrome NSW in October. Her book has now been released:

Adelaide fashion designer Nerida Lamprill releases beauty book for women with disabilities

Nicole Pope Adelaide Advertiser, 7th December 2015

An Adelaide woman is changing the face of beauty for those living with disabilities.

Author and award-winning fashion designer Nerida Lamprill, 49, has released a book designed to empower, build acceptance and break down stereotypes through personal presentation.

Love My Shape, the first book of its kind, provides tips on how to dress for different body shapes modelled on young South Australian women with disabilities ...

Latest additions to events listing

• Down Syndrome NSW events information

These links provide information about events run by other organisations that might be of interest to people with Down syndrome, their families, carers and professionals who support them:

Get More Skills Workshops

My Choice Matters - learn and practice new skills to get more Choice, Voice and Control in your life. Think and plan, practice and discuss the changes to the disability support system and what you can do now. Fully accessible workshops  for people with a disability and their families/carers. 

Register online, or call 1800 144 653
Wednesday 10 February 2016 - Blacktown
Monday 8 February 2016 - Hornsby 

Social Advocacy

Family Advocacy - three day workshop presented by John Armstrong and Bob Lee, will provide current advocates, both formal and informal, families and allies, advocacy service managers, CEOs, board members and policy makers with the deeper considerations needed when undertaking social advocacy. 

Register online, or call 9869 0866

24th, 25th, 26th February 2016 - Sydney

L Plates

A Down Syndrome NSW member's story, from Margaret Taplin:

Michael Taplin, aged 24, has recently passed his Learner’s License and is very excited, while nervous, to learn to drive. Michael achieved this by attending Sydney Ultimo TAFE. The course is run for disabled adults twice a week for a 15 week period. He studied very hard over this time and practiced the questions consistently on the RTA website. He liked meeting new friends at TAFE from all over Sydney and he enjoyed finding his way to and from Ultimo.

Michael has held a position of Office Assistant in a recruitment firm in the city for the past 5 years. He works from 9 am to 12 pm 5 days each week and catches the train to and from work. He loves his job and has many friends at work. His office is at Darling Harbour and he is finding his way around the city often meeting his brother at Fitness First gym at Bond Street.

Michael is enjoying the new Up Club which has started at Cronulla and loves having the outings with his friends from the Shire.

Michael also plays tennis for Special Olympics and represented NSW in the 2014 National Competition winning a bronze medal in the Doubles. He also participates at Special Olympics at Golf so his Saturdays are very busy.

John and I are very proud of what Michael is achieving in his life, he is a good and loyal friend and has a cheeky personality.

Weekend reading and viewing: 19th - 20th December 2015

What No One Told Me When My Child With Down Syndrome Was Born

Sondra Meacham, The Mighty, 17th December 2015
She turned my world upside down four years ago. In December 2011, we were preparing for the birth of our second daughter ... I’m thankful for how much I have learned about what is important.

He is Joe. He is our son

No Label, No Limits, 8th December 2015

When Sarah asked me if I would consider writing something for the PSDS blog I knew straight away that I would say yes. I realised that I’d reached something of a milestone by coming through the trauma and stress of the early months and that I was not only ready to share our story but desperate to! I often wish I could go back in time and tell my pregnant self what I know now ...

Life Expectancy for Those With Intellectual Disability Used to be Nine Years. Today it is 50 and Beyond
Prof Mary McCarron, Trinity College Dublin, 11 December 2015

The ageing of people with an intellectual disability is a success story that was celebrated in the inaugural lecture delivered by Professor Mary McCarron, Dean of the Faculty of Health Sciences and Trinity College Dublin’s first Professor of Ageing with Disabilities, in Trinity Biomedical Sciences Institute last night.

“This is the first time in history we have ever had a population of people with an intellectual disability who have reached old age and this is something that we should celebrate. Life expectancy for those with Down syndrome in the 1930s was nine years. Today it is 50s, 60s, 70s and beyond,” says Professor McCarron ...

• Professor Mary McCarron is Dean of Faculty of Health Sciences at Trinity College Dublin and an international expert in the field of ageing and intellectual disability, dementia and Down syndrome. She has been a champion for those with intellectual disability since she began her career as a nurse in the 1980s.

A lonely love
Heather Kirn Lanier, Star in Her Eye, 9th December 2015
... I said it slowly and clearly and sadly, and the sentence felt as weighty as a psalm: “It’s hard having a child that other people actively don’t want.”

There it was. My husband stopped what he was doing—scrubbing the stove? putting away silverware?—and turned to me. He opened his arms for a hug.I pressed my cheek into his fleece sweatshirt and stared at the wall. “I want her,” he said ...

What makes someone fit to parent?

Natalie Rose Corrigan, Daily Life, 17th December 2015

... In Australia, Rebecca*, who has a mild intellectual disability, was still pregnant with her first child when she was reported to child protective services. This may sound like a bizarre scenario, but it's an all too prevalent one among people with disabilities. One in five Australians has some form of disability and parents (usually mothers) with disabilities are up to ten times more likely to lose custody of their children ...

Christmas win for employees with disability: BSWAT settlement

People with Disability Australia, 17th December 2015:

The long-standing  Business Services Wage Assessment Tool (BSWAT) wage case has been settled, with employees with disability to receive 70% of their backpay.

People with Disability Australia (PWDA) and the AED Legal Centre have warmly welcomed this decision by the Federal Government and hailed it as a win for employees with disability. 

"We would have preferred the Government came to the table a lot sooner, rather than drag this through the courts, but we are pleased to have an outcome which sees wage justice for these employees," said Samantha French, Manager, Employment and Wage Justice, PWDA.

"While these employees will only get 70% of their backpay, this is better than the 50% the Government was previously offering, and it will be tax free. This money will also not affect Centrelink payments or concessions," said Ms French.

"PWDA and AED are committed to working with the Government in an open manner, with the interests of people with disability at the centre, to further improve wages for people with disability," said Kairsty Wilson, Senior Legal Practitioner, AED Legal Centre.

"We encourage supported employees to register under the BSWAT Payment Scheme," said Ms Wilson.

 
This decision has no financial impact on Australia Disability Enterprises(ADEs - previously called 'sheltered workshops') with the Government providing the funds for the backpay.

"PWDA would like all ADEs to start setting wages using fair wage assessment tools that do not discriminate on the basis of a person’s disability." said Ms French.

Workers with disability are encouraged to register with the BSWAT Payment Scheme. Contact AED for any help with registration - leave a message on (03) 9639 4333 or email: noni.lord@aed.org.au

BSWAT backgroundIn December 2012, the Full Federal Court ruled that the Business Services Wage Assessment Tool (BSWAT) used to set wages for employees with intellectual disability in ADEs was unlawful under the Disability Discrimination Act (DDA). In May 2013, the High Court of Australia agreed that BSWAT disadvantaged employees with intellectual disability.

Since then, the legal case for fair wages has continued - full background to the case here.

'Born This Way': on US TV

Born This Way is a six-episode 'docu-series', following the lives of seven young adults with Down syndrome living in Southern California. It premiered in the US last wee, but the online episodes are not available for viewing via Australian internet connections. You can glean a little of its flavour from the trailer videos online. Reaction from viewers seems to be very positive, although some commentators said they hesitated to watch it because of past experiences of the representation of people with Down syndrome on TV. With the second episode broadcast in the US this week, we expect to hear a broader range of responses, that are interesting, even if we haven't seen it yet.

We will be on the lookout for it on Australian television in the future, or perhaps on DVD. In the meantime, here are some early responses:

born this way

Sue Robins, 14th December 2015
... Make a wish, Santa says and Aaron immediately replies: I wish for a wife. A wife! I don’t know what to do with that wish. I know that Aaron’s wish for a wife is a wish for love and belonging. I wish that for him too ...

To the Creators of ‘Born This Way,’ From a Person With a Disability

Emily Wachter, The Mighty, 11th December 2015

... Thank you for taking me inside the lives of seven people with Down syndrome.

Thank you for showing the struggles of a person with special needs.

Thank you for showing that others with special needs can live normal lives.

Thank you for showing that some people with disabilities have a hard time accepting our diagnoses ...

Tearing Down Barriers Through Television

Jennifer Laszlo Mizrahi, Huffington Post, 11th december 2015
... Sadly, for generations, television has shown people with disabilities as objects of pity. From the Jerry Lewis telethons, to stories where school teams become heroes simply by letting one kid with a disability play for a few minutes out on the court or field, our television sets have brought us stigmas that undermine the one-in-five Americans who have a disability.

Thankfully, with A and E Networks' new show, "Born This Way," there has been a major breakthrough. Finally, people with disabilities and their families are being shown honestly.

Known in the Twitterverse as #BornThisWay, the show follows seven dynamic young adults with Down syndrome and their families as they navigate jobs and relationships and look to gain greater independence ...

Born This Way - Reactions from Josh's Mom
Walkersville Mom, 9th December 2015
I’ve been waiting for what seems like F-O-R-E-V-E-R to see Born This Way on A&E. I can honestly say it did not disappoint! ...

If you get to see it, let us know what you think!

Resources

First Stop Transport - website launched
Transport for NSW has launched a new website today, First Stop Transport, where you can learn about how to make using public transport easier.

It provides an eLearning module about how travel training can help people with disability become more independent.

New DVD: Living with intellectual disability and dementia

Alzheimer’s Australia New South Wales (NSW) has developed a new resource to support people living with dementia and intellectual disability, and the individuals and organisations working in the disability and aged care sectors who assist them. 

The DVD Living with Intellectual Disability and Dementia contains information on assessment and diagnosis, and the support available for people living with dementia and intellectual disability, enabling their ongoing involvement in the community. 

It is also a resource for family members and friends who are concerned about signs of cognitive decline in a relative or friend who lives with an intellectual disability. 

Alzheimer’s Australia NSW provides ongoing professional education to both the aged and disability sectors, and free carer education sessions to family members and friends of people living with an intellectual disability and dementia.

Contact details are provided on the web page about the DVD


Easy Read information sheets
The Down's Syndrome Association (UK) publishes a number of information sheets in Easy Read format. Easy Read means simple writing with a picture to explain the writing.

Some are more relevant to UK readers, but others are useful everywhere.

Another step towards inclusion and visibility

Just a few days till Christmas, you'll possibly be at a large shopping centre sometime in the next few days ... so if it doesn't land in your letterbox first, make a note to pick up the new catalogue from Target, and find Caleb Jordan in it. It's more than an ad in a catalogue:

Ad inclusion:Caleb Jordan for Target Australia
Starting with Julius, 14th December 2015
... Today was a big deal for ad inclusion in Australia and an even bigger one for Caleb who features in the latest Target Australia catalogue. While it is not the first time that Target Australia has featured models with disability, it is the first time in a long time and we hope that it represents a significant step for the brand in adopting inclusive advertising as standard practice ...
... until people with disability are welcomed as equal participants in mainstream culture, it is difficult to see an end to their exclusion from schools, workplaces, community and all other areas of life ...

Added 17th december 2015:

• Dapto boy with Down Syndrome targeted for national catalogue, Lisa Wachsmuth, Illawarra Mercury, 17th December 2015

Going to college

Post-school education opportunities for people with Down syndrome and other intellectual disabilities continue to increase, with the US leading the way:

Elevated: Program for students with intellectual disabilities part of new norm

Kevin Opsahl, Herald Journal, 28th November 2015
Jenna Mosher remembers her reaction almost two years ago to opening the mail addressed to her from Utah State University stating she was accepted to a new program for young adults with intellectual disabilities.

“I put my hand over my mouth; I was speechless,” said Mosher, a graduate of Park City High School, who has a cognitive disorder and wasn’t sure she’d ever find a higher education institution that fit her needs ...

Surprising idea for special education students: Go to college
Betsy Hammond, The Oregonian/OregonLive, 26th november 2015
In Portland and around the country, a generation of children with intellectual disabilities has grown up integrated into their schools and society like never before ...

College access not impossible anymore for those with intellectual disabilities

Shasta Kearns Moore, Portland Tribune, 10th December 2015
“I want to go to college,” said Daniel Jarvis-Holland, and the room erupted in laughter. But not for the reason you might think.

Daniel, a sophomore at Benson Polytechnic High School who has Down syndrome, used his “British accent” to make the statement at the national disability rights TASH conference in downtown Portland on Thursday, Dec. 3. The audience was laughing with him at his false pomposity.

It is that sort of inclusiveness and social interaction that Daniel and his team of supporters hope he can achieve at Portland State University, while simultaneously bettering his odds at a self-sustaining life and career.

Portland State University recently won a $2.5 million federal grant to set up a college program for individuals, like Daniel, who have intellectual disabilities ...

2016 DS NSW Calendar now available

Bigger than Star Wars (almost)! Brighter than NYE fireworks - it's the 2016 Down Syndrome NSW Calendar!
Get you copies now by emailing admin@dsansw.org.au with your payment details and we will post the same day (up to and including Friday 18 December)

A big thank you to our wonderful volunteer calendar creator Craig Peihopa and all the fabulous families who shared their photos.

Parent workshops: March 2016

Teaching Maths and Financial Literacy

Down Syndrome NSW is pleased to announce two maths workshops for parents/carers by leading mathematics researcher and lecturer, Dr Rhonda Faragher. 

These parent workshops tackle two areas of learning that are both challenging and enormously useful for navigating life at and beyond school.

The brochure provides an outline of workshop outlines. Registrations are now open online. 

BROCHURE 

REGISTER ONLINE 

Wednesday 16 March, 2016 

SMC Conference and Function Centre, 66 Goulburn Street

Sydney

Mathematics for Young Learners

 6.00pm - 7.00pm 

Cost $55 incl gst 

Financial literacy for Learners with Down syndrome

7:30pm - 8:30pm 

Cost $55 incl gst

For more information please contact training@dsansw.org.au 

Rhonda Faragher, PhD, is an academic working in the field of inclusive education and is currently with the Learning Sciences Institute Australia, Faculty of Education and Arts, Australian Catholic University. She chairs the Asia Pacific Down Syndrome Federation, is a Board Member of Down Syndrome Australia, Trustee of Down Syndrome International and ViceChair, International Association for the Scientific Study of Intellectual Disabilities Down Syndrome Special Interest Research Group. She has taught mathematics from early childhood to tertiary level and her research and teaching is based on the premise that all learners can enjoy and be successful at mathematics. She is the author of a number of publications, including an editor of the recent book, Educating Learners with Down Syndrome, published by Routledge. Rhonda has received a number of awards for her work, including the Commonwealth of Australia Endeavour Executive Award and the Vice-Chancellor’s Teaching Excellence Award from James Cook University.

News and opinion from the wider disability community

Most of these links are to news and opinion pieces about difficult aspects of living with disabilities. They are not hard to find - eight of nine were published within the last two weeks. But if they are not discussed openly it will remain so -  we can't change things we don't even know about. So if we can play a very small role in bringing them to the attention of people who are likely to be interested in promoting the changes needed (you), then it is the very least we can do:

Reporting disability on IDPwD
El Gibbs, Blunt Shovels, 1st December 2015
... The theme of this year’s International Day of People with Disability is‘Inclusion matters: access and empowerment for people of all abilities‘ and includes some key areas:

• Making cities inclusive and accessible for all
• Improving disability data and statistics
• Including persons with invisible disabilities in society and development.

What would stories look like if they were actually about these kind of themes? Would they continue to be the kind of saccharine, boring coverage of a morning tea somewhere? I don’t think so ...

Gun Violence and #DisabilityTwitter

David M Perry, How Did We Get Into This Mess? 3rd December 2015

Soon, we found out that the killing took place at a disability services center, and my personal network of disability rights activists, disabled individuals, parents, caregivers, service providers, and so much more encapsulated by #DisabilityTwitter fell apart emotionally ... We braced for the worst. We were relieved, if guiltily, when it became clear that the worst wasn't in fact the case.

You see, we're ready for someone to target disabled people with violence. We're expecting it. We're expecting it because it's constantly happening, even though most people are unaware ...

Kindness Without Respect is Worthless

eisforerin.com, 5th December 2015

... So what’s all the hype about? The reality is that our society does not value disabled people. We (yes I’m saying “we” because autism is a disability and I am autistic – it would feel weird to say “they”) are seen as dependents, non-contributing entities, demi-humans whose lives are just a weak, broken, inferior version of “real,” “normal” people’s lives. Mostly, disabled people are just flat out ignored ...

We need to prioritise women with disability in domestic violence discussions

Moo Baulch and Jess Cadwallader, Daily Life, 2nd December 2015

It's the too-often-forgotten part of the conversation when we talk about violence against women: the abuse that women with disability face.

Despite experiencing significantly higher rates of all types of violence, with some added unique extras including sterilisation and the threat of institutionalisation, most of the investment in and focus on violence prevention continues to leave this group of women quietly hidden ...

DatMoo Baulch and Jess Cadwallader, Daily Life, 2nd December 2015

The state (and importance) of disability media,

Carly Findlay, 3rd December 2015

... Whether it be disabled media makers, or media about disability, stories need to be told. This latest case highlights just important it is. I hope that Australia can run independent disability media awards through The Media and Arts Alliance or the Walkley Awards in the future.

I am scared for the future of disability media. There's very little mainstream media about disability, and what is shown is often inspiration porn. It's focussed on overcoming obstacles and even glamourising illness in Hollywood ...

Launch of ‘No Longer Shut Up’ – a celebration of the life of Mabel Cooper (1944-2013)

Liz Tilley, Social History of Learning Disability (SHLD) News and Reflection (Open University), 4th December 2015
... Mabel Cooper was a truly inspiring woman, who was a key figure in the SHLD group and a self-advocate who made waves across the world. She championed the rights of people with learning disabilities, and was determined that others should not have to endure what she had experienced, incarcerated at St Lawrence’s Hospital, Catheram, for 20 years. In her words, people with learning disabilities should never again be ‘shut up’ ...

The Ever Growing, Gut-Wrenching Case For A Royal Commission Into Disability Abuse

Max Chalmers, New Matilda, 8th December 2015

There are three broad reasons advocates provide when asked why a royal commission into abuse, neglect and violence against people with disability is needed. Yet the most convincing argument is simply to recall stories like Natalie’s ...

Lack of choices about end of life

Jason Walls, Bendigo Advertiser, 13th August 2015

A Victorian parliamentary inquiry has heard few people with intellectual and developmental disabilities are supported to make choices about how or where they die.

In a submission to the inquiry into end of life choices at the Bendigo Town Hall on Wednesday, La Trobe University professor of rural and regional allied health Teresa Iacono said this was part of a broader trend in which people with IDD often had limited choices about their everyday lives ...

National Ethnic Disability Alliance presents inaugural NEDA medals
University of Sydney, 8th December 2015
Dr Dinesh Wadiwel, Professor Mary Crock and Emeritus Professor Ron McCallum AO have received National Ethnic Disability Alliance medals for their ongoing advocacy for the rights of migrants with disabilities.

'Notes on a Scandal': SBS TV, Saturday

Notes on a Scandal, the 2006 movie in which Max Lewis played the son of Cate Blanchett and Bill Nighy, is showing on SBS TV (Channel 3 in Sydney) tomorrow night (Saturday 12th December) at 8.30 pm.

Click here for an extract from his mother, Sandy Lewis's book, Living With Max, published in the UK newspaper, The Daily Mail in 2008.

Max with his screen father, Bill Nighy, in a scene from Notes On A Scandal

Weekend reading and viewing: 12th - 13th December 2015

How she is her best advocate
Ellen Stumbo, Hope and Encouragement, 4th December 2015
Nichole walked into the eye clinic ready to get her glasses fixed – she knew what to do – she sat at the open desk before one of the two attendants who work there and smiled. This was a new attendant to us, one we had never worked with before. I recognized “the look” right away ...

Sian Davey's best photograph – my daughter Alice, who has Down's syndrome

Sian Davey, The Guardian, 10th December 2015

... I was not prepared for how I would respond after Alice was born. She did not feel like my other children, and part of my instinct was to pull away from her. I was fraught with anxiety; I once dreamt Alice was swaddled in a blanket and I had forgotten all about her.

Alice was so small, but I knew she could feel my rejection. I was deeply sad that I could not immediately love my child – I wanted to make our relationship better, and the responsibility lay with me ...

What I call positive
Heather Saunders, This Calm Chaotic Life, 29th November 2015
... “Right, I’m going to be a bit controversial! I have lots of positives, but not all of them will be regarded as such by everyone. I love the fact that my daughter (17 next month) is grumpy, stroppy, loud, funny, uncooperative, stubborn, enthusiastic (on her terms!), musical (as are her 3 siblings) ...

All that matters
Paul Critchlow, Orange Juice Flavour Sky, 3rd December 2015
... This was also a day that Emily would never forget. She had been asked by Gloria and Steve to sing during their service. Not as part of a group or a choir or even a duo. She had been asked to sing a solo, accompanied only by her brother in law on guitar ...

Changing perspectives, paradigm shifts, and a lesson from a teenager

Alex McAuley, The Life That Max Built, 10th December 2015
... I knew I had undergone a huge paradigm shift when my answer to the ‘cure’ question changed from ‘yes’ to ‘no’ ...

The low-stress hair salon for people with disabilities
Kate Monaghan, BBC News, 10th December 2015
Liz Stewart used to have such problems getting her son Delroy to have a haircut that she ended up cutting his hair while he slept ... So she came up with the idea of opening a salon for people with additional needs to get their hair cut in a low-stress environment ...

NDSC film expert reviews 'Spectre'

We know there are are many, many James Bond fans out there ...

NDSC film expert reviews 'Spectre'

NDSC: How many stars would you give this James Bond movie out of 5 stars for excellence? 

Chess’s answer: 5 stars = Crazy action and I love all the James Bond movies ...

Check the links on the right of the NDSC  'News' page for more of Chess's movie reviews.