The revision also makes clearer recommendations on "different priorities and courses of action for those who are symtomatic and those who are not".
The revised guidelines are intended for professional use. It would be a useful document (it is a single sheet) for people with Down syndrome to have in their medical files should it ever need to be referred to, or for families to provide their doctor with a link to the online file: www.dsmig.org.uk/library/articles/CSI%20from%20BACCH%20newsletter.pdf
It is intended that the revised guidelines will be published by the DSMIG with "fully referenced background notes" later in the year. The interim document was published by the British Association for Community Child Health, March 2010.
Those interested in the ongoing international differences in recommendations about the value of X-ray screening of people with Down syndrome without screening might be interested in a recent review by neurosurgeons from Columbia University in New York:
Hankinson, TC, Anderson, RC, Craniovertebral Junction Abnormalities in Down Syndrome, Neurosurgery, March 2010 - Volume 66 - Issue 3 - p A32–A38
- The abstract and options to purchase the full text of this paper are available here.