An award winning Spanish film about a unusual man with Down syndrome (played by Pablo Pineda), Me, Too is scheduled for screening at the Sydney Film Festival on two dates in June (Sat 12th and Mon 14th). From the Festival's website:
Me Too, Álvaro Pastor, Antonio Naharro, Spain, 103 mins
One of the most charming romances to hit the screen this festival also confronts preconceptions about the intellectual and sexual lives of people with disabilities. After graduating, 34-year-old Daniel (played by Pablo Pineda, renowned for being the first European with Down’s Syndrome to receive a university degree) takes a job at a social services office in Seville where he falls for Nuria (Lola Dueñas), a shambolic colleague who is looking for love in all the wrong places.
Beset with challenges from the start – sniggering co-workers, academic family who’ve encouraged his ambitions but failed to educate him in matters of attraction – Daniel sets out to win Nuria who is clearly unsettled by his desire for her. Pineda and Dueñas received Best Actor and Actress awards at San Sebastien Film Festival for their wholly realised performances in this endearing debut feature.
Booking options and details are available from the SFF website: http://sff.org.au Search for the film by name under Films and Events for dates, times and venues, links to bookings.
Address details
Level 6/410 Church St, North Parramatta
9am-5pm Monday - Thursday
T: 9841 444
Monday, 31 May 2010
Sunday, 30 May 2010
It Takes A Village To Help A Sister: Rachel Simon
Rachel Simon is well known for her book, Riding the Bus With My Sister, and as a contributor to Thicker Than Water. She now maintains a blog, where she recently wrote about an episode in which Beth needed some fairly urgent support with a health problem, and what she, Rachel, learned about he importance of community from it. Read the post here.
You'll see from her blog that she has another book out, too The House on Teacher's Lane.
You'll see from her blog that she has another book out, too The House on Teacher's Lane.
Friday, 28 May 2010
Disabled children face years in crisis care
The dire circumstances for some people with disabilities and their families who are in critical need, and seeking out of home care was highlighted again on the front page of this morning's Sydney Morning Herald:
Children and teenagers with disabilities have been stuck in crisis accommodation, some for more than eight years - at a cost of up to $1.5 million - because the state government has been unable to find them homes. Read Louise Hall's report here
Children and teenagers with disabilities have been stuck in crisis accommodation, some for more than eight years - at a cost of up to $1.5 million - because the state government has been unable to find them homes. Read Louise Hall's report here
Healthy Adulthood: Kiama, 25th June
Healthy Adulthood
An informal dinner and discussion for parents and family carers of adolescents and adults with Down syndrome
6:30pm - 9:30pm, Friday 25th June 2010
Kiama Leagues Club
Click here for a Healthy Adulthood, Kiama, flyer
An informal dinner and discussion for parents and family carers of adolescents and adults with Down syndrome
6:30pm - 9:30pm, Friday 25th June 2010
Kiama Leagues Club
Click here for a Healthy Adulthood, Kiama, flyer
Thursday, 27 May 2010
Seminar for teachers: Newcastle, 25th June
- a workshop for teachers
9:30am - 3:00pm
Friday 25th June 2010Quality Hotel Apollo International
290 Pacific highway, Charlestown
$99 per person (DS NSW members)
$132 per person(Non members)
Includes GST, morning tea, light lunch
Library Thursdays: Down Syndrome Transition Handbook
Woodbine House has published another book in their Topics in Down Syndrome series, The Down Syndrome Transition Handbook: Charting your child's course to adulthood by Jo Ann Simons, (2010). Although it is definitely geared to the American experience, it has much to offer any family of an adolescent with Down syndrome.
Other books on planning for adult life:
The author uses her experience as a mother of a young man with Down syndrome to help others as their child moves from school to adult life. The book is detailed about things to think about and plan for throughout the transition period. It discusses using high school to start to prepare, post-secondary options, employment, housing, family and other support networks, health and emotional well-being, funding, transport, and more. Included within each chapter are stories from many parents about their experiences.
I thought it was a valuable book not only for the information but also to help families explore their feelings about the process they are all going to go through as their child becomes an adult. I especially enjoyed Simon's son's thoughts on his mother learning to let go.
There are other good books on planning for adult life, but I found this one a worthy addition to those because of its personal touches (among them is the unmailed response to a department's request for yet another assessment). Unless you find it annoying to have to skim through the bits on American requirements and systems, I would highly recommend this book for all parents of teenagers.
- Safe and secure, Al Etmanski, PLAN, 2008.
- Transition to Employment for Adults with Down Syndrome, Down Syndrome Issues and Information, Down Syndrome Education International, 2006.
- What kind of a future?: Supporting young people with Down’s syndrome to lead full lives after they leave school, Foundation for People with Learning Disabilities,UK, 2007.
Wednesday, 26 May 2010
Supporting grandparents: Sunday 6th June
Informal meeting for grandparents of children with Down syndrome 0 - 6 yrs old.
1:30pm -3:30pm
Includes afternoon tea
80 Weston Street, Harris Park
Email: support@dsansw.org.au
This workshop will be cancelled in the event that minimum numbers are not met
Click here for a flyer
- An opportunity to get some information about Down syndrome
- An opportunity to meet other grandparents
- An opportunity to ask questions
1:30pm -3:30pm
Includes afternoon tea
Down Syndrome NSW
Seminar room80 Weston Street, Harris Park
Free
RSVP to Judy or Lynn:
Phone: 9841 4401Email: support@dsansw.org.au
This workshop will be cancelled in the event that minimum numbers are not met
Click here for a flyer
Monday, 24 May 2010
New Minister for Ageing, Disability and Home Care
Last week's NSW Cabinet reshuffle saw a change of Ministers for Ageing, Disability and Home Care, as Paul Lynch took on new portfolios and Peter Primrose, MLC moved into the ADHC role:
- ADHC press release
- Contact details for the new Minister for Ageing, Disability and Home Care
- Full list of NSW Cabinet positions
Research: new studies on Alzheimer's disease and Down syndrome
Longitudinal study of ageing and Alzheimer's disease
Researchers at the University of Kentucky have been awarded a $US2.4 million grant to study ageing and Alzheimer's disease in people with Down syndrome over a five year period. Deatials are available here.
Links between Alzheimer's disease, cataracts and Down syndrome
A team of researchers at the Boston University Medical Centre has discovered that the protein that forms plaques in the brain in Alzheimer's disease also accumulates in the eyes of people with Down syndrome. The new findings in Down syndrome show that the toxic protein, known as amyloid-β, that causes Alzheimer's pathology in the brain also leads to distinctive cataracts in the eyes. The discovery is leading the researchers to develop an innovative eye test for early detection of Alzheimer's pathology in both disorders.
Read more here. (Note: the comment, attributed to the corresponding author of the study, Assoc Prof. Lee Goldstein, that "People with Down syndrome develop symptoms of Alzheimer's-type dementia often by the age of 30" refers to changes in the brains of people with Down syndrome, not to the clinical appearance of Alzheimer's disease, which is not known to occur in people with Down syndrome before the age of 30.)
Researchers at the University of Kentucky have been awarded a $US2.4 million grant to study ageing and Alzheimer's disease in people with Down syndrome over a five year period. Deatials are available here.
Links between Alzheimer's disease, cataracts and Down syndrome
A team of researchers at the Boston University Medical Centre has discovered that the protein that forms plaques in the brain in Alzheimer's disease also accumulates in the eyes of people with Down syndrome. The new findings in Down syndrome show that the toxic protein, known as amyloid-β, that causes Alzheimer's pathology in the brain also leads to distinctive cataracts in the eyes. The discovery is leading the researchers to develop an innovative eye test for early detection of Alzheimer's pathology in both disorders.
Read more here. (Note: the comment, attributed to the corresponding author of the study, Assoc Prof. Lee Goldstein, that "People with Down syndrome develop symptoms of Alzheimer's-type dementia often by the age of 30" refers to changes in the brains of people with Down syndrome, not to the clinical appearance of Alzheimer's disease, which is not known to occur in people with Down syndrome before the age of 30.)
Sunday, 23 May 2010
My Perspective Photographic Award
The UK Down's Syndrome Association, based in London, has announced the 25 finalists in its My Perspectives competition, for photographs taken by people with Down syndrome, saying:
The first ever My Perspective Photographic Award has been a fantastic success with over 300 images submitted. It's been pretty tough trying to whittle the images down to our top 20, so we've picked our top 25 instead ...
The finalists' photographs can be viewed online here.
The first ever My Perspective Photographic Award has been a fantastic success with over 300 images submitted. It's been pretty tough trying to whittle the images down to our top 20, so we've picked our top 25 instead ...
The finalists' photographs can be viewed online here.
FOOTBALL4ALL GALA DAY 2010
What's it all about?
Football NSW hosts an annual Football4all gala day for children and young people with special needs. The day is open to anyone involved one our special needs football programs or who are invited to attend and provides players with an opportunity to enjoy a an exciting day of football with family and friends.
With a carnival like atmosphere and at no expense to participants, players enjoy the thrill of playing small sided games against other teams as well as experiencing other activities including jumping castles, face painting, balloons, special guests and a free BBQ lunch for all participants.
The Football4all Gala Day will be held on Sunday 20 June 2010 at Glenwood. Information and entry forms are now available.
For more information contact:
Event Enquiries: Samantha on 02 8814 4456 or email samantha@footballnsw.com.au
Gala Day Entries: Kim on 02 8814 4444 or email kim@footballnsw.com.au
Football NSW hosts an annual Football4all gala day for children and young people with special needs. The day is open to anyone involved one our special needs football programs or who are invited to attend and provides players with an opportunity to enjoy a an exciting day of football with family and friends.
With a carnival like atmosphere and at no expense to participants, players enjoy the thrill of playing small sided games against other teams as well as experiencing other activities including jumping castles, face painting, balloons, special guests and a free BBQ lunch for all participants.
The Football4all Gala Day will be held on Sunday 20 June 2010 at Glenwood. Information and entry forms are now available.
For more information contact:
Event Enquiries: Samantha on 02 8814 4456 or email samantha@footballnsw.com.au
Gala Day Entries: Kim on 02 8814 4444 or email kim@footballnsw.com.au
- Further information on Football4all programs
Saturday, 22 May 2010
Stanhope Cup - Softball for All
Sunday 27th June
NSW Softball Centre
Blacktown Olympic Park, Rooty Hill
Competition starts Sunday 11th July
and continues on Sundays until 26th September
Cost $70 per person (includes Shirt and cap)
All equipment provided
Friday, 21 May 2010
Option to get Centrelink benefits weekly
New legislation now means that vulnerable Australians have the option of receiving their regular income support payments weekly, instead of fortnightly, to help them better manage their budgets. Centrelink staff are able to offer the weekly payment option to customers identified as having difficulties budgeting their payments across the fortnight under the Social Security and Family Legislation Amendment (Weekly Payments) Bill 2010.
For more information contact Centrelink:
www.centrelink.gov.au/internet/internet.nsf/contact_us/index.htm
Source: Work 'n' Care April 2010
For more information contact Centrelink:
www.centrelink.gov.au/internet/internet.nsf/contact_us/index.htm
Source: Work 'n' Care April 2010
Thursday, 20 May 2010
Library Thursdays: No more meltdowns
No more meltdowns: Positive strategies for managing and preventing out-of-control behaviour by Jed Baker (Future Horizons, 2008) is a book to help deal with behaviour problems that don't seem to respond to the usual techniques. Baker, author of the popular Social Skills Picture Books, uses a positive approach to creating plans to prevent negative behaviour. Baker has experience working with people on the autistic spectrum and although this book is not specifically for people with Down syndrome or autism, the visual learner is well suited to the approach he takes.
The strategies include accepting and appreciating your child, lowering your expectations, and distracting to reduce the behaviour when it happens. To limit the behaviours in the future the cause must be determined and Functional Behavioural Assessment (Antecedent, Behaviour, Consequence (ABC)) is used. Baker provide 15 plans of common concerns such as: refusal to eat healthy foods, doing schoolwork, cleaning up, waiting, stopping a fun activity, bullying, and going to bed. Baker provides a scaffold to create your own plan.
This book would be useful to families and teachers who struggle to figure out how to address behaviour issues. These techniques will work well with people with Down syndrome because they encourage determining the reason for the behaviour, accepting the child's limitations, teaching skills required to be successful in alternative behaviour and using visuals or whatever other supports the child needs.
Other behaviour resources:
Kathleen Feeley & Emily Jones, Strategies to address challenging behaviour in children with Down syndrome, Down Syndrome Research and Practice 2008, 12:(2) 153-163.
Stepping stones Triple P workbook and DVD
If you'd like to borrow No more meltdowns or any other resource from the library, just call or email us.
Wednesday, 19 May 2010
Child actor with Down syndrome - call out
A film producer working on a commission for Relationship Australia in partnership with the Federal Attorney General's department to produce training DVDs, has asked for our assistance in finding a young girl, 10 - 11 yrs old who has Down syndrome, for a role in one of the training films. It is about family violence (not directed towards to the child), and will not be on general public release. The child having a disability is an integral aspect of the scenario. The scenes will be filmed on one day between 8th - 11th June.
If you would be interested in following up further detail on this opportunity for a acting role, please contact Priscilla at DS NSW on 9841 4402 or priscilla@dsansw.org.au, or the director, Alissar Gazal at Pomegranite Productions, on 0414 248 857
If you would be interested in following up further detail on this opportunity for a acting role, please contact Priscilla at DS NSW on 9841 4402 or priscilla@dsansw.org.au, or the director, Alissar Gazal at Pomegranite Productions, on 0414 248 857
Tuesday, 18 May 2010
From NDIS, on the Productivity Commission's discussion paper
The Productivity Commission released their discussion paper yesterday. The paper summarises what the Commission sees as the important issues, and contains a series of questions to prompt discussion. People may choose to answer these questions in their written submissions and during public hearings.
There are a number of ways you can participate in the inquiry. You can make a formal submission or a presentation to the Commission at one of the public hearings. The guidelines for making a formal submission are available on the website below.
You can also make what is called a personal response – which is different to a formal submission. In a personal response you can choose to answer any or all of the questions in the paper based on your personal experience. The Commission will then compile all these responses into a single document. This is a shorter, more informal way to participate in the inquiry.
The issues paper contains a number of questions about a wide range of issues. It is important to remember that you do not have to answer all of the questions – just those which matter most to you. It is also important to remember that the Commission is most interested in what you would like to see in the future, rather than detailing all the ways the current system is failing. This inquiry is about a developing a blueprint for the future.
In addition to the issues paper, the Commission has produced an easy English version and a short summary document which covers the key questions. You can download all of these documents at: http://www.pc.gov.au/projects/inquiry/disability-support
We suggest that you start with the short summary document, before you look at the main issues paper, which is long and complex, and then focus on the questions that are most relevant to you.
Submissions are due at the end of June.
The dates of the initial round of public hearings have also been set. Check out the link above and find out when the inquiry hits your hometown.
Remember this is your chance to change the future of people with a disability and their families in this country. Don’t miss this important opportunity to advocate for the kinds of reforms you would like to see.
And stay tuned for more information about the growing campaign for a National Disability Insurance Scheme and how you can become more involved.
Thanks again for all your support.
The NDIS Team
(received 18/5/2010)
The Productivity Commission Public Inquiry into Disability Care and Support - link to terms of reference, discussion paper
There are a number of ways you can participate in the inquiry. You can make a formal submission or a presentation to the Commission at one of the public hearings. The guidelines for making a formal submission are available on the website below.
You can also make what is called a personal response – which is different to a formal submission. In a personal response you can choose to answer any or all of the questions in the paper based on your personal experience. The Commission will then compile all these responses into a single document. This is a shorter, more informal way to participate in the inquiry.
The issues paper contains a number of questions about a wide range of issues. It is important to remember that you do not have to answer all of the questions – just those which matter most to you. It is also important to remember that the Commission is most interested in what you would like to see in the future, rather than detailing all the ways the current system is failing. This inquiry is about a developing a blueprint for the future.
In addition to the issues paper, the Commission has produced an easy English version and a short summary document which covers the key questions. You can download all of these documents at: http://www.pc.gov.au/projects/inquiry/disability-support
We suggest that you start with the short summary document, before you look at the main issues paper, which is long and complex, and then focus on the questions that are most relevant to you.
Submissions are due at the end of June.
The dates of the initial round of public hearings have also been set. Check out the link above and find out when the inquiry hits your hometown.
Remember this is your chance to change the future of people with a disability and their families in this country. Don’t miss this important opportunity to advocate for the kinds of reforms you would like to see.
And stay tuned for more information about the growing campaign for a National Disability Insurance Scheme and how you can become more involved.
Thanks again for all your support.
The NDIS Team
(received 18/5/2010)
The Productivity Commission Public Inquiry into Disability Care and Support - link to terms of reference, discussion paper
Buddy Walk Australia 2010
Adelaide
Foundation 21’s tenth Buddy Walk on 10/10/10 !
Melbourne
Sunday 10/10/10
Canberra
Saturday 16/10/10
Brisbane
Sunday 17/10/10
Perth
Sunday 17/10/10
Sydney
Sunday 24/10/10
Newcastle, Wollongong, Wagga Wagga dates to be confirmed.
This year, plans are a foot for a number of new Buddy Walks
..… Tasmania, Northern Territory, Bendigo and other locations are all planning their first Buddy Walks
..… stay tuned!
Labels:
Buddy Walk,
Community,
DS NSW event,
Events,
Fund-raising
Monday, 17 May 2010
Proloquo2go workshop: fully booked
Our 5th June parent forum on how Proloquo2go can be used to assist people with Down syndrome to communicate is fully booked.
You can register your interest in taking up a cancellation should any arise, or for a repeat event, with Siena, on 9841 4411, or workshops@dsansw.org.au
Details are available here.
Thank you to those who have booked a place - we look forward to seeing you.
You can register your interest in taking up a cancellation should any arise, or for a repeat event, with Siena, on 9841 4411, or workshops@dsansw.org.au
Details are available here.
Thank you to those who have booked a place - we look forward to seeing you.
Coffee morning dates - Newcastle
The Newcastle Down Syndrome Support Group has organised its coffee mornings at different location and on different days of the week to cater for the schedules of many busy families, hoping you can join in at least sometimes.
From 10am
Tuesday, 25 May – Diggers @ Wallsend
Friday, 16 July – Jewells Tavern
Friday, 16 July – Jewells Tavern
Tuesday, 24 August – Warners at the Bay
Friday, 8 October – Jewells Tavern
Friday, 8 October – Jewells Tavern
Tuesday, 16 November – Diggers @ Wallsend
Everyone is very welcome!
If you are keen for quarterly evening meetings with a speaker let Anna know, and of course any interest in managing this aspect is welcome.
Contact: Anna Brown 0414 90 90 40
Labels:
DS NSW activity,
Families,
Regional NSW,
Support
"From Institutions to Community Living" Forum
The NSW Ombudsman and Disability Council NSW present ‘From Institutions to Community Living’, a free forum that will examine the plans for working with people with disabilities and their families to move from large residential centres to community based accommodation.
At the forum we will hear from individuals with first hand experience in making this move, and explore the challenges and opportunities ahead.
Date: Monday 21 June 2010
Time: 9:30am – 4:15pm
Venue: The Banquet Hall, Sydney Masonic Centre, 66 Goulburn St, Sydney.
The Sydney Masonic Centre is an accessible venue.
Cost: Free
RSVP: Places are limited so please respond by Friday 4 June to: forums@ombo.nsw.gov.au or Ph: (02) 9286 0900 or 1800 451 542. To RSVP, please provide your name, address, contact details (an email or postal address). Please specify your dietary requirements.
For further info: email: forums@ombo.nsw.gov.au or contact Eva Ph: (02) 9286 0900 or 1800 451 542.
At the forum we will hear from individuals with first hand experience in making this move, and explore the challenges and opportunities ahead.
Date: Monday 21 June 2010
Time: 9:30am – 4:15pm
Venue: The Banquet Hall, Sydney Masonic Centre, 66 Goulburn St, Sydney.
The Sydney Masonic Centre is an accessible venue.
Cost: Free
RSVP: Places are limited so please respond by Friday 4 June to: forums@ombo.nsw.gov.au or Ph: (02) 9286 0900 or 1800 451 542. To RSVP, please provide your name, address, contact details (an email or postal address). Please specify your dietary requirements.
For further info: email: forums@ombo.nsw.gov.au or contact Eva Ph: (02) 9286 0900 or 1800 451 542.
Sunday, 16 May 2010
Pensioner fee exemption for Photo Card
The NSW RTA has announced that it will now exempt pensioners from the previously imposed fee of $44 for a Photo Card. The exemption is effective from 30th April 2010. Eligible pensioners who applied for ID Cards after December 17 and were charged the $44 can go into their local motor registry and apply for a refund.
The NSW Photo Card is a voluntary identification card for people who do not hold a current NSW driver licence or other form of photo identification, to help them prove who they are.
The Photo Card )was introduced in December 2005 and replaced the proof of age card. Previously there were no pensioner concessions for photo cards.
Source: i:D … BULLETIN OF THE DISABILITY COUNCIL OF NSW, May 2010
The NSW Photo Card is a voluntary identification card for people who do not hold a current NSW driver licence or other form of photo identification, to help them prove who they are.
The Photo Card )was introduced in December 2005 and replaced the proof of age card. Previously there were no pensioner concessions for photo cards.
Source: i:D … BULLETIN OF THE DISABILITY COUNCIL OF NSW, May 2010
NEW DVD: A Place to Call Home: talking about devolution
Produced by Disability Enterprises Leura
The DVD will assist families, community groups, service providers and students in discussing devolution and its critical role in enabling a person with a disability to live a full life in their community.
A trailer for the DVD can be viewed here.
Mr Paul Lynch MP Minister for Ageing, Disability and Home Care will be launching ‘A Place to Call Home: talking about devolution’
Date: 24 May 2010
Time: 9:30am – 2:00 pm
Venue: The Sydney Masonic Centre, 66 Goulburn St, Sydney.
Attendance: Free
Morning tea and lunch provided.
Registration is essential by 17 May 2010.
To Register: Phone: 4784 1118 to leave details; or email: info@disabilityenterprises.com.au and provide your name, address, organisation, phone number and email address. The DVD will be for sale from the date of the launch for $30 for individuals and $70 for organisations. Price includes postage and handling.
A Place to Call Home: talking about devolution records the journeys of some of the residents, families and staff of Greystanes Children’s Home, a large residential facility that devolved into a range of community based services.
Other parents whose adult children still reside in institutions also share their hopes and fears of a future life in the community; and Jan Daisley, a leading advocate for people with disabilities, provides a personal insight into institutional care and her quest to find her own "place to call home".
A trailer for the DVD can be viewed here.
Mr Paul Lynch MP Minister for Ageing, Disability and Home Care will be launching ‘A Place to Call Home: talking about devolution’
Date: 24 May 2010
Time: 9:30am – 2:00 pm
Venue: The Sydney Masonic Centre, 66 Goulburn St, Sydney.
Attendance: Free
Morning tea and lunch provided.
Registration is essential by 17 May 2010.
To Register: Phone: 4784 1118 to leave details; or email: info@disabilityenterprises.com.au and provide your name, address, organisation, phone number and email address. The DVD will be for sale from the date of the launch for $30 for individuals and $70 for organisations. Price includes postage and handling.
Adam's influence ....
An interview with Richard Wilkins in today's Sunday Herald Sun opens with the influence of his eldest son, Adam, who has Down syndrome, and was born when Richard was just 18. He says,
"Adam gave me a reason to want to succeed while giving me an anchor to keep my feet on the ground." Read the interview here.
Richard Wilkins is a generous supporter of Down Syndrome NSW - he acted as MC at the gala event Comedy is King in 2009.
"Adam gave me a reason to want to succeed while giving me an anchor to keep my feet on the ground." Read the interview here.
Richard Wilkins is a generous supporter of Down Syndrome NSW - he acted as MC at the gala event Comedy is King in 2009.
Saturday, 15 May 2010
Leading the way
Children's News is an in-house publication of Children's Hospital, Boston. The lead article in the latest issue (April 2010) will resonate with families way beyond Boston:
Download the article here (you'll get the whole publication, the article about Ben Majewski is worth reading all the way through, p1 and part of p4 - the best bit is at the end, and the photos are worth seeing.)
Children’s new star player
The young couple in the waiting room of Children’s Hospital Boston’s Down Syndrome Program looks nervous. It’s the first time they’ve brought their 8-month-old son, Sam, to the clinic, and they’re uncertain just what to expect. But when Clinic Coordinator, Angela Lombardo, introduces them to Ben Majewski, 19, the clinic’s new resource specialist, they relax almost immediately.
Download the article here (you'll get the whole publication, the article about Ben Majewski is worth reading all the way through, p1 and part of p4 - the best bit is at the end, and the photos are worth seeing.)
Labels:
Families,
People with Down syndrome,
Publication,
Support
Friday, 14 May 2010
Christopher Bunton, gold medallist!
The National Special Olympic Games were held last month in Adelaide. Many of the athletes competing were people with Down syndrome. We congratulate them all on their participation and their achievements.
Highlights from the games are available in online videos on the Special Olympics Australia website. You might see one or two familiar faces in the slide show of the top of the page.
Among NSW athletes, Christopher Bunton was very successful, as you will read in this story in his local newspaper, the Penrith Star. Christopher won seven gold medals in men's gymnastics - and he's only 17!
Christopher has a lot of experience in high level gymnastics competition - this photo (by Tony Stinson) was taken during competition at the World Special Olympic Games in Shanghai in 2007, and we were fortunate to have it on the cover of our quarterly Newsletter for Summer 2007 - 2008:
Highlights from the games are available in online videos on the Special Olympics Australia website. You might see one or two familiar faces in the slide show of the top of the page.
Among NSW athletes, Christopher Bunton was very successful, as you will read in this story in his local newspaper, the Penrith Star. Christopher won seven gold medals in men's gymnastics - and he's only 17!
Christopher has a lot of experience in high level gymnastics competition - this photo (by Tony Stinson) was taken during competition at the World Special Olympic Games in Shanghai in 2007, and we were fortunate to have it on the cover of our quarterly Newsletter for Summer 2007 - 2008:
Thursday, 13 May 2010
Library Thursdays: The New Social Story Book
Carol Gray developed the Social Stories formula for use with people with autism. These stories are also of great use with people with Down syndrome to help understand social expectations, learn new skills, and work through difficult situations or concepts. It has been 10 years since Carol Gray published her first Social Story book and the library has just received the anniversary edition of the New Social Story Book.
There are over 150 stories in this book plus a detailed tutorial at the front to tell you how to write your own. There is also a CD with the stories and pictures in the book in PDF format so that you can print some out and there are also the stories with words only in Word format so that you can customise them for your child and add your own pictures.
The stories cover the following subjects: Change, Mistakes, Me and My Feelings, Celebrations and Gifts, People Skills and Friendship, Bullying: What to Think, Say and Do, Understanding Adults, Home and Community, School and Planet Earth. Some of the stories are: "Mistakes can happen on a good day", "We're going to a big family party", "Thanking people for the nice things that they say", "How to lose a game and win friends", "It may not be fun but it has to be done", "Taking a shower in ten steps", and "When my teacher is somewhere else".
It is a good collection and will make it easier to create the stories you need for your situation.
Wednesday, 12 May 2010
Notice of cancellation: Starting School
The DS NSW parent workshop, Starting School, scheduled to be held on Saturday 15th May 2010 at Parramatta has been cancelled.
All enquiries: Siena O'Brien workshops@dsansw.org.au or 9841 4411
All enquiries: Siena O'Brien workshops@dsansw.org.au or 9841 4411
Tuesday, 11 May 2010
From Ruth Paillas at Ashfield Council (Ageing and Disability Services):
On behalf of members of the newly named Inner West Disability Forum, I would like to invite you to our Official Launch to be held on Thursday 13th May, 11am – 1pm and hosted by FRANS Inc. in Croydon. The Launch will promote the Inner West Disability Forum and its renewed image, focus, structure, purpose and energy in 2010.
On Thursday 13th May, Julie McCrossin will be facilitating the Launch accompanied by a panel of guests with varied and vast knowledge and experience. Julie has a strong public profile and is committed to justice and diversity.
Discussion will engage with people attending, their experiences and their stories; it will provoke ideas around collective representation and advocacy; it will provide a setting for the future work and purpose of the Inner West Disability Forum.
FRANS (Family Resource and Network Support) is hosting this event with the purpose of providing an appropriate venue and as an indication of their support to the Inner West Disability Forum.
FRANS is located at 113-119 Edwin Street North in Croydon.
To RSVP for this event please contact Ruth Paillas at Ashfield Council on 9716 1842 or email ruthp@ashfield.nsw.gov.au
Sunday, 9 May 2010
Thursday, 6 May 2010
Library Thursdays: Friendship Resources
Associate Professor Keith McVilly from Deakin University presented a seminar on friendships for people with Down syndrome on the weekend. As well as confirming the importance of friendships for every person and the difficulties faced by people with disabilities making and maintaining friendships, Ass. Prof. McVilly spoke about what friends are and strategies to help friendships occur and prosper. Research has found that the best long term friendships come from school and faith-based communities. He recommends using social stories, finding out what the person is interested in, finding others who share those interests and teaching useful social skills. He spoke about setting up circles of friends and support groups. These work best when initiated from home or in primary schools. He spoke about setting up a register of people and interests to match them. Small groups discussed all these ideas and set everyone thinking about other ways to support and foster friendships. Down Syndrome NSW will be looking at ways in the future to develop and support some of these ideas and inform our members of what others are doing. We look forward to hearing about your plans.
Ass. Prof. McVilly's articles, I get by with a little help from my friends and Self-advocates have the last say on friendships can be borrowed from the library.
Other resources in the library on creating circles of friends and peer support groups include:
Peer Support strategies for improving all students' social lives and learning by Erik W. Carter, Lisa S. Cushing & Craig H. Kennedy (Paul H. Brookes, 2009).
(This book is reviewed by Terri Mauro here)
An article by Erik Carter, Friendship Matters: Fostering Social Relationships in Secondary Schools, TASH, Nov/Dec 2008 can be accessed here.
Peer Buddy Programs: For Successful Secondary School Inclusion by Carolyn Hughes & Erik Carter (Paul H. Brookes, 2009). Setting up and maintaining peer buddy programs in high schools.
Creating Circles of Friends: A Peer support and inclusion workbook and Circles of Friends DVD by Colin Newton (Inclusive Solutions, 2003.)
Inclusive Solutions website also has some articles of interest.
If you would like to borrow any of these resources or any others or want more information, just email or call us.
Wednesday, 5 May 2010
ACTDSA Maths Workshops: 14th and 15th May
1. A workshop for teachers and teacher assistants supporting children with Down syndrome
Friday 14th May 20102. A workshop for parents and carers supporting children with Down syndrome
Saturday 15th May 2010
Venue for both events:
Australian Catholic University
Corner of Phillip and Antill Streets, Watson, ACT
Guest speakers: Dr Rhonda Faragher, and Theresa Shellshear
For further information please contact Karen Garrity: karengarrity@homemail.com.au or 0427 355 181
Tuesday, 4 May 2010
Scrapheap Adventure 2010: Trail Bikes Adventure Magazine article, Part 1
Will publicity like this just encourage them?
We sure hope so!
Scrapheap Adventure 2011 is already on the drawing board ....
Trail Bikes Adventure Magazine has published Part 1 of a two part article about chief Scrapheap Adventurer, Perry Gilsenan, the scrapheap bikes, and the event he organised to benefit Down Syndrome NSW last month - raising more than $20,000.
Monday, 3 May 2010
Best Documentary at Tribeca: Monica and David
The award for the Best Documentary (and the $25,000 prize) at the Tribeca Film Festival in New York has gone to Monica and David, a film made in the lead to the wedding of two young people with Down syndrome. The film's website includes a trailer, news about its production, release and screenings, commentary and responses to the film.
Labels:
Arts,
Film,
lifestyle,
Media,
People with Down syndrome
Building Strengths in Children with Special Needs: a talk for parents
This talk, hosted by The Spastic Centre, is for parents who have a child with a disability, between the ages of 7 to 14 years. Information will be provided on how parents can help their child to:
Presenter: Heidi Jarvis, Psychologist
The Spastic Centre, University of Western Sydney - Penrith Campus
Building G, Second Ave, Kingswood
RSVP: Friday 7 May 2010
Alissa Griffiths: 9479 7225 or agriffiths@tscnsw.org.au
- Learn more about their feelings and how to talk about them
- Learn new coping skills and behaviours
- Develop life skills to confidently manage stressful situations
Presenter: Heidi Jarvis, Psychologist
Friday 14 May, 10am -12pm
The Spastic Centre, University of Western Sydney - Penrith Campus
Building G, Second Ave, Kingswood
RSVP: Friday 7 May 2010
Alissa Griffiths: 9479 7225 or agriffiths@tscnsw.org.au
New blog with a focus on communication
Jennifer Bekins is a speech and language pathologist at the Jane and Richard Thomas Centre for Down Syndrome in Cincinnati. She has started a blog about communication and people with Down syndrome, Communication Skills for Life. She explains that her interest arises from life with her three siblings with Down syndrome. Well worth a book mark.
Labels:
Communication,
People with Down syndrome,
Siblings
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