Friday, 21 April 2017

Weekend reading and viewing: 22 - 23 April 2017




The parent essay or memoir on discovering one's child is not typical in some fashion is at once among the most common disability-related genre and one of the most difficult to do well. Of necessity, the essay has to move through ableist ideas about normality, encounter the challenges of having a disabled child, and then come out the other side of that encounter with ... wisdom? Hopefully, wisdom ...
David Perry, How Did We Get Into This Mess? 
17 April 2017

... As I recall the many stories I’ve read or heard over the years, I can’t help but ask this question: What is the big deal about Down syndrome, anyway? ... My husband listened to my rhetorical questions and offered his opinion: “Because it’s not easy. Parenting a child with Down syndrome takes a lot of work.” And while I wasn’t looking for an answer from him, per se, his answer exposed the truth about why our world wants to wipe Down syndrome from our midst: fear ...
Chasing Genuine, 17 April 2017

... It is wonderful that so many people with Down’s syndrome are accepted and celebrated in society. There are more possibilities now than there were even just 20 years ago, but there is another side to the story. There are some people that have more than just Down’s syndrome, who have a dual diagnosis of Autism and Down’s syndrome, those that are not always understood and treated fairly ... Parents of these children and adults can often feel as we do, that we are stuck in No-Man’s-Land. We adore Ethan and what I describe here is an open and honest account of our family experience ...
Nicky Holmes, DSA (UK) Journal
#133, Spring/Summer 2016

... They never spotted her loneliness and therefore never realized the vulnerability that comes with it ... no one teaches staff about the fact that people with visible intellectual disabilities have a target on their back and need a different kind of support when living independently in the community. Inclusion has sharp edges, but no one ever spoke to the staff about them and no one taught her how to avoid them ...
Dave Hingsburger, Of Battered Aspect 
17 April 2017

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