Friday, 17 January 2014

Weekend reading and viewing: 18th - 19th January 2014


The Girl with Down Syndrome
Michael Bailey, 1998 - reposted as a Facebook note, 12th January 2014
... A statue of a young girl with Down syndrome.The features unmistakable over the millennia and smiling happily and shyly at the artist. The rendering clearly not the work of a simple artisan but rather of an accomplished sculptor and one who clearly loved this little girl. Everything about her done to flatter and highlight her features and show her calm loving and childish gaze ...

If you cannot access this piece on Facebook, click here to read the full text of the article.

The 1000 miles of Luca (video, 9 m)
Pablo Poncini, TWBA, 15th January 2014
... “And then little by little the Down syndrome disappeared and Luca appeared” ...
Matt Bowen, The Gazette, 13th January 2014 (republished from 2011)
... Not many fathers have to fall back in love with their kids. I did. And I am man enough to admit that I struggled with Matthew’s diagnosis to a point where I didn’t know what to do. Norm changed that ...

Down syndrome? Maybe she'll go to the moon
Bret Bowerman, CNN, 14th January 2014
... Recently, we asked Ellie's older brother, "Do you remember what it means for Ellie to have Down syndrome?" "Yes," he answered. "It means she can go to the moon. But it's not fair, why does Ellie get the extra 'chrome?'" ...

Father's Beautiful Journey With Son Who Has Down Syndrome Will Make Your Heart Soar
Ron Dicker, The Huffington Post - Parents, 14th January 2014
... "Little by little, the Down syndrome disappeared and Luca appeared," the father recounts tenderly in the (video) clip (that accompanies the story)...

Why Does Our Culture Celebrate Down Syndrome?
Amy Julia Becker, Thin Places, 13th January 2014
... the “two stories” of Down syndrome. One story is a story of eradication–an increasing number of women who have access to technology for prenatal diagnosis of Down syndrome who then choose to terminate. The other story is one of inclusion–increasing supports for individuals with Down syndrome and their families at school, through medical advances, and in the workplace ...

Using whatever helps for communication
Aileen Ryan,  Key Word Signing and Proloquo2Go, 17th January 2014
... Sign language was very needed (by Elysha) and the sad point was that we had to fight for it every step of the way once Elysha reached school age. Why did we have to fight so hard? Because she wasn't Deaf enough and the  (NSW) Department of Education don't take into consideration the need for sign language for children with speech and/or developmental delay (beyond the very very basics) ...


Tiffany Carlson, Huff Post Impact, 10th January 2014
No matter the type of person, there are lessons to be learned from them. People with disabilities are especially influential, as our hardships in life aren't easily forgotten. We go through every day with determination and strength, which many people are bowled over by, with many secretly wondering if they could do the same thing.

People with a disabilities learn so much throughout their lives; life lessons that able-bodied people rarely get to experience ...

Employment and Disability: a complex problem with no simple solution
Dr George Taleporos, Ramp Up 13th January 2014
Workforce participation of people with disability has been in the spotlight recently, with the Australian government announcing a review of the Disability Support Pension. Dr George Taleporos explores the issues and looks into some major government and business reforms to increase employment opportunities for people with disabilities ...


The Arc and UCP React to Offensive Language to People with Disabilities in 'The Wolf of Wall Street'
The ARC, 13th January 2014
The Arc and United Cerebral Palsy released the following statement in response to the use of the r-word and the offensive depiction of cerebral palsy in the new film The Wolf of Wall Street ...

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