Friday, 23 May 2014

Weekend reading and viewing: 24th - 25th May 2014

Each heading is a link:

Call the Midwife (series 3, episode 6, 59 m)
ABC iView, broadcast 22nd May 2014
In case you missed it, or want to see it again, this is the episode featuring Sarah Gordy (who has Down syndrome) and Colin Young (who has cerebral palsy) as a young couple having a baby in the 1950s in the East End of London. It is now on iView until 5th June.

Down syndrome: Why I don't want my child to hug everyone
Maureen Wallace, She Knows (Parenting), 22nd May 2014
... A boy of about 8 years old, with Down syndrome, was racing from tent to tent, barging in and wreaking havoc. Each time he was admonished, he ran to the closest person and hugged them. The cute gesture seemed to negate his poor behavior, and he was allowed to continue. Now that my own son is 4 and is getting positive reinforcement for hugging everyone, I've realized my son, who was "never going to do that," is on the path to becoming a random hugger, too ...

What Independence Means
Big Blueberry Eyes, 21st May 2014
... I've been thinking about independent living - what that might look like for Kayla, but more importantly what Kayla wants that to look like for her life ...

7 Awesome Life Lessons My Son With Down Syndrome Taught Me
John M Simmons, Huffington Post (Parents), 21st May 2014
... My son didn't progress quickly, but he did progress. If I tried to measure him against his siblings and the rate that they learned, there could only be disappointment. But when we celebrated Jack's accomplishments for what they were to him, and measured them against his own challenges, advancement for him was at least as impressive as it was for any of our other children ...
Our story: nothing has changed about Down syndrome, except how the world treats those with it
Mark Leach, Down Syndrome Pre-natal Testing, 19th may 2014
This past Saturday, our family got to experience something that would have been unimaginable when I was born. It shows nothing has changed about Down syndrome, except the way the world treats those with Down syndrome ...

In Science of Down Syndrome, Another Piece of the Puzzle
Vicki Vila, Thoroughly Modern Messy, 20th May 2014
A few news articles recently reported that after studying a pair of identical twins where only one had Down syndrome, scientists in Europe determined some new information about how having Trisomy 21, a third copy of the 21st chromosome, affects a person’s genetic material. Myself and some other parents who have children with Down syndrome were unsure what this research meant and were confused by some of the wording in these articles. To decipher this for my non-scientific brain, I contacted Dr. Michael Harpold, who has more than 35 years experience as a biomedical researcher and is the chief scientific officer for LuMind Foundation ...

Conversation - Andrew Solomon 
Richard Fidler, Conversations (ABC Radio), Tuesday 20 May 2014
Andrew Solomon spent a decade speaking with 300 parents raising children who are exceptional, unusual or difficult. Working on what would become his award-winning book, Far From the Tree, Andrew talked to families of children who are different from their parents: children born deaf, or autistic, or transgender, and parents of child prodigies, and criminals.
He's come to the conclusion that all of us have 'vertical identities' and 'horizontal identities'.
Vertical identities are the bits we get from our parents: our religion, race and nationality.
Horizontal identities are the characteristics that are ours alone and are often the hardest parts for parents to accept ...
Audio file (51m 47s)
"She Won't Get Anything Out of It" and Other Mainstreaming Blunders
Susan Aileen, SwiftTalk (The Classroom), 20th May 2014
... The practice of mainstreaming indirectly promises a child that someday, if she performs well in the special education classroom, she will become a member of a general education class. Mainstreaming teaches children that belonging is conditional. In other words, if you “act right” when you visit the general education classroom, you can belong. If you don’t “act right,” you will have to leave, and if you are lucky you will be given a chance to try again to belong on another day ...

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