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Down Syndrome NSW
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Monday, 23 June 2014

Research news and commentary #7 for 2014

To stay or go: living with a disability in rural Australia
University of Sydney News, 19th June 2014
Rural families in Western NSW who have a child with a disability are faced with difficult decisions about whether or not to stay in their communities, according to a study by the University of Sydney.

"The lack of access to therapy services such as speech and physiotherapy in rural Australia often means families are forced to compromise on services if they decide to stay," said Dr Angela Dew from the Faculty of Health Sciences.

"It's testament to the sense of community of small rural towns that many people do stay when faced with such limited options'
... read more
(Congratulations to DS NSW member Vicki Happ from Western NSW on her part in writing this report.)

Down Syndrome Research Forum 2014
The Department of Psychology at Lancaster University is hosting the 2014 Down Syndrome Research Forum on 24 and 25 September in collaboration with Down Syndrome Education International. The Down Syndrome Research Forum provides an opportunity for researchers active in areas related to Down syndrome and those working with people with Down Syndrome to meet, share ideas, and discuss recent findings and implications for practice.

Bookings are now open, and a call for papers has been issued ... read more

Dr Maggie Woodhouse receives OBE
Down's Syndrome Association (London), 18th June 2014
Dr Joy Margaret (Maggie) Woodhouse from the School of Optometry and Vision Sciences at the University of Cardiff has been awarded an OBE for services Optometry and people with disabilities in the Queen's Birthday Honours List.

For over 20 years Dr Woodhouse has been running a study of visual development in children and young people with Down's syndrome at the University of Cardiff
... read more

(US) Down Syndrome Registry
A short video overview of the Down Syndrome Registry - US based, but the research resulting from its establishment will  benefit people with DS worldwide, in the longer term

Centre for Disability Studies - research on intellectual disability and anxiety
Do you have a mild intellectual disability and experience anxiety?
The Centre for Disability Studies (University of Sydney) is looking for adults with a mild intellectual disability aged 18 years old and older who experience anxiety to participate in a research study on treatment for anxiety.
If you would like further information, or to be involved, please contact Lynette Roberts at

Lines of Inquiry #3, May 2014
... the regular newsletter of NDS’s Centre for Applied Disability Research (CADR).

The Compose study is a ...
"research from Stanford University, funded in part by the Down Syndrome Research and Treatment Foundation, (that) has identified BTD-001 for its potential to improve memory, language, and learning in people with Down syndrome.
We are now running a clinical study for persons with Down syndrome age 13 to 35 years old to evaluate whether BTD-001 treatment has any effectiveness.
The Study is currently approved in Adelaide, Launceston, Melbourne, Perth, Sydney, and Wollongong. Sites in other locations are planned" ... read more

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