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Wednesday, 30 November 2016

Research news and commentary #12 for 2016

Culture in Better Group Homes for People With Intellectual Disability at Severe Levels
Christine Bigby and Julie Beadle-Brown, Intellectual and Developmental Disabilities: October 2016, Vol. 54, No. 5, pp. 316-331.
Building on cultural dimensions of underperforming group homes this study analyses culture in better performing services. In depth qualitative case studies were conducted in 3 better group homes using participant observation and interviews. The culture in these homes, reflected in patterns of staff practice and talk, as well as artefacts differed from that found in underperforming services ...
  • The full text is available without charge online.
  • Note that this article builds on two earlier articles about culture in group homes, cited in this article.
 Do Equine-assisted Physical Activities Help to Develop Gross Motor Skills in Children with the Down Syndrome? Short-term Results
Sergiy Voznesenskiyet al, Procedia - Social and Behavioral Sciences, Volume 233, 17 October 2016, Page 508
Background. Equine-assisted physical activities are believed to improve the physical, psychological, and social wellbeing of special needs populations. Methods. A study was conducted to assess the effect of an equine-assisted physical activity and an adaptive horseback riding program in comparison with conventional adapted physical education designed to develop gross motor skills measured by the Gross Motor Function Measure (GMFM-88) in children with Down syndrome in a special education institution ...
  • The full text is available without charge online, under a Creative Commons Licence.
Non-invasive Prenatal Testing and the Unveiling of an Impaired Translation Process
Blake Murdoch et al, Journal of Obstetrics and Gynaecology Canada,
Non-invasive prenatal testing (NIPT) is an exciting technology with the potential to provide a variety of clinical benefits, including a reduction in miscarriages, via a decline in invasive testing. However, there is also concern that the economic and near-future clinical benefits of NIPT have been overstated and the potential limitations and harms underplayed. NIPT, therefore, presents an opportunity to explore the ways in which a range of social pressures and policies can influence the translation, implementation, and use of a health care innovation ...
  • The full text available without charge online 
Assessing health needs of children with intellectual disabilities: a formative evaluation of a pilot service
Jacqueline Milne, et al, Research and Practice in Intellectual and Developmental Disabilities, Published online: 18 May 2016
Children and adolescents with intellectual disabilities commonly have unmet complex health needs. Their parents often experience barriers in locating and accessing services to assist in diagnosing and managing those needs. In response to this service gap, a pilot Paediatric Assessment Clinic was established under the auspices of a large paediatric hospital, to offer a comprehensive disability health service for children aged 6 to 18 years with intellectual disabilities and complex health needs ...
Cambridge Intellectual and Developmental Disabilities Research Group, Cambridge University, 17 May 2016
A group of Cambridge University researchers have made a film alongside people with Down’s syndrome to show that there is only one way we can defeat dementia; Together. Researchers from the Cambridge Intellectual and Developmental Disabilities Research Group (CIDDRG) have been investigating the links between Down’s syndrome and dementia for almost two decades. Most recently, they have focused their efforts on using state of the art imaging techniques to look at the brains and the eyes of people with Down’s syndrome in the hope of finding a biomarker for Alzheimer’s disease ...

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