Friday, 4 November 2016

Weekend reading and viewing: 5 - 6 November 2016

Joyous recognition: a lesson from my father
Chesapeake Down Syndrome Parent Group, 30 October 2016
... their quiet insistence, through their actions and words, that this was an occasion for laughter and joy just like any other birth, enabled me to snap out of whatever self-centered sorrow I was in much quicker than I would have on my own. It enabled me to spend those first days meeting my daughter and falling in love with her, because it enabled me to be aware of her diagnosis without it obscuring this actual adorable new little person who was going to call me "daddy" ...

Why is Down syndrome a syndrome?
Mark Leach, Down Syndrome Prenatal Testing, 9 October 2016
... Syndromes, however, are named that because the underlying cause for the condition is unknown. ... In the case of Down syndrome, though, the use of the word “syndrome” is outdated and regrettable.It’s outdated because the cause of the condition described by the characteristics of the syndrome has been known since the 1950’s. Down syndrome is not caused by the individuals having intellectual disability, a penchant for mimicry, or a single crease across the palm. It’s caused by an extra copy of the 21st Chromosome, most commonly Trisomy 21 ...
thesassysoutherngal, 25 October 2016
... The lack of meaningful inclusion extends past the education setting though. Beyond the walls of school the first place many parents of children with disabilities are directed is to segregated choirs, sports and church activities. Many of you would join me in sharing stories of the hurts and challenges of mainstream community activities and church. It would be easier to go another route. So if you are looking for easy, there is probably an easier path. However, I haven’t found a magic pill or magic carpet yet ...

Jamie’s place
Michael Bérubé, Aeon, 1 November 2016
Like any adult, my son wants to work, travel and socialise, and his Down syndrome won’t stop him. But can he live independently?
To the Special Needs Mother: this was you all along
Kat Abianac (guest blogger), mummalove, 30 October 2016
... of course Parker changed my life. That’s a bona fide understatement. He came charging in that day in the delivery room, turned me on my head and flipped out my pockets. He laid bare every one of my emotions, forcing me to carefully evaluate and analyse myself. He didn’t do any of this personally – he was an infant. And this is where people misunderstand the rainbows and unicorns of legend ...

StarJam video of flashmob performing Gaga's 'Born this way'
StarJammersNZ, Published 8 August 2012
The Jammers spring a surprise with a flashmob version of Lady Gaga's Born This Way.

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